Re: Anyone without improvements for a few months at first?

February 3, 2004

One more thing: Maybe I should mention what we've done so if I've

done something wrong, someone can point it out.

He did the intro diet for a few days at the start (3 days strict I

think). He actually struggled coming off the intro diet and so we

stayed on it for about 10 days more but tried to introduce a few

things from Stage 1. After about 2 weeks, he started tolerating

some apples, pears, squash, watered down white grape juice, etc.

He's now eating basically meat, veggies and has some fruit for

dessert. He can tolerate muffins with almond flour and pecan meal.

His snacks are watered down grape juice popsicles, peanut butter,

small amounts of fruit and occasionally a cashews. Since he can't

have eggs we've stayed away from baking almost completely and when I

do I substitute squash for the eggs. I've even switched all his

supplements and he's completely SCD legal from what I can tell.

We've taken it very very slow introducing new foods and there are

still quite a few he's not eating.

Thanks again.

Sondra

> Hi all. My kids have been on the diet just short of 2 months.

I've

> been reading posts the entire time and most people start seeing

the

> benefits within days or at least within the first few weeks. My

son

> is still struggling and I'm wondering how much his stomach is

really

> healing. We haven't seen any real changes at all with my daughter

> but she doesn't have the severe gut problems he does.

>

> Shouldn't he be doing a little better by now? I thought he was at

> first but now he's doing poorly again. His diarrhea is back, he's

> edgy, he's complaining more lately that his stomach hurts and even

> crying saying that his stomach isn't getting better.

>

> Are there others out there that didn't see results the first 2

> months? Or should I start considering a prescription anti-

> inflammatory to help him? Would that help the healing?

>

> Thanks,

> Sondra

> Mom to Stevie 6 yrs old with Leaky Gut, Food allergies, Chronic

> Diarrhea for almost 6 years, stomach pain, etc.

> And Sara 3-1/2 yrs old with Moderate Autism and some yeast

> overgrowth - SCD for 7 weeks.

February 3, 2004

I guess my question would be, how can you tell he is " tolerating "

all those foods, if he is in pain, having diarrhea, and acting

edgy? I don't mean to be flip, and I can't seem to make this sound

sincere and not accusatory, so please believe me, I am trying to

truly ask a question, not accuse.

You don't need to answer here, I'm suggesting you think about what

you are using as a guage for what he tolerates and doesn't tolerate,

and see if that gives you any clues.

I do agree that it seems you have gone very slowly, and yes it seems

he should be better.

In our case, I was lucky, and Adam started having trophies after a

week. So now when he has any instance of softer stools, OR cranky

or uncooperative behavior (his " worst " feature), I take that as a

sign that something is wrong - if I recently introduced or increased

a food, I guess that it is not well tolerated.

We are going pretty slow with Adam as well. After 3 months he still

eats everything cooked. I haven't gone much beyond the basic fruits

(apple, pear, banana). I have used nut butter and nut flour. A

little seemed fine, however now after a cold his stools are still

not as good as they were, and I put him back on the intro diet for

two days, and am trying to work up again slowly (very boring, I

know).

I do also know that some parents have had to give natural

antifungals and/or natural anti-bacterial products as well as SCD.

I'm sorry I can't be more helpful. Can you do an OAT to see what

you are dealing with? Or perhaps try some natural anti-whatever

you choose? I know it is a lot of work to see no change, and it is

very stressful to see your child in pain.

-- Sue, mom to Adam and

February 3, 2004

" His diarrhea is back, he's edgy, he's complaining more lately that

his stomach hurts and even crying saying that his stomach isn't

getting better.

He's now eating basically meat, veggies and has some fruit for

dessert. He can tolerate muffins with almond flour and pecan meal.

His snacks are watered down grape juice popsicles, peanut butter,

small amounts of fruit and occasionally a cashews. "

Sondra,

His symptoms are saying that he is not tolerating all of the foods

that he is eating. You didn't mention whether the fruit for dessert

is peeled, seeded and cooked. Are the veggies cooked as well? You

also mention cashews. Raw nuts are very difficult to digest and

should not be introduced when there are no intestinal issues.

Go back to the intro for a day or two and this time keep a food log.

Track stool and behavior and his comments about his tummy for EACH new

food that you add. Only add one new food every 2-3 days.

You should be able to figure out which foods he really can tolerate by

doing this.

Jody

mom to -5.1 and -7.5

February 3, 2004

Sondra,

I agree that you definitely need to get back to intro or very close to it. If

he's in pain and having diarrhea, he's not tolerating something. Don't give up

on SCD... but take the pain and diarrhea as your signs that you need to scale

back and hang out on really very, very simple fare for longer. I still give

Katera only cooked foods....and only rarely something with nut flour..... and

we've been on the diet since April 15th, 2003. You might be able to keep the nut

butters, but take out the nut flours for now, just as one suggestion.

Patti, mom to Katera, SCD 9 months

----- Original Message -----

He can tolerate muffins with almond flour and pecan meal.

His snacks are watered down grape juice popsicles, peanut butter,

small amounts of fruit and occasionally a cashews

February 3, 2004

> " His diarrhea is back, he's edgy, he's complaining more lately that

> his stomach hurts and even crying saying that his stomach isn't

> getting better.

>

> He's now eating basically meat, veggies and has some fruit for

> dessert. He can tolerate muffins with almond flour and pecan meal.

> His snacks are watered down grape juice popsicles, peanut butter,

> small amounts of fruit and occasionally a cashews. "

>

Sondra,

I agree with the other suggestions about perhaps cutting back on the

harder to digest foods. I am an adult with CD doing this diet, and for

the first 3 months I could not tolerate any veggies but carrots, green

beans, and spinach. Squash was OK if I only ate it 1-2 times a week.

And all of the nut products, especially peanut butter, gave me terrible

gas and a loosening of stools. I also could not eat apples,or any other

fruit, and bananas would give me gas, but not loose stools, so I just

ate them once a week for variety and suffered that night.

I have also had to use medication along the way, and now at 6 months, I

am tolerating some almond flour. The peanut butter cake was delicious,

but alas, I now have pain and gas again, so peanut butter is out for

now. I had to return to the intro about 6 times, and had about 6 viruses

that worsened progress along the way, as well as each menstrual cycle.

I feel for you and your son; it is very discouraging and extremely

monotonous to eat such a small variety of foods. I tried to make it

interesting by changing the texture of the foods; ate chicken vegetable

pancakes for breakfast, whole chicken with vegetables at lunch, soup for

dinner, you get the idea. Each regression was accompanied by doubt and

disapointment, and I got encouragement from this and the other list,

which really helped me hang in there.

Hopefully you can figure out a simpler plan for your son, or maybe find

some medication that helps control his symptoms while he heals. . I

now can eat yogurt, honey, and cooked apples, and each addition of food

makes me SO appreciative. I feel as if I am in heaven when I eat a bite

of cobbler. Just trying not to eat the whole pan; my challenge at the

moment.

Debora

February 3, 2004

Sondra,

I know how frustrated you must feel, but hang in there. With Hannah,

she did awesome at first, but we were also treating her with flagyl

and diflucan for bacterial and yeast overgrowths. During the four

months we've been on the diet, she's had many ups and downs, but the

downs ALWAYS coincided with " bad poops " . SHe tolerated almond flour

at first, but later didn't so we removed it. We still cook fruits

and veggies, no nut fours, mostly meat and veggies...anyway, we have

had to implement some " natural antifungals " and that has made a huge

diffrence. Just recently, her stools started to slowly soften, so I

started back on the natural anti-fungals and things poops solidified

again as did her behaviour and speech. I don't know if that's an

answer or not, but just wanted to share.

Brandee

mom to Hannah, 34 months, scd 4 months

> Hi all. My kids have been on the diet just short of 2 months.

I've

> been reading posts the entire time and most people start seeing the

> benefits within days or at least within the first few weeks. My

son

> is still struggling and I'm wondering how much his stomach is

really

> healing. We haven't seen any real changes at all with my daughter

> but she doesn't have the severe gut problems he does.

>

> Shouldn't he be doing a little better by now? I thought he was at

> first but now he's doing poorly again. His diarrhea is back, he's

> edgy, he's complaining more lately that his stomach hurts and even

> crying saying that his stomach isn't getting better.

>

> Are there others out there that didn't see results the first 2

> months? Or should I start considering a prescription anti-

> inflammatory to help him? Would that help the healing?

>

> Thanks,

> Sondra

> Mom to Stevie 6 yrs old with Leaky Gut, Food allergies, Chronic

> Diarrhea for almost 6 years, stomach pain, etc.

> And Sara 3-1/2 yrs old with Moderate Autism and some yeast

> overgrowth - SCD for 7 weeks.

February 3, 2004

Hi Brandee,

This is a different mom , but in reading your post, you mentioned " natural

Antifugals " , what are those?

Thank you,

mom to 4 asd, and 23 months SD, O.T. issues

Re: Anyone without improvements for a few months at

first?