You're welcome Trish, and other things

[Guest guest]

Hi Trish! Yes, Vicki was right, I meant an EMG. It's not much fun,

but can be helpful, as is the muscle biopsy for sure. The biopsy I

had way back when didnt cause me any trouble and gave a definitive DX.

I'd think about finding a different doctor as Vicki mentioned. You

need to have a talk with him then make your decision, hard as it may

be. We're all here pulling for you.

Thanks so much for your background info. You sound an awful lot like

me- the drugs you are taking are the same as mine- just a differnt

NSAID ( and I have gastro problems with them as well). And a

different antidepressant. The fatigue and pain are right where I've

been for months- some days better, some not- never can tell.

I've never heard of the P------ drug- is it a new or older NSAID? If

you havent' already, you might want to try either Vioxx or Celebres-

I am hearing that the Celebrex just might be the easiest one of all

on the gastro system. I may want to try that instead of my Vioxx.

My internist has recommended that I look for a good rheumatologist

who is expert in myositis- either in Albany(where I was orig.DX'd) or

even in NYC. I haven't done anything yet to set myself up with one,

or have the MRI here locally yet. I will, when I get around to it!

Keep posting and researching- we have tons of good places to look.

The MDAA website can give you myositis info, as well as the Myositis

Assoc of America- www.myositis.org- (am i right kids? i ahve it

bookmarked on other screenname). There is an active bulletin board

there too you'd find informative. But THIS list is my favorite ! I

think we all use every resource we can find. Hang in, love