Can't sleep....

[Guest guest]

Hi friends. I'm just laying on the couch with a blanket, watching Reba

and AC is on. My mind is going all over the place with questions and

getting more questions than answers. I know, I shouldn't question

things from life because they happen for a reason and sometimes, you

won't even find the answer, you're looking for. I shouldn't question

God because I know he loves all his children and his sad when a child

of his suffer. I do believe in Guardian Angels and I know they will

protect me.

On the other hand, I hope my pulmo dr, will realize that he's playing a

dangerous game with my health and what he's doing is very wrong...

(there's no words to express how I feel about his attitude) etc...I've

decided to stop taking the Celebrex which my Rheumatologist prescribed,

it caused more pain and more stiffness to the point were I couldn't eat

etc...I had to wait about 2 hours, to open my hands.

I believe in the bottom of my heart both of my dr's, had to call me

yesterday instead of having the secretary call me saying " We'll

discuss the side effects of Celebrex in July, when she knows that I'm

allergic to a lot of medications and we have to be extra careful and

the other one telling me " If you don't have the tests we're asking for,

we can't see you " .

Last month, I was told pulmo dr needs to get his act together! because

as we know this disease which I hate with a passion can get very ugly

in an instant!

Thanks for listening!

I needed to get some stuff out of my chest tonight!

Irene PF 03/07

Canada

[Guest guest]

Irene, I have taken Celebrex several times in the past and it has

totally torn my stomach up. It is a strong anti inflamitory, but, it

can have some painful side affects. If your body says NO, then find

a doctor who will listen.. even a family doctor. Sometimes these

specialists are just full of themselves. Don't wait until July. You

deserve better. Gale in TX 10/060IPF

>

> Hi friends. I'm just laying on the couch with a blanket, watching

Reba

> and AC is on. My mind is going all over the place with questions

and

> getting more questions than answers. I know, I shouldn't question

> things from life because they happen for a reason and sometimes,

you

> won't even find the answer, you're looking for. I shouldn't

question

> God because I know he loves all his children and his sad when a

child

> of his suffer. I do believe in Guardian Angels and I know they will

> protect me.

>

> On the other hand, I hope my pulmo dr, will realize that he's

playing a

> dangerous game with my health and what he's doing is very wrong...

> (there's no words to express how I feel about his attitude)

etc...I've

> decided to stop taking the Celebrex which my Rheumatologist

prescribed,

> it caused more pain and more stiffness to the point were I couldn't

eat

> etc...I had to wait about 2 hours, to open my hands.

>

> I believe in the bottom of my heart both of my dr's, had to call me

> yesterday instead of having the secretary call me saying " We'll

> discuss the side effects of Celebrex in July, when she knows that

I'm

> allergic to a lot of medications and we have to be extra careful

and

> the other one telling me " If you don't have the tests we're asking

for,

> we can't see you " .

>

> Last month, I was told pulmo dr needs to get his act together!

because

> as we know this disease which I hate with a passion can get very

ugly

> in an instant!

>

> Thanks for listening!

> I needed to get some stuff out of my chest tonight!

>

> Irene PF 03/07

> Canada

>

[Guest guest]

Good morning.

I cannot sleep either. I dont think I slept all night. It is now morning. Feel really sleepy now.

I am also sensitive to most medications and because the doctors and nurses dont really LISTEN to me, I have had some really serious reactions to medications. Afterwords, when I was able, I would remind the dr. that I had told them that I could not take a certain family of medicine and they would say.."well, we had to try it". I now will refuse all medicine without first investigating it. I always ask for the smallest strengh and then if it works successfully, then we can up the milligrams. I have had doctors refuse to treat me, have had lectures about compliance etc. But I know my body and how it reacts and if I am even a little fearful, I will refuse. Doctors seem to forget that not everyone reacts the same way. Many times I have had the physician prescribe something, I tell him that I am afraid to take it, he prescribes it any way. He says that if I dont take it, that is my business, but his business is to give me something he thinks will work. I know why they physican's patients are called their practice....because they practice on us.

I know I sound very cynical but I just get tired of it.

I have becme my own case manager. It is important to keep good records of things. Dates and times and findings and feelings are important. Log your fears,,,,,your will be glad you have kept a record.

I hope you get the relief you need.

L.

Can't sleep....

Hi friends. I'm just laying on the couch with a blanket, watching Reba and AC is on. My mind is going all over the place with questions and getting more questions than answers. I know, I shouldn't question things from life because they happen for a reason and sometimes, you won't even find the answer, you're looking for. I shouldn't question God because I know he loves all his children and his sad when a child of his suffer. I do believe in Guardian Angels and I know they will protect me. On the other hand, I hope my pulmo dr, will realize that he's playing a dangerous game with my health and what he's doing is very wrong...(there's no words to express how I feel about his attitude) etc...I've decided to stop taking the Celebrex which my Rheumatologist prescribed, it caused more pain and more stiffness to the point were I couldn't eat etc...I had to wait about 2 hours, to open my hands. I believe in the bottom of my heart both of my dr's, had to call me yesterday instead of having the secretary call me saying "We'll discuss the side effects of Celebrex in July, when she knows that I'm allergic to a lot of medications and we have to be extra careful and the other one telling me "If you don't have the tests we're asking for, we can't see you". Last month, I was told pulmo dr needs to get his act together! because as we know this disease which I hate with a passion can get very ugly in an instant! Thanks for listening! I needed to get some stuff out of my chest tonight!Irene PF 03/07Canada

[Guest guest]

Questions are a big part of our day! The one that I would liked answered is WHY?.I am lucky than most of you I have a great lung Dr. he listens goes with what I tell him, if I don't agree hes ok with that.If a med doesn't go good with me I am all done.Isn't that what there there for you?Now my premimy hes a different story he will give me med after med.It took me two years to get him to get a clue as to this was my body! He still trys though.I am sorry you are having such a hard time find a doctor who really cares about you! Madelinescruffyscruffier123 wrote: Hi friends. I'm just laying on the couch with a blanket, watching Reba and AC is on. My mind is going all over the place with questions and getting more questions than answers. I know, I shouldn't question things from life because they happen for a reason and sometimes, you won't even find the answer, you're looking for. I shouldn't question God because I know he loves all his children and his sad when a child of his suffer. I do believe in Guardian Angels and I know they will protect me. On the other hand, I hope my pulmo dr, will realize that he's playing a dangerous game with my health and what he's doing is very wrong...(there's no words to express how I feel about his attitude) etc...I've decided to stop taking the Celebrex which my Rheumatologist prescribed, it caused more pain and more stiffness to the point were I couldn't eat

etc...I had to wait about 2 hours, to open my hands. I believe in the bottom of my heart both of my dr's, had to call me yesterday instead of having the secretary call me saying "We'll discuss the side effects of Celebrex in July, when she knows that I'm allergic to a lot of medications and we have to be extra careful and the other one telling me "If you don't have the tests we're asking for, we can't see you". Last month, I was told pulmo dr needs to get his act together! because as we know this disease which I hate with a passion can get very ugly in an instant! Thanks for listening! I needed to get some stuff out of my chest tonight!Irene PF 03/07Canada

Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut.

[Guest guest]

,

I loooooove my pulmonary doctor. My Rheumatologist is smart and he has worked hard to keep me alive, but I am not awed. Since I had an angioplasty and stent a year ago, I had to add a Cardiologist. This is the fourth one I have seen and I give up. I find them arrogant and cold. I saw a new one the other day. He said that it would be o.k. for me stop taking the Plavix now. I asked him...why? Nothing has changed since the FDA and AMA said that if you have a drug eluding stent that the chance of clotting is astronomical! He just said that he felt it would be o.k. I told him that I didn't think it would be o.k. I have an autoimmune blood clotting disorder....so my chances of a big clot is great anyway. Yeah, I want to increase my chances for a heart attack. I need the attention!!!! Not!

I know I have a big red flag on all my charts, but I don't care if they love me or not. Most docs forget you 10 minutes after you walk out the door and don't remember anything about you when you go back. I am not intimadated by them and their vast intelligence. I have probably read more and am better informed than most of them. I know one thing for sure...I care about me. Like you, I am my own health manager.

You remind me of me. I am going to go down fighting. I don't want to lie down and die so that everyone else is made comfortable. You cannot know how much every post that you send means to me. I always think....I will be strong because is being so strong. I pray for you every day. I want you to stick around for all of us! And for YOU!

I am so sorry that you are having so much trouble sleeping. I could sleep if I didn't cough so much. I hate to be up in the night. Then you feel so sleepy when you could be enjoying the sunlight.

Keep on keeping on, ! I am pulling for you.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> Good morning.> I cannot sleep either. I dont think I slept all night. It is now morning. Feel really sleepy now. > I am also sensitive to most medications and because the doctors and nurses dont really LISTEN to me, I have had some really serious reactions to medications. Afterwords, when I was able, I would remind the dr. that I had told them that I could not take a certain family of medicine and they would say.."well, we had to try it". I now will refuse all medicine without first investigating it. I always ask for the smallest strengh and then if it works successfully, then we can up the milligrams. I have had doctors refuse to treat me, have had lectures about compliance etc. But I know my body and how it reacts and if I am even a little fearful, I will refuse. Doctors seem to forget that not everyone reacts the same way. Many times I have had the physician prescribe something, I tell him that I am afraid to take it, he prescribes it any way. He says that if I dont take it, that is my business, but his business is to give me something he thinks will work. I know why they physican's patients are called their practice....because they practice on us.> I know I sound very cynical but I just get tired of it. > I have becme my own case manager. It is important to keep good records of things. Dates and times and findings and feelings are important. Log your fears,,,,,your will be glad you have kept a record.> I hope you get the relief you need.> L.> Can't sleep....> > > Hi friends. I'm just laying on the couch with a blanket, watching Reba > and AC is on. My mind is going all over the place with questions and > getting more questions than answers. I know, I shouldn't question > things from life because they happen for a reason and sometimes, you > won't even find the answer, you're looking for. I shouldn't question > God because I know he loves all his children and his sad when a child > of his suffer. I do believe in Guardian Angels and I know they will > protect me. > > On the other hand, I hope my pulmo dr, will realize that he's playing a > dangerous game with my health and what he's doing is very wrong...> (there's no words to express how I feel about his attitude) etc...I've > decided to stop taking the Celebrex which my Rheumatologist prescribed, > it caused more pain and more stiffness to the point were I couldn't eat > etc...I had to wait about 2 hours, to open my hands. > > I believe in the bottom of my heart both of my dr's, had to call me > yesterday instead of having the secretary call me saying "We'll > discuss the side effects of Celebrex in July, when she knows that I'm > allergic to a lot of medications and we have to be extra careful and > the other one telling me "If you don't have the tests we're asking for, > we can't see you". > > Last month, I was told pulmo dr needs to get his act together! because > as we know this disease which I hate with a passion can get very ugly > in an instant! > > Thanks for listening! > I needed to get some stuff out of my chest tonight!> > Irene PF 03/07> Canada>

[Guest guest]

Hi everyone,

Just wanted to put my two cents worth in...remember the doctors work

for YOU not you for them!!! You tell them how you feel, whether it's

their atittude or if your breathing is bad, anything, they should want

to make your life as good as it can be with this disease.

I guess I've really lucked out with all the doctors I've seen and my

primary care doctor is the best. She's the one that started testing

to see what exactly was going on with the SOB that I was having.

Whenever I go in for my yearly checkups she's well prepared for me and

we have a great visit. My Pulm. doc is just as good. Tells me what

he thinks of the drugs and if he really thinks they do any good and

listens to what I think and what I do NOT want to do. They are both

great. I wish everyone could find docs like it have.

Take care.

[Guest guest]

,

You are absolutely right. There are some GOOD docs out there. Thank God. I believe it is up to us to make sure we find those docs. I get so angry when I think back over my life because I was misdiagnosed and mistreated so many times...for the Connective Tissue disease (with all the issues that go with that) and with the PF. It angers me that people on this board are suffering because docs are so insensative and uncaring as to thier needs. We are not talking about a bad cold here. This is a life threatening disease. It can head downhill in just a day or two. For any doctor to not even return a phone call is inhumane at best.

I think we should be so thankful for the healthcare that we have in this country. I am on a support group that is international and it is not easy to get treatment of any kind in some countries.

We, at least have the option of shaking loose from these lazy doctors and go on to find another. It is time consuming and exhausting, but I am worth it! And so are we all!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> Hi everyone,> Just wanted to put my two cents worth in...remember the doctors work > for YOU not you for them!!! You tell them how you feel, whether it's > their atittude or if your breathing is bad, anything, they should want > to make your life as good as it can be with this disease.> I guess I've really lucked out with all the doctors I've seen and my > primary care doctor is the best. She's the one that started testing > to see what exactly was going on with the SOB that I was having. > Whenever I go in for my yearly checkups she's well prepared for me and > we have a great visit. My Pulm. doc is just as good. Tells me what > he thinks of the drugs and if he really thinks they do any good and > listens to what I think and what I do NOT want to do. They are both > great. I wish everyone could find docs like it have.> Take care.> >

[Guest guest]

Joyce,

I think more doctors are simply greedy not necessarily lazy. They

try to see as many bodies in a day as they can. For years I also

was misdiagnosed. They ASSUMED my SOB and cough was from my

Asthma. Now we know better. Many people have told me I should find

a good attorney and start filing law suits, but I'd rather just get

some rest and relaxation and enjoy the rest of my life. I've even

been stressed out by the transplant team and the oxygen company

through this move. I get so many phone calls and they keep wanting

me to get started again in pulmonary rehab. I'd like to get my

boxes unpacked and my house in order before I start that again. I

feel right this minute like I should take a nap but am going to log

off and go work on unpacking another box.

Love and Aloha,

Judy IPF 11/06 Ohio

> >

> > Hi everyone,

> > Just wanted to put my two cents worth in...remember the doctors

work

> > for YOU not you for them!!! You tell them how you feel, whether

it's

> > their atittude or if your breathing is bad, anything, they

should want

> > to make your life as good as it can be with this disease.

> > I guess I've really lucked out with all the doctors I've seen

and my

> > primary care doctor is the best. She's the one that started

testing

> > to see what exactly was going on with the SOB that I was having.

> > Whenever I go in for my yearly checkups she's well prepared for

me and

> > we have a great visit. My Pulm. doc is just as good. Tells me

what

> > he thinks of the drugs and if he really thinks they do any good

and

> > listens to what I think and what I do NOT want to do. They are

both

> > great. I wish everyone could find docs like it have.

> > Take care.

> >

> >

>

[Guest guest]

I also went to my usual gp today, because i needed some old reports,

i changed gp in march, it was the new one who sent me to a

specialist, last year my 2nd rheumy told me yes I had a raised ana

(have known this for 2 1/2 years), but it was due to raynaud's learn

to live with it, and i didn't need to come back, my other rheumy who

was investigating me for scleroderma moved provinces, well now i

guess i learn to live with it, i told my pulmo and old gp don't try

sending me back to that guy, it took him all of about 3 minutes to

totally misdiagnose me.

mary jo ipf, may 07, sask, can.

> > >

> > > Hi everyone,

> > > Just wanted to put my two cents worth in...remember the doctors

> work

> > > for YOU not you for them!!! You tell them how you feel, whether

> it's

> > > their atittude or if your breathing is bad, anything, they

> should want

> > > to make your life as good as it can be with this disease.

> > > I guess I've really lucked out with all the doctors I've seen

> and my

> > > primary care doctor is the best. She's the one that started

> testing

> > > to see what exactly was going on with the SOB that I was having.

> > > Whenever I go in for my yearly checkups she's well prepared for

> me and

> > > we have a great visit. My Pulm. doc is just as good. Tells me

> what

> > > he thinks of the drugs and if he really thinks they do any good

> and

> > > listens to what I think and what I do NOT want to do. They are

> both

> > > great. I wish everyone could find docs like it have.

> > > Take care.

> > >

> > >

> >

>