Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 We will certainly keep you in our prayers. I am still on the doner approval yo-yo. My sister has had a hard time gettin correct information form her Dr. for this. Doday's results were that her creatine was too high which would put her kidney function at about 50%. She and my coordinator distrust that information. She is going to run this 24 hour catch once again from a different Dr.'s office. If her function is indeed at 50, then she needs to go to a nephrologist herself. About 1 year ago, her creatine was fine, so we are hopeful. My other sister, who was thrown out because she exercises to much and throws albumine, is going to stop exercising a few days and see if her 24 hour improves. She needs to lay off so much water too. Last year when she ws knocked out of the " running " she had to have 3 jugs. The lab couldn't believe that anyone could pee so much. Anyway, please everyone, keep me and my sisters in your prayers. Thank You!! Re: SARS > > > Hi , > > The anti-rejection drugs taken after a transplant are my biggest eventual > concern too. Marty seems to have had a pretty easy time with the meds > though. > > Maybe he can give you some encouragement on that front. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 What a nice warm fuzzy!! Thank you . I am hoping that something works out. This has really been a real roller coaster.. Re: SARS , How disappointing to hear your sister's creatinine was too high. Let us all hope and pray that the 24 hour comes back with better results. Please keep us informed when she retests. Good news about your other sister though. I am glad she is willing to try to cut back on her exercise for a while and get retested. I really pray one of the two sisters will work out for you . , I am really pulling for you, as I know the entire group is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Sara, I'm sorry you keep going back and forth with your sisters and their potential donation. Here they put the potential donor in the hospital for 3 days and do all the tests themselves so it's one quick and easy process. I think it's because they don't trust anyone else and it's convenient. I know how nervous I was for those 3 days, and I can't imagine what you are going through waiting all those times for those 24 hour tests. I sincerely hope that one of your sisters comes out approved for you. Though I hate to add this, just in case they don't, dialysis isn't as bad as the social stigma associated with it. It's more of an alteration of schedule than anything. Keep us updated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Thanks, . You won't believe this, but the sister that they have been testing picked up her first bottle on March 10. That is almost a month ago. If I were that Doctor's office I would be ashamed that my office had anything to do with this what-so-ever. As you can see, I am fairly ticked about it, and my insurance is footing this darn incompatance. Re: SARS Sara, I'm sorry you keep going back and forth with your sisters and their potential donation. Here they put the potential donor in the hospital for 3 days and do all the tests themselves so it's one quick and easy process. I think it's because they don't trust anyone else and it's convenient. I know how nervous I was for those 3 days, and I can't imagine what you are going through waiting all those times for those 24 hour tests. I sincerely hope that one of your sisters comes out approved for you. Though I hate to add this, just in case they don't, dialysis isn't as bad as the social stigma associated with it. It's more of an alteration of schedule than anything. Keep us updated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Speaking of SARS, they had a security guard at the entrance of the hospital when I go for dialysis last night, screening every person who walked in. You had to read a list of symptoms and then sign-in that you don't have any. Apparently every entrance of every hospital in the city and the whole province is doing that. There have been 7 deaths known to be SARS-related in Canada, out of about 130 cases, all in Toronto I believe, but none where I live. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 I saw on the news last night (a New York local station via satellite) that a probable SARS case was diagnosed at an emergency room in New York City on March 2, and the person was treated and released! Neither the hospital or the Health Department will quarantine the victim or let people know who or where he/she is. Nice to know that in the United States we consider that having dangerous, highly infectious, non treatable illnesses is considered an individual rights issue rather than a public health hazard. It certainly will make it easy for terrorists to clean out a large segment of the US population when they have the technology (and SARS may be an example). I'm scheduled to go to a conference in New York in 2 weeks. I'll be cancelling that today. Re: SARS Speaking of SARS, they had a security guard at the entrance of the hospital when I go for dialysis last night, screening every person who walked in. You had to read a list of symptoms and then sign-in that you don't have any. Apparently every entrance of every hospital in the city and the whole province is doing that. There have been 7 deaths known to be SARS-related in Canada, out of about 130 cases, all in Toronto I believe, but none where I live. Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 In Ontario somewhere, probably Toronto, the authorities had to use the quarantine act to forcibly to suspected SARS cases who refused to quarantine themselves voluntarily yesterday. You would think people would have enough common sense that the law wouldn't need to be used, but such is human nature. Pierre RE: SARS > I saw on the news last night (a New York local station via satellite) that a probable SARS case was diagnosed at an emergency room in New York City on March 2, and the person was treated and released! Neither the hospital or the Health Department will quarantine the victim or let people know who or where he/she is. > > Nice to know that in the United States we consider that having dangerous, highly infectious, non treatable illnesses is considered an individual rights issue rather than a public health hazard. It certainly will make it easy for terrorists to clean out a large segment of the US population when they have the technology (and SARS may be an example). > > I'm scheduled to go to a conference in New York in 2 weeks. I'll be cancelling that today. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Typo. That should have read " forcibly confine two suspected SARS cases " Pierre RE: SARS > > > > I saw on the news last night (a New York local station via satellite) that > a probable SARS case was diagnosed at an emergency room in New York City on > March 2, and the person was treated and released! Neither the hospital or > the Health Department will quarantine the victim or let people know who or > where he/she is. > > > > Nice to know that in the United States we consider that having dangerous, > highly infectious, non treatable illnesses is considered an individual > rights issue rather than a public health hazard. It certainly will make it > easy for terrorists to clean out a large segment of the US population when > they have the technology (and SARS may be an example). > > > > I'm scheduled to go to a conference in New York in 2 weeks. I'll be > cancelling that today. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Holey moley! That sounds intense. Cy Re: SARS > Speaking of SARS, they had a security guard at the entrance of the hospital > when I go for dialysis last night, screening every person who walked in. You > had to read a list of symptoms and then sign-in that you don't have any. > Apparently every entrance of every hospital in the city and the whole > province is doing that. There have been 7 deaths known to be SARS-related in > Canada, out of about 130 cases, all in Toronto I believe, but none where I > live. > > Pierre > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 FYI, the local news in Memphis reported yesterday that St. Jude Children's Research Hospital (in Memphis) has developed a vaccine for a virus that is very similar to SARS. They have been working on it for only 4 weeks, and are hopeful that they can develop a SARS vaccine in short order as well. I believe the report also stated that they are awaiting a live SARS sample to continue their research. Re: SARS Speaking of SARS, they had a security guard at the entrance of the hospital when I go for dialysis last night, screening every person who walked in. You had to read a list of symptoms and then sign-in that you don't have any. Apparently every entrance of every hospital in the city and the whole province is doing that. There have been 7 deaths known to be SARS-related in Canada, out of about 130 cases, all in Toronto I believe, but none where I live. Pierre Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.