Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Hi CC, I truly am sorry that you have also felt slighted. I can tell you that every effort is made to make sure at least someone responds to each email. It is true that we all are busy, but we still want everyone to be responded to. I would just ask members who are feeling like this to please try to have some understanding for the moderators who work, have dialysis, get sick ourselves etc. I also travel on business very regularly and sometimes cannot get to email for several days. I can assure you that each and every email is always read my me 100% of the time, even when they are backed up to over 100 emails, I still take time to read every single one. We are human, and if we make a mistake and overlook one, I apologize. If ever an email is missed, please repost. We do not want anyone ignored. CC, I hope you will not stop posting your questions. It is true that some of us know each other better having been together longer, some for years, and it is only natural that there is more communication. However, that is definitely not to say that we don't equally look forward to getting to know each newer person better too! Communication is a two way street, and so I really hope you will resume asking your questions so we can get to know you better too. We take great effort to make sure that each member feels supported and encouraged here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Jennie! We don't want you to ever feel ignored either! I am so sorry. We honestly do try our very best to make sure everyone is replied to and feels welcome and encouraged, I promise you we do! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 There are times where I've felt much the same way as you & walkinwoman too, CC. I guess I've just gotten used to it, and don't worry about it too much any more, because I realised that people don't always have the time to answer everyone's posts. Because I know that when I'm really busy or unwell or whatever, I don't always have the time to, either. --- CC wrote: > I have all the messages emailed to me and I read > everyone. I own and > run two businesses but make time to read the > messages. > > I can understand the feelings expressed by > walkinwoman, there are a > handful of people who chat back and forth in depth. > Seemingly more > intimate than with others with sympathy, thank yous, > openly joking, > and details of symptoms and treatments. I assume > that these people > are the ones who have been here the longest and know > each other the > best. I have also at times felt that I have been > slighted. I do not > however think it was intentional, but it does not > make you feel > better. When you share with the board you are > looking for empathy and > understanding, reaching out for someone to share the > good and the bad > who actually understands what you are talking about. > > Speaking with walkinwoman on the phone she is very > concerned about > IGA and its effects. She worries maybe more than > most as she doesn't > understand and her doctor has not been forthcoming > with answers that > could aliviate her concerns, besides the fact that > she lives in a > very small town where she has no options on doctors. > > If you look back at her posts you will see that the > few times she did > post no one at all answered. I know when I posted > my update after > seeing the doc not one single person commented. My > reaction was hurt > and anger, as if no one cared what my updates were. > > When you see 5 and 6 replys to others posts it is > very upsetting when > you don't even get one. > > I truly understand how busy everyone gets, but again > if there is time > to congratulate and thank the same people over and > over at least one > person could answer each post. I have determined > that it is better to > just read and hope someone else asks the questions I > want answers to > than to have my feelins hurt. > > > CC > > > http://mobile.yahoo.com.au - Yahoo! Mobile - Check & compose your email via SMS on your Telstra or Vodafone mobile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 I agree with Sally. I know many people are satisfied with this group-I am more than satisfied. This group has helped me so many times. I just wanted to say thanks to the moderators and to everyone else who keeps this going. I appreciate you!!!!! Dana In a message dated 3/22/03 7:30:07 AM Central Standard Time, pgl-groups@... writes: << Thanks for your comment Sally. My past experience with internet support groups is that it's simply impossible to keep everyone satisfied all of the time. Reviewing a few message threads, it occurs to me that some people may not realise that answers to their question may come in a general reply to a message further down the line that was sent by someone else. Sometimes I answer a question after a number of messages have been posted in any given thread. So do other moderators and other members. This doesn't mean I or anyone else is ignoring the original message. My review of past threads tells me that very few questions aren't answered at some point. We are open to constructive criticism, such as Katisha suggesting that the treatment her son is receiving be mentioned on the website. This only helps to improve the information we provide for people all over the world. On the other hand, complaints that we are ignoring some members are not really justified. We go out of our way every single day to welcome new members and to ensure everyone gets a response. If you participate in other support groups, you will see that such a level of service is a rare thing indeed. Support groups often start disintegrating when they get larger. Don't let it happen to this group. Pierre >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Come on People, stop being so critical and 'self' orientated. This group offers support to over 600 people and is as personal as it can possibly be, given the circumstances of everyone's health and commitments. The Moderators freely give of their time and do their best for us for absolutely no charge. The work behind the scenes most of us aren't aware of. Of course there are times where specific e-mails may not get a reply, taking it as a personal rebuff as first reaction seems strange to me, post again or ask someone privately if they may help. For goodness sake be a bit more robust about this, we are all on the same side and in the same boat! All the best to everyone. Sally. UK. Re: Feeling ignored?? Hi CC, I truly am sorry that you have also felt slighted. I can tell you that every effort is made to make sure at least someone responds to each email. It is true that we all are busy, but we still want everyone to be responded to. I would just ask members who are feeling like this to please try to have some understanding for the moderators who work, have dialysis, get sick ourselves etc. I also travel on business very regularly and sometimes cannot get to email for several days. I can assure you that each and every email is always read my me 100% of the time, even when they are backed up to over 100 emails, I still take time to read every single one. We are human, and if we make a mistake and overlook one, I apologize. If ever an email is missed, please repost. We do not want anyone ignored. CC, I hope you will not stop posting your questions. It is true that some of us know each other better having been together longer, some for years, and it is only natural that there is more communication. However, that is definitely not to say that we don't equally look forward to getting to know each newer person better too! Communication is a two way street, and so I really hope you will resume asking your questions so we can get to know you better too. We take great effort to make sure that each member feels supported and encouraged here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Sally and Dana, I wanted to personally thank both of you for your supportive posts. It can be very disheartening when we try so hard and then learn there are members who are left feeling ignored, so I just wanted to especially thank you both for your supportive and encouraging posts :-) They are very much appreciated! As I have said a number of times the past couple of days, we REALLY don't want anyone to feel ignored or hurt, so if ever we do miss something, please do not ever take it personally and post again! We care about ALL of you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Thanks for your comment Sally. My past experience with internet support groups is that it's simply impossible to keep everyone satisfied all of the time. Reviewing a few message threads, it occurs to me that some people may not realise that answers to their question may come in a general reply to a message further down the line that was sent by someone else. Sometimes I answer a question after a number of messages have been posted in any given thread. So do other moderators and other members. This doesn't mean I or anyone else is ignoring the original message. My review of past threads tells me that very few questions aren't answered at some point. We are open to constructive criticism, such as Katisha suggesting that the treatment her son is receiving be mentioned on the website. This only helps to improve the information we provide for people all over the world. On the other hand, complaints that we are ignoring some members are not really justified. We go out of our way every single day to welcome new members and to ensure everyone gets a response. If you participate in other support groups, you will see that such a level of service is a rare thing indeed. Support groups often start disintegrating when they get larger. Don't let it happen to this group. Pierre RE: Feeling ignored?? > Come on People, stop being so critical and 'self' orientated. This group > offers support to over 600 people and is as personal as it can possibly be, > given the circumstances of everyone's health and commitments. The Moderators > freely give of their time and do their best for us for absolutely no charge. > The work behind the scenes most of us aren't aware of. Of course there are > times where specific e-mails may not get a reply, taking it as a personal > rebuff as first reaction seems strange to me, post again or ask someone > privately if they may help. For goodness sake be a bit more robust about > this, we are all on the same side and in the same boat! > All the best to everyone. > Sally. UK. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Dear Sally Thank you very much for your message of support, I have to admit I felt a little despondent yesterday after the messages about people feeling ignored, not intentionally on my, or anyone else's part that is for sure. It is hard to please everybody's needs wholly, which is why I would encourage yet again for those who feel they need more than email messages to pop into the chat room. I myself simply don't have the energy at a time when everyone would be free time zone wise, and with a husband that works unsocial hours, I have to attend our family situation first, that is why many of you will see my replies are either very early in the morning, or early evening, I am usually in my bed by 9 pm UK time. As a moderator I confess to not posting as much as I used to, again health dictates when and if I can do this, but there is usually a good balance with the other moderators being around when I am not, and they are fantastic with their support. I am extremely proud of this group that Pierre set up for us all, and I for one would not allow it to degenerate as so many have done. Hope your doing ok Sally, I do think of you. Best wishes Re: Feeling ignored?? Hi CC, I truly am sorry that you have also felt slighted. I can tell you that every effort is made to make sure at least someone responds to each email. It is true that we all are busy, but we still want everyone to be responded to. I would just ask members who are feeling like this to please try to have some understanding for the moderators who work, have dialysis, get sick ourselves etc. I also travel on business very regularly and sometimes cannot get to email for several days. I can assure you that each and every email is always read my me 100% of the time, even when they are backed up to over 100 emails, I still take time to read every single one. We are human, and if we make a mistake and overlook one, I apologize. If ever an email is missed, please repost. We do not want anyone ignored. CC, I hope you will not stop posting your questions. It is true that some of us know each other better having been together longer, some for years, and it is only natural that there is more communication. However, that is definitely not to say that we don't equally look forward to getting to know each newer person better too! Communication is a two way street, and so I really hope you will resume asking your questions so we can get to know you better too. We take great effort to make sure that each member feels supported and encouraged here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2003 Report Share Posted March 22, 2003 Dana Thank you very much for the lovely message of support, I am glad we have been of help to you over the weeks. We do try. Once again I appreciate your comments. Best wishes Re: Feeling ignored?? I agree with Sally. I know many people are satisfied with this group-I am more than satisfied. This group has helped me so many times. I just wanted to say thanks to the moderators and to everyone else who keeps this going. I appreciate you!!!!! Dana In a message dated 3/22/03 7:30:07 AM Central Standard Time, pgl-groups@... writes: << Thanks for your comment Sally. My past experience with internet support groups is that it's simply impossible to keep everyone satisfied all of the time. Reviewing a few message threads, it occurs to me that some people may not realise that answers to their question may come in a general reply to a message further down the line that was sent by someone else. Sometimes I answer a question after a number of messages have been posted in any given thread. So do other moderators and other members. This doesn't mean I or anyone else is ignoring the original message. My review of past threads tells me that very few questions aren't answered at some point. We are open to constructive criticism, such as Katisha suggesting that the treatment her son is receiving be mentioned on the website. This only helps to improve the information we provide for people all over the world. On the other hand, complaints that we are ignoring some members are not really justified. We go out of our way every single day to welcome new members and to ensure everyone gets a response. If you participate in other support groups, you will see that such a level of service is a rare thing indeed. Support groups often start disintegrating when they get larger. Don't let it happen to this group. Pierre >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Hi , I'm OK thanks......got a few computer problems at the moment so I might disappear now and then until I've figured things out! Take care. Sally.UK Re: Feeling ignored?? Hi CC, I truly am sorry that you have also felt slighted. I can tell you that every effort is made to make sure at least someone responds to each email. It is true that we all are busy, but we still want everyone to be responded to. I would just ask members who are feeling like this to please try to have some understanding for the moderators who work, have dialysis, get sick ourselves etc. I also travel on business very regularly and sometimes cannot get to email for several days. I can assure you that each and every email is always read my me 100% of the time, even when they are backed up to over 100 emails, I still take time to read every single one. We are human, and if we make a mistake and overlook one, I apologize. If ever an email is missed, please repost. We do not want anyone ignored. CC, I hope you will not stop posting your questions. It is true that some of us know each other better having been together longer, some for years, and it is only natural that there is more communication. However, that is definitely not to say that we don't equally look forward to getting to know each newer person better too! Communication is a two way street, and so I really hope you will resume asking your questions so we can get to know you better too. We take great effort to make sure that each member feels supported and encouraged here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 Hi , I wanted to thank you for your kind words:-) I am very glad you are feeling our love and support and prayers for your cousin serving in the war too! We really do have a wonderful group here, and we really do care so much about all our members! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.