undiag. pain ups LBD symtoms

June 29, 2009

Hello everyone, I have not posted much latly but have been keeping up with all

of you by being a " lurker " ! I want to share a resent incident with you that

happened to my LO. Don has been going further onto that Lewy Train as of late

with increases in hullucinations that sometimes keep us up all day and all

night, well keeps me up all day and all night, he sleeps inbetween LOL. I did

take him home to Alaska the last week of May and first of June and that went

fairly well. On return he really went into the hullci. and I took him in to see

if he had a UTI or something. Well he told the nurse he had pain of 9 on a

scale of 1 to 10. He has complained of pain all over his body from head to toe

so I had put it off as coming from the way he sits, walks etc and was just

cramping up. The Dr. (thank goodness I have a GREAT Dr. for him!) really

started questioning him as to where the worst pain was and it was in his hip

join. CLICK .... He had been in a really bad car accident before we were

married, maybe 40 years ago? and had been in traction in hospital for a time due

to something broken in his hip. Bottom line, Dr. gave him a cortisone shot and

within 20 to 30 min. he was out of most of the pain. Hullucinations have

GREATLY decreased, he is sleeping through the night (so am I) and he is doing so

much better. So a lesson to me that I will ask more questions when he complains

of pain! Also good news, a new support group has started in Ft (the

first LBD support group in CO) and Don and I joined them for there 3rd meeting

last Sat. Most of the group are also members or past members of this group.

What a wonderful experience for both Don and me. Don got to meet another man

with LBD and to be asked about what the hullci and other symtoms were like for

them in an open and loving setting. What a blessing this is. I'm not saying

that Don is back off that LBD train but the brake has been applied a little bit!

Hello to all the new members and I know you will greatly appreciate this group

as the support and information are a God send and the caring and love just comes

leaping off the computer screen right when you need it the most! I will try and

be more availble to the group as I see many may be taking some needed time off.

Sherry in CO

husband dig. with LBD about 7 yrs ago

June 30, 2009

Sherry,

Good to hear from you and glad your hubby is doing better. That thing about

maybe what they are talking about is true and maybe not is so hard when they are

ill. Glad the shot helps everyone sleep. I spent lots of nights up while Mom

slept or not!

Hugs,

Donna R

Caregiver for Mom for 3

years and 4th year in a nh.

(In MI)

She was almost 89 when she

died in '02. No dx other

than mine.