Imogene

[Guest guest]

Good, Sherry, keep writing.

Love,

Imogene

In a message dated 2/5/2010 3:49:04 P.M. Central Standard Time,

salozier@... writes:

Sorry Imogene

My computer stopped working while I was writing to you.

The belt they gave me for around his waist gave me better control if he

started to fall. Also I was able to get him up off the pot a lot easier with

that belt. I also ordered that new book for them that was written by the

man and his new wife who is a nurse. It was writen for the professionals.

Can't remember the name but got the info from this site. I will try and

remember it and let you know. The hospice team was very grateful for the

information. The worked with me on the meds and listens to what I said and

kept Don on the seroquile (sp) and also let me adjust the amounts depending

on how he did during the day. You can pick which hospice to come into

your home at least here in Colorado you can. I found one that also had a care

facility for when I needed a few respite days and it turned out that Don

went there when he went down so fast and died there. Really really nice

place and people. So check out the various hospice in your area. That also

was paid in full

by medicare!

Also here in Colorado and Also in Alaska, when a LO goes down on the floor

and you can not get them up, we have a special number to call for help

from the fire department (NOT 911) and they will come out and help get them up

and into the bed and not charge you for it. So check about that too. Don

went down on the floor the night before he entered the Hospice Care

Facility and it took me 30 min. to get him into a wheel chair and into the bed.

I did not know at that time about who to call to help me. The next day he

was completelly unable to talk or get up and we had hospice come out and

they took him to the Care Facility supposelly for only about 3 days but he

got worse and died 5 days later. I really think he had some strokes to tell

you the truth. Looking back and thinking about how he was that is the only

thing that makes sense to me.

Hope this helps you get some help. If I thing of anything else I will

write.

Take care

Sherry in Colorado

[Guest guest]

Sherry, thanks for the info.

Imogene

In a message dated 2/5/2010 3:58:36 P.M. Central Standard Time,

salozier@... writes:

Imogene,

the book was " Riding the Rollercoaster with Lewy Body Dementia by Jim and

Helen Whitworth. You can go to there site or the LBD site and look at the

refer. for professtional and then at the books. It is really a good book

that is no nonsense and right to the point about all aspects of LBD, the dos

and don't. And since it is written for " professionals " I think they are a

little more able to accept the new information than maybe from us LOL.

But I have to say that the hospice team I had were great at listening to me

and also the Doctor that Don had here in Colorado was great. I know I was

very lucky to have had such a great team and I truly hope you can get that

type of support too. Sorry for the long letter but wanted you to have the

info.

Sherry in Colorado

[Guest guest]

Hi Imogene-

I am glad you asked if Don was an involuntary discharge. It's good to know that

straight up. I didn't know that was even an option, had never heard those words

until I received the letter in the mail day after transferring my dad to the

hospital. Dad had gone before as the NH always wanted to " fix " my dad. For

some reason I knew this time was different. I had never asked before if my dad

would be back at the NH, just knew he would after his stay in the hospital.

Something told me to ask this time.

It definitely wasn't a good time to drive to the NH and transfer my dad. I was

light headed and dizzy. Some where I found strength to take care of the

situation and I am sure prayer got me through it. I have nothing else to

attribute the strength to.

I wanted for so long to go back to that NH and speak my mind but would talk

myself out of it because I didn't want to give them any of my energy. We are

often taught the opposite of love is hate when in fact I believe the opposite is

indifference. Both love and hate show emotions and give energy, indifference

gives one nothing, no energy. I chose to take that road and never did contact

that NH again. Also, it was more important to me to use my energy taking care

of my dad and making sure his journey was as smooth as I could make it.

I agree with you, we must laugh in situations. Love your sense of humor and

your giggling.

Praying for your strength, wisdom, and courage to continue to care for your dear

Don-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

MIL, Jo, passed from LBD 4-29-07, age 78

----- Re: Imogene

Date: Thu, 4 Feb 2010 21:38:59 EST

Dear Sandie, I point blank asked if Don was an involuntary discharge? The

administrator said " No. " I asked if he became immobile if they would accept

him back? I don't want him there, but I wanted to know what her attitude

was. She remained very nice through our conversations. I've talked with her

twice.

Sandie, having to handle what you did was awful when you hadn't had

anything to eat all day. You must have been weak as a kitten. Yet, you had to do

everything. Isn't that the way it is? For them to pull that underhanded

trick on you was not very nice to say the least. I'll beat your NH up for you

if you'll come and beat my NH up.

Ugly Imogene. Sandie, I am obviously in a tired silly mood. Laugh with

me. If we don't, we cry.

Love you dear,

Imogene

In a message dated 2/4/2010 5:13:31 P.M. Central Standard Time,

sanclown@... writes:

Hi Imogene-

What happened with my dad was they wanted to transfer him to the adult

psychiatric unit but couldn't do the transfer without my permission. I was in

the middle of hypoglycemic testing. The NH kept calling me and I couldn't

leave the doctor's office. The NH kept telling me they had ordered a

wheelchair transportation service. I called to tell them I was on my way,

after the testing...hadn't had anything to eat all day because I was to fast

for the testing. I was stuck in traffic, the NH called a couple times while

in traffic. When I got to the NH I was then told they had NOT ordered a

wheelchair transportation service but my dad needed to be transferred to the

adult psych unit. It was then I put my dad in my truck. There were 2 of

the staff there with me but I did all the work. After I shut dad's side

door something made me ask if my dad was coming back to the NH and the 2 staff

people said... " oh yes! " Told me not to worry, dad would be back. The

obviously lied to m

e. The next day was when the letter came to my house stating an

" involuntary discharge " .

I completely understand your disgust with care Don has received. I felt

the same with my dad but didn't have the option to have my dad at my house.

I am so pleased Don had results. Your diligence paid off. Great job!!

So very glad you are finding some time to relax. Sounds like your

caregiver is a real gem and a keeper. Happy she is doing cleaning and some

cooking. That is definitely a big help.

Continue to take care of yourself as you care for Don!

Many hugs with prayers going up-

Sandie

[Guest guest]

Sandie, I didn't know to ask, except that you told me about an involuntary

discharge. And I thank you for helping me.

It has been a very hard day. Don wet the house in nearly every room. He

was soaked from head to toe, and had taken everything off except an

undershirt which was wet too. We don't have central heat, and have tile floors

on

top of that. You can imaging how cold some of these unheated rooms can get,

even at forty degrees. especially when wet.

His two pairs of socks were heavy with urine and he slopped everywhere

with them on. He even opened the front door, and left it open, trying to find

me. I am right across the hall, but he can't remember that. I just happened

to wake up and saw him. He was shivering. No wonder he got pneumonia

before.

Right now, he has a terrible situation on his private area. It may not be

scald at all.

I will take him to the doctor on Monday. Now, I lean toward believing it

is a yeast infection from the antibiotic he took for the pneumonia. I don't

know what a yeast infection looks like on a man. We have been scrupulous in

taking care to keep him clean, and heal the scald. Tonight I applied a

heavy coat of Monistat 7 to every single inch of bad places. Tomorrow if it

doesn't look better of course I will clean him up again, and open a whole new

tube of ointment for diaper rash. We have used Gold Bond powder that is

medicated, but that didn't help, Don loves it as it has helped him many times

for other things. Oh yes, and I used the ointment the NH was using.

Are we having fun yet?

Love a bunch, and with a smile,

Imogene

Caregiver for my true Texas Gentleman Husband, who was diagnosed with AD

in '05, but correctly diagnosed with LBD in March '06.

A happy personality is contagious. Infect someone today

Yours Truly

In a message dated 2/6/2010 10:41:03 A.M. Central Standard Time,

sanclown@... writes:

Hi Imogene-

I am glad you asked if Don was an involuntary discharge. It's good to

know that straight up. I didn't know that was even an option, had never heard

those words until I received the letter in the mail day after transferring

my dad to the hospital. Dad had gone before as the NH always wanted to

" fix " my dad. For some reason I knew this time was different. I had never

asked before if my dad would be back at the NH, just knew he would after his

stay in the hospital. Something told me to ask this time.

It definitely wasn't a good time to drive to the NH and transfer my dad.

I was light headed and dizzy. Some where I found strength to take care of

the situation and I am sure prayer got me through it. I have nothing else

to attribute the strength to.

I wanted for so long to go back to that NH and speak my mind but would

talk myself out of it because I didn't want to give them any of my energy. We

are often taught the opposite of love is hate when in fact I believe the

opposite is indifference. Both love and hate show emotions and give energy,

indifference gives one nothing, no energy. I chose to take that road and

never did contact that NH again. Also, it was more important to me to use

my energy taking care of my dad and making sure his journey was as smooth

as I could make it.

I agree with you, we must laugh in situations. Love your sense of humor

and your giggling.

Praying for your strength, wisdom, and courage to continue to care for

your dear Don-

Sandie

Des Moines, IA

[Guest guest]

Hello Imogene

Hospice would have allowed me to continue any meds they did not buy as long as I

purchased them myself. But like I said, I challenged the ones they first said

they would not buy and showed them the study we have in our files (I think) that

show that LBD people continue to get benifits from things like Aricept much

longer than Alzh people.

\

I too thought it was to earily for my Don to be on Hospice due to the same

things you are saying, but his Dr. pushed it and when Hospice came out they felt

he was indeed in need of them.

You need to have your Dr. write a perscription for Hospice and he will need to

continue to redo the reconmendation when approperate. Hospice will help you

with that part. BUT ....call around to the various hospice and if possiple get

ref. and THEN tell the Dr. WHICH hospice you want to use and he/she will send

the paperwork to that hospice. I encourage you to go for it. I was just like

you saying but he is still walking around, and I don't think he is ready. Don's

dr. really talked to me about how the hospice mission has changed over the years

and that my Don really was ready, and most important I was really ready. As the

dr. put it to me, " so Sherry, when you get hurt trying to catch Don and you can

no longer take care of him, what happens then! " I agreed and was so happy I

did. Yes they will come on weekends if appro. They are 24/7 year round!

>

> Sherry, thanks for the info.

> Imogene

>

>

> In a message dated 2/5/2010 3:58:36 P.M. Central Standard Time,

> salozier@... writes:

>

> Imogene,

>

> the book was " Riding the Rollercoaster with Lewy Body Dementia by Jim and

> Helen Whitworth. You can go to there site or the LBD site and look at the

> refer. for professtional and then at the books. It is really a good book

> that is no nonsense and right to the point about all aspects of LBD, the dos

> and don't. And since it is written for " professionals " I think they are a

> little more able to accept the new information than maybe from us LOL.

> But I have to say that the hospice team I had were great at listening to me

> and also the Doctor that Don had here in Colorado was great. I know I was

> very lucky to have had such a great team and I truly hope you can get that

> type of support too. Sorry for the long letter but wanted you to have the

> info.

>

> Sherry in Colorado

>

>

>

>

[Guest guest]

Sherry, once again, that you profusely. I will look into it. I need more

help than I have now. Today, was a killer. I may put him into another

nursing home, but their care is not good.

There is a very nice Hospice just around the corner from me. Well, a

little more than just around the corner, but I will look there first.

Love so much,

Imogene

In a message dated 2/6/2010 4:27:16 P.M. Central Standard Time,

salozier@... writes:

Hello Imogene

Hospice would have allowed me to continue any meds they did not buy as

long as I purchased them myself. But like I said, I challenged the ones they

first said they would not buy and showed them the study we have in our

files (I think) that show that LBD people continue to get benifits from things

like Aricept much longer than Alzh people.

\

I too thought it was to earily for my Don to be on Hospice due to the same

things you are saying, but his Dr. pushed it and when Hospice came out

they felt he was indeed in need of them.

You need to have your Dr. write a perscription for Hospice and he will

need to continue to redo the reconmendation when approperate. Hospice will

help you with that part. BUT ....call around to the various hospice and if

possiple get ref. and THEN tell the Dr. WHICH hospice you want to use and

he/she will send the paperwork to that hospice. I encourage you to go for

it. I was just like you saying but he is still walking around, and I don't

think he is ready. Don's dr. really talked to me about how the hospice

mission has changed over the years and that my Don really was ready, and most

important I was really ready. As the dr. put it to me, " so Sherry, when you

get hurt trying to catch Don and you can no longer take care of him, what

happens then! " I agreed and was so happy I did. Yes they will come on

weekends if appro. They are 24/7 year round!

>

> Sherry, thanks for the info.

> Imogene

>

>

[Guest guest]

Oh my, dear Imogene!

I can't imagine what you must be going through right now!  I wish I had some

good advice on what to use on Don.... I used to use A & D ointment for diaper

rash.....  the monistat sounds like a good idea, though.  If you called the

doctor, would he be able to call something in, or do you have to wait till

Monday?

Sending hugs and love,

Helene

Subject: Re: Imogene

To: LBDcaregivers

Date: Saturday, February 6, 2010, 10:24 PM

 

Sandie, I didn't know to ask, except that you told me about an

involuntary

discharge. And I thank you for helping me.

It has been a very hard day. Don wet the house in nearly every room. He

was soaked from head to toe, and had taken everything off except an

undershirt which was wet too. We don't have central heat, and have tile floors

on

top of that. You can imaging how cold some of these unheated rooms can get,

even at forty degrees. especially when wet.

His two pairs of socks were heavy with urine and he slopped everywhere

with them on. He even opened the front door, and left it open, trying to find

me. I am right across the hall, but he can't remember that. I just happened

to wake up and saw him. He was shivering. No wonder he got pneumonia

before.

Right now, he has a terrible situation on his private area. It may not be

scald at all.

I will take him to the doctor on Monday. Now, I lean toward believing it

is a yeast infection from the antibiotic he took for the pneumonia. I don't

know what a yeast infection looks like on a man. We have been scrupulous in

taking care to keep him clean, and heal the scald. Tonight I applied a

heavy coat of Monistat 7 to every single inch of bad places. Tomorrow if it

doesn't look better of course I will clean him up again, and open a whole new

tube of ointment for diaper rash. We have used Gold Bond powder that is

medicated, but that didn't help, Don loves it as it has helped him many times

for other things. Oh yes, and I used the ointment the NH was using.

Are we having fun yet?

Love a bunch, and with a smile,

Imogene

Caregiver for my true Texas Gentleman Husband, who was diagnosed with AD

in '05, but correctly diagnosed with LBD in March '06.

A happy personality is contagious. Infect someone today

Yours Truly

In a message dated 2/6/2010 10:41:03 A.M. Central Standard Time,

sanclownjuno (DOT) com writes:

Hi Imogene-

I am glad you asked if Don was an involuntary discharge. It's good to

know that straight up. I didn't know that was even an option, had never heard

those words until I received the letter in the mail day after transferring

my dad to the hospital. Dad had gone before as the NH always wanted to

" fix " my dad. For some reason I knew this time was different. I had never

asked before if my dad would be back at the NH, just knew he would after his

stay in the hospital. Something told me to ask this time.

It definitely wasn't a good time to drive to the NH and transfer my dad.

I was light headed and dizzy. Some where I found strength to take care of

the situation and I am sure prayer got me through it. I have nothing else

to attribute the strength to.

I wanted for so long to go back to that NH and speak my mind but would

talk myself out of it because I didn't want to give them any of my energy. We

are often taught the opposite of love is hate when in fact I believe the

opposite is indifference. Both love and hate show emotions and give energy,

indifference gives one nothing, no energy. I chose to take that road and

never did contact that NH again. Also, it was more important to me to use

my energy taking care of my dad and making sure his journey was as smooth

as I could make it.

I agree with you, we must laugh in situations. Love your sense of humor

and your giggling.

Praying for your strength, wisdom, and courage to continue to care for

your dear Don-

Sandie

Des Moines, IA

[Guest guest]

Sherry, thanks for the reminder. That is a good book. I'll pull it up.

Thanks a bunch with love,

Imogene

In a message dated 2/5/2010 3:58:36 P.M. Central Standard Time,

salozier@... writes:

Imogene,

the book was " Riding the Rollercoaster with Lewy Body Dementia by Jim and

Helen Whitworth. You can go to there site or the LBD site and look at the

refer. for professtional and then at the books. It is really a good book

that is no nonsense and right to the point about all aspects of LBD, the dos

and don't. And since it is written for " professionals " I think they are a

little more able to accept the new information than maybe from us LOL.

But I have to say that the hospice team I had were great at listening to me

and also the Doctor that Don had here in Colorado was great. I know I was

very lucky to have had such a great team and I truly hope you can get that

type of support too. Sorry for the long letter but wanted you to have the

info.

Sherry in Colorado

[Guest guest]

Hi Darling Helene, I am going to have the doctor see Don tomorrow. I

looked up

Yeast (Candida) on the computer last night, and all the pictures look just

like what Don has. I used the Monistat 7 twice now, and it did do some

good already. He no longer has the diaper rash. Oh yes, poor baby he had both.

Well, the Doctor will confirm it tomorrow.

I am a walking bag of fatigue and discomfort. He got up at four this

morning and had a very full diaper, so I put more ointment on him before

putting on a clean diaper. When I wash him I use anti-bacterial soap. That too,

will keep down secondary infections in his rash. I am going to care for him

until his Yeast is gone.

The caregiver is good but doesn't seem to see all the creases. Two of

which are pretty bad.

I am going to insist the doctor find out what is wrong with me. The

diarrhea, and terrible back pain. I can't take much more.

There are two NHs that have lock down. If I need to place him again I will

ask the doctor to assign him to one of them.

How does one take care of the caregiver? I try to exercise using the

exercises that I was taught a long time ago to strengthen my back. I try to get

some sleep, but that isn't always possible. Not just from him but, from my

own problems. This weekend has been a humdinger. Something is going to have

to be done. ????

Hauling him off to daycare won't help. Like right now he is asleep, and I

can't sleep.

It is time off anyway.

I made a nice lunch, and did all the dishes, as well as washed a bunch of

glasses by hand. We have extra hard water, and some of my glasses have been

put in the dishwasher and ruined already. After that I filled our weekly

medical daily planner.

We sure do take a lot of medicine.

There is so much more to do, but it will wait.

Love a bunch,

Imogene

In a message dated 2/6/2010 10:40:48 P.M. Central Standard Time,

hgm54@... writes:

Oh my, dear Imogene!

I can't imagine what you must be going through right now! I wish I had

some good advice on what to use on Don.... I used to use A & D ointment for

diaper rash..... the monistat sounds like a good idea, though. If you called

the doctor, would he be able to call something in, or do you have to wait

till Monday?

Sending hugs and love,

Helene

[Guest guest]

Thanks Joan, I sure will let you know what the doctor says. It is too bad

he had to get yeast as an aftermath of an Antibiotic for his pneumonia.

Goodness what that man has endured through the years.

Love a lot,

Imogene

In a message dated 2/7/2010 1:36:24 P.M. Central Standard Time,

joan_croft@... writes:

Hi Imogene,

I'm sorry about your (you and Don) bad day.

I think that if it is a fungal infection it would have discharge and maybe

a quilty look. Keep using the Lotrimin because that stuff starts working

fairly quickly...but you can't stop it when it looks better because you

have to use it a little longer to actually get it away completely.

Let us know what the doctor says tomorrow.

Hugs and prayers,

JOan

[Guest guest]

Hi Imogene,

I'm sorry about your (you and Don) bad day.

I think that if it is a fungal infection it would have discharge and maybe a

quilty look. Keep using the Lotrimin because that stuff starts working fairly

quickly...but you can't stop it when it looks better because you have to use it

a little longer to actually get it away completely.

Let us know what the doctor says tomorrow.

Hugs and prayers,

JOan

>

> Sandie, I didn't know to ask, except that you told me about an involuntary

> discharge. And I thank you for helping me.

>

> It has been a very hard day. Don wet the house in nearly every room. He

> was soaked from head to toe, and had taken everything off except an

> undershirt which was wet too. We don't have central heat, and have tile floors

on

> top of that. You can imaging how cold some of these unheated rooms can get,

> even at forty degrees. especially when wet.

>

> His two pairs of socks were heavy with urine and he slopped everywhere

> with them on. He even opened the front door, and left it open, trying to find

> me. I am right across the hall, but he can't remember that. I just happened

> to wake up and saw him. He was shivering. No wonder he got pneumonia

> before.

>

> Right now, he has a terrible situation on his private area. It may not be

> scald at all.

> I will take him to the doctor on Monday. Now, I lean toward believing it

> is a yeast infection from the antibiotic he took for the pneumonia. I don't

> know what a yeast infection looks like on a man. We have been scrupulous in

> taking care to keep him clean, and heal the scald. Tonight I applied a

> heavy coat of Monistat 7 to every single inch of bad places. Tomorrow if it

> doesn't look better of course I will clean him up again, and open a whole new

> tube of ointment for diaper rash. We have used Gold Bond powder that is

> medicated, but that didn't help, Don loves it as it has helped him many times

> for other things. Oh yes, and I used the ointment the NH was using.

>

> Are we having fun yet?

>

> Love a bunch, and with a smile,

>

> Imogene

>

> Caregiver for my true Texas Gentleman Husband, who was diagnosed with AD

> in '05, but correctly diagnosed with LBD in March '06.

> A happy personality is contagious. Infect someone today

> Yours Truly

>

>

>

> In a message dated 2/6/2010 10:41:03 A.M. Central Standard Time,

> sanclown@... writes:

>

> Hi Imogene-

> I am glad you asked if Don was an involuntary discharge. It's good to

> know that straight up. I didn't know that was even an option, had never

heard

> those words until I received the letter in the mail day after transferring

> my dad to the hospital. Dad had gone before as the NH always wanted to

> " fix " my dad. For some reason I knew this time was different. I had never

> asked before if my dad would be back at the NH, just knew he would after his

> stay in the hospital. Something told me to ask this time.

> It definitely wasn't a good time to drive to the NH and transfer my dad.

> I was light headed and dizzy. Some where I found strength to take care of

> the situation and I am sure prayer got me through it. I have nothing else

> to attribute the strength to.

> I wanted for so long to go back to that NH and speak my mind but would

> talk myself out of it because I didn't want to give them any of my energy.

We

> are often taught the opposite of love is hate when in fact I believe the

> opposite is indifference. Both love and hate show emotions and give energy,

> indifference gives one nothing, no energy. I chose to take that road and

> never did contact that NH again. Also, it was more important to me to use

> my energy taking care of my dad and making sure his journey was as smooth

> as I could make it.

> I agree with you, we must laugh in situations. Love your sense of humor

> and your giggling.

> Praying for your strength, wisdom, and courage to continue to care for

> your dear Don-

> Sandie

> Des Moines, IA

>

>

>

>

>

[Guest guest]

Darling Helene, I have been using Dial Liq antibacterial soap for many

years, and the reason for that is everything I tried did indeed dry me out

terribly. I noted that it wasn't drying my hands so much when used just for

that. It worked so well as apposed to other products, that I began using it

all over.

Don normally uses Dove for his bath but it didn't do any good for me at

all. You have never seen anyone, and I do mean anyone, with dryer skin than

me. I don't know what it is about my skin makeup that makes it so difficult

to buy products that work the easiest.

I haven't used it much on Don. Just this weekend when is gone. I

figured it would help with the bacteria, and the Monistat 7 would help with

the yeast. Since it is weekend and I have no one to help me, I am trying to

do the best I can when I couldn't see the doctor, and couldn't go to a drug

store to talk to a pharmacist.

So there you have the weekend saga.

Love so much,

Imogene

In a message dated 2/7/2010 6:33:18 P.M. Central Standard Time,

hgm54@... writes:

Dear Imogene,

Be careful with the anti-bacterial soap - it can be very very drying, and

cause other issues...

I hope the doctor has a solution for your aches and pains.... you have to

take care of yourself too (although I'm bad about doing that myself). You

have such spirit and spunk - all in the face of adversity. You are such a

model for us all.

Please keep us posted after you get Don to the doctor (and yourself too).

Will send up lots of prayers for good outcomes.

With love from frigid NY,

Helene

[Guest guest]

Dear Imogene,

Be careful with the anti-bacterial soap - it can be very very drying, and cause

other issues... 

I hope the doctor has a solution for your aches and pains....  you have to take

care of yourself too (although I'm bad about doing that myself).  You have such

spirit and spunk - all in the face of adversity.  You are such a model for us

all.

Please keep us posted after you get Don to the doctor (and yourself too).

Will send up lots of prayers for good outcomes.

With love from frigid NY,

Helene

Subject: Re: Imogene

To: LBDcaregivers

Date: Sunday, February 7, 2010, 3:44 PM

 

Hi Darling Helene, I am going to have the doctor see Don tomorrow. I

looked up

Yeast (Candida) on the computer last night, and all the pictures look just

like what Don has. I used the Monistat 7 twice now, and it did do some

good already. He no longer has the diaper rash. Oh yes, poor baby he had both.

Well, the Doctor will confirm it tomorrow.

I am a walking bag of fatigue and discomfort. He got up at four this

morning and had a very full diaper, so I put more ointment on him before

putting on a clean diaper. When I wash him I use anti-bacterial soap. That too,

will keep down secondary infections in his rash. I am going to care for him

until his Yeast is gone.

The caregiver is good but doesn't seem to see all the creases. Two of

which are pretty bad.

I am going to insist the doctor find out what is wrong with me. The

diarrhea, and terrible back pain. I can't take much more.

There are two NHs that have lock down. If I need to place him again I will

ask the doctor to assign him to one of them.

How does one take care of the caregiver? I try to exercise using the

exercises that I was taught a long time ago to strengthen my back. I try to get

some sleep, but that isn't always possible. Not just from him but, from my

own problems. This weekend has been a humdinger. Something is going to have

to be done. ????

Hauling him off to daycare won't help. Like right now he is asleep, and I

can't sleep.

It is time off anyway.

I made a nice lunch, and did all the dishes, as well as washed a bunch of

glasses by hand. We have extra hard water, and some of my glasses have been

put in the dishwasher and ruined already. After that I filled our weekly

medical daily planner.

We sure do take a lot of medicine.

There is so much more to do, but it will wait.

Love a bunch,

Imogene

In a message dated 2/6/2010 10:40:48 P.M. Central Standard Time,

hgm54yahoo (DOT) com writes:

Oh my, dear Imogene!

I can't imagine what you must be going through right now! I wish I had

some good advice on what to use on Don.... I used to use A & D ointment for

diaper rash..... the monistat sounds like a good idea, though. If you called

the doctor, would he be able to call something in, or do you have to wait

till Monday?

Sending hugs and love,

Helene

[Guest guest]

Hi Imogene...

Sometimes when your back is real bad it will cause diarhea. The nerves can be

inflamed and swollen that go to the bowels. I'm sure your doctor would know

that, but point it out if the doctor doesnt'.

>

> Hi Darling Helene, I am going to have the doctor see Don tomorrow. I

> looked up

> Yeast (Candida) on the computer last night, and all the pictures look just

> like what Don has. I used the Monistat 7 twice now, and it did do some

> good already. He no longer has the diaper rash. Oh yes, poor baby he had

both.

> Well, the Doctor will confirm it tomorrow.

>

> I am a walking bag of fatigue and discomfort. He got up at four this

> morning and had a very full diaper, so I put more ointment on him before

> putting on a clean diaper. When I wash him I use anti-bacterial soap. That

too,

> will keep down secondary infections in his rash. I am going to care for him

> until his Yeast is gone.

> The caregiver is good but doesn't seem to see all the creases. Two of

> which are pretty bad.

>

> I am going to insist the doctor find out what is wrong with me. The

> diarrhea, and terrible back pain. I can't take much more.

>

> There are two NHs that have lock down. If I need to place him again I will

> ask the doctor to assign him to one of them.

>

> How does one take care of the caregiver? I try to exercise using the

> exercises that I was taught a long time ago to strengthen my back. I try to

get

> some sleep, but that isn't always possible. Not just from him but, from my

> own problems. This weekend has been a humdinger. Something is going to have

> to be done. ????

>

> Hauling him off to daycare won't help. Like right now he is asleep, and I

> can't sleep.

> It is time off anyway.

>

> I made a nice lunch, and did all the dishes, as well as washed a bunch of

> glasses by hand. We have extra hard water, and some of my glasses have been

> put in the dishwasher and ruined already. After that I filled our weekly

> medical daily planner.

> We sure do take a lot of medicine.

>

> There is so much more to do, but it will wait.

>

> Love a bunch,

> Imogene

>

>

>

>

> In a message dated 2/6/2010 10:40:48 P.M. Central Standard Time,

> hgm54@... writes:

>

> Oh my, dear Imogene!

>

> I can't imagine what you must be going through right now! I wish I had

> some good advice on what to use on Don.... I used to use A & D ointment for

> diaper rash..... the monistat sounds like a good idea, though. If you

called

> the doctor, would he be able to call something in, or do you have to wait

> till Monday?

>

> Sending hugs and love,

> Helene

>

>

>

>

>

[Guest guest]

Imogene: Hang in there but get yourself more help somehow--call Hospice

this week and see what they can do--ask the Doctor about it tomorrow--I

think You have to have a Doc recommend it anyway. You have to take care of

yourself, if you don't, who will be Don's advocate? Good luck with the

rash. Are you using fitted depends briefs on him? We had very good luck

with them--well, they were brand X but they worked better than the velcro or

botton ones. And Ray did not object to them as much.

LeonaLeona: Caregiver for husband Ray, age 68, diagnosed 2/04 with

Parkinson's Disease. Changed doctors, diagnosed 6/06 with LBD. Almost

continual downhill slide no matter what drugs we try. 5/2/08 Ray was placed

in Sunrise Nursing Home in Oswego, NY, 1 hour from home. So far, so good!

Hardest thing I have ever done in my life, however. 3/19/09 transferred to

Samaritan Keep NH in Watertown, NY closer to home. He passed peacefully at

5:18 am on April 14, 2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

[Guest guest]

Hi Leona, I am using a pull-up brand of brief (brand X) from our grocery

store. It works far better than Depends, and is less expensive.

I was not able to see the doctor today. I told everyone that I would let

all know what was done. The girl in the front office gave me such a

runaround, put me on hold for ten minutes, then came back talking hard and fast,

with inner office jargon that I didn't understand, but the gist of it was that

we couldn't see the doctor together, even though she had an hour opening

at 2:30. We have always seen each other together.

Further talking she said she only had a 30 minute opening. Well, as I

understood her anyway. I had messed with her 20 minutes to get an appointment,

so I said, " please cancel everything because you are driving me crazy. And

I hung up. "

There are four girls that man the big oval front desk, perhaps next time

I'll get someone else.

So, there was no doctor appointment today. Perhaps when it isn't Monday

and I get a different girl I can see the doctor.

I am very happy to report that Don's Yeast is looking much better this

morning. I am going to continue to use the Monostat 7 for this whole week, to

be sure it all clears up.

I heard a call for help and ran to Don who was in a dark bathroom on the

floor by the toilet. He must have sat on one hip and tried to use the toilet

that way, but he wasn't over the toilet. The floor had his bm as well as

urine on it, and he was sitting in it.

After helping him up and cleaning him up, all clean clothes and shoes, he

laid down and I cleaned the bathroom. He usually tells me when he wants to

go, but I was paying bills and he didn't want to disturb me. Poor baby. I

told him he comes first and anytime he needs me to let me know.

I had already washed two very large loads today, (I have a large load

washer) and when I was done with all of the above, I washed all of the above

too. Including many rags.

I don't know what I am going to do with or for him. The caregiver was

precious, but I talked to her so long that I wound up making lunch. I was

telling her about our weekend. Wild it was. Yet, in all of it I try to maintain

a calm and loving attitude. If I hurt then I will moan and groan some until

I am done dressing him. But, I smile and kiss him when we are all done. I

make sure he knows all is better.

Love you a bunch,Leona, and admire you for all you have endured while

keeping Ray home with you. And here you are helping.

Love with a smile,

Imogene

Caregiver for my true Texas Gentleman Husband, who was diagnosed with AD

in '05, but correctly diagnosed with LBD in March '06.

A happy personality is contagious. Infect someone today

Yours Truly

In a message dated 2/7/2010 11:08:46 P.M. Central Standard Time,

lchere@... writes:

Imogene: Hang in there but get yourself more help somehow--call Hospice

this week and see what they can do--ask the Doctor about it tomorrow--I

think You have to have a Doc recommend it anyway. You have to take care of

yourself, if you don't, who will be Don's advocate? Good luck with the

rash. Are you using fitted depends briefs on him? We had very good luck

with them--well, they were brand X but they worked better than the velcro

or

botton ones. And Ray did not object to them as much.

LeonaLeona: Caregiver for husband Ray, age 68, diagnosed 2/04 with

Parkinson's Disease. Changed doctors, diagnosed 6/06 with LBD. Almost

continual downhill slide no matter what drugs we try. 5/2/08 Ray was placed

in Sunrise Nursing Home in Oswego, NY, 1 hour from home. So far, so good!

Hardest thing I have ever done in my life, however. 3/19/09 transferred to

Samaritan Keep NH in Watertown, NY closer to home. He passed peacefully at

5:18 am on April 14, 2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

------------------------------------