Re: Re

[Guest guest]

I want to add what I know about Hospice....it may or may not help anyone.

Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.

I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me.

It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible.

Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.

People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.

The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.

I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.

Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process.

I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.

This board indeed has it's sad days. I'm still thinking of Ginger.

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

[Guest guest]

Sher, Your explanation of Hospice is comforting for me. My Dad had hospice care for his last three weeks. The nurses were wonderfully caring and supportive for my Mom, my brother and me. They did not force anything on any one. Dad had stated very clearly that he did not want invasive anything ( he had pancreatic cancer). Hospice was there for all of us. I can only assume that that is what is happening for L. I pray that peace come to and her family...our group has had so much pain recently.

-- Z.fibriotic NSIP/05/PA Potter, reader,carousel lover, and MomMom to Darah "I'm gonna be iron like a lion in Zion." Bob Marley

-------------- Original message --------------

I want to add what I know about Hospice....it may or may not help anyone.

Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.

I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me.

It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible.

Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.

People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.

The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.

I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.

Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process.

I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.

This board indeed has it's sad days. I'm still thinking of Ginger.

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

[Guest guest]

Sher, Thank you for your words of wisdom. With all that is going on in my life right now I needed to hear all that you said about Hospice and the dying process. My husband isn't doing good and between taking care of him and myself I am worn out so I need a few extra words of wisdom to keep me going and a few extra prayers.

Hugs and Prayers!

Barbara R IPF 1/2003>> I want to add what I know about Hospice....it may or may not help anyone. > Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.> I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me. > It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible. > Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.> People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.> The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.> I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.> Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process. > I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.> This board indeed has it's sad days. I'm still thinking of Ginger.> Sher ipf 3-06 OR.> "Don't worry about tomorrow, God is already there">

[Guest guest]

...I'm glad what I can share could bring you some comfort. We all know there are stories about Hospice both good and bad. I can't help but wonder if the stories come from one who is "medicated". I think Hospice is generally a great caring organization that does indeed help the entire family.

From time to time our board members face Hospice and I don't like to think of any of us being "afraid" of their care.

Thanks for your reply.

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

Re: Re

Sher, Your explanation of Hospice is comforting for me. My Dad had hospice care for his last three weeks. The nurses were wonderfully caring and supportive for my Mom, my brother and me. They did not force anything on any one. Dad had stated very clearly that he did not want invasive anything ( he had pancreatic cancer). Hospice was there for all of us. I can only assume that that is what is happening for L. I pray that peace come to and her family...our group has had so much pain recently.

-- Z.fibriotic NSIP/05/PA Potter, reader,carousel lover, and MomMom to Darah "I'm gonna be iron like a lion in Zion." Bob Marley

-------------- Original message -------------- From: "Sher K Bauman" <bofuswbcable (DOT) net>

I want to add what I know about Hospice....it may or may not help anyone.

Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.

I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me.

It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible.

Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.

People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.

The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.

I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.

Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process.

I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.

This board indeed has it's sad days. I'm still thinking of Ginger.

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

[Guest guest]

Barbara...I remember a post from you some time back telling us about your husband being ill with cancer. It has to be so difficult for you both.

Do you have any help from anyone?

Do you have State or County agencies who can be of help....like "Visiting Nurses" or something similar?

I pray for help for both of you.

I wish I could be a bird and fly around leaving huge "droppings" of help, health and happiness on all of us!

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

Re: Re

Sher, Thank you for your words of wisdom. With all that is going on in my life right now I needed to hear all that you said about Hospice and the dying process. My husband isn't doing good and between taking care of him and myself I am worn out so I need a few extra words of wisdom to keep me going and a few extra prayers.

Hugs and Prayers!

Barbara R IPF 1/2003>> I want to add what I know about Hospice....it may or may not help anyone. > Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.> I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me. > It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible. > Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.> People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.> The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.> I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.> Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process. > I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.> This board indeed has it's sad days. I'm still thinking of Ginger.> Sher ipf 3-06 OR.> "Don't worry about tomorrow, God is already there">

[Guest guest]

Sher, Sometimes I think that my husband is the most stuborn man in the world. He doesn't want anyone to come in and help. I do have a daughter that live about 3 miles up the road from me and she does a lot of things for me, like grocery shopping when I just don't have enough strength to do it myself. I don't know what I would do without her. Bless her heart she has me to worry about and her mother-in-law to take places since she dosen't drive and then she has 2 teenagers ages 14 & 18. The 18 year old son graduates in a few days and will be going off to collage in Sept. She really has her plate full and I try not to give her to much extra to do. She also has a full time job.

Thanks for your thoughts and your prayers.

Hugs and Prayers!

Barbara R IPF 1/2003> >> > I want to add what I know about Hospice....it may or may not help anyone. > > Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.> > I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me. > > It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible. > > Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.> > People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.> > The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.> > I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.> > Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process. > > I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.> > This board indeed has it's sad days. I'm still thinking of Ginger.> > Sher ipf 3-06 OR.> > "Don't worry about tomorrow, God is already there"> >>

[Guest guest]

Barbara...I know, none of us are "prepared" for this illness or to help when tired and busy. (Your daughter) I'm glad you have her.

I don't know your relationship and certainly don't mean to sound unsympathetic or dense....but....there may come a time when you will need to call in some help even though your husband doesn't really want it. Keep talking to him about the need. There is only so much YOU can do when you are both under such serious illness.

God bless you friend!

Sher ipf 3-06 OR."Don't worry about tomorrow, God is already there"

Re: Re

Sher, Sometimes I think that my husband is the most stuborn man in the world. He doesn't want anyone to come in and help. I do have a daughter that live about 3 miles up the road from me and she does a lot of things for me, like grocery shopping when I just don't have enough strength to do it myself. I don't know what I would do without her. Bless her heart she has me to worry about and her mother-in-law to take places since she dosen't drive and then she has 2 teenagers ages 14 & 18. The 18 year old son graduates in a few days and will be going off to collage in Sept. She really has her plate full and I try not to give her to much extra to do. She also has a full time job.

Thanks for your thoughts and your prayers.

Hugs and Prayers!

Barbara R IPF 1/2003> >> > I want to add what I know about Hospice....it may or may not help anyone. > > Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes.> > I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me. > > It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible. > > Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy.> > People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members.> > The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my family to see me afraid, thrashing and crying in my bed as their last memory of me.> > I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God.> > Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process. > > I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us.> > This board indeed has it's sad days. I'm still thinking of Ginger.> > Sher ipf 3-06 OR.> > "Don't worry about tomorrow, God is already there"> >>

[Guest guest]

--both my mother and my brother had pancreatic cancer pinkljz741@... wrote: Sher, Your explanation of Hospice is comforting for me. My Dad had hospice care for his last three weeks. The nurses were wonderfully caring and supportive for my Mom, my brother and me. They did not force anything on any one. Dad had stated very clearly that he did not want invasive anything ( he had pancreatic cancer). Hospice was there for all of us. I can only assume that that

is what is happening for L. I pray that peace come to and her family...our group has had so much pain recently. -- Z.fibriotic NSIP/05/PA Potter, reader,carousel lover, and MomMom to Darah "I'm gonna be iron like a lion in Zion." Bob Marley -------------- Original message -------------- From: "Sher K Bauman" <bofuswbcable (DOT) net> I want to add what I know about Hospice....it may or may not help anyone. Hospice in general, is a great organization and we can't know all the reasons is heavily medicated. I won't even speculate because we already know most of the reasons: Pain, comfort, palliative care, ease

in breathing, on and on. Remember her family is involved too and before reached this particular time, it was discussed between staff, and family members what could/would be done during different stages. She agreed or she would not have these meds administered. Her being-ready is her acceptance. She seems to know now that it is "her time". We will all know that when it comes. I've worked with Hospice and patients on many occasions and although there are always less desirable anything's among the good, I believe in Hospice. Some people may not share my opinion. My personal experiences with Hospice sooth me. It may be her very last stages now and it's standard protocol to keep her comforted and medicated and breathing as easily as possible.

Remember Ginger? She too slept most of the time during her last week, waking only occasionally. The meds do affect the cognitive processes and is of course fuzzy. People seem to die one of two ways. Fighting all the way; the meds, the Dr.'s, advice, claiming accusations, anything and everything; usually out of fear....meds calm patients down and makes caring for them easier. It also eases them into the "good night," making the dying transition easier for medical personal, patient and family members. The other is quiet acceptance, no fear. say's, " I am not afraid." I felt tears spring up when I read that. I too want to be able to say I'm not afraid when my time comes! I won't care if it is medicinally induced! I don't want to die afraid. I don't want my

family to see me afraid, thrashing and crying in my bed as their last memory of me. I hope I'm easing fears about , if only a little, if only for a few. Don't panic, don't catastrophize or go into imaginings. We have no choice but to trust Hospice, her family and most importantly, God. Hospice is a trustworthy organization. Their primary goal is to ease the dying patient, maintain their comfort and/or pain level and provide an easy transition during the dying process. I personally believe God is in control and He has mercy and whatever happens with (all of us) is what God wants for us. This board indeed has it's sad days. I'm still thinking of Ginger. Sher ipf

3-06 OR."Don't worry about tomorrow, God is already there" Pink Joyce IPF 3/06 Pennslvania

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