Re: Kennedy's Cardiology Appt

[Guest guest]

,

I haven't been to the list in a while... I'm sorry to read about

Kennedy's heart problem & I just want you to know that she's in my

thoughts & prayers!

Lori Brittell: Mom2CHARgEr,Cheyenne,8yrs.

dezert_penguin@...

www.geocities.com/the_dutch2000

> Just when you thought you were out of the " medical " scene for a

while...

> Kennedy had an ECHO today and a cardiology appt...routine...or so I

thought.

> Her aorta is significantly narrowed and she will need to have

ANOTHER open heart surgery within a year. I was pretty bowled over

(total surprise, we thought " oh yeah, another routine heart checkup " )

but I am feeling better now. We need to make some tough decisions

about who will do it, where it will be done, etc because she had an

anaphylactic reaction to anesthetic in January. yay...another day in

the life of a CHARGEr.....

> She, of course, is handling all of this much better than us...

> ~ Weir

> Mom to Kennedy, 5yr old CHARGEr, 13, 12, and wife to

Graeme

> Saint , New Brunswick, Canada

> Visit the Weir Family Website - http://personal.nbnet.nb.ca/gweir

> CHARGE Syndrome Canada - http://www.chargesyndrome.ca

>

>

>

>

>

[Guest guest]

Hi ,

I can't believe she's 8 either! - her Bday is actually next week &

we're having her party at summer school with all her classmates -

should be very cute!

She's doing well, she loves school! She's finally crawling & climbing

on the furniture - & with help, she'll even take some " baby-steps " !

But she still doesn't do much signing & she still won't eat - oh

well, all things in time!

So, aside from the heart issue, how is Kennedy doing?

-Lori Brittell

Mom2CHARgEr,Cheyenne,8yrs.

dezert_penguin@...

http://www.geocities.com/the_dutch2000

> > Just when you thought you were out of the " medical " scene for a

> while...

> > Kennedy had an ECHO today and a cardiology appt...routine...or

so I

> thought.

> > Her aorta is significantly narrowed and she will need to have

> ANOTHER open heart surgery within a year. I was pretty bowled

over

> (total surprise, we thought " oh yeah, another routine heart

checkup " )

> but I am feeling better now. We need to make some tough

decisions

> about who will do it, where it will be done, etc because she had

an

> anaphylactic reaction to anesthetic in January. yay...another

day in

> the life of a CHARGEr.....

> > She, of course, is handling all of this much better than us...

> > ~ Weir

> > Mom to Kennedy, 5yr old CHARGEr, 13, 12, and wife to

> Graeme

> > Saint , New Brunswick, Canada

> > Visit the Weir Family Website -

http://personal.nbnet.nb.ca/gweir

> > CHARGE Syndrome Canada - http://www.chargesyndrome.ca

> >

> >

> >

> >

> >