First week - a few questions (long-sorry)

[Guest guest]

My 10 yr old asd son started the diet one week ago. First for the

good news. He has been eating the new foods I have been giving him.

It's truley a miracle because this is a child who would throw up on

site by just looking at food on someone elses plate!! (hypersensitive

olfactory system too). His old school had tried putting him on a food

program for years and always gave up because he was so impossible. (I

am currently homeschooling).

This is what he has been eating; chicken (boiled and roasted),

turkey, squash meatballs from beef and veal(new), sneaky pancakes

(new), chicken avocado salad (new), zucchini pancakes (new),green

beans, broccoli, 3-4 spoons applesauce a day (he doesn't like it) 1-2

cups(max)of watered down grape juice per day and he had 1 banana 2

days ago. He also ate a " cholent " (kosher stew). Cholent is usually

meat, potatoes, and barley. When we went gf/cf we substituted rice

for the barley. Now that we are SCD, I substituted cauliflower for

the rice (and of course no more potatoes) and he didn't realize it!!!

Now for the questions:

1. I know it's only been a week, but I read other posts from newbies

whose kids either had a good or bad reaction in the beginning.

Jordan is exactly the same as always. Stimming, tantrums a few times

a day, lots of hand flapping when excited...but no more or less than

usual. Is this a typical reaction too? This morning he woke up this

way and just sort of danced around for an hour flapping. What could

possibly be the cause of such behavior so early in the morning before

even consuming any food to react to?

2. How do I know if he has phenol sensitivity? Is it possible he is

and I just don't know it since he reacts to just about everything?

Should I pull out the juice, apples...?

3. When he had an IGg and RAST done, he scored a 1 on coconut and

egg yolks (low sensitivity). Although I don't hold much faith in the

accuracy of these tests, should I avoid these foods altogether until

later? (I'll be so sad if no more sneaky pancakes).

4. He has not had a bowel movement since last Thursday.(He usually

goes every 3-4 days). He won't drink the prune juice. What should I

do?

Thank you all so much for your help and knowledge (and recipes, Jody)!

Suzanne, Mom to Jordan 10, asd, 1 wk on diet

[Guest guest]

Wow, you're doing great.

Those tests aren't always accurate.

Who wouldn't love a good " cholent " ?

On Thursday, January 22, 2004, at 01:59 PM, suzjorand wrote:

> My 10 yr old asd son started the diet one week ago.  First for the

> good news. 

>

Carol F.

---------

c.frilegh@...

Toronto , Celiac SCD 2 years

There is no substitute for the right food!

[Guest guest]

Hi Suzanne,

If the early morning behavior is different than usual..... I mean, in terms of

timing..... it is probably bacterial/yeast die-off, rather than any sort of

food intolerance. So, in effect, the yeast and bacteria that have been giving

off their toxins all along, are now giving off the same toxins as they die

off...... but in greater amounts. It seems as though you are also seeing

improvement..... maybe not directly in behavior.... but certainly his acceptance

of all the new foods is a very positive sign for him! Any time we see good

things.... however small they may be.... along with any negative, we assume it's

die-off and will probably be temporary. Try giving epsom salts baths to help

calm and support detox. If he is having any sensitivity to phenols, the baths

will help with that, too. I certainly wouldn't give up the eggs unless he has an

actual physical reaction to them. Constipation wise, I'd add a magnesium

supplement. Magnesium citrate works well. If you really can't get him to take

the prune/OJ constipation remedy from Elaine, plain Milk of Magnesia may help

and is legal, I believe. Of course, we hope he won't really need that beyond the

beginning weeks. Also, just be sure he's drinking a lot..... push those fluids.

It's pretty common for kids to be constipated in the beginning as they are

adjusting to the changes, but if he's really uncomfortable, you may need to try

a glycerin suppository or something like that. Applesauce is " binding " (may

exacerbate constipation) for some kids.... and banana can be as well. So....

don't worry about forcing that if he doesn't like it. Keep lots of veggies

coming in, though. It sounds like he's trying quite a few different ones but

make sure you try to balance the volume..... in other words, you don't want him

to be eating 90% meat and 10% veggies. That would constipate anyone! Did you do

the intro diet for a couple of days in the beginning?

Patti, mom to Katera, SCD 9 months

----- Original Message -----

<<My 10 yr old asd son started the diet one week ago. >> << Now for the

questions:

This morning he woke up this

way and just sort of danced around for an hour flapping. What could possibly

be the cause of such behavior so early in the morning before

even consuming any food to react to? >>

<<2. How do I know if he has phenol sensitivity? Is it possible he is

and I just don't know it since he reacts to just about everything?

Should I pull out the juice, apples...?>>

<<4. He has not had a bowel movement since last Thursday.(He usually goes

every 3-4 days). He won't drink the prune juice. What should I do?

Thank you all so much for your help and knowledge (and recipes, Jody)!

Suzanne, Mom to Jordan 10, asd, 1 wk on diet>>