Re: Understanding the numbers

[Guest guest]

HARLEY,,,,,,hi my name is crystal,,,my daughter which is 9 has iga,,,,she was

getting the IV steriod treatments for 16 days every other day,,,now she is on

the prednisone every other day at 30mg,,,,plus azathioprine 50mg,,noravac 5mg

twice a day,,fish oil 3 times a day,,zantac twice a day,,,iron pilss

324mg,,vasotec 5mg twice a day,,and foltx,,they told me the reason they are

doing the prednisone stuff is to help prolong the life of the kidneys,,,,and

fish oil helps the filters in the kidneys from getting damaged,,,,plus 2 of

them meds are blood pressure meds,,,,and we just found out in jan she had

this disease,,,,when did u find out?,,,,,does your blood pressure run

high,,,and what all meds are you on at this time?,,,,,,,hope to hear from you

soon,,,,,,,,crystal,,,(south carolina)

[Guest guest]

PIERRE,,,,,,,hi this is crystal,,,,my daughter was on IV steriods for 16

days ,,,and now the pills prednisone,,,,,every other day 30mg,,,and in dec

her protein was 11,000,,,,,,now it is 1195,,,,,,so the steriods has help a

great deal,,,,crystal

[Guest guest]

Well, based on those numbers, your serum creatinine is going up a bit, and

your creatinine clearance is less - the usual pattern for slowly progressing

IgAN. If the 2.4 grams is 24 hr proteinuria, that's a little on the high

side, but not dramatically so. You would probably want to get that down if

you can. Are you taking an ACE inhibitor?

Pierre

Understanding the numbers

> thanks for the previous responses. I now have my med records. These are

some of the numbers I see - Creatinine 1.7 clearance 61 and 2.4 grams -

this was 1-10 -03. Previously on 11-13-01 creatinine was 1.3 clearance 94.

What other info should I be interested in? Thanks again Harley

>

[Guest guest]

Thanks Pierre, Yes I am on 20 mg lisinpril. Are there any other numbers that

are of concern. My Neph doc felt I was borderline nephrotic range and has

started me on prednisone. I am doing the solu-Medrol 1 gram IV on months 1,3,5

and 40 mg prednisone every other day - are you familiar with this? Is this

early intervention? Harley

Understanding the numbers

> thanks for the previous responses. I now have my med records. These are

some of the numbers I see - Creatinine 1.7 clearance 61 and 2.4 grams -

this was 1-10 -03. Previously on 11-13-01 creatinine was 1.3 clearance 94.

What other info should I be interested in? Thanks again Harley

>

[Guest guest]

Sounds like your neph is already treating the proteinuria fairly

agressively, even though it's under the number usually considered to be

nephrotic range. You're the first person I've ever heard of on this group

being given IV steroids. 40 mg oral prednisone every other day is not

unusual. It will be interesting to see how your proteinuria improves after a

few months.

Pierre

Re: Understanding the numbers

> Thanks Pierre, Yes I am on 20 mg lisinpril. Are there any other numbers

that are of concern. My Neph doc felt I was borderline nephrotic range and

has started me on prednisone. I am doing the solu-Medrol 1 gram IV on months

1,3,5 and 40 mg prednisone every other day - are you familiar with this? Is

this early intervention? Harley

>

[Guest guest]

I will keep you posted - just started a week ago - I will have more questions in

the future. What a great group to have available, I have had a lot of worries

since the biopsy in January, the info on this site has helped already. Thanks

Harley

Re: Understanding the numbers

> Thanks Pierre, Yes I am on 20 mg lisinpril. Are there any other numbers

that are of concern. My Neph doc felt I was borderline nephrotic range and

has started me on prednisone. I am doing the solu-Medrol 1 gram IV on months

1,3,5 and 40 mg prednisone every other day - are you familiar with this? Is

this early intervention? Harley

>

[Guest guest]

THE STIX,,,,,YES I WOULD ASK MY DOCTOR ABOUT THE AZATHIOPHRINE,,,,,,MOST

PEOPLE THAT TAKES PREDNISONE TAKES THAT AS WELL,,,,,,,,,,

[Guest guest]

Hi crystal,

I didn't realise your daughter had been on IV steroids.

Yes, steroids are usually pretty effective in bringing down heavy

proteinuria.

Pierre

Re: Understanding the numbers

> PIERRE,,,,,,,hi this is crystal,,,,my daughter was on IV steriods for 16

> days ,,,and now the pills prednisone,,,,,every other day 30mg,,,and in dec

> her protein was 11,000,,,,,,now it is 1195,,,,,,so the steriods has help a

> great deal,,,,crystal

>

>

>

[Guest guest]

Hi Crystal,

I had been stable with iga for many years - I think my first signs were when I

was 12. I am now 36. My numbers changed in the last year. Previously only on

10 mg lisinipril for high BP. Currently taking 20 mg Lisinipril, 40 mg

Predisone every other day, Protonix 40 mg, Oscal 500+d(vitamin) and Fosomax 1x

per week. I was curious as to why my doctor didn't prescribe azathioprine for

me? That seems to go along with the predisone treatment? I think I might

start the fish oil thing?

[Guest guest]

Hihanks.e , Harley,

You said you were alright since the diagnosis at 12 until now. Can you tell me

what's the history of your condition between age 12 and now? T

Re: Understanding the numbers

Hi Crystal,

I had been stable with iga for many years - I think my first signs were when I

was 12. I am now 36. My numbers changed in the last year. Previously only on

10 mg lisinipril for high BP. Currently taking 20 mg Lisinipril, 40 mg

Predisone every other day, Protonix 40 mg, Oscal 500+d(vitamin) and Fosomax 1x

per week. I was curious as to why my doctor didn't prescribe azathioprine for

me? That seems to go along with the predisone treatment? I think I might

start the fish oil thing?

[Guest guest]

,

The protein in my urine was found in 1993 during a routine physical. The

years previous to 1993 i did not know of iga. In fact, until my check upi n

december of 2002, I didnt even ask the doctor to diagnose (guess) at what I had.

He was only treating my high Bp(145/90) with 5 mg of lisinipril. I would visit

my doc once a year for blood work - 24 urine - ect.. I would notice darker

urine when i would get real sick otherwise no symptoms to date. Hope this helps

- Harley

Re: Understanding the numbers

Hi Crystal,

I had been stable with iga for many years - I think my first signs were when

I was 12. I am now 36. My numbers changed in the last year. Previously only

on 10 mg lisinipril for high BP. Currently taking 20 mg Lisinipril, 40 mg

Predisone every other day, Protonix 40 mg, Oscal 500+d(vitamin) and Fosomax 1x

per week. I was curious as to why my doctor didn't prescribe azathioprine for

me? That seems to go along with the predisone treatment? I think I might

start the fish oil thing?