Re: Welcome to OurMyositis

[Guest guest]

Message;

Hi Vicky.

Thanks for approving my membership on the list. FYI I was diagnosed with

DM in April of this year. 45, male, married with children (that sounds

like a description of a TV sitcom, doesn't it?).

I heard about the list from RalphB's site.

Mike B

Hi Mike and Welcome.... Don't you wish you were making as much money as

" Married with Children " does? Wouldn't that be nice. Well your in good

company here... ask any question you like...someone will either know the

answer or will find it for you... How old are your kids?

Vicki-PM

[Guest guest]

Dear Mike,

Welcome to our group. We learn a lot from one another and we laugh a lot

too. It is my saving grace. I am Ann-Marie. I am 37 and technically have

MCTD (Mixed Connective Tissue Disease--another autoimmune disease) and PM.

I was diagnosed in 1994. I am the resident nun in this fair group, but kind

of break the " nun " mold, so get ready. How are you feeling? I hope they

have you on a good treatment plan and that you are seeing some results.

Ann-Marie--MCTD/PM

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[Guest guest]

Hi Vicki.

I have 3 children. The oldest girl is 16, and the youngeest (boy &

girl twins) are 13.

I'm just now happily going through the archives. There is a lot of

information there which I am glad to have.

I'll try to keep my questions polite and to the point (at least at

first).

Mike B

> Hi Mike and Welcome.... Don't you wish you were making as much

money as

> " Married with Children " does? Wouldn't that be nice. Well your in

good

> company here... ask any question you like...someone will either

know the

> answer or will find it for you... How old are your kids?

>

> Vicki-PM

[Guest guest]

Mike.... don't worry about keeping your questions brief. We don't

mind at all.

Vicki-PM

[Guest guest]

Hi Ann-Marie.

Thank you for the post.

I think my treatment plan is having very good results. My

rheumatologist had at first spoken of using iviG, but I've been so

fortunate with the prednisone that we decided that there was no point

in it at present, and that we would be better off keeping globulin in

reserve for any further problems in the future.

It has been my experience that nuns, although they are generally very

good, can on occasion have very wicked senses of humor. I look

forward to demonstrations of this in future.

Keep well.

Mike B

[Guest guest]

Mike, If you've seen the movie " Sister Act " then you've got a good idea

about our little nun Ann-Marie... she keeps us on our toes....we love it

though.

Fern is our resident nurse..... all we need now is a doctor on the

list...lol

Vicki

[Guest guest]

Hi Mike,

My name is Ev, the moly-oldy of the group--76years young-that sounds better

than 76, older!! I have IBM, am being treated with prednisone and imuran. I

find that I,m very weak, but will have to live with it I guess! I was dx in

1991 with Polymositis and have had 3 biopsies, the last they come up with

IBM. Welcome to our group--the more the merrier. I live in Tomball, Tx.

about 35 miles NW. of Houston.

Ev.

[Guest guest]

Hi Ev.

Thank you for the welcome.

This is certainly a busy board -- I'm less than halfway through the

archived messages, and I confess that I've been spending a lot of

time on them.

In terms of biopsies, I may be young (er) but I think I can top you.

I've had four so far. Three of them, however, were skin and lesion

biopsies, done by a dermatologist to try to establish whether or not

I had discoid lupus, so they probably don't count.

I understand you are finally getting some rain in Texas. I wonder if

this is a good or bad omen for Mr. Bush? I guess you'll know sometime

in November.

I look forward to hearing from you in future.

Mike B