Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Thank you the info carol, so sorry you had to go through that, but if your cancer free it is worth it. If that happens to me ill get a wig and false eyelashes~LOL~dont want to lose my eyelashes cause there real long but ill wear fake one~Huge Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Carolyn, You are less likely to get side effects from Radiation, than from Chemo. You sound a though you are doing so well with Chemo, albeit you have had one lot of treatment. My experience having both Chemo and Radiation together (Combination) no problems with Radiation whatsoever, at the very end of the Radiation I got very weary and needed to sleep, but apart from that, Radiation was a breeze. I had Radiation to both breasts, because of Tumours Bilaterally. Hence both breast removed with surgery. My diagnosis was Invasive Lobular Carcinoma, Stage 3b. Good luck Carolyn, I am sure you will find, if you choose to go with Radiation, no problems really. Skins gets a bit burnt. I had 30 treatments and going along every day, except for the day that I had chemo, it was the every day bit, that was tiring. Hugs, Dianne (NZ) Re: Question Thank you marianne, my doc put 3 anti nausea drugs into my IV chemo, also i have 2 different kind of pills he gave me for nausea, but i dont even have to take them, im doing fine without them. He wants me to have radiation treatments to be on the safe side, but told him i have to think it over. I couldnt go through the bone scan because of my phobia, but he said he would put me out so i can go through with it, so when i go for my chemo next week i might get the bone scan, have to work up the courage~LOL~Can you tell me what side effects you get with radiation??, im very concerened about that. THANK YOU for your help angel~Hugggee Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi nne, Yes you right going along everyday for Radiation is the worst part. Initially they mark out where they are going to radiate, and in my case, created a plaster mask for my arms to rest in, so that each time you went along they set you up and bingo it was over. Truly by the time they left the room, flicked the button, they were back taking you off the bed. It took longer getting on the bed. LOL. The bone scan, once again, the worst part was the time it took. There the easy bits,but I guess we all handle things differently. I am sure Carolyn will be back talking about it later, and saying the same as us all. Hugs Dianne NZ Re: Question Thank you marianne, my doc put 3 anti nausea drugs into my IV chemo, also i have 2 different kind of pills he gave me for nausea, but i dont even have to take them, im doing fine without them. He wants me to have radiation treatments to be on the safe side, but told him i have to think it over. I couldnt go through the bone scan because of my phobia, but he said he would put me out so i can go through with it, so when i go for my chemo next week i might get the bone scan, have to work up the courage~LOL~Can you tell me what side effects you get with radiation??, im very concerened about that. THANK YOU for your help angel~Hugggee Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Thank you dianne, im a little confused about your friend, how could she get more lumps if she had a masictomy, i have nothing left on my chest except the large scar thats still healing, cant understand how a lump could form there if nothing is there, sorry for my stupididy~Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Carolyn, Lumps can appear in the scar tissue, or in the chest wall so to speak. The first reocurrance after the original diagnosis, was in the muscle, so they the removed remaining muscle. Now just last week another lump back in the same place in the chest wall area. She went in to hospital in the morning and was home late afternoon, wouldn't stay in there, came around to visit me the next day.O:-) Have you read the book of Jane Plants, think that is the right name. I have given the book to Janine to read. If you can get a copy have a read. Interesting. Love ya Carolyn. PS: you follow your oncologist Carolyn, he will know whats best for you. Re: Question Thank you dianne, im a little confused about your friend, how could she get more lumps if she had a masictomy, i have nothing left on my chest except the large scar thats still healing, cant understand how a lump could form there if nothing is there, sorry for my stupididy~Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Carolyn, You are not stupid; Never. I am learning myself everyday! You are wonderful Carolyn asking questions, but always remember your Oncologist, knows your situation better. Many hugs Dianne xx (couple of kisses too) Re: Question Thank you dianne, im a little confused about your friend, how could she get more lumps if she had a masictomy, i have nothing left on my chest except the large scar thats still healing, cant understand how a lump could form there if nothing is there, sorry for my stupididy~Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 oh i didn't mind not haveing any hair, its only about an inch and a half long now, nice and cool and i don't have to worry bout drying or curling it just comb it back and go!~LOL..I am currently in the clear, with hormone treatment i am do to have another ct scan next month, oh boy, i just hate those cuz i am allergic to the contrast and have to take pre-med's . i never wore a wig, except on my wedding day last oct. first off it was way too hot and itchy and i really prefered the 'ditty rag' cuz when i got a hot flash i would just soak it with cool water and put it back on my head, that really help cool me off!~lol Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 when the dragon came back the 2nd time, it came back on the side i had my breast removed, you see when they do a radical, they do leave some breast tissue covering the muscle. and mine came back in the remaining breast tissue in the same spot where i had the lump, when they did the 2nd surgery , they removed the remaining breast tissue and took some of the muscle too, i had more pain from the 2nd surgery than from the 1st. and you don't ask too many questions, if you don't ask, you won't know , so ask away!~LOL hugs, carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Ohhh carol, im allergic to the med for the cat scan also~LOL~realy not funny, its a bumer. Carol whats a ditty rag, maybe ill get one?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 all a ditty rag is is a scarf....like what the kids where.........they come in all differant colors too, i got alot of mine from the dollar store....some from walmarts has rhinstones on them......i have a harley davidson one, red, blue, white, flowered.....beige......just tie it around my bald head and go!~LOL made of cotton, works wonderful~! carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 i have a picture of me if you want to see me in it........let me know carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Wow thats wonderful, you met you hubby in group, and he sounds like a god sent. My surgeon told me im cancer free in the chest area, he took out a big peice of muscle and 9 noids, i guess you read it that 3 out of the 9 noids had cancer in them. But i guess it still can recur, sooo sorry that happened to you. Your in my prayers~God Bless~Huge Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Ohhh i know what you mean, they have a different name for them her i cant remenber what it is though~Yes good idea~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Yes carl let me see, please~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Carolyn, sometimes lumps form on the chest wall...especially if all the cancer was not taken or treated. I don't think this happens very often, but I know of at least one person who had it happen to her. > Thank you dianne, im a little confused about your friend, how could she > get more lumps if she had a masictomy, i have nothing left on my chest > except the large scar thats still healing, cant understand how a lump > could form there if nothing is there, sorry for my > stupididy~Hugs~Carolyn~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Carolyn, A surgeon always hopes that he has got it all, and we hope he is right. That is why they back it up with Radiation. The cancerous nodes are a confirmation that the cancer has moved, from the breast. Cheomtherapy is a treatment for the system and Radiation is for the local. Hugs again Dianne Re: Question Dont know if i allready told you this, but my surgeon said he got all of my cancer out, that as far as my chest there is no more cancer there, its the noids that there worried about, the 3 that had it in them. Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Thank you dianne, this question is for all, have any of you who got a port put in, did your surgeon go through your juglar vein?? Thats how he did mine, i think its something new because when i asked my big c doc, he had to look it up in a book, he said it was fine done that way~Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Dear Carolyn, I have never heard of a port being port in thru your juglar vein, that is your main artery!!?? Generally they put it in thru the top part up near the shoulder. I leave this open for others in the group. It must be very new Carolyn. Hugs again Di Re: Question Thank you dianne, this question is for all, have any of you who got a port put in, did your surgeon go through your juglar vein?? Thats how he did mine, i think its something new because when i asked my big c doc, he had to look it up in a book, he said it was fine done that way~Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 The port it self is in the upper part of my chest on the right side, my left breast was the one they took off. But he went into my juglar vein for some reason, when i first told my big c doc he said oh no that wont do, but when he looked into a book he had, like i said he was very pleased by what the surgeon did. It still baffles me, when i go next week for my chemo, i know my surgeon will come in and see me, im going to ask him to explain it to me and ill let you know what he said~Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Carolyn that's exactly how they did mine left breast was cut and port was in right side through jugular vein that surgery hurt me at first more than the mastectomy i mean first couple hrs because it was sore in the vein area i couldn't lay back would hurt but girl this way is so much easier and not as painful they didn't take my port out until 2 years after cancer because they said first two yrs is your crucial ones heh i miss my little knot its 7yrs now but you will have much better no needles picking you cheryl Re: Question > The port it self is in the upper part of my chest on the right side, my > left breast was the one they took off. But he went into my juglar vein > for some reason, when i first told my big c doc he said oh no that wont > do, but when he looked into a book he had, like i said he was very > pleased by what the surgeon did. It still baffles me, when i go next > week for my chemo, i know my surgeon will come in and see me, im going > to ask him to explain it to me and ill let you know what he > said~Hugs~Carolyn~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 I agree best ask him Carolyn, mine was in the upper part of the chest, but thats all I know. And that was because I had very small veins, that were causing problems, when they were putting the intravenous in each time I went. I had 10 treamtents and I am pleased they used the port, it saved my hands becoming black and blue. They are the experts in what is best. Thats the technical side of things. Will be thinking of you.Do you mind me asking how old you are? Big Hugs ((((((Carolyn))))) Dianne Re: Question The port it self is in the upper part of my chest on the right side, my left breast was the one they took off. But he went into my juglar vein for some reason, when i first told my big c doc he said oh no that wont do, but when he looked into a book he had, like i said he was very pleased by what the surgeon did. It still baffles me, when i go next week for my chemo, i know my surgeon will come in and see me, im going to ask him to explain it to me and ill let you know what he said~Hugs~Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 I dont mind you asking how old i am dianne, i'm 56, was married and divorced 2 times. have no children, had 5 miscarriages and 1 in the tube, couldnt get pregnant after that. I live in Phila Pa, i was going to tell the group also but forgot~Wishing a beautiful day~Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Yes cheryl it is soooo much easier, and mine hurt also for awhile, now where the jugular vein is, it looks like a straw is in there. did your vein pop out like that???~Hugs Carolyn~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 yes carolyn, that is how a port is put in......i just had mine removed wed of this week, yeaaah!~carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 carol thats great, you had your port removed, glad to know a couple of you had it done in the jugular, most people never heard of it...hugs carolyn.. Quote Link to comment Share on other sites More sharing options...
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