Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Hmm, 2 Cyndi's, with the same spelling, but on the opposite coasts!! lol. Cyndi, Everyone is different.....different nervous systems, which I mean are like our own blueprints that can not be copied for someone else. That is why this disease is so difficult to dx, treat and find a cure for. No two people are the same, which means what meds may work for a few, may not work for the next 20.....same as doctors. What doc one or two may like, 4 or 5 may not. But, I, along with ya.....also have the RSD in my right leg from toes to hip, and also in my right lower abdomin. those have been dx'd already, but since I'm fighting W/C, they won't give the ok to check out my shoulders/right arm, so I have to wait for htat. I have some of the sensitivity, cold is a no-no (and I live in Iowa!), the burning and the stabbing pain.....but I don't have the swelling. At times, it feels like its swollen up inside my leg...but never noticable on the outside. Wish I could help ya better...but, with different symptoms everyone can have...its kinda hard to! Tonia Hello; i am a 44yr old female. i live in central calif. i had my C5, C6 & C7 cervical spine fused November 2001. i have had pains 8 months before my surgery; in my R leg, my groin (inside and outside), my R torso (front & back), my R & L hands and forearms. the skin of all these areas is very sensitive to touch, to rough surfaces, i.e. blanks, clothes, etc. and all these areas are very sensitive and is extremely painful to the touch of cold surfaces and cold water. my R leg feels swollen like it is going to burst like a balloon, it feels like it is on fire, and it feels cold at the same time and to the touch. i dont shave my legs any longer due to the pain of the rasor touching it.my R & L forearms and hands spasm and cramp, painfully so.I am new to this RSD, i am just wondering if these are symptoms that other RSD patients are experiencing? are there more symptoms? I would like to hear from other RSD patients and hear their stories.thank you..... sincerely, Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 I have two friends with your birthday but different age. I wish you much fun when the day arrives...won't be long now. > Thanks for the welcome! I have realized that I'm not alone, just > didn't know that there would be so many unanswered questions. I have > had the lumpectomy with sentinal nodes that were negative. 2.4 cm > tumor. I was told by the surgeon that she got it all. Also the > path. report backs up what she told me. I will be 73 years old on > the 10th of Jan. > 1.] Why in the world should I subnit to radiation with the risk of > serious burns from the treatment? I have 2 friends that were badly > burned, one skin only. The second had a lung burned so badly that > she has lost 1/3 of the lung and has battled with collaosed lung > problems three times! > 2.] Are there any radiation facilities that gurantee not to do more > harm than good? > I have never just followed the path of least resistance. I'm having > difficulty in even accepting the idea that more is good without > enough background to back up their claims. > Thank you everyone for any insight on my problem! > Dot Brown Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 Hello all, I have come to this group hopefully for advice and support as we struggle through the hardest time in our lives. My mother was diagnosed with breast cancer in '99 and after a lumpectomy, everything was going great. In July of 2002, the cancer was back, and back strong. It had snuck through her nodes into her bones and was wrapping itself around her liver, but was not affecting her liver's function. Now, in January, after a gall bladder removal, three rounds of radiation, three kinds of chemo, an intestinal obstruction probe, and tons of pain meds, the cancer has taken over her liver. She is expected to only live 2 more months. We are dealing with this, but taking it hard, as can be imagined. She's not really eating, though we are sure trying to get her to eat. She is bed ridden and can't get around by herself.. at the young age of 54. I just contacted a holistic doctor today who is sending me a regimen for her.. I am willing to try anything at this point. I think she is giving up slowly... I can see it in her eyes. I don't want to sit back and lose all hope and just let her die without knowing I have tried every angle that I could possible come up with. I can really use all the support I can get at this time. I sit and cry nights because my best friend is leaving me. I am 23 years old, and my mother and I have been together alone (no siblings, no husband, no father) since I was 3. It's a bond that can only be broken by death and it is looming so strong. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 Hi Mel, I am so sorry to hear about your mother. I will keep both of you in my prayers. Its hard when the patient is giving up. I watched that with my mother in law. I hope what ever approach you take that it helps her. Have you contacted Mayo Clinic?? They and some other cancer hospitals will reevaluate patients with a prognosis like hers and let you know if there is anymore that can be done. Please keep us posted. hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com New Member Hello all, I have come to this group hopefully for advice and support as we struggle through the hardest time in our lives. My mother was diagnosed with breast cancer in '99 and after a lumpectomy, everything was going great. In July of 2002, the cancer was back, and back strong. It had snuck through her nodes into her bones and was wrapping itself around her liver, but was not affecting her liver's function. Now, in January, after a gall bladder removal, three rounds of radiation, three kinds of chemo, an intestinal obstruction probe, and tons of pain meds, the cancer has taken over her liver. She is expected to only live 2 more months. We are dealing with this, but taking it hard, as can be imagined. She's not really eating, though we are sure trying to get her to eat. She is bed ridden and can't get around by herself.. at the young age of 54. I just contacted a holistic doctor today who is sending me a regimen for her.. I am willing to try anything at this point. I think she is giving up slowly... I can see it in her eyes. I don't want to sit back and lose all hope and just let her die without knowing I have tried every angle that I could possible come up with. I can really use all the support I can get at this time. I sit and cry nights because my best friend is leaving me. I am 23 years old, and my mother and I have been together alone (no siblings, no husband, no father) since I was 3. It's a bond that can only be broken by death and it is looming so strong. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 , I am so sorry for you and your best friend, aka Mom. The only thing I have to offer sweetie is my prayers and an ear to listen. ((((((((((((((Mel and Mom))))))))))))))))))) Neal -- New Member Hello all, I have come to this group hopefully for advice and support as we struggle through the hardest time in our lives. My mother was diagnosed with breast cancer in '99 and after a lumpectomy, everything was going great. In July of 2002, the cancer was back, and back strong. It had snuck through her nodes into her bones and was wrapping itself around her liver, but was not affecting her liver's function. Now, in January, after a gall bladder removal, three rounds of radiation, three kinds of chemo, an intestinal obstruction probe, and tons of pain meds, the cancer has taken over her liver. She is expected to only live 2 more months. We are dealing with this, but taking it hard, as can be imagined. She's not really eating, though we are sure trying to get her to eat. She is bed ridden and can't get around by herself.. at the young age of 54. I just contacted a holistic doctor today who is sending me a regimen for her.. I am willing to try anything at this point. I think she is giving up slowly... I can see it in her eyes. I don't want to sit back and lose all hope and just let her die without knowing I have tried every angle that I could possible come up with. I can really use all the support I can get at this time. I sit and cry nights because my best friend is leaving me. I am 23 years old, and my mother and I have been together alone (no siblings, no husband, no father) since I was 3. It's a bond that can only be broken by death and it is looming so strong. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2003 Report Share Posted January 31, 2003 My prayers are with you and your mom.......I know it is going to be hard, but remember you are doing all in your power to help your mom.......now let our heavenly Father take over.......many prayers and lots of {{{{{HUGGS}}}}}}} " " wrote:Hello all, I have come to this group hopefully for advice and support as we struggle through the hardest time in our lives. My mother was diagnosed with breast cancer in '99 and after a lumpectomy, everything was going great. In July of 2002, the cancer was back, and back strong. It had snuck through her nodes into her bones and was wrapping itself around her liver, but was not affecting her liver's function. Now, in January, after a gall bladder removal, three rounds of radiation, three kinds of chemo, an intestinal obstruction probe, and tons of pain meds, the cancer has taken over her liver. She is expected to only live 2 more months. We are dealing with this, but taking it hard, as can be imagined. She's not really eating, though we are sure trying to get her to eat. She is bed ridden and can't get around by herself.. at the young age of 54. I just contacted a holistic doctor today who is sending me a regimen for her.. I am willing to try anything at this point. I think she is giving up slowly... I can see it in her eyes. I don't want to sit back and lose all hope and just let her die without knowing I have tried every angle that I could possible come up with. I can really use all the support I can get at this time. I sit and cry nights because my best friend is leaving me. I am 23 years old, and my mother and I have been together alone (no siblings, no husband, no father) since I was 3. It's a bond that can only be broken by death and it is looming so strong. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 le, I have inflammatory breast cancer. If your breast is sore do NOT delay for a second opinion. This cancer hurts its not your regular lump. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 My cancer also hurt. I swear I could feel it growing, I was rubbing it all the time. The tech told me not to worry that cancer did not hurt. Well I'm here to tell you that my cancer was stage 3, and it did hurt. Jeana Re: new member > My first advice would be to consult a new doctor; the second would be > to ask for a biopsy...and don't let them tell you that a bc does not > hurt...sometimes it does. My doctor put me off for almost a year > saying that the reason my breast hurt was because it must have hit > something! Duh...I would think I would know if I had run into > something hard enough to make me hurt...anyway, within the year I > found my lump and it was cancer.....now perhaps the hurt was not the > cancer, but then perhaps it was. AND you are not too young. You are > just under the age that mammograms are usually recommended. It's your > body...make them listen and tell your mother that YOU ARE NOT A > HYPOCHONDRIAC...you are just concerned. You have the right to worry > about your own body. > > > > > Hi everyone i'm new here my name is Rechelle.My breast had been > > alittle sore so i was rubbing it when i felt a lump or thickening.I > > went to my family physician who also felt something,he sent me fo a > > mammo and ultrasound and the tech said it all looked like normal > > breast tissue,i thought every thing was fine.Then my doctor called > > and he wanted to follow further so i got nervous again.So i went to a > > surgeon and he did a exam and said it all felt like normal breast > > tissue and that was that, nothing to worry about.Well maybe there is > > nothing there but something just doesn't feel right maybe it's all in > > my head,but is there further testing i can have done to make sure.I > > have been feeling my breast so much that i feel new lumps all the > > time and don't know what is normal or what isn't anymore.I just want > > to make sure there is nothing to worry about.Also the surgeon was > > just a general surgeon.My mom thinks iam a hypochondriac and says are > > going to quit worrying now and let it go,i said yes but i can't > > wondering if there might be something there.I'm sorry to babble on i > > just need some advice on what to do,i have a friend who went to the > > doctor 3 times before they decided to check into it and by then her > > tumor was 5cm,i just don't want them brushing me off because i'm 36 > > and there telling me i'm to young any advice would be greatly > > appreciated. Thanks Rechelle > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 , we are thrilled to have you join us. The more the medical community knows about our fears and feelings, the better medical treatment we will have. You sound like a very caring professional. Thanks for caring. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 , You are definitely welcome here. I am sure noone will be uncomfortable at all. I think its wonderful that you want to learn all you can in able to help your patients. If I can be of any help please feel free to contact me at moochie@... Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com New Member Hi gals! I joined this list a few weeks ago (ok maybe just a week ago). Anyway,I wanted to intro myself and tell you why I joined. My name is , I am the 31 year old wife to and we have two daughters.. is 4 (12-9-98) and is soon to be three (9-18- 00). I am not a breast cancer fighter or survivor and I wanted to make that clear...so that if any of you are uncomfortable with me being here...I can leave and not take it personally. I am a Registered Nurse for Indiana University. I work in an infusion area and give alot of chemo. We, obviuosly, give alot of chemo to breast cancer patients. I love my job and reading your thoughts and suggestions this past week has been inspirational to me. By hearing your thoughts and stories,I feel I can learn to relate to mypatients a bit better and offer suggestions where I can from the advice you give to one another. No one knows like someone that has been there, right? Plus I just recently lost my 54 year old father to another form of this horrid disease...he fought throat cancer for many years and passed quielty and peacefully at home this past December. So Ive been on the nurse end,as well as the family and hospice end. Anyway, thats my story and rationale for requesting admission into your group. That known...you all can decide wether or not me being here bothers you or upsets you or just makes you plain uncomfortable. I will understand and leave. Thanks! tiffany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Welcome to the group ! Glad to have you here. Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 Welcome , I think it is great that you want to see this from both sides. Jeana New Member > Hi gals! I joined this list a few weeks ago (ok maybe just a week > ago). Anyway,I wanted to intro myself and tell you why I joined. My > name is , I am the 31 year old wife to and we have two > daughters.. is 4 (12-9-98) and is soon to be three (9-18- > 00). I am not a breast cancer fighter or survivor and I wanted to > make that clear...so that if any of you are uncomfortable with me > being here...I can leave and not take it personally. > > I am a Registered Nurse for Indiana University. I work in an > infusion area and give alot of chemo. We, obviuosly, give alot of > chemo to breast cancer patients. I love my job and reading your > thoughts and suggestions this past week has been inspirational to > me. By hearing your thoughts and stories,I feel I can learn to > relate to mypatients a bit better and offer suggestions where I can > from the advice you give to one another. No one knows like someone > that has been there, right? Plus I just recently lost my 54 year old > father to another form of this horrid disease...he fought throat > cancer for many years and passed quielty and peacefully at home this > past December. So Ive been on the nurse end,as well as the family and > hospice end. > > Anyway, thats my story and rationale for requesting admission into > your group. That known...you all can decide wether or not me being > here bothers you or upsets you or just makes you plain > uncomfortable. I will understand and leave. Thanks! > > tiffany > > > > > > Quote Link to comment Share on other sites More sharing options...
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