Re: Re: Rhonda - Hand curling....

[Guest guest]

Good for you, . Re; Posting hand curling and the patch. I read a

couple of Caregivers said the same thing. I haven't read all the mail today.

Love with a smile,

Imogene

Caregiver for my True Texas Gentleman Husband. Diagnosed with AD in 2005.

And then, with LBD 2006.

A happy personality is contagious. Infect someone today.

Yours Truly

In a message dated 6/15/2009 11:05:44 A.M. Central Daylight Time,

octoryrose@... writes:

OK - this is the FIRST I've heard re: hand curling & Exelon patch ... we

need to start a thread re: this and post links to back up so I can post in

the links section... I'll start a new post...

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eExcfooterNO62)

[Guest guest]

Dear -

 

Hi! You keep our links in such good shape, easily tracked and so well organized:

Thank You!

 

I don't know what info you're referencing here: all I see is the " is it for

real " message. I probably deleted something - again - by accident.

 

But - if you mean, does Ex have hand curling as a side effect in some cases, the

answer is yes. Someone's LO was experiencing it, and on checking with our

PharmD, he reminded me it happened to my own mom. I had blocked it out, but when

I went back to my journals, sure enough. And we do see it on occasion in other

residents. I wrote a short post about it last week. It does not occur all the

time or even frequently. But it is worth knowing about it as it can be

irreversible.

 

Am I answering the question you asked? Get me back on track if not.

 

Lin

Subject: Re: Rhonda - Hand curling....

To: LBDcaregivers

Date: Monday, June 15, 2009, 11:04 AM

OK - this is the FIRST I've heard re: hand curling & Exelon patch ... we need to

start a thread re: this and post links to back up so I can post in the links

section... I'll start a new post...

> >

> > Wow! I am so glad Don is not using the Execelon patch. He couldn't  handle

> > it, but I'm glad now that he has been taken off it early on. I had no  idea

> > it causes hand curling. I see a lot of hand curling in Don's  NH.

> > 

> > Love with a  smile,

> > Imogene

> >

> > Caregiver for my True Texas Gentleman Husband.  Diagnosed with AD in 2005.

> > And then, with LBD 2006.

> > A happy personality is  contagious. Infect someone today.

> > Yours Truly

> >

> >

> > In a message dated 6/6/2009 10:44:46 A.M. Central Daylight Time, 

> > lprattbethany@ writes:

> >

> > Dear  June,

> >

> > Thanks for your patience with me. Your descriptions are  fine - you know

> > I'm just so curious and when I check with the PharmD and docs  here for

info,

> > they ask a million questions.  Both the PharmD and  our neuro-psych were

> > scheduled for 7AM rounds, so since  I'm at the facility too, I just called

them

> > again about Joyce's meds  and etc. Their comments and a couple of my  own:

> >

> > O  AT HOME IN BODY AND MIND :   People with dementia often think and speak

> > literally. My mom talks about  places like Joyce does. Her room at the

> > center is now " home " and after a meal  together, she'll say " do you want to

come

> > on home with me? "   She  sometimes ask if she still has a house (which is in

> > another town), but never  refers to it as her home. When my mom talks about

> > my coming to visit, she  always says that people want to see me and I should

> > " come over to our  house. " When I ask directly, she knows I'm her daughter

> > and that we are  not in our hometown, but her brain just processes in a more

> > basic way than  before. Sometimes staff and other residents ask her how her

> >  daughter is doing or where her daughter is, so she thinks they want  to

> > see me. It sounds as if Joyce has settled in comfortably enough at WW to 

feel

> > " at home, " which is a blessing. And like always, she wants you there with 

> > her and is so happy in your company she likes to show

> > you off. Isn't  it great she has made friends and is happy!

> >

> >

> > O    Lasix:  Glad to hear the edema is decreasing. As per some  recent

> > posts, swelling can occur in our LOs on occasion for no apparent  reason.

It's

> > desirable to get clear medical evidence of the need for a  med as strong as

> > this with so many side effects for the elderly. You may want  to monitor the

> > dosage levels and ensure it's discontinued ASAP. The PharmD  repeats his

> > professional concerns and echoes the suggestions made,  too.

Elevation,

> > exercise and specific PT for edema may well be sufficient  to keep it in

> > check.

> >

> > O    Exelon:   PharmD and MD both wonder if you would want to  talk with

> > Joyce's doc about switching to Razadyne or trying Aricept again.  Reason: 

> > Exelon is known to cause hand-curling, which is sometimes  irreversible. We

see

> > it in about half our residents on Ex, and it  happened to my mom in the

> > first six weeks she was on it. I was  enraged her doc at the time hadn't

told

> > me about this. It  makes using the hands and fingers quite difficult, and we

> > want our  LOs to be able to do as much as possible for themselves. It's

> > certainly  possible Joyce might not be able to tolerate Aricept; however, if

she

> > was  taking it while on one or another of those bad meds, it would be hard

> > to  judge. Razadyne is safely used for many LBDers when they can't tolerate 

> > Aricept or when Ex should be avoided. My mom has been on it 6  years. A

> > reminder from the neuro-psych here that folks should be weaned  off one of

> > these meds before the next one is started. Those at  this

> > end are pretty sure the hand curling is meds-induced, not the  disease.

> >

> > June, your love and caring for  Joyce is inspiring. Please keep us posted.

> >

> > Love,  Lin

> >

> >

> >

> >

> > **************A Good Credit Score is 700 or Above. See yours in just 2 easy

> > steps!

> >

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