Guest guest Posted December 12, 2002 Report Share Posted December 12, 2002 DONNA I NOTICED THE LAST FEW DAYS THERE WASNT MUCH MAIL GOING THROUGH .... I FIGURED EVERYONE WAS JUST TO BUSY TO WRITE ,,, ROMIE Hi Friends, My daughter has been using the puter again finishing up a research paper for college and then today when I finally have opportunity to catch up on my emails, I see I haven't gotten any. I think our internet and email was on the blink once again. I felt so sorry for my daughter last night. She had worked for days on a 5 page research paper due today. At midnight last night our puter froze up and she was trying to help it along and lost 3 out of 4 pages she had completed. She was crying so hard over this. Her brother came in and saved the day. He knew we had auto save on the puter and was able to retreive most of what she lost. She would have had to start over if he hadn't found it. I have never even heard of the auto save setting. My neurologist went over my MRI results with me. I do have 2 bulging discs, but so far they are not pressing on nerves, so I will just need pain meds and physical therapy for now. I am very very thankful for that. I have had 3 major surgeries since March and I have had enough. I am not sure I would do a back surgery anyway. I did tell him how his nurse scared me so bad and he took the heat for that. He didn't feel like I needed to hear bulging discs over the phone. Go figure!! Thank you all for the lovely Christmas cards. , I got yours today, and wondered if I was going to open it and find a snowball (I was hoping)!!! I hope I haven't missed too much news. I have gone to the LUPIES board but it is not as easy to catch up on news there. Hope you are all having a pain free night. Love, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 --welcome sandy my name is cheryl i'm a 8 yr bc free and wanted to say girl we all are here for you we been through it or going through it and sweetie if you scared and just nbed somebody to lean oon we are here girl we are one big family in breast cancer and each know you pain and we woill let you have the whole board and let you talk but we will pray with you we will cryu with you we will laugh with you but whatever you do dont ever give up that positve attitude keep that positve attitude donr think you going to die just stay with hope and chemo helping that is a good sign and it could put it to stop, just keep hope girl dont ever stop your hope i will put you in my prayer group my name is cheryl and there is z bunch of great ladies here so just write you want they all will help you through it and dont give up girl we are all there for you and welcome to this group you in the best on the web in my book cheryl > Hi everyone, > > I just joined the group today and want to introduce myself. My name is Sandi. I was diagnosed with breast cancer on January 15th of this year. I thought that the surgeon standing over me that day telling me that he was sorry but it is what we suspected was the worse day of my life but it got worse when he told me that the lymph nodes were infected and yes it did spread. Both to my skull and to my spine. They said that I am not curable but I am treatable. The good part is that the chemo is working. The tumors are shrinking. At least the ones in my breast because those are the only ones that my Oncologist was able to measure with her fingers. But next week I am taking new scans and we will have a better picture. The bad part is that although the chemo is saving my life, it isn't easy dealing with the side effects. It is worth it of course and I will get through it but I guess I need a bit of support from people that have or are walking in my shoes. > > Sandi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Sandi, Welcome. I'm so sorry your initial diagnosis was so scary. Although this is a wonderful group of women, most of the women here are not yet stage IV. So, while you're more than welcome and we will do our best to help you, you might find more helpful advice at a Stage IV spinoff group. To sign up, go to: http://groups.yahoo.com/group/stageivbreastcancer/ Do whatever you did to join here. Meanwhile, there are some women here whose cancer has metasticized, and cancer is cancer. We all live with that fear and none of us know how long we'll live for. The only thing we know for sure is we will die, from cancer or something else. That's great that the tumors in your breast are shrinking. The others most likely are, too; you just need the tests to confirm. Not everyone on this list has been through chemo but a lot of us have and yes, it sucks. I didn't vomit, but I was very weak and ended up hospitalized twice. There's no way around it. You just have to find a way to live with it that's got enough quality of life to make it worthwhile. All sorts of different things help. This email group, an in-person support group, reading books by survivors, reading plain old escapist fun books, taking whatever support you can from your family and/or friends, and time. Time is the best. Things that seem totally impossible now can and do become part of everyday life, eventually. Many women live with Stage IV cancer for way longer than their doctors ever thought possible. I wish you the very best, and hope that we can help you through the really tough parts. Jill At 10:21 PM 4/30/2003 -0400, you wrote: >Hi everyone, > >I just joined the group today and want to introduce myself. My name is >Sandi. I was diagnosed with breast cancer on January 15th of this >year. I thought that the surgeon standing over me that day telling me >that he was sorry but it is what we suspected was the worse day of my life >but it got worse when he told me that the lymph nodes were infected and >yes it did spread. Both to my skull and to my spine. They said that I am >not curable but I am treatable. The good part is that the chemo is >working. The tumors are shrinking. At least the ones in my breast >because those are the only ones that my Oncologist was able to measure >with her fingers. But next week I am taking new scans and we will have a >better picture. The bad part is that although the chemo is saving my >life, it isn't easy dealing with the side effects. It is worth it of >course and I will get through it but I guess I need a bit of support from >people that have or are walking in my shoes. > >Sandi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Eva, I will keep your Dad in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com Hi Everyone Hi,I just want to ask you all for a prayer for my dad.He had a heart attack tonight plus he has phnmonia.It was real touch and go there for a while but the dr. got him stabalized and when I left the hospital he was looking alot better.Will update you all when I know more tomorrow. Thank you all Eva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 He's on my prayer list ....keep us posted. doris > Hi,I just want to ask you all for a prayer for my dad.He had a heart > attack tonight plus he has phnmonia.It was real touch and go there > for a while but the dr. got him stabalized and when I left the > hospital he was looking alot better.Will update you all when I know > more tomorrow. > Thank you all Eva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Jeana, you are soooooooooo evil...just you wait until you get here for the race and hear me when I go onstage. I might embarass you and ask you to come up and say a few words. HA! Remember my husband is the race chair so he will let me do it! > Oh I think Doris will have some suggestion for you lol. How exciting to be > chosen I know you will do a good job, maybe you will remember where you are > from. lol Doris didnt hehe > Hi everyone > > > > Hope everyone is doing okay.I thought I would check in, I haven't > > posted in a while, although I do read the posts every single day. I > > thought I would share some exciting news with you. I have been > > chosen by our local health district to be in a series of media ads, > > promoting breast cancer awareness. The health district was the > > receipient of a grant from the Komen Foundation, and it is being > > used for his campaign. A group of women from various walks of life > > and ethnic backgrounds, bc survivors all, will be interviewed by the > > local newspaper, and also do a 60 second radio spot, about the > > importance of " breaking the silence " . One survivor will be > > featured each week, and in October, a large group interview with > > photos and stories, will be in the paper. I am so excited, and so > > honored to represent bc survivors. I was asked to think about what > > was the most important thing to me.....it is a hard choice. Early > > detection? Mammograms, BSE,positive outlook? Any suggestions? > > Anyway I will keep you posted on how this goes along. > > Hugs and Loves to all > > Elaine > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 Hi Sue, I have had several bone scan since my diagnosis in 1990. To me the worst part is the time you have to wait between the injection and actual scan. You are in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at: http://www.geocities.com/chucky5741/bcornament.html also check out my other ornaments and lots of nice gifts at: http://www.cancerclub.com Hi Everyone Hope everyone is doing well today. I go for my first bone scan this morning. A little nervous but everyone keeps telling me its just routine. I hope everyone has a great day. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 If I were you, I'd use the time to say you were thankful you had the kind of breasts that respond well to mammograms and make early detection possible. Many women, like myself, have dense cystic breasts, so that tumors don't show up in mammograms or even self-exams. When I was diagnosed with Stage III bc, my mammogram was clean! It was ultrasound that showed something was wrong, and a biopsy that showed that the cancer had already travelled through every possible conduit and said I very likely had cancer in my veins and lymph nodes, which turned out to be true. I'd say something like " I'm so grateful I was born with the kind of breasts that respond well to mammograms. If you're a woman and you have dense or cystic breasts, ask your doctor about ultrasounds, especially if you have a family history of breast cancer. If you don't know what dense or cystic breasts are, make an ob/gyn appointment and find out. " Of course that's just me, but there are many women in my position, and now it turns out that hormone replacement drugs can cause dense breast tissue and make it impossible for mammograms to find early detection, so it would be a way of using your time to help others. However, other women's suggestions are good, too, and ultimately, it's your choice. Whatever you feel most grateful for is what you should say. If you're not sure, sit down alone, in a quiet space, and allow the thoughts to come to you. I'm sure you'll find what's right for you. Jill p.s.Congrats! Sounds like fun. >button50_1 wrote: >Hope everyone is doing okay.I thought I would check in, I haven't >posted in a while, although I do read the posts every single day. I >thought I would share some exciting news with you. I have been >chosen by our local health district to be in a series of media ads, >promoting breast cancer awareness. The health district was the >receipient of a grant from the Komen Foundation, and it is being >used for his campaign. A group of women from various walks of life >and ethnic backgrounds, bc survivors all, will be interviewed by the >local newspaper, and also do a 60 second radio spot, about the >importance of " breaking the silence " . One survivor will be >featured each week, and in October, a large group interview with >photos and stories, will be in the paper. I am so excited, and so >honored to represent bc survivors. I was asked to think about what >was the most important thing to me.....it is a hard choice. Early >detection? Mammograms, BSE,positive outlook? Any suggestions? >Anyway I will keep you posted on how this goes along. >Hugs and Loves to all >Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 Best of luck, Sue. It *is* routine, but that doesn't make it not scary. For the first time this year, I was terrified waiting for the results of my Pap Smear. I think it's normal for us, now that we've had our " safety bubble " popped, to become very anxious about every little test. It's just another side effect of breast cancer... I hope it will wear off with time. Jill At 10:35 AM 7/11/2003 +0000, you wrote: >Hope everyone is doing well today. I go for my first bone scan this >morning. A little nervous but everyone keeps telling me its just >routine. I hope everyone has a great day. >Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Cool. I'm so glad for you, Georgia, AND of course glad that it came out ok!!! My HMO doesn't use that test. But I've been told many times I need to work on patience and faith, so maybe it's not a bad thing that I have to wait for test results. I'm having some more tests soon; one (colonoscopy) I'll find out right away and I interviewed the doctor first to make sure he'd tell me straight out if something looked like it could be cancer. The other is just a bone density test for osteoporosis. Not that osteo... isn't a serious medical problem. But I'm less scared of that than cancer. I don't think you die directly from osteo, though I'm sure it's very painful and scary to have. Jill At 10:24 PM 7/12/2003 -0700, you wrote: >When I went for my pap this year they offered me a new test that tells you >the results before you leave the office. It is called pap sure, and it >uses a disposable light the see any color changes in the uterus....It was >good to leave the office with an " everything looks ok, while waiting for >the regular test results....georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Forty dollars!!! That's almost the price of taking my daughter and a friend to the movies. It's certainly worth it, in my opinion. But here in Boston it would probably be more like $140 if not $1400. The standard of living is very high, here. So what were your bone density test results? There's probably no need for you to have a colonoscopy. The only reason I'm getting one is that my mother died of bc and her father died of colon cancer. It's not standard procedure. Best of luck on the estrogen test. I keep forgetting if it was you and I or Gloria and I who were radiation twins. It seems like we're Arimidex twins now. I still remember your classic " Georgia peach fuzz. " Are you wearing your hair now that school is out? It's probably much longer than one and a half inches. Can you tell me how long it is so I can feel sorry for myself? I hope I was right and it is you who gets to shed the wig and wear her " new do. " Jill At 07:18 PM 7/13/2003 -0700, you wrote: >My insurance did not pay for the papsure either. The office said it is so >new insurances are not paying for it. It cost me $40.00 up front, but >since it was two weeks before getting my other results, it was well worth >the money.....I'm not ready for the colonoscopy yet...all in due time. I >picked up the results from my bone density test, and hope to have the >results from the estrogen test soon......2 bench marks I plan to keep an >eye on......georgia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2003 Report Share Posted July 15, 2003 Oh, Lucilla. I wish I had them. I'm sorry for your colon cancer scare. I know things are really rough for you now. All I can do is wish you peace and love and grace. Those are magic words in a way, but not in the way we'd like them to be... Jill I am scare now to do another one, this breast cancer thing is sure heavy. Tell me the magic words... Quote Link to comment Share on other sites More sharing options...
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