Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 I have been reading that we have a greater need for thyroid hormones in winter(as well as when we are ill or stressed!) ThyroFeisty(Feisty)www.thyrophoenix.com Re: Hashi's question The antibody levels also fluctuate, as I understand it, so it can sometimes take some additional tests to pin it down. Since HealthCheck lab orders are good for a year... maybe wait for a week when you are feeling really crappy to get some 'good' numbers to rub under the doc's nose??? Just a thought... Is this your first round of tests? Or will you have others to compare against? Topper () On Thu, 15 Jul 2004 18:31:57 -0500 "Shelli" writes: Hey Topper, If you have Hashi's and the Free's and TSH turn out within range will the antibodies test still show raised levels? It would be my luck that I would have a swing that would show everything being normal. Shelli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Yes, that happened to me for years - normal TSH, normal T3 and T4 (especially since the stupid docs never test the frees) but I had antibodies. They never treated me anyway. Here's hoping you get a smart doctor instead. Jan Shelli wrote: > Hey Topper, > If you have Hashi's and the Free's and TSH turn out within range will > the antibodies test still show raised levels? It would be my luck that > I would have a swing that would show everything being normal. > Shelli > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Hashi's, if that is what you have, can make you swing like that... showing hypo symptoms before and now the antibodies slacking of letting the thyroid produce better, increasing usable hormone for your body. Some of you gals with Hashi's.... what would you suggest? At what point are antibodies likely to be highest? While in a hypo swing or as things start swinging toward normal - with more normalized metabolic rate? The key here is going to be determining for sure what is wrong and then treating correctly... to do otherwise will just cost you in how you feel.. and maybe the level of your health. Give some feed back gang... the better we can pinpoint a 'good' testing time for an accurate picture as to cause of symptoms fluctuating the better.... Topper () On Thu, 15 Jul 2004 19:23:28 -0500 "Shelli" writes: This would be my first round of appropriate tests, although I've had the standard TSH and FT4, but that's it. TSH was 2.01 (range .34 - 4.82) and FT4 was .95 (range .52 - 1.60) It's been weird lately. My basal temps have been about 98-98.2 the last few days, which is higher than it was over the winter. But during the day, my temp goes down. However, the last couple of days I've gotten these bouts of being really hot, not quite like a hot flash but I took my temp out of curiosity and it was 98.7 one time and 98.8 another time! That is unusual for me. I haven't been feeling as tired either. That is why I was kind of wondering about the antibodies. I was actually wondering too if I should wait till I feel crappy again to do the testing. I'm telling you, it really would be my luck to get tested and have the tests come out normal. Then I could wonder if it is something else or if it was just a "bad" time to be tested. Thanks, Shelli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 I've read that... I upped my dose by 1/2 grain for a week.. then went back to my regular dose... oh my gosh.. it's been 4 weeks... So that means I'll be increasing by that 1/2 grain again next week.. for just 1 week... Longer than that and I start to show symptoms of hyper... but I'm hoping that giving it a push will help with my leg. On Thu, 15 Jul 2004 20:11:37 -0500 "Feisty\(ThyroFeisty\)" writes: I have been reading that we have a greater need for thyroid hormones in winter(as well as when we are ill or stressed!) ThyroFeisty(Feisty)www.thyrophoenix.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 When my antibodies are high, I know it - I feel like I have the flu. Achy body, a vague sore throat feeling... If you feel like that, you could get tested when you feel it. Ah! I've read that sleeping very little raises antibodies, so you could deprive yourself for a few days beforehand too. Jan topper2@... wrote: > Hashi's, if that is what you have, can make you swing like that... > showing hypo symptoms before and now the antibodies slacking of > letting the thyroid produce better, increasing usable hormone for your > body. > > Some of you gals with Hashi's.... what would you suggest? At what > point are antibodies likely to be highest? While in a hypo swing or as > things start swinging toward normal - with more normalized metabolic rate? > > The key here is going to be determining for sure what is wrong and > then treating correctly... to do otherwise will just cost you in how > you feel.. and maybe the level of your health. > > Give some feed back gang... the better we can pinpoint a 'good' > testing time for an accurate picture as to cause of symptoms > fluctuating the better.... > > Topper () > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 This is something that I don't think CAN be decided by anyone and here is why. I don't know what happened to that article or what the name of it was, but do you remember a very very technical piece from sometime last yr, that I had run across and posted, having to do with, you might say, a microscopic evaluation and tracking of all the tiny little places on the axis, going between the hypothalamus, the pituitary, the thyroid, and any little point between, where these antibodies can do their dirty work? I don't even know whether I saved it, it's been so far back, and don't know the name of it, but the whole thing was that this is why people are so so individual and puzzling in their thyroid problems. The possibilities are endless!! Everyone does not have the exact same place on the chemical pathways where these things are working, so problems with each individual are as unique and confusing as each of our own DNA material. It is so absolutely unique to each person, that it would be impossible to even tell two different people that they would even be taking the same amt of thyroid, in the same combinations, or even that it would have the same exact effect on them, or even that they would have the same symptoms when they are either hypo, hyper, or normalizing. Even the amt of dosing times, amt of time between raising doses, and how much it would take to treat different people, even of the same weight, etc......would be completely different. Plus the fact that all the rest of the body chemistry (including all the combinations of adrenal substances and problems there from person to person) has a billion or so different possibilities from person to person. So, therefore, I don't believe that anyone could possibly decide exactly what would make these antibodies go down because so much of it is STILL a mystery to any of us. We're talking about possible effects of diet, from person to person, maybe different combinations of medicines and other substances that we have no idea what kind of effect it's all having on the pronunciation of these antibodies. Heck, we don't even know just exactly why we do get these autoantibodies at all. I know one thing, I wish they'd hurry up and find out, lol!!!! Re: Hashi's question Hashi's, if that is what you have, can make you swing like that... showing hypo symptoms before and now the antibodies slacking of letting the thyroid produce better, increasing usable hormone for your body. Some of you gals with Hashi's.... what would you suggest? At what point are antibodies likely to be highest? While in a hypo swing or as things start swinging toward normal - with more normalized metabolic rate? The key here is going to be determining for sure what is wrong and then treating correctly... to do otherwise will just cost you in how you feel.. and maybe the level of your health. Give some feed back gang... the better we can pinpoint a 'good' testing time for an accurate picture as to cause of symptoms fluctuating the better.... Topper () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2004 Report Share Posted July 16, 2004 Even though my situation was not brought about by an immune problem, mine was genetic. It sure would be nice if the could figure it out. We've got about 700 folks between the major Yahoo thyroid groups.. and I can't think of any two that are the same. Each is so individual. I think that is just one more reason that I get so torked at doc's that blow patients off and don't even try to find out what is wrong. It's like the puzzle is beyond their scope, or not worth their time.. so it's not important. Somebody win a BIG lottery so we can build our specialty clinic!!! Until then. We'll just have to do the best that we can and share what we've learned as well as our experiences and use that as our tool/weapon. Topper () On Fri, 16 Jul 2004 07:54:03 -0500 " " writes: This is something that I don't think CAN be decided by anyone and here is why. I don't know what happened to that article or what the name of it was, but do you remember a very very technical piece from sometime last yr, that I had run across and posted, having to do with, you might say, a microscopic evaluation and tracking of all the tiny little places on the axis, going between the hypothalamus, the pituitary, the thyroid, and any little point between, where these antibodies can do their dirty work? I don't even know whether I saved it, it's been so far back, and don't know the name of it, but the whole thing was that this is why people are so so individual and puzzling in their thyroid problems. The possibilities are endless!! Everyone does not have the exact same place on the chemical pathways where these things are working, so problems with each individual are as unique and confusing as each of our own DNA material. It is so absolutely unique to each person, that it would be impossible to even tell two different people that they would even be taking the same amt of thyroid, in the same combinations, or even that it would have the same exact effect on them, or even that they would have the same symptoms when they are either hypo, hyper, or normalizing. Even the amt of dosing times, amt of time between raising doses, and how much it would take to treat different people, even of the same weight, etc......would be completely different. Plus the fact that all the rest of the body chemistry (including all the combinations of adrenal substances and problems there from person to person) has a billion or so different possibilities from person to person. So, therefore, I don't believe that anyone could possibly decide exactly what would make these antibodies go down because so much of it is STILL a mystery to any of us. We're talking about possible effects of diet, from person to person, maybe different combinations of medicines and other substances that we have no idea what kind of effect it's all having on the pronunciation of these antibodies. Heck, we don't even know just exactly why we do get these autoantibodies at all. I know one thing, I wish they'd hurry up and find out, lol!!!! Quote Link to comment Share on other sites More sharing options...
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