Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 Hi Poonam, Nice to hear from you. I can't believe Aman is 19 months old already! Is Pushpa your mother or mother-in-law? My understanding from what you described is that Aman still has a lot of usable hearing. How much is within the speech banana (have you seen the actual audiogram)? Does he wear hearing aids yet? (GET THEM ON HIM AS SOON AS POSSIBLE IF IT WILL HELP!!!!!) Is this a mixed loss or do they think it's all sensorineural? Has he had a CT scan and are you aware of any other abnormalities in the ear anatomy? Note that there have been other neurological reasons why some children with CHARGE Syndrome do not speak... Considering his extended stay in the hospital, the babbling may be a good sign... Have you started to work with the W. Ross Macdonald School in Brantford / or are there other intervenors involved (ie. is he eligible for services from the CNIB for example)? What do the intervenors say? Is Aman being stimulated? Does he sign or use any form of communication? You are welcome to call the audiologists at the Montreal Oral School for the Deaf for general information. They have had a lot of experience with cochlear implanted children (but not implanted children with CHARGE). You are not eligible for services from the school, but I am sure they will be very gracious and answer your inquiry without discussing your case specifics. (Irene Hoshko or Danelle Graham at ... you can say you spoke to Penina's mother on-line!) Best of luck, Anne, mom of Penina (CHARGE, 6 3/4) Quote Link to comment Share on other sites More sharing options...
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