Re: pain

[Guest guest]

Thanks, Eunice!! I would appreciate your prayers. My

youngest son, Thane, still has the pain in his legs

which the doctor doesn't seem to know what is causing.

He is in college at Lancaster. He goes tomorrow.

I'm hoping the doctor will have some good news for

him, also!

> , I'll keep you in my prayers. Do let us know

> what the new doctor tells you.

>

> Eunice

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

Oh, , I'm so sorry to hear that the pain is

coming back. Since I was a teacher I don't see how

you could make it through the day with a shoulder

hurting!!

> My shoulder pain was from arthritis in the AC joint

> in my right shoulder.

> but now that I am back at work (teaching) I can

feel it starting to act up again.

__________________________________________________

[Guest guest]

I manage... and when it is really bad, I write with my left hand on the

board to compensate. And I rely on my overhead a lot too, but that can

still be a problem when I need to write something on the transparency... I

am hoping it does not get as bad as last school year. I could not do much

with my right had... it was fun getting dressed in the morning...

Right now I am fighting pain in my lower back (which I think is also

arthritis)... it is worse in the morning and it eases up as I go through

the day. If I can keep moving, like walking around my room, not standing

still too long, etc until lunch time, then I cope with it better and by

lunch the pain is not really noticable... and I have just about all my

classes before lunch, only one after lunch with my prep at the end of the

day. I have tried taking my relafan that they gave me for my shoulder for

the arthritis, but that does not seem to help, I have tried taking tylenol,

sometimes that helps and sometimes not.. so I am still trying to figure out

what helps me... right now, not much except constant walking and moving...

no standing or sitting still for too long of time. then it stiffens up and

it hurts like the dickens to move.

But I must say my sugars are staying within a good range... my fasting this

morning was 93... so at least I do not have to have that on my mind too

much with the pain..:LOL

-

At 08:55 PM 10/7/01 -0700, you wrote:

>Oh, , I'm so sorry to hear that the pain is

>coming back. Since I was a teacher I don't see how

>you could make it through the day with a shoulder

>hurting!!

>

>

> > My shoulder pain was from arthritis in the AC joint

> > in my right shoulder.

> > but now that I am back at work (teaching) I can

>feel it starting to act up again.

>

>

>__________________________________________________

>

[Guest guest]

Hi Lorrie,

I don't live even close to where you are. But you are breaking my heart. I

remember when I was so very depressed from the bone deep pain. I spent most of

my time in the bed.

Doesn't rain all the time where you live? A day before rain is forecast in NC,

I get real bad flare ups. I feel as though pressure is trying to push me to the

ground.

I guess this is just the difference in doctors but mine prescribes lyrica and

tramadol. Those aren't narcotics, and is my regular doctor. My doctor even

said he would supply me with samples every month if I couldn't afford my meds.

They have samples of Lyrica, Savella is a good one too, cymbalta for depression

and pain, effexor. Things like tramadol, flexeril aren't available in samples.

I wish I could so help you. I got mad as heck one day and said to myself that I

wasn't putting up with this crap anymore and kept on and on saying that and it

did get better. I started taking a lot of vitamins, (I couldn't even afford

those so I asked for them as birthday gifts). Things really started improving

then. I also slept on heating pads and pillows. Lying on the mattress hurt too

bad. Every night I would line pillows up and then lay the heating pads on top

of them.

Even though I can't do anything to help you, know that I am praying for you.

Think of this, you are laying in Gods warm hands. Relax, it's just you and

Him, always.

Sincerely,

Carol B.

________________________________

To: fibromyalgiacured

Sent: Fri, May 13, 2011 9:36:50 PM

Subject: pain

I am in so much pain I am seriously depressed, I have been in bed for a week,

The pain clinic said they couln't help me because my insurance wouldn't cover

anything, I can't afford what they are asking for fee. My Regular Dr said they

don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

anyone know of any Dr. in the washington state area. Please let me know. I don't

know what to do and I am only getting worse. Thanks anyone.

[Guest guest]

Hello Lorrie

I am so sorry to hear you are doing so poorly and not getting medical

support. Where do you live? You might want to check trial studies in your area.

I take Braggs Vinager everyday, supplements like Vit D, B12, B1, and fish oil

I either cook with Olive oil or coconut oil. I stay away from sugar and carbs

when I am feeling bad

I used to use a heating pad at night but then bought a matress cover that heats

up at Bed bath and Beyond. I think you can also find on the web. Stay warm at

night,

I use arnica gel on my body in am and before bed you can find this at GNC

and on

the web

Also keep your mind on other things if you can watch something like comedys or

cooking shows what ever relaxes you

I take Flexirl and celebrex my sister does as well and she also takes lyrica

which has helped her like no other

You should fire your reg doctor and get a doctor that will listen and respect 

you

 

Ciao-

Ange

 

________________________________

To: fibromyalgiacured

Sent: Fri, May 13, 2011 6:36:50 PM

Subject: pain

 

I am in so much pain I am seriously depressed, I have been in bed for a week,

The pain clinic said they couln't help me because my insurance wouldn't cover

anything, I can't afford what they are asking for fee. My Regular Dr said they

don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

anyone know of any Dr. in the washington state area. Please let me know. I don't

know what to do and I am only getting worse. Thanks anyone.

[Guest guest]

Lorrie, can't find your original post, but wanted to tell you that my

fibromyalgia of 25 years turned out to be Lyme disease, a bacterial infection I

acquired from a known tick bite in my foot. I am now on oral clindamycin

antibiotics, 150mg 1-2x/day and my fibro pain is at zero. I also take various

anti-inflammatory supplements that treat my symptoms. We're all different and

respond differently to treatments. People can also get Lyme from other insects

and from human fluids and tissues, including congenitally. If you want to check

this possibility out, you could go to www.lymenet.org, sign up with a name, then

click on flash discussion, then seeking a doctor, then make a post with WA in

the heading and people will give you referrals. Anyone can also access the

archives there and read on any topic. I'd say about half of Lyme patients

present with fibro symptoms - ie, inflammatory presentation. That's what the

Lyme bacteria does, is inflame everything - nerves and soft tissues. - Robin

pain

I am in so much pain I am seriously depressed, I have been in bed for a week,

The pain clinic said they couln't help me because my insurance wouldn't cover

anything, I can't afford what they are asking for fee. My Regular Dr said they

don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

anyone know of any Dr. in the washington state area. Please let me know. I don't

know what to do and I am only getting worse. Thanks anyone.

[Guest guest]

your regular doctor must be nuts! my family doctor has prescribed nuerontin

(gabapentin) which takes care of my nerve pain, prozac which helps with mood

and pain, skelaxin which relaxes my muscles when i have a day where i have

to do lots of physical activity--with the skelaxin my muscles don't go into

spasms like they use to. my goal is to work towards more natural means of

dealing with my pain, but until i figure that out, i use these medications.

last summer, i spent much time in bed due to pain, exhaustion and

depression---since taking meds., i take one nap a day and that is usually

it. i still am trying to go low carb, but have not been successful yet.

another thing that has helped with energy and functioning has been to swim

for exercise--staying in bed seemed to make things worse, even though i felt

i could do nothing else. swimming at the fitness center has really helped

my body to begin gaining strength.

julianne

>

>

> I am in so much pain I am seriously depressed, I have been in bed for a

> week, The pain clinic said they couln't help me because my insurance

> wouldn't cover anything, I can't afford what they are asking for fee. My

> Regular Dr said they don't perscribe pain meds.I am at wits end and feeling

> very desperate. Dose anyone know of any Dr. in the washington state area.

> Please let me know. I don't know what to do and I am only getting worse.

> Thanks anyone.

>

>

>

[Guest guest]

Thank you ,

I am willing to try anything at this point,I had 2 pretty good days, but it

started raining again, the pain gets worse when it rains,can't stand it. I will

use your Ideas, I'm glad they work for you. I have suffered for 19 years and

have only had one Dr. treat me right. But I had to move to be with my grandkids.

I also have a terminal lung disease which kills my immune, so when I get sick

boy it awful. I'm not feeling to depressed now, don't know how I do it, I have

force myself to do anything. Do your feet get hot, mine are so hot I have to put

them into cold water. Then that hurts, seem like a merrygoround.I never know

how I will feel as each day goes by. Also, I get these sores all over that are

like boils but they hurt like a bruse and are very painful, my Dr. Said he

did'nt know what they were, except to say that I have a picking disease, which

is someewhat true, but that did'nt explain what causes the sores to start before

I Pick them they itch worse than any bug bite I have ever had, I tried benydril

and it didn't work. HMMM,what to do. Well anyway thank you again. Please let me

know if you hear of anything eles.

Lorrie

>

> Hi Lorrie,

> Sorry to hear about that. I was in bed for 2 months and medical doctors

could

> not help me except giving Tylenol#3 that made me more sick.

> I am taking CoQ10 300mg (for muscle pain) daily and Ginkgo Biloba (for

memory),

> you can buy them in Costco. They really help me to release pain and mood

> enhance.

>

> After you feel better, try to take yoga or Tai Chi, you can tell big

difference.

> Take care  

>

>

>

>

>

> ________________________________

>

> To: fibromyalgiacured

> Sent: Fri, May 13, 2011 6:36:50 PM

> Subject: pain

>

>  

> I am in so much pain I am seriously depressed, I have been in bed for a week,

> The pain clinic said they couln't help me because my insurance wouldn't cover

> anything, I can't afford what they are asking for fee. My Regular Dr said they

> don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

> anyone know of any Dr. in the washington state area. Please let me know. I

don't

> know what to do and I am only getting worse. Thanks anyone.

>

>

>

>

>

[Guest guest]

Thank you for the information, I have thought that i also could be lupas, but I

never thought of Lyne disease, I will ask my Dr. But he won't see me for another

6 months. He referred me to a pain specialist but my insurance wont cover the

expense of 130 dollars for the first visit, I am on SSI and only get 600 a month

no extras. I will see if he will do it, but he dosent seem to believe about

fibro. I tried to talk to him about and he pretty much changed the subject. That

made me mad. I tried to go to a different Dr. in his office and I was told he

isn't taking any new patients so they said no. So Im not sure where to go from

here. So I am on the search for a new Dr. but now we have to have referrals.

Again thank you, I have just my son for support and not other family, so I'm so

glad I have all you .

Lofe lorrie

>

>

> Lorrie, can't find your original post, but wanted to tell you that my

fibromyalgia of 25 years turned out to be Lyme disease, a bacterial infection I

acquired from a known tick bite in my foot. I am now on oral clindamycin

antibiotics, 150mg 1-2x/day and my fibro pain is at zero. I also take various

anti-inflammatory supplements that treat my symptoms. We're all different and

respond differently to treatments. People can also get Lyme from other insects

and from human fluids and tissues, including congenitally. If you want to check

this possibility out, you could go to www.lymenet.org, sign up with a name, then

click on flash discussion, then seeking a doctor, then make a post with WA in

the heading and people will give you referrals. Anyone can also access the

archives there and read on any topic. I'd say about half of Lyme patients

present with fibro symptoms - ie, inflammatory presentation. That's what the

Lyme bacteria does, is inflame everything - nerves and soft tissues. - Robin

>

>

>

>

>

>

>

>

> pain

>

>

> I am in so much pain I am seriously depressed, I have been in bed for a week,

> The pain clinic said they couln't help me because my insurance wouldn't cover

> anything, I can't afford what they are asking for fee. My Regular Dr said they

> don't perscribe pain meds.I am at wits end and feeling very desperate. Dose

> anyone know of any Dr. in the washington state area. Please let me know. I

don't

> know what to do and I am only getting worse. Thanks anyone.

>

>