Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Teri, thanks for the update. I do remember reading posts from you when I first joined I think. And I remember seeing pics in one of 's albums. I had asked a while back for an update from Ken/Wayne and anyone else who was in the Pirfenidone study. They wrote back too. Now that I'm rereading your post, I am drawing a blank on what they think this drug will do. I know I could do a search and weed thru what I find, but I was hoping you or Ken or somebody could refresh my memory. What's this drug for, what are they looking for, what will be considered a success for this trial? Thanks, Kerry IPF '01 S. IN Teri wrote: for those of you who remember us... just wanted to give an update on jon and his condition... he started the pirfenidone study back in feb.. today went in for his 12 week check up.. all stats and tests were up praise GOD,, finally some good news. we had a rough month, he coughed so much he lost his voice, had to up his percocet to help alieveate it, dr. also put him on tessalon pearls to take with the percocet. he took time off work and did nothing but drink hot tea and take drugs........ he did get better, he hates taking those tho.... anyway other then that, things are pretty much the same, he is still working ., still fighting with the VA to get dissability,,, still as awnry as ever!! hope everyone is doing ok.. sorry to hear about the loss of more of our loved ones,, sure hope this new drug is a keeper....... God Bless all.............. teri and jon.. ipf 5-06 Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.