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RE: fish oil vs ace inhibitors

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Hi .

1) The list of side effects for anything is scary, but mostly meaningless.

They have to put in the list just about anything that anyone had during the

clinical trials (this includes 1000's of patients). Most are minor and will

pass after a while. The one thing you have to watch for with ACE inhibitors

is angioedema, which is a *rare* allergic reaction involving swelling of

lips, tongue and/or throat. If that happens, call 911, because it can

obstruct breathing (perhaps more likely if your son is prone to respiratory

allergies). A common side effect is a chronic dry cough (occuring in between

20-30% of people taking it).

2) You can't compare fish oil and ACE inhibitors. They don't do the same

thing, so it's like comparing apples to oranges. One does not replace the

other. Fish oil may or may not help delay progression of the disease in the

long run. ACE inhibitors help keep proteinuria down right now, and they may

or may not help delay progression of the disease in the long run. Many

people with IgAN are on both.

Fish oil use is based on still incomplete, and disputed clinical trial

evidence (it tends to be in the " it can't hurt " category. Few doctors

dispute the benefits of inhibiting the ACE system in chronic glomerular

diseases like IgAN, and of course, they also lower blood pressure.

Pierre

fish oil vs ace inhibitors

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Hi

I've been taking ACE inhibitors for 6 months now, and had no side

effects I can attribute to them. I take 30mg a day of Lisinopril,

and though the side effect list is large,m I've been largly ok. I've

had a few slightly dizzy spells, but I take the tablets at night now

and that works very well for me. Some complain of a cough, but

that's fairly rare too. I've been on a few medicines now, and the

ACE inhibitors seems the freindliest of all at the moment!

All the best,

Cambridge, UK

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and

he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

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I've been on just about every class of BP meds, and I too found that ACE

inhibitors are the least objectionable in day-to-day life, along with their

close cousins the angiotensin II receptor blockers (Cozaar, Diovan, Avapro,

etc.).

Of course, everyone's different.

Pierre

Re: fish oil vs ace inhibitors

> Hi

>

> I've been taking ACE inhibitors for 6 months now, and had no side

> effects I can attribute to them. I take 30mg a day of Lisinopril,

> and though the side effect list is large,m I've been largly ok. I've

> had a few slightly dizzy spells, but I take the tablets at night now

> and that works very well for me. Some complain of a cough, but

> that's fairly rare too. I've been on a few medicines now, and the

> ACE inhibitors seems the freindliest of all at the moment!

>

> All the best,

>

>

>

> Cambridge, UK

>

>

> > My son is 14 and has been on fish oil for about 2 years, but won't

> > take it on a regular basis. He just started with a new doctor and

> he

> > suggested the ace inhititors. The list of side effects is kind of

> > scary. Any feedback would help.

> > Thanks...

> > lisa...

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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I've been taking both fish oil (10-12 1000mg caps/day) and the Ace Inhibitor

Accupril (2 40mg/day) for the past 2 years since I was diagnosed. No noticable

side effects at all.

fish oil vs ace inhibitors

My son is 14 and has been on fish oil for about 2 years, but won't

take it on a regular basis. He just started with a new doctor and he

suggested the ace inhititors. The list of side effects is kind of

scary. Any feedback would help.

Thanks...

lisa...

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Hi ,

I'm so glad you mentioned " 30 mg " . My 12 year old (a tall, muscular kid)

takes 17.5 mg of lisinopril every day. Every time we refill the

prescription we have the invariable argument with the insurer that his dose

exceeds what a kid should get...

Cy

Re: fish oil vs ace inhibitors

> Hi

>

> I've been taking ACE inhibitors for 6 months now, and had no side

> effects I can attribute to them. I take 30mg a day of Lisinopril,

> and though the side effect list is large,m I've been largly ok. I've

> had a few slightly dizzy spells, but I take the tablets at night now

> and that works very well for me. Some complain of a cough, but

> that's fairly rare too. I've been on a few medicines now, and the

> ACE inhibitors seems the freindliest of all at the moment!

>

> All the best,

>

>

>

> Cambridge, UK

>

>

> > My son is 14 and has been on fish oil for about 2 years, but won't

> > take it on a regular basis. He just started with a new doctor and

> he

> > suggested the ace inhititors. The list of side effects is kind of

> > scary. Any feedback would help.

> > Thanks...

> > lisa...

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Hi ,

We're pretty new at this. However, my 12 year old son has been taking 17.5

mg of lisinopril (an ace inhibitor) since August with no adverse side

effects. The lisinopril is the most innocuous of his meds. We do double

check BP's twice a day though to be on the safe side.

Cy

fish oil vs ace inhibitors

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Hi

I've been taking ACE inhibitors for 6 months now, and had no side

effects I can attribute to them. I take 30mg a day of Lisinopril,

and though the side effect list is large,m I've been largly ok. I've

had a few slightly dizzy spells, but I take the tablets at night now

and that works very well for me. Some complain of a cough, but

that's fairly rare too. I've been on a few medicines now, and the

ACE inhibitors seems the freindliest of all at the moment!

All the best,

Cambridge, UK

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and

he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

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My son was 14 when he started on fish oil and it was a struggle. He

especially hated the fishy breath. We found several things that helped. One

was to keep the capsules in the refrigerator so they dissolve lower in the

digestive track ­ helps some. Also there is a product called Breath Assure

Breath Capsules, which are little gel caps that will get rid of much of the

fishy after-taste. Finally his best solution was to take them all at night,

instead of half in morning and half in evening. That way all the fish breath

and fish burps happened at night while he was sleeping and were gone by

morning. His neph wasn¹t too happy about him taking them all at night but

did agree that it was better than not taking them at all. And when he was

taking the fish oil regularly, it did seem to slow down significantly the

decline in kidney function.

Betsy

On 2/9/03 4:34 PM, " mmcs_wife "

wrote:

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

>

>

>

>

>

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<Snip> His neph wasn¹t too happy about him taking them all at night but

did agree that it was better than not taking them at all.<End Snip>

I asked my renal doctors if it was better to take them all at once, or

half in AM and half in PM, and they told me it didn’t matter.

Do you know why your sons neph didn’t like the idea of taking them all

at once at bedtime?

Curtis in Ontario, Canada

Re: fish oil vs ace inhibitors

My son was 14 when he started on fish oil and it was a struggle. He

especially hated the fishy breath. We found several things that helped.

One

was to keep the capsules in the refrigerator so they dissolve lower in

the

digestive track ­ helps some. Also there is a product called Breath

Assure

Breath Capsules, which are little gel caps that will get rid of much of

the

fishy after-taste. Finally his best solution was to take them all at

night,

instead of half in morning and half in evening. That way all the fish

breath

and fish burps happened at night while he was sleeping and were gone by

morning. His neph wasn¹t too happy about him taking them all at night

but

did agree that it was better than not taking them at all. And when he

was

taking the fish oil regularly, it did seem to slow down significantly

the

decline in kidney function.

Betsy

On 2/9/03 4:34 PM, " mmcs_wife "

wrote:

> My son is 14 and has been on fish oil for about 2 years, but won't

> take it on a regular basis. He just started with a new doctor and he

> suggested the ace inhititors. The list of side effects is kind of

> scary. Any feedback would help.

> Thanks...

> lisa...

>

>

>

>

>

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Curtis,

As I recall, it had something to do with absorption being better if spread

out, but I don¹t think they really know. We didn¹t notice any effect, as far

as lab results, with changing to all at night. My son¹s compliance with

taking medications was much better through high school and college with

taking everything at night. The nephs. shrugged and said basically ­ OK, it

that means he¹s taking everything faithfully every day, then taking them all

at bedtime is fine. He even preferred to take his diuretic at bedtime,

because he hated how it made him feel when he took it in the morning. Having

to get up during the night wasn¹t a big issue, but he certainly had to go as

soon as he woke up.

Betsy

> <Snip> His neph wasn¹t too happy about him taking them all at night but

> did agree that it was better than not taking them at all.<End Snip>

>

> I asked my renal doctors if it was better to take them all at once, or

> half in AM and half in PM, and they told me it didn’t matter.

>

> Do you know why your sons neph didn’t like the idea of taking them all

> at once at bedtime?

>

> Curtis in Ontario, Canada

>

>

>

>

> Re: fish oil vs ace inhibitors

>

> My son was 14 when he started on fish oil and it was a struggle. He

> especially hated the fishy breath. We found several things that helped.

> One

> was to keep the capsules in the refrigerator so they dissolve lower in

> the

> digestive track ­ helps some. Also there is a product called Breath

> Assure

> Breath Capsules, which are little gel caps that will get rid of much of

> the

> fishy after-taste. Finally his best solution was to take them all at

> night,

> instead of half in morning and half in evening. That way all the fish

> breath

> and fish burps happened at night while he was sleeping and were gone by

> morning. His neph wasn¹t too happy about him taking them all at night

> but

> did agree that it was better than not taking them at all. And when he

> was

> taking the fish oil regularly, it did seem to slow down significantly

> the

> decline in kidney function.

>

> Betsy

>

> On 2/9/03 4:34 PM, " mmcs_wife "

> wrote:

>

>> > My son is 14 and has been on fish oil for about 2 years, but won't

>> > take it on a regular basis. He just started with a new doctor and he

>> > suggested the ace inhititors. The list of side effects is kind of

>> > scary. Any feedback would help.

>> > Thanks...

>> > lisa...

>> >

>> >

>> >

>> >

>> >

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Thanks for the reply, Betsy.

Curtis in Ontario, Canada

Re: fish oil vs ace inhibitors

>

> My son was 14 when he started on fish oil and it was a struggle. He

> especially hated the fishy breath. We found several things that

helped.

> One

> was to keep the capsules in the refrigerator so they dissolve lower in

> the

> digestive track ­ helps some. Also there is a product called Breath

> Assure

> Breath Capsules, which are little gel caps that will get rid of much

of

> the

> fishy after-taste. Finally his best solution was to take them all at

> night,

> instead of half in morning and half in evening. That way all the fish

> breath

> and fish burps happened at night while he was sleeping and were gone

by

> morning. His neph wasn¹t too happy about him taking them all at night

> but

> did agree that it was better than not taking them at all. And when he

> was

> taking the fish oil regularly, it did seem to slow down significantly

> the

> decline in kidney function.

>

> Betsy

>

> On 2/9/03 4:34 PM, " mmcs_wife "

> wrote:

>

>> > My son is 14 and has been on fish oil for about 2 years, but won't

>> > take it on a regular basis. He just started with a new doctor and

he

>> > suggested the ace inhititors. The list of side effects is kind of

>> > scary. Any feedback would help.

>> > Thanks...

>> > lisa...

>> >

>> >

>> >

>> >

>> >

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  • 1 month later...
Guest guest

Im on 40mg of Lisinipril, Amlodipine 10mg per and Atorvastatin Calcium 10mg pr

day. I am Male 40 Yrs old 5' 10 " and weigh 11 stone now down from 12.5 stone

when diagnosed in Dec last year. The lisinipril has no effects on me what so

ever and I'm on the max dosage allowed :) I have gotten that dreaded dry cough

recently when my consultant increased my Amlodipine from 5 to 10mg, splitting

the dossage to having 5 ml in the morning and 5ml evening doesnt help, I start

coughing an hour or two after the second dossage :(

Anyway a big hello to everyone in this group I have learned so much from lurking

in this group since my diagnoses.

Marko UK

Cy Webb wrote:Hi ,

I'm so glad you mentioned " 30 mg " . My 12 year old (a tall, muscular kid)

takes 17.5 mg of lisinopril every day. Every time we refill the

prescription we have the invariable argument with the insurer that his dose

exceeds what a kid should get...

Cy

Re: fish oil vs ace inhibitors

> Hi

>

> I've been taking ACE inhibitors for 6 months now, and had no side

> effects I can attribute to them. I take 30mg a day of Lisinopril,

> and though the side effect list is large,m I've been largly ok. I've

> had a few slightly dizzy spells, but I take the tablets at night now

> and that works very well for me. Some complain of a cough, but

> that's fairly rare too. I've been on a few medicines now, and the

> ACE inhibitors seems the freindliest of all at the moment!

>

> All the best,

>

>

>

> Cambridge, UK

>

>

> > My son is 14 and has been on fish oil for about 2 years, but won't

> > take it on a regular basis. He just started with a new doctor and

> he

> > suggested the ace inhititors. The list of side effects is kind of

> > scary. Any feedback would help.

> > Thanks...

> > lisa...

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Guest guest

Im on 40mg of Lisinipril, Amlodipine 10mg per and Atorvastatin Calcium 10mg pr

day. I am Male 40 Yrs old 5' 10 " and weigh 11 stone now down from 12.5 stone

when diagnosed in Dec last year. The lisinipril has no effects on me what so

ever and I'm on the max dosage allowed :) I have gotten that dreaded dry cough

recently when my consultant increased my Amlodipine from 5 to 10mg, splitting

the dossage to having 5 ml in the morning and 5ml evening doesnt help, I start

coughing an hour or two after the second dossage :(

Anyway a big hello to everyone in this group I have learned so much from lurking

in this group since my diagnoses.

Marko UK

Cy Webb wrote:Hi ,

I'm so glad you mentioned " 30 mg " . My 12 year old (a tall, muscular kid)

takes 17.5 mg of lisinopril every day. Every time we refill the

prescription we have the invariable argument with the insurer that his dose

exceeds what a kid should get...

Cy

Re: fish oil vs ace inhibitors

> Hi

>

> I've been taking ACE inhibitors for 6 months now, and had no side

> effects I can attribute to them. I take 30mg a day of Lisinopril,

> and though the side effect list is large,m I've been largly ok. I've

> had a few slightly dizzy spells, but I take the tablets at night now

> and that works very well for me. Some complain of a cough, but

> that's fairly rare too. I've been on a few medicines now, and the

> ACE inhibitors seems the freindliest of all at the moment!

>

> All the best,

>

>

>

> Cambridge, UK

>

>

> > My son is 14 and has been on fish oil for about 2 years, but won't

> > take it on a regular basis. He just started with a new doctor and

> he

> > suggested the ace inhititors. The list of side effects is kind of

> > scary. Any feedback would help.

> > Thanks...

> > lisa...

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Guest guest

Hi Marko,

I wanted to welcome you to our group. Our UK contingency seems to be really

growing! One of our moderators, , is there too.

Is there not an alternate medication you can take to help alleviate the

dreaded dry cough? It can be really annoying can't it?

I hope you feel very supported and encouraged by this group Marko.

Welcome again,

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Guest guest

I'm not sure what you're getting is ACE inhibitor cough if you're only

getting it after taking amlodipine. Amlodipine isn't an ACE inhibitor. It's

a calcium channel blocker. Sometimes these drugs just make you feel a little

dry. Maybe that's what's happening. The ACE inhibitor cough is different.

Pierre

Re: Re: fish oil vs ace inhibitors

>

> Im on 40mg of Lisinipril, Amlodipine 10mg per and Atorvastatin Calcium

10mg pr day. I am Male 40 Yrs old 5' 10 " and weigh 11 stone now down from

12.5 stone when diagnosed in Dec last year. The lisinipril has no effects on

me what so ever and I'm on the max dosage allowed :) I have gotten that

dreaded dry cough recently when my consultant increased my Amlodipine from 5

to 10mg, splitting the dossage to having 5 ml in the morning and 5ml evening

doesnt help, I start coughing an hour or two after the second dossage :(

> Anyway a big hello to everyone in this group I have learned so much from

lurking in this group since my diagnoses.

> Marko UK

>

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Guest guest

Hi Marko

I would like to welcome you to the group too, I think I must have missed

your incoming message, but due to server problems nothing would surprise

me, so apologies for not seeing it straight away. Yes I am in the UK

South East area. As I am not sure of the content of your message, I

cant comment too much, save to say if it is a medication causing this

cough, could you not ask your GP if there is anything else you could

take? Or at least how long you could expect this side effect to

continue.

Once again welcome to this lovely group.

UK Moderator

Re: Re: fish oil vs ace inhibitors

Hi Marko,

I wanted to welcome you to our group. Our UK contingency seems to be

really

growing! One of our moderators, , is there too.

Is there not an alternate medication you can take to help alleviate the

dreaded dry cough? It can be really annoying can't it?

I hope you feel very supported and encouraged by this group Marko.

Welcome again,

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Guest guest

Hays guys this is just an idea it works for me its halls fruit breezers

it does not have any menthol it in it just pectin. it works great for

meand it was made for dry irritatated throats. just buy the 8 piece

bubble pack to try it starts out at about .50 just something to try.

hope it works for u.

gregory watts

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Guest guest

I don't know if this is available outside of Canada, but we have a cough

drop candy called " Fisherman's Friend " . My nephrologist recommended it to me

when I was having coughing problems. I'd have to say it worked temporarily

to some extent, but the dry cough from ACE inhibitors is due to an excess of

bradykinin, so it's unlikely anything would be more than a momentary

comfort.

Pierre

Re: Re: fish oil vs ace inhibitors

> Hays guys this is just an idea it works for me its halls fruit breezers

> it does not have any menthol it in it just pectin. it works great for

> meand it was made for dry irritatated throats. just buy the 8 piece

> bubble pack to try it starts out at about .50 just something to try.

> hope it works for u.

> gregory watts

>

>

>

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Guest guest

LOL!

Yes, even if it worked, you would have to decide which you can stand better,

the taste of Fisherman's Friend or the ACE inhibitor cough :)

I didn't know you had those in England. I always assumed they came from our

Maritime Provinces. Mind you, we have a lot of English products here,

especially candy.

Pierre

Re: Re: fish oil vs ace inhibitors

>

>

> I don't know if this is available outside of Canada, but we have a cough

> drop candy called " Fisherman's Friend " . My nephrologist recommended it

to

> me

> when I was having coughing problems. I'd have to say it worked

temporarily

> to some extent, but the dry cough from ACE inhibitors is due to an

excess

> of

> bradykinin, so it's unlikely anything would be more than a momentary

> comfort.

> Pierre

>

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Guest guest

I think they are a English invention aren't they..........they are truly

disgusting Pierre! Yuk.

Sally. UK

Re: Re: fish oil vs ace inhibitors

I don't know if this is available outside of Canada, but we have a cough

drop candy called " Fisherman's Friend " . My nephrologist recommended it to

me

when I was having coughing problems. I'd have to say it worked temporarily

to some extent, but the dry cough from ACE inhibitors is due to an excess

of

bradykinin, so it's unlikely anything would be more than a momentary

comfort.

Pierre

Re: Re: fish oil vs ace inhibitors

> Hays guys this is just an idea it works for me its halls fruit breezers

> it does not have any menthol it in it just pectin. it works great for

> meand it was made for dry irritatated throats. just buy the 8 piece

> bubble pack to try it starts out at about .50 just something to try.

> hope it works for u.

> gregory watts

>

>

>

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Guest guest

Those wretched things are/were popular in Boston. I bought them there about

15 years ago. They' are still sitting in the med. cabinet!

Cy

Re: Re: fish oil vs ace inhibitors

> >

> >

> > I don't know if this is available outside of Canada, but we have a

cough

> > drop candy called " Fisherman's Friend " . My nephrologist recommended it

> to

> > me

> > when I was having coughing problems. I'd have to say it worked

> temporarily

> > to some extent, but the dry cough from ACE inhibitors is due to an

> excess

> > of

> > bradykinin, so it's unlikely anything would be more than a momentary

> > comfort.

> > Pierre

> >

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

>

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Guest guest

Hi Pierre

Yes we can get Fisherman's Friend here in the UK, but oh boy they are

horrid, I tried one once when I had catarrh, and it blew my head off,

but it did help the sore throat and catarrh, so the nasty taste was a

small price to pay.

Love

Re: Re: fish oil vs ace inhibitors

I don't know if this is available outside of Canada, but we have a cough

drop candy called " Fisherman's Friend " . My nephrologist recommended it

to me

when I was having coughing problems. I'd have to say it worked

temporarily

to some extent, but the dry cough from ACE inhibitors is due to an

excess of

bradykinin, so it's unlikely anything would be more than a momentary

comfort.

Pierre

Re: Re: fish oil vs ace inhibitors

> Hays guys this is just an idea it works for me its halls fruit

breezers

> it does not have any menthol it in it just pectin. it works great for

> meand it was made for dry irritatated throats. just buy the 8 piece

> bubble pack to try it starts out at about .50 just something to try.

> hope it works for u.

> gregory watts

>

>

>

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Guest guest

Hi ,

I must confess that my last message was my first :/ how rude of me not to

introduce myself so here goes:

My name is Mark and I live in the NW of the UK, aged 40 married with two sprogs

a dog and a cat.

Sept 2000, I went for a works medical that found blood and protien in my urine,

bp normal. Send off to GP, referred to local Urologist who after many tests and

an eventual bladder biopsy (year later) told me that they could find nought

wrong and that some peaple naturally lose some blood and protein in their urine

so dont worry about it come back nest year.

Nov/Dec 2002, started getting dizzy spells could be sitting down or just walking

around, had them 3 or 4 times a day. Headaches real baddies esp first thing in

the morning and less severe ones during the day. Face felt flushed most of the

time, nausious some of the time. Lack of appetitie, no sex drive. Thought I may

have caught a bug but after 2 weeks and no inprovement I starting to wonder.

An email went round the company promoting a health screening program about to

start courtesy of the companys health department. Rang up went down an hour

later measured bp at 210/109 and high colosterol. Went to see local GP same day

who repeated the bp tests and arranged for blood tests and a 24hr BP monitor. To

cut a long story short my gp sent me to the local A+E with a covering letter. I

was kept in overnight being transferred to the renal ward in the Royal Liverpool

University Teaching Hospital the next day. On Dec 20th (biopsy Dec 17) the same

day my wife passed her driving test (horray) I was told that I had 20-25% kidney

function left (boo hiss) so a sweet and sour day :(

They let me out a few days later returning every few weeks for blood work/24 hr

urine. My last 2 results was:

Date 27/2 Hb 9.7/ K 4.5/ Ur 16.6/ Creat 448/ Pj 0.89/ Adj Cal 2.31

Date 30/3 Hb 9.8/ K 4.8/ Ur 19.3/ Creat 481/ Pj 1.2 / Adj Cal 2.31

Dont know what the Pj is, Phosporus level?

Dont really know how to interpret the above figures- help anyone?

I have just started EPO shots NeoRecorman 2000 twice weekly for the anaemia. I

have lost 2 stone in weight was 13 stone (gym built :) ) down to 11 stone now

and really feel the cold. Bp is hovering around 130/85 and have had the district

nurse in last week to discuss what dialysis method I want, HD was my no1 choise

but now im leaning towards PD, still undecided.....

Anyway thats enough of me, just glad I have found this mb, I have learnt tons

just reading this message board :)

Marko

IGAN wrote:Hi Marko

I would like to welcome you to the group too, I think I must have missed

your incoming message, but due to server problems nothing would surprise

me, so apologies for not seeing it straight away. Yes I am in the UK

South East area. As I am not sure of the content of your message, I

cant comment too much, save to say if it is a medication causing this

cough, could you not ask your GP if there is anything else you could

take? Or at least how long you could expect this side effect to

continue.

Once again welcome to this lovely group.

UK Moderator

Re: Re: fish oil vs ace inhibitors

Hi Marko,

I wanted to welcome you to our group. Our UK contingency seems to be

really

growing! One of our moderators, , is there too.

Is there not an alternate medication you can take to help alleviate the

dreaded dry cough? It can be really annoying can't it?

I hope you feel very supported and encouraged by this group Marko.

Welcome again,

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Doh your only right Pierre :) me getting confused with my meds again. Is having

a low attention span and a foggy brain also a symptom? If it is I have it in

spadefulls :)

Marko

I'm not sure what you're getting is ACE inhibitor cough if you're only

getting it after taking amlodipine. Amlodipine isn't an ACE inhibitor. It's

a calcium channel blocker. Sometimes these drugs just make you feel a little

dry. Maybe that's what's happening. The ACE inhibitor cough is different.

Pierre

Re: Re: fish oil vs ace inhibitors

>

> Im on 40mg of Lisinipril, Amlodipine 10mg per and Atorvastatin Calcium

10mg pr day. I am Male 40 Yrs old 5' 10 " and weigh 11 stone now down from

12.5 stone when diagnosed in Dec last year. The lisinipril has no effects on

me what so ever and I'm on the max dosage allowed :) I have gotten that

dreaded dry cough recently when my consultant increased my Amlodipine from 5

to 10mg, splitting the dossage to having 5 ml in the morning and 5ml evening

doesnt help, I start coughing an hour or two after the second dossage :(

> Anyway a big hello to everyone in this group I have learned so much from

lurking in this group since my diagnoses.

> Marko UK

>

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

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Hi Mark,

Glad to be formally introduced :-)

Your experience in being diagnosed is not unlike many of us in that it was

discovered on a routine urinalysis. It is very disappointing that your

urologist never referred you on to a Nephrologist, which I have a very hard

time understanding why he didn't.

They headaches you are describing are not unusual with high blood pressure.

It is very important to get that under control because hypertension is very

hard on the kidneys.

Your creatinine is getting up there. Have they referred you to someone to

discuss dialysis options? As Pierre will tell you, it is much better to be

prepared ahead of time. I am not sure though what the Pj level is. I have

never heard of that.

The Epo will really help you. I have been on that for about 2 years, and I

call it my miracle drug :-) It really gave me back my energy and allowed me

to stay awake past 8 PM!

We are here with you to support you as your go through this Marko!

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