Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi Chaochi, I am so sorry to hear of your wife's diagnosis of IgAN. You have come to a wonderful place for information and support though. I would like to direct you to <A HREF= " www.igan.ca " >www.igan.ca</A> for information on IgAN. That side has notebooks of some of our members who have successfully transitioned to dialysis. I am assuming your wife has a somewhat advanced state although you don't mention her lab results. Since her diet is now limiting phosphorus and potassium and sodium in addition to protein, that is normally after some significant amount of kidney function has been lost. As far as when to expect dialysis and/or a transplant, that can vary widely by how much muscle mass your wife has. The larger you are, the higher serum creatinine levels you can tolerate. We have had some members convert to dialysis around serum creatinine levels of 5, and others around 10. Typically, better gauge is percentage kidney function or GFR. If you have access to her lab results, you can try to get an estimate by going to the following web site and following the directions carefully entering her data. <A HREF= " http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/inde\ x.html " > http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/index.htm l</A> That should give you some idea. I don't know of any place to buy special foods, but those of us with dietary restrictions (myself included) just learn about potassium levels, phophosus levels etc and cook around those restrictions. If you would like, you might check on line for a renal cookbook which may help. We would like to welcome you to our group, and hope you and your wife feel very supported here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi Chaochi, I know the prevalence of IgAN is much higher than in the US, so I would assume her doctors are very knowledgeable. I am afraid that I cannot recommend any specific doctors in New York since I am in California and unfamiliar with any Nephrologists in that area. Perhaps if there are other members in NY, they could help out with recommendations. With a serum creatinine level of 8.3, if that is in mg/dl, she is probably not feeling too great and traveling that far might be trying for her. Have her doctors mentioned preparing her for dialysis yet? Perhaps if those are the correct units such a discussion would be in order at this point if it has not already taken place. Best of luck to you both on deciding what direction to take. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Thanks for your reply . It really encourages us knowing that there are people supporting around us. My wife's creatinie level is 8.3 (not sure of the unit) and it's been going up and down. It goes down ever slightly, but goes up dramatically. She is small and skinny (5'2, 96lb) She is currently in Japan, and will she be any better or even worse if she travels to the US. It seems like if she does come to the US, her implant for dialysis be better done in Japan. Do you know any hospitals and/or dialysis center famous and specializes in the US, possibly in New York? Please give us some more of your knowledge and advise. chaochi Re: questions Hi Chaochi, I am so sorry to hear of your wife's diagnosis of IgAN. You have come to a wonderful place for information and support though. I would like to direct you to <A HREF= " www.igan.ca " >www.igan.ca</A> for information on IgAN. That side has notebooks of some of our members who have successfully transitioned to dialysis. I am assuming your wife has a somewhat advanced state although you don't mention her lab results. Since her diet is now limiting phosphorus and potassium and sodium in addition to protein, that is normally after some significant amount of kidney function has been lost. As far as when to expect dialysis and/or a transplant, that can vary widely by how much muscle mass your wife has. The larger you are, the higher serum creatinine levels you can tolerate. We have had some members convert to dialysis around serum creatinine levels of 5, and others around 10. Typically, better gauge is percentage kidney function or GFR. If you have access to her lab results, you can try to get an estimate by going to the following web site and following the directions carefully entering her data. <A HREF= " http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/ index.html " > http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/index. htm l</A> That should give you some idea. I don't know of any place to buy special foods, but those of us with dietary restrictions (myself included) just learn about potassium levels, phophosus levels etc and cook around those restrictions. If you would like, you might check on line for a renal cookbook which may help. We would like to welcome you to our group, and hope you and your wife feel very supported here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 , May I ask how your condition so I may able to compare it with my wife's. How long ago were you diagnosed? What is your current data? creatinine, BUN, BP, etc. Have you drunk fish oil? how many per day? Have you tried steroids?Any side effects? Are you currently receiving dialysis? If so, how often? Do you know anything about dialysis in the US? Is it expensive to receive treatment, or is it usually covered by insurance? Is there any financial support for dialysis? Sorry for all of these questions at once. Just want to receive info as much as possible. chaochi Re: questions Hi Chaochi, I know the prevalence of IgAN is much higher than in the US, so I would assume her doctors are very knowledgeable. I am afraid that I cannot recommend any specific doctors in New York since I am in California and unfamiliar with any Nephrologists in that area. Perhaps if there are other members in NY, they could help out with recommendations. With a serum creatinine level of 8.3, if that is in mg/dl, she is probably not feeling too great and traveling that far might be trying for her. Have her doctors mentioned preparing her for dialysis yet? Perhaps if those are the correct units such a discussion would be in order at this point if it has not already taken place. Best of luck to you both on deciding what direction to take. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hi chaochi Welcome to the group. Unless Japan uses a different measuring unit that I don't know about, that's a pretty high serum creatinine for someone who is only 96 lbs. Your wife is just a touch shorter than me, and about 30 lbs lighter, and I started dialysis when my serum creatinine was about 5.7 mg/dl. She must be pretty close to needing dialysis - I suspect that she would already have started in many places. Mine was also up and down during the last year before I started hemo, and I was told this is usually what happens. Has she chosen a method of dialysis yet? Very important to get the access in the arm or abdomen prepared well ahead of time. In reply to your earlier post today about special foods... I was on a similar diet as your wife for a year prior to dialysis, and since dialysis, an increased protein version of the same diet (necessary when on hemodialysis). As far as I am aware, the only special foods you might buy are low sodium versions of things she is allowed to eat. There are no special low protein or low potassium foods - only well-chosen ordinary foods. Similarly, low phosphorus is mostly a matter of avoiding high phosphorus foods (and taking the prescribed phosphate binding agent). It's hard, but the light at the end of the tunnel, as far as diet is concerned, is that once on dialysis, the protein situation is reversed. There are various websites with recipes... some good books too. But don't look for anything specifically for IgAN - there isn't any. What you to look for is " renal diet " and general kidney failure recipes. The purpose is to help make the diet more varied and appetizing. There is really nothing special to buy. You can get more information about " renal diet " via Google, or by going to some of the links provided on the Links page of our companion website, www.igan.ca Pierre Re: questions > > > Hi Chaochi, > > I am so sorry to hear of your wife's diagnosis of IgAN. You have come to > a > wonderful place for information and support though. > > I would like to direct you to <A HREF= " www.igan.ca " >www.igan.ca</A> for > information on IgAN. That side > has notebooks of some of our members who have successfully transitioned to > dialysis. I am assuming your wife has a somewhat advanced state although > you > don't mention her lab results. Since her diet is now limiting phosphorus > and > potassium and sodium in addition to protein, that is normally after some > significant amount of kidney function has been lost. > > As far as when to expect dialysis and/or a transplant, that can vary > widely > by how much muscle mass your wife has. The larger you are, the higher > serum > creatinine levels you can tolerate. We have had some members convert to > dialysis around serum creatinine levels of 5, and others around 10. > Typically, better gauge is percentage kidney function or GFR. If you have > access to her lab results, you can try to get an estimate by going to the > following web site and following the directions carefully entering her > data. > <A > HREF= " http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/ > index.html " > > > http://www.wramc.amedd.army.mil/departments/medicine/nephrology/tools/index. > htm > > l</A> > > That should give you some idea. I don't know of any place to buy special > foods, but those of us with dietary restrictions (myself included) just > learn > about potassium levels, phophosus levels etc and cook around those > restrictions. If you would like, you might check on line for a renal > cookbook which may help. > > We would like to welcome you to our group, and hope you and your wife feel > very supported here! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 on 2/24/03 3:06 PM, Pierre L (groups) at pgl-groups@... wrote: Hi chaochi Welcome to the group. Unless Japan uses a different measuring unit that I don't know about, that's a pretty high serum creatinine for someone who is only 96 lbs. Your wife is just a touch shorter than me, and about 30 lbs lighter, and I started dialysis when my serum creatinine was about 5.7 mg/dl. She must be pretty close to needing dialysis - I suspect that she would already have started in many places. Mine was also up and down during the last year before I started hemo, and I was told this is usually what happens. Has she chosen a method of dialysis yet? Very important to get the access in the arm or abdomen prepared well ahead of time. In reply to your earlier post today about special foods... I was on a similar diet as your wife for a year prior to dialysis, and since dialysis, an increased protein version of the same diet (necessary when on hemodialysis). As far as I am aware, the only special foods you might buy are low sodium versions of things she is allowed to eat. There are no special low protein or low potassium foods - only well-chosen ordinary foods. Similarly, low phosphorus is mostly a matter of avoiding high phosphorus foods (and taking the prescribed phosphate binding agent). It's hard, but the light at the end of the tunnel, as far as diet is concerned, is that once on dialysis, the protein situation is reversed. There are various websites with recipes... some good books too. But don't look for anything specifically for IgAN - there isn't any. What you to look for is " renal diet " and general kidney failure recipes. The purpose is to help make the diet more varied and appetizing. There is really nothing special to buy. You can get more information about " renal diet " via Google, or by going to some of the links provided on the Links page of our companion website, www.igan.ca Pierre chaochi... there is an excellent asian cookbook....chinese..for renal patients with a comprehensive breakdown of sodium,potassium,phosphous percentages. written by RENAL DIETITIONS. st.paul's hospital c/o sandy porter 1081 burrard st vancouver,B.C. V6z 1Y6 canada tel: (604)806-9011 fax: (604)806-8449 the recipes are very good and are written in english and chinese make checks payable to: St. 's Hospital $25.00 U.S. (AT LEAST IT WAS SO 2 YEARS AGO this might be a good start/transition P.S....THERE IS A $8.00 SHIPPING/HANDLING FEE FOR US ORDERS include your phone number on order just is case...i rec'd mine in 2 weeks i have also come across a company selling nutrionally controlled complete meals. i personally have not tried them CALWOOD NUTRITIONALS, INC 500 mccormick drive,SUITE J GLEN BURNIE, MD 21061 http://www.calwoosnutritionals.com i hope this information will be s start for you . sincerely.....elsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 on 2/25/03 1:50 AM, ELSIE STEPHENS at wonderland67@... wrote: on 2/24/03 3:06 PM, Pierre L (groups) at pgl-groups@... wrote: Hi chaochi Welcome to the group. Unless Japan uses a different measuring unit that I don't know about, that's a pretty high serum creatinine for someone who is only 96 lbs. Your wife is just a touch shorter than me, and about 30 lbs lighter, and I started dialysis when my serum creatinine was about 5.7 mg/dl. She must be pretty close to needing dialysis - I suspect that she would already have started in many places. Mine was also up and down during the last year before I started hemo, and I was told this is usually what happens. Has she chosen a method of dialysis yet? Very important to get the access in the arm or abdomen prepared well ahead of time. In reply to your earlier post today about special foods... I was on a similar diet as your wife for a year prior to dialysis, and since dialysis, an increased protein version of the same diet (necessary when on hemodialysis). As far as I am aware, the only special foods you might buy are low sodium versions of things she is allowed to eat. There are no special low protein or low potassium foods - only well-chosen ordinary foods. Similarly, low phosphorus is mostly a matter of avoiding high phosphorus foods (and taking the prescribed phosphate binding agent). It's hard, but the light at the end of the tunnel, as far as diet is concerned, is that once on dialysis, the protein situation is reversed. There are various websites with recipes... some good books too. But don't look for anything specifically for IgAN - there isn't any. What you to look for is " renal diet " and general kidney failure recipes. The purpose is to help make the diet more varied and appetizing. There is really nothing special to buy. You can get more information about " renal diet " via Google, or by going to some of the links provided on the Links page of our companion website, www.igan.ca Pierre chaochi... there is an excellent asian cookbook....chinese..for renal patients with a comprehensive breakdown of sodium,potassium,phosphous percentages. written by RENAL DIETITIONS. st.paul's hospital c/o sandy porter 1081 burrard st vancouver,B.C. V6z 1Y6 canada tel: (604)806-9011 fax: (604)806-8449 the recipes are very good and are written in english and chinese make checks payable to: St. 's Hospital $25.00 U.S. (AT LEAST IT WAS SO 2 YEARS AGO this might be a good start/transition P.S....THERE IS A $8.00 SHIPPING/HANDLING FEE FOR US ORDERS include your phone number on order just is case...i rec'd mine in 2 weeks i have also come across a company selling nutrionally controlled complete meals. i personally have not tried them CALWOOD NUTRITIONALS, INC 500 mccormick drive,SUITE J GLEN BURNIE, MD 21061 http://www.calwoosnutritionals.com i hope this information will be s start for you . sincerely.....elsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 on 2/25/03 1:50 AM, ELSIE STEPHENS at wonderland67@... wrote: on 2/24/03 3:06 PM, Pierre L (groups) at pgl-groups@... wrote: Hi chaochi Welcome to the group. Unless Japan uses a different measuring unit that I don't know about, that's a pretty high serum creatinine for someone who is only 96 lbs. Your wife is just a touch shorter than me, and about 30 lbs lighter, and I started dialysis when my serum creatinine was about 5.7 mg/dl. She must be pretty close to needing dialysis - I suspect that she would already have started in many places. Mine was also up and down during the last year before I started hemo, and I was told this is usually what happens. Has she chosen a method of dialysis yet? Very important to get the access in the arm or abdomen prepared well ahead of time. In reply to your earlier post today about special foods... I was on a similar diet as your wife for a year prior to dialysis, and since dialysis, an increased protein version of the same diet (necessary when on hemodialysis). As far as I am aware, the only special foods you might buy are low sodium versions of things she is allowed to eat. There are no special low protein or low potassium foods - only well-chosen ordinary foods. Similarly, low phosphorus is mostly a matter of avoiding high phosphorus foods (and taking the prescribed phosphate binding agent). It's hard, but the light at the end of the tunnel, as far as diet is concerned, is that once on dialysis, the protein situation is reversed. There are various websites with recipes... some good books too. But don't look for anything specifically for IgAN - there isn't any. What you to look for is " renal diet " and general kidney failure recipes. The purpose is to help make the diet more varied and appetizing. There is really nothing special to buy. You can get more information about " renal diet " via Google, or by going to some of the links provided on the Links page of our companion website, www.igan.ca Pierre chaochi... there is an excellent asian cookbook....chinese..for renal patients with a comprehensive breakdown of sodium,potassium,phosphous percentages. written by RENAL DIETITIONS. st.paul's hospital c/o sandy porter 1081 burrard st vancouver,B.C. V6z 1Y6 canada tel: (604)806-9011 fax: (604)806-8449 the recipes are very good and are written in english and chinese make checks payable to: St. 's Hospital $25.00 U.S. (AT LEAST IT WAS SO 2 YEARS AGO this might be a good start/transition P.S....THERE IS A $8.00 SHIPPING/HANDLING FEE FOR US ORDERS include your phone number on order just is case...i rec'd mine in 2 weeks i have also come across a company selling nutrionally controlled complete meals. i personally have not tried them CALWOOD NUTRITIONALS, INC 500 mccormick drive,SUITE J GLEN BURNIE, MD 21061 http://www.calwoosnutritionals.com i hope this information will be s start for you . sincerely.....elsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 on 2/25/03 1:50 AM, chaochi and everyone...i apologize for the series of incorrect information. i was not aware that the nutritionals were supplements. please disregard that info . i was given to understand that this company supplied frozen entrees.....it does not....again..my apologies....elsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 Hi Dana, Welcome to our group! I am sorry about your diagnosis too, but glad you have found us. This is an incredible family of patients and loved ones here and you will find so much in the way of support, encouragement as well as information. You will find here a group that really understands all you are going through. When I was about your stage, I was also seen about every 6 months. Now that I am more advanced, I go every 2-3 months. But your protein level at 3 grams in 24 hours is a bit high. I would think a return visit would be in order due to that fact along, but coupled with your episodes of hematuria (visible blood) every day, I would definitely call for an appointment. Not all IgAN patients have visible blood, but many do. I have a number of episodes myself early on in my course of having IgAN. I would get it in conjunction with a viral illness, especially a respiratory illness. I have not had that had any episodes of visible blood in the past 15 years or so even though my kidney disease has progressed. Welcome again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Thank you for writing, Connie. I appreciate the input. I have also been having some chest pain and depression and don't know if this is all related. There hasn't been a day in the last 2 weeks where I haven't had gross hematuria so I am concerned and glad to be going back in 3 weeks. In a message dated 3/12/03 10:03:26 AM Central Standard Time, csink@... writes: << Hi Dana, It was years and years that I saw my Neph on a 6 months basis. You may feel better since you scheduled another appointment especially since your protein was over 3 grams. Let him know that since you are new to this situation that you have some questions that you would like answered and that if nothing else you just needed some reassurance. In regards to the fatigue, I personally didn't have any fatigue until after I started on all of these medications. (many here though have had fatigue all along) I am one of those that with flue/upper respiratory infections, I have gross visible blood in the urine. As I've gotten older though, the episodes of this is farther apart even though my function has declined through the years. You said that you made your appointment in a couple of weeks, let us know how your appointment goes. Connie, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Hi Dana, It was years and years that I saw my Neph on a 6 months basis. You may feel better since you scheduled another appointment especially since your protein was over 3 grams. Let him know that since you are new to this situation that you have some questions that you would like answered and that if nothing else you just needed some reassurance. In regards to the fatigue, I personally didn't have any fatigue until after I started on all of these medications. (many here though have had fatigue all along) I am one of those that with flue/upper respiratory infections, I have gross visible blood in the urine. As I've gotten older though, the episodes of this is farther apart even though my function has declined through the years. You said that you made your appointment in a couple of weeks, let us know how your appointment goes. Connie, USA Questions Hi everyone, I have a couple of questions for you. I was diagnosed with IGAN about a month ago. I did not have a biopsy, but my neph told me because of the symptoms he was 99.9% sure that's what I have. I am on Lisinopril because of the very high bp. My neph told me he didn't need to see me for 6 months! Is this normal right after diagnoses? My creatinine level was 1.5 and my protein was over 3. Those are the only levels I know. I called and made an appt in a couple of weeks because after starting Lisinopril I am tired all the time and have the flank pain constantly. I have also had 3 " flare-ups " (with visible blood in the urine after a sore throat and severe flank pain and fatigue) in 4 weeks. How many do most of you get? Is it that often? Another reason I wanted to go back in was because I have had visible blood in the urine almost every day without the other symptoms. Does anyone else have this also? Sorry this got so long... Thanks, Dana To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Hi Heidi, As far as freezing things. I have frozen carrot cake, 14 date cake, muffins, peanut butter cake, etc. I have not frozen the pancakes, but refrigerating them works fine. And the cupcakes are made from the Peanut Butter cake recipe. Just cook them for a shorter amount of time. You were looking for DCCC. I don't know where to get it in Indy. (Janette knows.) But we don't recommend reintroducing cow dairy products right away when kids have been gfcf. I know you can get sheep cheese (Manchego brand) at Meijer in Greenwood. I bet the ones in Indy have it too. The Wild Oats in Nora carries the Caprine Estates goat milk to make yogurt with. (I think the Caprine Estates tastes much less " goaty " than the Meyenburg goat milk.) I bet that Wild Oats has goat cheese as well. Nut flour- There are several websites on Pecanbread.com on the Food Prep page that sell nut flours. It is possible to make nut flours at home, but I have never been able to get the fine flour-like consistency at home that the nut flour I buy has. As for a support group, Alison O'Malley's group which meets at St. Pius (where Janette and I discussed SCD) is very supportive of SCD, but not everyone who goes to the meetings is on the SCD. I don't know of a group specifically for SCD in Indy. Jody mom to -5.1 and -7.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Thanks for getting back to me Jody. I froze one of the waffles as a test. I'll let you know how it comes out. About the DCCC, I wanted to know for myself. I am going to go SCD too, so I was curious to try it. Also, I haven't noticed a difference in either kid when we started GFCF or when they cheated on it (not often). I thought I noticed a difference when Liam got milk, but I tested him and couldn't tell. He does have yeast issues though and both have constipation, so I figured I'd try it. Anyway, thanks again. Heidi Mom to Abigail (5 yo, ASD) and Liam (3 yo, ASD) Ps. I wanted to let you know that Abigail loves it when you add pictures to the recipes. She is much more excited to try new things that way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Thanks Jody! I'm sure she remembers your boys too. It's been way to long since we've gotten together though. I'd still be willing to drive down there some time. Sorry it hasn't happened before now. Do the boys remember her? Are you coming this way anytime soon? I'll have to e-mail you personally too. I did have another question. I've noticed that there are two (at least) Freeda vitamins that are SCD legal, the multi and the stress complex. Which one do most people use? Or do you use both? I haven't started replacing their vitamins yet. I figured I'd get the food in place and then work from there, but I didn't want to buy anything that wasn't SCD legal for this point on. I'm going to see Dr. Hulseman today and she's been real helpful with this too. I like her so much I switched to her for myself. Heidi Mom to Abigail (5 yo, ASD) and Liam (3yo, ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Ps. Abigail likes the pictures of just the food too. I think it helps her picture what it is that we are going to make. I hope you can get a publisher soon. I think it's a wonderful idea! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Heidi, I know you can get the DCCC in Indy somewhere because Janette uses it. I will ask her where she buys it. Does Abigail remember and or does she just like the pictures, even if they are just of the food item itself? I am still working on the cookbook, but I need a publisher. If anyone knows of a publisher that would publish an SCD kids cookbook with LOTS of pictures, PLEASE let me know. I went and priced out printing them myself at a copy shop. WAY too expensive because of all of the color copies. Jody mom to -5.1 and -7.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Heidi, I came to Alison's support group Monday night. We watched Jill DAN! presentation. Very interesting. About the vitamins, have you checked Pecanrbead.com? There is a list of legal/illegal supplements there. Of course, it is not all inclusive because there are about a million different supplements...LOL. But the majority of the ones used in ASD are listed there I believe. Just check the list. You may not need to change very much of what you are currently using. http://www.pecanbread.com/supplements.html Jody mom to -5.1 and -7.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 About your cookbook for kids Why don't you contact a printer or printing company - not a copy shop. They can make the masters and then do a print run of the pages for you. Printing this way is much cheaper than photocopying full color. Most will also put the pages in a binder or they can bind it for you. To make it worth while, you'd have to print quite a few at a time, probably 500 or more as there is a setup cost. Maybe take orders and see how many people are interested? A second option is to contact a publisher that specialises in 'self-publishing' of books. They will do the same as the above but perhaps have better contacts for marketing. You have to fund the publishing yourself but again you could take orders. I don't know where you can find them but used to read about them in the back of women's magazines when I was younger. Perhaps New York or another big city. What no time!!??? Abby Jody G. wrote: > Heidi, > > I know you can get the DCCC in Indy somewhere because Janette uses it. > I will ask her where she buys it. > > Does Abigail remember and or does she just like the > pictures, even if they are just of the food item itself? > > I am still working on the cookbook, but I need a publisher. If anyone > knows of a publisher that would publish an SCD kids cookbook with LOTS > of pictures, PLEASE let me know. > > I went and priced out printing them myself at a copy shop. WAY too > expensive because of all of the color copies. > > > Jody > mom to -5.1 and -7.4 > > > > For information on the Specific Carbohydrate Diet, please read the > following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 > I am still working on the cookbook, but I need a publisher. If anyone > knows of a publisher that would publish an SCD kids cookbook with LOTS > of pictures, PLEASE let me know. If you don't find a publisher, here is Press Cookbooks, P.O. Box 2110, Kearney, NE 68848-9985. www.morriscookbooks.com 1-, ext. CB. It's for self-publishing your own cookbook, which you then market yourself to the group that produced it (SCD!). The cookbook I bought is a very nice 3-ring binder with dividers, but the picture in back also shows spiral wire bound. Mine does not have any color pictures, but it's worth checking to see if they do color, or if they job it out to another printer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 , Thanks so much for the information. I will definitely look into it. I have checked one self-publishing company already and they only allow one photo per cookbook. Jody mom to -5.1 and -7.4 Quote Link to comment Share on other sites More sharing options...
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