Re: What goals do you have for the upcoming year in regard to your fibromyalgia.....

[Guest guest]

I'm slowly getting to emails, having been busy this season - but wanted to

respond to this one - I found out my fibromyalgia of 25 years was actually Lyme

disease, a bacterial infection I acquired from a known tick bite - I can date

every symptom - took 18 months for full-fledged fibro to develop.

When I found out, I bloodtested positive through the IGeneX lab. Not everyone

does test positive who has it, as the bacteria is very sneaky in the body. It

gets into the brain within 12 hours and inflames nerves, plus it corkscrews into

tissues anywhere and inflames them. It's named for Lyme, CT, where the illness

was first reported in the 70s. It can be transmitted by ticks (so small, many

people never see the ticks that bit them), other insects (up to 23 so far, I

think) and us (tissues and fluids, and yes, it can be passed congenitally).

So I take oral 150mg clindamycin antibiotics - I started with it around the

clock every 6 hours, and then dropped back to 1-2/day. Within a week of

starting, my fibro pain went to zero and my joint swelling greatly decreased. If

I don't take it, these symptoms start up again. Everyone takes different

antibiotics - we're all different in what we respond to. Lyme strains are all

different too - 100 of them in the US and 300 worldwide. I also take other

supplements successfully as well for anti-inflammational purposes, etc.

It's a complicated bacteria and a complicated study. I call it going to Lyme

school, to learn about the havoc it can cause in the body and what people are

doing about it. Info at www.lymenet.org, www.lymediseaseassociation.org,

www.lymedisease.org, www.igenex.org, www.lymeinfo.net, www.marylandlyme.org,

www.timeforlyme.org and many other sites. Best book: Cure Unknown, by

investigative journalist Pamela Weintraub, and best film: Under our Skin.

Take care, all, and happy new year - at least, try to find some " happy " in it...

- Robin

What goals do you have for the upcoming year in

regard to your fibromyalgia.....

Wanted to know if anyone would be willing to share any accomplishments or

revelations in regard to their fibromyalgia, no matter how small, for the past

year of 2010? Also, any goals in regard to your fibromyalgia for the up coming

year of 2011.

Ann M. Logan " Each Day Happens Only Once "

[Guest guest]

Hi Robin,

IGeneX is on my list for this year and I mentioned it to this board. I have

studied as much as I can handle with lyme and I have too many of early symptoms

to the progressive, and many lyme doctors say there is no fibro without lyme.

Nor are there many other things without lyme. 15 yrs into 1st symptoms and I am

spotted by lymers. And I read up on how it hides. I read this board and I don't

want to say too much as I've mentioned lyme a few times and I can almost spot

who has it by symptoms. But tests are needed, some on here are classic lyme. I

just can't face the money and the treatment right now, but if dizziness and

nausea increase, I'm testing. Also even with Corvalen M, I am beginning to have

a little fatique at times, but still way, way better with the Corvalen. The

bacteria feed on the magnesium or something with the magnesium or so I heard.

They do so much harm to the body.

But some of us lymers are in denial. Take me for instance, it took me a yr? two

yrs after lymers told me that it was a pretty sure bet I had it b4 I tested, and

15 yrs later I made it into a negative result by one point only.

One more point and I would have been equivocal and tested for Western Blot

automatically, but there is hardly anywhere like igenex. Many have said 15 yrs

into it, that being one point below equivocal is a sure positive.

The good news is I've met people who went back to normal after antibiotics and

yes some discontinue the antibiotics and stay well. Three people I know anyway.

But it's not the norm.

I have just started getting dizzy, like things are swirling just a bit just

barely and not very often, bt suddenly it's just started, another lyme symptom.

It's very noticable, and I'm feeling the minutist nausea. I have been told by

lymers they're sure I have it pretty much, and a couple intuitives who are spot

on have said I will be well within a yr and a half. Hmmmm??? That could only

happen if it's lyme and it's treated.

My first symptoms after hiking in the Redwoods in Northern CA, plently of the

little buggers there. I hope I don't have it. But all the diseases from lyme are

pretty much on this board.

BTW, it's also transmitted sexually, and I'm sure everyone has heard CFS

patients (also considered lymers by most lyme drs) is strongly connected with

lyme which is a conundrum with this XMLV virus or whatever it's called, (the

cluster that causes leukemia I think).

Please keep us posted Robin.

Glad you are doing better, very happy for you.

Love,

Jean

>

>

> I'm slowly getting to emails, having been busy this season - but wanted to

respond to this one - I found out my fibromyalgia of 25 years was actually Lyme

disease, a bacterial infection I acquired from a known tick bite - I can date

every symptom - took 18 months for full-fledged fibro to develop.

>

> When I found out, I bloodtested positive through the IGeneX lab. Not everyone

does test positive who has it, as the bacteria is very sneaky in the body. It

gets into the brain within 12 hours and inflames nerves, plus it corkscrews into

tissues anywhere and inflames them. It's named for Lyme, CT, where the illness

was first reported in the 70s. It can be transmitted by ticks (so small, many

people never see the ticks that bit them), other insects (up to 23 so far, I

think) and us (tissues and fluids, and yes, it can be passed congenitally).

>

> So I take oral 150mg clindamycin antibiotics - I started with it around the

clock every 6 hours, and then dropped back to 1-2/day. Within a week of

starting, my fibro pain went to zero and my joint swelling greatly decreased. If

I don't take it, these symptoms start up again. Everyone takes different

antibiotics - we're all different in what we respond to. Lyme strains are all

different too - 100 of them in the US and 300 worldwide. I also take other

supplements successfully as well for anti-inflammational purposes, etc.

>

> It's a complicated bacteria and a complicated study. I call it going to Lyme

school, to learn about the havoc it can cause in the body and what people are

doing about it. Info at www.lymenet.org, www.lymediseaseassociation.org,

www.lymedisease.org, www.igenex.org, www.lymeinfo.net, www.marylandlyme.org,

www.timeforlyme.org and many other sites. Best book: Cure Unknown, by

investigative journalist Pamela Weintraub, and best film: Under our Skin.

>

> Take care, all, and happy new year - at least, try to find some " happy " in

it... - Robin

>

>

>

>

>

>

>

>

> What goals do you have for the upcoming year in

regard to your fibromyalgia.....

>

>

>

>

>

>

> Wanted to know if anyone would be willing to share any accomplishments or

revelations in regard to their fibromyalgia, no matter how small, for the past

year of 2010? Also, any goals in regard to your fibromyalgia for the up coming

year of 2011.

> Ann M. Logan " Each Day Happens Only Once "

>

>

>

[Guest guest]

Hi - thx, and happy new year to you! In the end here, you say you're glad

I'm doing better. That's why I'm here, reporting on this board, because it was

such a sudden turnaround in my fibro and joint swelling symptoms as soon as I

started taking the oral clindamycin antibiotics. And we're all different in how

we respond to antibiotics. This one happens to work for me. Within a week's

time, after 25 years, no more fibromyalgia pain!! And it has remained as such.

If I don't take the med, like when I get the flu, I can feel the muscle and

joint pain starting. So it's an ongoing treatment for me.

Yes, Lyme testing would be a nice goal. The IGeneX lab is offering a 75%

discount for those who qualify as low income. 1-. Sometimes the

antibody bands come out clearly positive, sometimes equivocal, sometimes

negative even when we have Lyme. Many Lyme docs think equivocal means positive.

There are 27 reasons why we may not test positive even when we have Lyme, like

the bacteria hide, we're not making enough antibodies, etc. Reasons are listed

at www.canlyme.com/seronegreasons.html - that's Canada's site. That's why Lyme

doctors treat clinically, by history and symptoms. Sometimes people test

positive after treating, since they're making more antibodies.

Re your comment about magnesium, the bacteria use it up for their reproductive

needs, so then we don't have enough for our ATP energy cycle or for 300 enzyme

reactions that use it. No wonder we're a mess.

Usually people do better on antibiotics, when they find the right ones for them.

Others may do herbal protocols, energy treatments, lots of supplements.

Dizzy/vertigo is brain/nerve/ear symptoms. The bacteria are found in the brain

within 12 hours of exposure - this is a brain/nerve inflammation illness, and

it's a relapsing one, as the bacteria are spiral and can corkscrew their way

into any tissue whenever, wherever. This is a very complicated bacteria, called

borrelia, similar to syphilis, but with 6 times more genes.

Yes, N CA is a hotspot for Lyme in the state - places in Mendocino are up to 40%

ticks infected. We are alerting the entire state to Lyme. Our website is

www.lymedisease.org - lots of info there.

Yes, Lyme is also transmitted sexually. Depending on who you talk to, anywhere

between 50-100% couples infected. What I mean by that - in support groups, I

hear 50%. But I've also read Lyme doctors saying 100% of the couples they see

both have it.

CFS looks like it's coming in as a retrovirus. It's a hotbed of research right

now. This month, just north of here, Judy Mikovits from the Whittemore

Institute is going to report on the latest research findings. Ticks can carry

all kinds of illnesses and this can be one of them.

When I began to study what these disease entities can do - and I'm not just

talking about Lyme disease, but lots of the illnesses - the co-infections, like

babesia, bartonella, ehrlilchia, too, which I don't have but many do - then I

began to understand the symptoms that people present with. Knowledge really

helps!!

Take care, all - Robin

What goals do you have for the upcoming year in

regard to your fibromyalgia.....

>

>

>

>

>

>

> Wanted to know if anyone would be willing to share any accomplishments or

revelations in regard to their fibromyalgia, no matter how small, for the past

year of 2010? Also, any goals in regard to your fibromyalgia for the up coming

year of 2011.

> Ann M. Logan " Each Day Happens Only Once "

>

>

>

[Guest guest]

Thanks so much for that encouragement! I was just saying this morning, I have to

learn to push myself past the exhaustion and pain to make a stronger me. No

matter how difficult this is, I must try and master this discipline! Reading

your expression this morning has really reinforced what I had already been

resolved to do, at least in my mind. Yes calmness, that is a priced possession

that I don't always maintain on the inside, lol. But like yourself, I am looking

to do more praying for a more peaceful spirit. I wish you well as well.

Ann

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> > Wanted to know if anyone would be willing to share any accomplishments or

revelations in regard to their fibromyalgia, no matter how small, for the past

year of 2010? Also, any goals in regard to your fibromyalgia for the up coming

year of 2011.

> > Ann M. Logan " Each Day Happens Only Once "

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