Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 I think that a lot depends on the neph, to be honest. The only time I was on prednisolone was when I was initially diagnosed, where the protein loss in 24 hours was 2.5g. My last 24 hour urine collection showed 1.7g/24 hours, but admittedly, it was around the time when my creatinine was tapering down after the acute renal failure episode, so the neph wasn't too concerned for that reason. I have to see him again in a month. Anyway, glad that your other results are stable. " ingridkfriberg wrote:Hi all, I jsut went to the neph yesterday for the first time in three months and my creatinine was 1.2 (just about where it has been all along) and my protein went up to 0.85 (up from 0.57, but still down from the 8 it was at initially). I was OK with this but my neph decided to essentially threaten me with a return to prednisone if my body keeps going in the direction. If the protein goes above 1.0 he'll do it. He saw the crestfallen look on my face when he suggested it and said that maybe he'd try cellcept instead. My question is what is the level when most neph's put their patients on something to drop the protein level? Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2003 Report Share Posted February 15, 2003 I've never really had a problem with much more than 1 g per day proteinuria myself, Ingrid. I'm sure many others on the group have and could comment better than I. However, I would say it varies. If the proteinuria isn't heavy enough itself to cause problems, I would say they don't really do anything other than prescribe either an ACE inhibitor or an angiotensin II receptor blocker, both BP meds that also tend to lower proteinuria to some extent. Generally-speaking, the benefits vs risk of steroids doesn't favour their use until proteinuria is at or approaching 3 g per day. But as I said, it seems to be very variable, and some nephrologists might put a patient on them sooner. The thing with steroids is that it's not a good idea to be on them for an indefinite period. So, what happens is that you go on steroids, proteinuria goes down, you go off steroids, next follow-up or two proteinuria comes back up - and it's like a yo-yo. Pierre my visit > Hi all, > > I jsut went to the neph yesterday for the first time in three months > and my creatinine was 1.2 (just about where it has been all along) > and my protein went up to 0.85 (up from 0.57, but still down from > the 8 it was at initially). I was OK with this but my neph decided > to essentially threaten me with a return to prednisone if my body > keeps going in the direction. If the protein goes above 1.0 he'll > do it. He saw the crestfallen look on my face when he suggested it > and said that maybe he'd try cellcept instead. My question is what > is the level when most neph's put their patients on something to > drop the protein level? > > Ingrid > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hi Ingrid My preteinuria was at about 3g last time. My neph has adjusted bp meds and I have just done another 24 hr collection. My neph doesn't believe that my case will benefit from steroids, but if you have had results in the past it may be worth considering again. _________________________________________________________________ MSN Instant Messenger now available on Australian mobile phones. Go to http://ninemsn.com.au/mobilecentral/hotmail_messenger.asp Quote Link to comment Share on other sites More sharing options...
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