Question

[Guest guest]

Candace: My Dr. likes me to test 2 hrs after I eat to see where my BS's are

at.

Mark

[Guest guest]

Is testing you blood sugar after meals something ALL diabetics do? I am asking

as my boyfriend was not given any device to test blood yet my father was. I

know my boyfriend would like to avoid using that device (I don't blame him )

but it sounds important. I personally can't imagine deliberately pricking your

finger. I am such a coward.

Candace

---------------------------------

[Guest guest]

Hi All

Been following this list for some time and have found it informational, inspiring, and supportive. Decided to finally ask a question.

I had my prostrate removed in 1999, had a Gleason of 8, and a PSA of 84. After radiation I checked out clean on all my check ups until last April when I had a PSA of .45 Some Cat Scans showed that the cancer was probably where my prostrate used to be. The last test I had in January the PSA was .7. The Urologist who I am seeing stated that it needs to continue to grow in order to pinpoint where it is exactly, (probably by May) and then do a biopsy, locate it and then either freeze it or do radiation again. I have not heard of the freezing procedure, does anyone have any experience with this?

I'm not sure about my doctor, he is the same one who did the surgery and I feel he is competent, however he will state things like, you probably won't live to see 80. I said how about 70? After some time he said yeah you might see 70. Not sure if he is just keeping my expectations in check, or with his experience he is telling me the way it is.

Appreciate any feedback.

Bruce

[Guest guest]

Hi Bruce: My first question is, have you gotten a second and third opinion on your situation? Hopefully you live close enough to a larger metropolitan area where there are several PC specialists. You say you trust your doctor, and he may have good bedside manner and be a really nice guy, but is he the best in his area of expertise. Bruce, how old are you now? I just got the diagnosis of PC a couple of weeks ago so I don't have your experience to draw on. I have been associated with health care for over 30 years and know that there can be a very wide variety of abilities of physicians. It is not always best to depend on just one or two people for extremely important information and decisions. Keep in contact with the group because I have found them to very caring and supportive when things get tough. Hang in there.

Lee

Question

Hi All

Been following this list for some time and have found it informational, inspiring, and supportive. Decided to finally ask a question.

I had my prostrate removed in 1999, had a Gleason of 8, and a PSA of 84. After radiation I checked out clean on all my check ups until last April when I had a PSA of .45 Some Cat Scans showed that the cancer was probably where my prostrate used to be. The last test I had in January the PSA was .7. The Urologist who I am seeing stated that it needs to continue to grow in order to pinpoint where it is exactly, (probably by May) and then do a biopsy, locate it and then either freeze it or do radiation again. I have not heard of the freezing procedure, does anyone have any experience with this?

I'm not sure about my doctor, he is the same one who did the surgery and I feel he is competent, however he will state things like, you probably won't live to see 80. I said how about 70? After some time he said yeah you might see 70. Not sure if he is just keeping my expectations in check, or with his experience he is telling me the way it is.

Appreciate any feedback.

Bruce

[Guest guest]

Check into Proton Therapy at Loma . I finished treatment on February 14th and there were several men there that had there prostate removed several year ago who were and are successfully being treated due to a reoccurance in the bed.

Age 57

Gleason 3+3=6

December 06 PSA 6.6

Question

Hi All

Been following this list for some time and have found it informational, inspiring, and supportive. Decided to finally ask a question.

I had my prostrate removed in 1999, had a Gleason of 8, and a PSA of 84. After radiation I checked out clean on all my check ups until last April when I had a PSA of .45 Some Cat Scans showed that the cancer was probably where my prostrate used to be. The last test I had in January the PSA was .7. The Urologist who I am seeing stated that it needs to continue to grow in order to pinpoint where it is exactly, (probably by May) and then do a biopsy, locate it and then either freeze it or do radiation again. I have not heard of the freezing procedure, does anyone have any experience with this?

I'm not sure about my doctor, he is the same one who did the surgery and I feel he is competent, however he will state things like, you probably won't live to see 80. I said how about 70? After some time he said yeah you might see 70. Not sure if he is just keeping my expectations in check, or with his experience he is telling me the way it is.

Appreciate any feedback.

Bruce

[Guest guest]

G’day Bruce,

First of all congratulations on your

survival to date. I say that tongue in cheek because when I was diagnosed in

1996 you would have surely have been told that you had less than five years to

live – possibly lucky to make three. No doctor should ever try to predict

life expectancy – there are just too many variables, including

determination!

The freezing procedure you refer to is

known as cryotherapy and it has a well documented success rate in what is known

as salvage treatments – where the preliminary treatment has failed. You

will no doubt be able to find many references with a Google search, but you

might like to start on my site at http://www.yananow.net/choices.htm#cryo

where I give some links to information on the treatment. You can also read of

the personal experiences of men who have had cryotherapy at http://www.yananow.net/Experiences.html

- just page down until you get to the Cryotherapy men.

All the best,

Terry

Herbert in Melbourne, Australia

Diagnosed ‘96: Age

54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. February '07 PSA 30.4

My site is at www.yananow.net

As a

physician, I am painfully aware that most of the decisions we make with regard

to prostate cancer are made with inadequate data: Dr

“Snuffy” Myers.

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ]

On Behalf Of Bruce Lundeen

Sent: Sunday, 25 February 2007

3:40 AM

To: ProstateCancerSupport

Subject: Question

Hi All

Been following this list for some time and have found it informational,

inspiring, and supportive. Decided to finally ask a question.

I had my prostrate removed in 1999, had a Gleason of 8, and a PSA of

84. After radiation I checked out clean on all my check ups until last April

when I had a PSA of .45 Some Cat Scans showed that the cancer was probably

where my prostrate used to be. The last test I had in January the PSA was .7.

The Urologist who I am seeing stated that it needs to continue to grow in order

to pinpoint where it is exactly, (probably by May) and then do a biopsy, locate

it and then either freeze it or do radiation again. I have not heard of the

freezing procedure, does anyone have any experience with this?

I'm not sure about my doctor, he is the same one who did the surgery

and I feel he is competent, however he will state things like, you probably

won't live to see 80. I said how about 70? After some time he said yeah you

might see 70. Not sure if he is just keeping my expectations in check, or with

his experience he is telling me the way it is.

Appreciate any feedback.

Bruce

[Guest guest]

:

How long did it take for you to hear from Loma about whether

you were accepted? My husband was just diagnosed this past week and

submitted his information to them. His diagnosis was 3 (80%) + 4

(20%), stage t2a. PSA was 3.5

Thanks.

Carol

_________________________________________________________

>

> Check into Proton Therapy at Loma . I finished treatment on

February 14th and there were several men there that had there

prostate removed several year ago who were and are successfully being

treated due to a reoccurance in the bed.

>

>

> Age 57

> Gleason 3+3=6

> December 06 PSA 6.6

>

>

> Question

>

> Hi All

> Been following this list for some time and have found it

informational, inspiring, and supportive. Decided to finally ask a

question.

>

> I had my prostrate removed in 1999, had a Gleason of 8, and a PSA

of 84. After radiation I checked out clean on all my check ups until

last April when I had a PSA of .45 Some Cat Scans showed that the

cancer was probably where my prostrate used to be. The last test I

had in January the PSA was .7. The Urologist who I am seeing stated

that it needs to continue to grow in order to pinpoint where it is

exactly, (probably by May) and then do a biopsy, locate it and then

either freeze it or do radiation again. I have not heard of the

freezing procedure, does anyone have any experience with this?

>

> I'm not sure about my doctor, he is the same one who did the

surgery and I feel he is competent, however he will state things

like, you probably won't live to see 80. I said how about 70? After

some time he said yeah you might see 70. Not sure if he is just

keeping my expectations in check, or with his experience he is

telling me the way it is.

>

> Appreciate any feedback.

>

>

> Bruce

>

[Guest guest]

Hi Lee

I am 60 years old, and outside of PC in good health and shape. There are two doctors and a GP who are involved with my treatment. The GP pretty much goes along with the recommendations of the two specialists. My original cancer was found in the 11th hour, they told me that another two weeks and it would have spread to my lymph glands, and further. This recurrence is so new that were in the "wait and see" mode. I understand where you are coming from with the variety of opinions, I would not be comfortable with only one person calling the shots. Some Health Care workers have told me that the Doctor I have at the Cancer Clinic is very good. I had been getting my PSA checked every year, with no problems mentioned. Imagine my surprise when he told me that this had been growing for over two years, and no one had detected it. It was discovered during a routine insurance examination. Shakes your faith in lab's and GP's a bit. You stated that you have just been diagnosis with PC, what is your situation? Any idea on how you are going to proceed? With your back ground in Health Care, hopefully that may provide you with additional resources on which to draw. Your statement about the list is right on the money, keeps things in perspective and after reading some of the e-mails I avoid feeling sorry for myself. My goal is if we do not start any treatment this May, is to go on a mammoth dig in Dakota, and a early American Indian dig in New Mexico. Reading the list has taught me that if you want to do it, don't put it off.

All the best to you, and let me know how your doing when you get a chance.

B

Question

Hi All

Been following this list for some time and have found it informational, inspiring, and supportive. Decided to finally ask a question.

I had my prostrate removed in 1999, had a Gleason of 8, and a PSA of 84. After radiation I checked out clean on all my check ups until last April when I had a PSA of .45 Some Cat Scans showed that the cancer was probably where my prostrate used to be. The last test I had in January the PSA was .7. The Urologist who I am seeing stated that it needs to continue to grow in order to pinpoint where it is exactly, (probably by May) and then do a biopsy, locate it and then either freeze it or do radiation again. I have not heard of the freezing procedure, does anyone have any experience with this?

I'm not sure about my doctor, he is the same one who did the surgery and I feel he is competent, however he will state things like, you probably won't live to see 80. I said how about 70? After some time he said yeah you might see 70. Not sure if he is just keeping my expectations in check, or with his experience he is telling me the way it is.

Appreciate any feedback.

Bruce

[Guest guest]

Hi B,

I would be very wary of the doctor who told you "they told me that another two

weeks and it would have spread to my lymph glands, and further." I don't know

of any way that the doctor could have known that. It appears to me that he was

trying to scare you into getting treatment immediately. Was he a surgeon?

You did not give any of the statistics from your clinical diagnosis. You should

have received a clinical stage and a Gleason Score from your biopsy.

Here is something I often send to newly diagnosed men. (Note that you

can read my book for free on the Internet. Over 20 MDs and several

survivors contributed to the book and it has chapters on all the therapies.)

I am sorry to hear about your diagnosis. ABOVE ALL DO NOT

PANIC AND RUSH INTO TREATMENT. Your cancer has

probably been growing in your body for several years. It will not kill

you any time soon. It is your responsibility to make the treatment

decision, but it should be a well informed decisions. Before you

make a treatment decision that you will have to live with for the

rest of your life, get a second opinion from a doctor who does not

specialize entirely doing surgery. Take the time to learn all your

options. Have several PSA tests and make a chart. The PSA

will correlate fairly closely to the cancer activity.

I had my prostate removed in 1992- but we did not have as many

options at that time. I would not choose surgery today. I believe

that there are better options. If I had it to do over, I would choose

brachytherapy, (seed implants or HDR). Of course there are

other options such as External Beam Radiation or IMRT, Proton

Beam radiation (it is one of the better therapies, but expensive, some

insurance may not cover it), Cryo Surgery and soon we will have High

Intensity Focused Ultrasound (HIFU). HIFU may be the least invasive

of all, but still not FDA approved in U.S. Many are now choosing

Laparoscopic or Da Vinci robotic assisted surgery to remove

the prostate. But it has the same unpleasant side effects of

the Retropubic Radical Prostatectomy (RRP). For advanced

PCa, there is hormone ablation and several regimens of chemo.

For moderate or rather insignificant cancers. you may be better

off just doing Watch and Wait. Pay close attention to several

PSA tests. The PSA is not perfect, but it is the best test we have

for any cancer. The PSA will usually correlate with any cancer

activity.

No matter what therapy one chooses, there are always some side

effects, No matter who does it or how it is done, removal of the

prostate has side effects, some more pronounced and unpleasant

than others.

You are wise to do a lot of research. One reason not to have surgery

is because, for me, sex was never the same after my prostate was

removed. The prostate and the seminal vesicles manufacture almost

all of the ejaculate. During orgasm, the prostate squeezes down and

forces the semen out. This is a part of the pleasure of an orgasm.

One may still be able to have an orgasm after a RP, but it may take

a lot more stimulation.

Many men who have surgery are impotent afterwards. There are

nerves on each side of the prostate that control erectile function.

These nerves are difficult to see and quite often they are severed

or severely damaged.

Another side effect of RP is that many men lose some length and

girth afterwards. Several studies have been done on this subject.

Go to www.google.com and search for Loss of Penile Length and

Radical Prostatectomy.

Many men are also incontinent for some time after surgery because

the primary bladder valve is intimately connected to the prostate. It

is often damaged. Most men do recover urinary continence by

doing Kegel exercises which strengthens the secondary valve below

the prostate. Unfortunately, a few men never regain continence. A few

of these men have to have an Artificial Urinary Sphincter implanted

in order to control their urinary output.

But even if they do learn to control normal urinary functions by doing

Kegel exercises for this valve, when they try to have an erection or

become sexually aroused, this valve will open and they may have

leakage. This valve has always opened during sexual activities

and no amount of Kegel exercises will cause it do otherwise.

The primary valve is not involved in brachytherapy, or seed

implants so there is little or no incontinence.

The impotence rate is also very low. Some men will still have an

ejaculate, though it may be much less in volume. Some men are

even able to father children after brachytherapy. After a RP, one may

be able to have sperm aspirated from the testes and used to

impregnate a woman. But it is a difficult procedure, is expensive and

may not always be successful. If a man thinks he may want to father

children after a RP, he should consider banking some of his sperm. I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision

Hi Lee

I am 60 years old, and outside of PC in good health and shape. There are two doctors and a GP who are involved with my treatment. The GP pretty much goes along with the recommendations of the two specialists. My original cancer was found in the 11th hour, they told me that another two weeks and it would have spread to my lymph glands, and further. This recurrence is so new that were in the "wait and see" mode. I understand where you are coming from with the variety of opinions, I would not be comfortable with only one person calling the shots. Some Health Care workers have told me that the Doctor I have at the Cancer Clinic is very good. I had been getting my PSA checked every year, with no problems mentioned. Imagine my surprise when he told me that this had been growing for over two years, and no one had detected it. It was discovered during a routine insurance examination. Shakes your faith in lab's and GP's a bit. You stated that you have just been diagnosis with PC, what is your situation? Any idea on how you are going to proceed? With your back ground in Health Care, hopefully that may provide you with additional resources on which to draw. Your statement about the list is right on the money, keeps things in perspective and after reading some of the e-mails I avoid feeling sorry for myself. My goal is if we do not start any treatment this May, is to go on a mammoth dig in Dakota, and a early American Indian dig in New Mexico. Reading the list has taught me that if you want to do it, don't put it off.

All the best to you, and let me know how your doing when you get a chance.

B

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hi my dad died sept 2005 after being diag 18 months it was awful this

wonderful group help me and hubby donnie survive the hell just ask away vent

cry whatever u need we r here hugs sharon a m

phil292000 wrote:

>  

> So do I just ask a question here or what is the correct etiquette? I am

having great difficulty with my mother who was diagnosed aprrox 4 years ago and

has been non self sufficent for more than 8 years. She has recently become so

lethargic it just seems impossible for her to keep her eyes open! It is so

frustrating to be talking to her about the importance of keeping her eyes open

and see her just close her eyes as I am speaking

> All I know for sure about LBD is that it is the most unfortunate frustrating,

exasperating, sadding experience that I have ever had in my life, hands down the

worst way to die. So slow, so roller coaster, so hard to understand why? Since

my mother was a nurse and she knew all about end of life the only good thing

about LBD is the hope that she isnt realizing how bad it is all the time. It is

only when she is clear that she remembers how bad, how hard, how sad this

situation is, and that doesnt last for too long so I am hoping she is not as

miserable as I fear. I have heard it said the only good thing about alshiemers

is the fact that you get to meet new friends everyday!

>

[Guest guest]

Phil:

May I recommend that you don't push her to keep her eyes open. My sister (59

w/LBD) experiences double vision most of her day and immense fatigue that she

finds overwhelming. Closing her eyes allows her rest time and although, she

seems out of it, she's actually picking up much of the conversation around her.

Our father died from LBD 13 years ago and when he would close his eyes, I would

use a damp washcloth to swab them or just let it rest over them. I would talk

him through what I was going to do so it wouldn't startle or alarm him.

This disease can be unbearable, however, you can still enjoy quality time with

your loved one.

>

> So do I just ask a question here or what is the correct etiquette? I am having

great difficulty with my mother who was diagnosed aprrox 4 years ago and has

been non self sufficent for more than 8 years. She has recently become so

lethargic it just seems impossible for her to keep her eyes open! It is so

frustrating to be talking to her about the importance of keeping her eyes open

and see her just close her eyes as I am speaking

> All I know for sure about LBD is that it is the most unfortunate frustrating,

exasperating, sadding experience that I have ever had in my life, hands down the

worst way to die. So slow, so roller coaster, so hard to understand why? Since

my mother was a nurse and she knew all about end of life the only good thing

about LBD is the hope that she isnt realizing how bad it is all the time. It is

only when she is clear that she remembers how bad, how hard, how sad this

situation is, and that doesnt last for too long so I am hoping she is not as

miserable as I fear. I have heard it said the only good thing about alshiemers

is the fact that you get to meet new friends everyday!

>

[Guest guest]

Hi ruth. I had trouble with frequent urination and " urge incontinence. " I

now take a homeopathic remedy that is very effective for it, argentum nitricum

30C. It is available and in stock at most natural foods stores. I have a fibro

diagnosis, but I have reason to think it is actually chronic Lyme disease. I

also have borderline diabetes that comes and goes depending on how well I take

care of my health. The diabetes numbers do not seem to have a relationship with

the urination in my case, so I think that is not the cause (for me).

For neuropathy I have used the homeopathic remedy sulphur 30C with good results,

but that might be specific to the individual.

Hope this helps and you find the information you need from both professionals

and peer support to heal yourself.

Hugs, in NY

>

> I have a question. For a long time, I have had frequent urination issues. I

> am also thirsty all the time. I have diabetes in both sides of my family

> back for generations. I have had my blood sugar checked (not fasting) almost

> every time I get blood drawn. It is always within normal range. I had a

> fasting blood test about two years ago, I think.

>

> I am NOT saying I think I have diabetes. I am concerned though. I do have

> neuropathy (have for years). It has gotten worse over the past two months.

> In fact, my legs burn all the time now.

>

> So what I am asking is: could this be a symptom of fibro or lupus?

>

> I am starting an elimination diet program Wed. I will be starting with yeast

> as I know I get frequent yeast infections. Then I will do gluten, dairy,

> etc.

>

> I am asking this list's opinion about this. I am really sick of all these

> health issues.

>

> Oh, btw, I crave sweets ALL THE TIME now. I normally do not crave sweets but

> the last two months I have.

>

> maryruth

>

>

>

[Guest guest]

I read a whole lot about detoxing?

I believe it, because lots of people are talking about it, the question i have

is know one talks about what happens to the body during the detox.

I am going to ask some rather disturbing questions

do you get sick, vomit, have diarrhea, need to stay home from work, etc

I have gotten to the point where I want to try it, and frankly I'm afraid it

will change my daily routine, I can't use the bathroom, a lot, I have ulcerative

colitis also and when its going awry I have diarrhea. I have to stay home when

that happens.

any answers would be helpful. thanks

Joy

________________________________

To: fibromyalgiacured

Sent: Sun, March 13, 2011 5:45:53 PM

Subject: Re: Re: ketosis (/RoseMarie and anybody else

that might be interested)

Hi

When I first started low carbing my ratio was around 10% carb, 45% protein, 45%

fat. I still craved carbs at this level, and my energy was low. I did experience

a fair amount of healing but I also had more bad days, when I started Bees diet

I changed my ratios. For five weeks I did 80% fat, 20% Protein, and no carb. As

austire as this sounds it really got me used to eating the fat, my body realised

and accepted carbs were gone and basically got its finger out and started using

the fat for energy, and I also lost a fair amount of weight, but not muscle and

my level of healing went right up. Over time I have introduced carbs, first in

the form of low starch vegetables, and more recently soaked nuts and seeds and

raw dairy. Still I have kept my carbs very low and in any one day I will still

only eat 15g of carbohydrate, my ratios are something like 3% carb 75% fat and

22% protein

Because I have had problems lately with the fibro etc, I have decided once again

to drop the nuts seeds and dairy and right now I am back 100% on the foods for

the Candida diet Bee recommends

Now my dad, for some reason is able to attain ketosis at around 35g of carbs,

and now he is using the MCT oil he is attaining it at around 40g to 45g. This is

usig the sticks. Like you have said I do think their is an invisible margin that

goes over this amount. On days when I have slipped up I have maintained ketosis

at 35g and my dad, who I know has cheats still maintains it around 50g, it does

not show up on the sticks but you can tell when he or I are not in ketosis, we

change, in a world we become very disabled

Now in the early days I needed Reductil to do all this. I know Bee does not

recommend anti-depressants, and to be honest I do not think they are good for

us, but how I see it is that if folk are already taking antidepressants changing

to Reductil might be a good idea because it suppresses appetite and with no

appetite all of this is much easier to do

Ketosis itself knocks off the appetite. If I am in ketosis I basically have no

appetite at all and often I have to kin of force myself to eat just so I can

take my supplements etc

All I can tell you is this. When I was on Reductil and I had no appetite I gave

up smoking chocolate diet coke, starchy carbs and a whole load of other things I

thought i would never be able to do withotut. Once off all them I waited a few

months and then weaned off the Reductil, to my absolute amazement my ability to

not reach for any of the things I was addicted to was zero whilst I was in

ketosis, but so strangely when I loose it, the cravings rather heavily do come

back

Anyway, what I have found and my dad has found, is the secret to this magical

ketosis is high fat high fat high fat. Not appetising I know but once you have

your health nothing tastes as good as feeling healthy. I use capsules quit a

lot, especially in the morning when I am half asleep. Yes I have learned to take

my supplements whilst I am half asleep, sounds silly I know but in the early

morning trance like state I can swallow these capsules so easily LOL

Anyway, these have been a God send

http://www.iherb.com/Jarrow-Formulas-Coconut-Oil-1000-mg-120-Softgels/22472?at=0

cod liver oil and Halibut oil can be taken in this way too

I know this may sound weird but if I fill my stomach up with lots of fat first

thing in the morning for the rest of the day I struggle to eat. I read about

this once. they said that once the digestive system is full of amino acids to

digest the fat it switches off the hunger signal because it does not like

enzymes (the stuff we use to digest carbs) being in the stomach at the same time

as so much amino acid

Anyway, once your appetite is under control like this it is so much easier to

just say, oh for lunch I will have butter with cod and green beans LOL. Honest

that is the order I will say it, the fat first then the protein and then the

carbs. So for lunch I might say I will have Home made mayonaise with tuna and

lettuce, or for an evening meal I might say I will have butter with fatty lamb

with cauliflower and broccilli mashed with the butter

Honestly you can train your mind to do this. I did it with my MCKenna CDs

The other thing is this. This kind of food is actually delicious. You may

already know this, but your subconscious often does not. You see our subconcious

goes of what we have learned in the past. It kind of knows these foods are tasty

but it also knows carbs can be tasty. Or at least it beleives carbs are tasty.

One way I got off my carbs was like this. I would just blurt it out several

times a day. I would say 'Carbs knock me sick' and then I would scrunch my

face up and rub my belly, saying yeah 'carbs are horrid they make me feel

ill'. Or I would say 'carbs are boring' and I would yawn and repeat it saying

'teah carbs are proer boring' and I would visualise some carb food in my head

and yawn again saying 'proper boring, I dont know how I was ever bothered with

them

I laugh as I tell you but hinestly this works. If you do it daily eventually

your subconcious beleives this and this too makes it easy for the concious

to take control of the overall psychi

If we are no longer using food to comfort we need anew comfort. What I used was

tonnes and tonnes of good movies. It was a bit hard to get hold of these but as

time went by I started buying them and then selling them and then buying more.

This cut the cost and meant I got to watch some really good stuff. For this

though folk need their own thing, some like using music, others art, others

dancing. What ever you like to do or have you can get your subconcious agreeing

with this too. All I do is talk the talk, I talk like I know what I am talking

about when it comes to movies. I have stimulated an interest in movies I dod

not at one time have. Simply by going around telling people how marvelous each

film was my subconcious became interested in seeing the next one

I know this lot sounds like ever so much to do, but I would not promote this if

it did not work so well as it does. And it does work marvelously. I still do not

know why it works so well but it does

When I get some more time I will share a few more things that i do to make this

life more easy. So many have asked me to share this stuff in the past and I kind

of did but then always got onto other stuff.

But remeber, anybody that is reading this, I do only have 15g of carbs a day,

but Bee beleives we can be in ketosis at around 30g to 40g and some folk can

even achieve it at 50g to 60g. The sticks are not always reliable and in reality

to test if you are in ketrosis is perhaps to measure if you are getting well.

I have to go now but whne i get time I will share more on how a reintroduce

foods to see if they are safe for me. The safer they are the easier it is to

sustain ketosis and the easier it is for me to keep my weight down and my

symptoms at bay

And also remember all this is much easier to do in the spring and the summer

Love Joanne

Subject: Re: [lyme disease tests/Joanne/Robin/ketosis

To: fibromyalgiacured

Date: Sunday, 13 March, 2011, 19:15

Hi,

I am asking how you know you are not in ketosis during low carbs. The test

strips are not always an indicator. Joanne can seem to know by how she feels,

but I cannot see the results of that in my case. Also tiredness is an indicator

when you are going low carb, as it takes a few weeks(or longer) for the body to

start burning the fat. There has been some times especially at the beginning

when I felt I needed more rest, but overall my energy level is much better. Some

people feel worse in ketosis for a while as you are doing more detoxing. I think

I have been in ketosis most all the time for the past 2 years. I get less than

50 grams carbs. There has been a few times the muscle pain got worse for a short

time, but over all my pain lever was reduced. Bee does say if the healing

reactions get too severe we can increase the carbs a bit, but I try to not

increase them even with the buckwheat as mentioned by her, as I think staying in

ketosis is the best in the

long run. You may not have been getting enough fat, especially coconut oil-65 to

80 % calories should be fat.

The sea salt does not bother me, but I get very little salt from other sources.

If I ear out, I say no seasoning.

C.

>

> HI JOANNE

>

> THAT IS HELPFUL. I AM DEFINITELY WORKING ON THIS SALT THING. I AM DOING

> MORE HIGH FAT, NOT AIMING FOR KETOSIS THOUGH. I DID KETOSIS ONCE FOR OVER

> 5 YEARS. I FIND IT TOO HARD TO STAY IN IT NOW. THERE IS A TEA I LIKE THAT

> DOES HAS A FEW CARBS, A PROTEIN SHAKE, A MILLET CRACKER, AND A FEW OTHER

> THINGS. IF I EAT OVER 20 GRAMS OF CARBS I CAN¡¯T SEEM TO STAY IN KETOSIS.

> WHEN I EAT THAT LOW IN CARBS I FEEL EXHAUSTED. SO I TRY TO EAT BETWEEN

> 40-60 WHEN I¡¯M WATCHING IT. BUT I CAN¡¯T BE IN KETOSIS BETWEEN 40-60

GRAMS.

> SO................... I¡¯VE BEEN WORKING ON THIS FOR YEARS AND YEARS. I AM

> HEALTHIER AS A RESULT OF TRYING EVERYTHING AND EATING LOW CARB AND AVOIDING

> SUGARS BUT KETOSIS SEEMS TO BE JUST OUT OF REACH FOR ME NOW. ALSO, WHEN I

> EAT THAT LOW OF CARBS THE MUSCLE SPASMS GET WAY WORSE. CAN¡¯T SLEEP I GET SO

> MANY OF THEM SO HIGHER CARBS 40-60 AND THE LEG CRAMPS ARE CONTROLLABLE.

>

> I RARELY EAT DAIRY NOW BECAUSE I KNOW I¡¯M LACTOSE INTOLERANT. I EAT ALMOND

> MILK.

>

> SO, THE BATTLE GOES ON. I HAVE BEEN TRYING FOR WEEKS TO LOSE SOME WEIGHT

> AND THE SCALE JUST GOES UP AND DOWN THE SAME 3 POUNDS. IF I EAT VERY LOW

> CARB, 20 GRAMS I LOSE 2 LBS, THEN I EAT SOMETHING SLIGHTLY SALTY AND I GAIN

> IT BACK. FRUSTRATING. I WOULD LIKE TO LOSE ABOUT 8 POUNDS. MY CLOTHES FIT

> A LITTLE TIGHT AND I DON¡¯T LIKE THAT FEELING. I GAINED 8 POUNDS IN THE LAST

> TWO MONTHS WHICH IS WHY I WANT TO GET IT OFF TOO. I ATE LOW CARB LAST MONTH

> FOR 5 DAYS AND LOST 6 POUNDS. THEN I ATE A SALTY PIECE OF FISH WITH SAUCE

> AND GAINED 3.5 THAT NIGHT. VERY FRUSTRATING. SO I AM ASSUMING THIS WATER

> WEIGHT.

>

> ANYHOW, I FIGURE DON¡¯T GIVE UP. AS LONG AS I TRY AND DON¡¯T GIVE IN I CAN

> RETAIN THIS AMOUNT OF HEALTH AND WEIGHT LOSS.

> I DON¡¯T KNOW IF I TOLD YOU JOANNE BUT I AM DOING NEUROFEEDBACK WITH A

DOCTOR

> HERE PLUS I GET EMDR FROM A DOC IN HIS OFFICE AS WELL. TWICE A WEEK I DO

> THIS SINCE JANUARY OF THIS YEAR. I AM FEELING BETTER AS A RESULT AND THEY

> TELL ME IT WILL ADJUST MY NERVOUS SYSTEM AND THEY GET A 95 PERCENT

¡°CURE¡±

> RATE OF FIBRO, AND THE EMDR WILL HANDLE THE PTSD. I AM SEEING RESULTS WITH

> THE PTSD FOR SURE!!!!!!!!! I NO LONGER HAVE PANIC ATTACKS OR NIGHTMARES OF

> THE SAME OLD STUFF FROM MY PAST. I AM MORE ACTIVE IN MY ART, I AM LESS

> RECLUSIVE NOW TOO.

>

> SO, I AM HOPING THIS WILL GIVE ME A REAL CHANGE BECAUSE WHEN I READ THIS

> LIST THERE IS HARDLY ANYTHING I HAVE NOT TRIED IN THE PAST TWENTY YEARS. I

> HAVE ALWAYS BEEN A BELIEVER IN NATURAL CURES SO I¡¯VE DONE THE DIETS, THE

> KETOSIS, THE EXERCISE, YOGA, SWIMMING POOLS, SUPPLMENTS, SLEEP AIDES LIKE A

> SLEEP MASK, USING ICE, USING HEAT AND MEDITATION. I HAVE NEVER TRIED DRUGS

> BECAUSE I NEVER BELIEVED IN THEM.

>

> SO, THIS NEUROFEEDBACK FELT LIKE AN ANSWER FOR ME BECAUSE I WAS LOSING HOPE

> HAVING TRIED EVERYTHING FOR SO LONG. WHEN THEY SHOWED ME MY BRAIN SCAN IT

> SHOWED DEEP DEPRESSION AND HYPERVIGILANCE. AFTER THE FIRST 20 TREATMENTS

> THERE WAS CHANGE IN MY EEG THAT SHOWED A LIFT IN THE DEPRESSION AND A

> LESSENING OF HYPERVIGILANCE.

>

> SO I WILL KEEP YOU POSTED ON THIS.

>

> THANKS FOR YOUR HELP AND EXTENSIVE RESEARCH JOANNE. I SO APPRECIATE YOUR

> HARD WORK. I READ YOUR STUFF ALL THE TIME I JUST DON¡¯T ALWAYS ANSWER.

>

> ROSEMARIE