Re: for Cindy

[Guest guest]

Hi Joanne,

Yes, wish I had had the internet when I was going through the worst of my

symptoms. We will never have all the answers, but seems we are more coming to an

understanding. If you don't hear from me a couple of days, my sister and I are

visiting our dad, and no internet.

Best wishes,

C.

> >

> > I am not happy

> >

> > My results for the gene test have come back negative. the doctor is now

saying

> >I

> >

> > could have a different spondyloarthropathy, but getting a diagnosis for one

of

>

> > these could take years. I know this is the case because there are plenty of

> > people on the AS site going through that

> >

> > That is the last thing I want. i cannot hack it

> >

> > Right now I am feeling i should pull out of this but I know that if I do

> > immediately I will get angry at myself.

> >

> > She has made me an appointment with the Rhumatologist on the 1st December.

> >right

> >

> > now I do not want to go there either

> >

> > The AS folk are telling me that my symptoms are definately typical of

> > Sonyloarthropathy illnesses and that I should stick with it because I

> >eventaully

> >

> > will get a diagnosis

> >

> > i now know it is not AS and it is not one of the reactive arthritis from the

> > sexually transmitted illnesses because I have been diagnosed negative to all

of

> >

> > these types of illnesses that can cause this. So we are looking at

salmonella,

>

> > ecoli and a few others which to get a dignosis I will have to read up on and

I

>

> > have had enough of reading

> >

> > i think I need some time off from all of this. I have changed lately, in

some

> > ways I am becoming obsessive.

> >

> > I will share more when my mood lifts. Honestly I am sick of all this

> >

> > Love Joanne 

> >

> >

> >

> >

> >