Doc Visit

[Guest guest]

Hi Friends,

I saw my pulmonary doc today. I had bloodwork and he is sending me for X Rays....useless. I couldn't go 30 feet with out my oxygen dropping. He is sending me for a few days of rehab....AGAIN. He wants me to get instruction on how to get my breathing under control in panic situations. Think it is stupid, but I will try. Several times and again last night, I have had choking episodes from coughing. I start violent coughing, then my bronchia just closes up. No air in. It is the scariest thing. I feel like someone is choking me and my head is swelling. I coughed and vomited and coughed and vomited. My husband worked with me to get my breathing under control. It was horrible. I was wet with sweat and so weak. When I do this and I am alone, it is really scarey.

He refused to give me anything for coughing....nothing. He is afraid that I will drown in snot in the night. I am so tired of coughing all night. I was so exhausted by the episode last night I slept a few hours. So, I will do what he says and he wants me back in a month.

I am always so dissapointed when I leave a doc's office. I feel like it is useless to even try, sometimes. I know that I have been blessed to have this many years and I am grateful to God and the my doc, who I just love. Somewhere in my mind I keep thinking someone is going to make it better and it only gradually gets worse.

O.K....my little pity party is over....just have to whine once in awhile. This gets so tiresome. But, I will keep pushing and praying until God is finished with me.

I went to bible study tonight at church. Ended up sitting in the ladies room, coughing. But, it was good for me to be there. I got a few 'poor baby' hugs and just made me feel better...ha!

You all take care. It means so much to unload on people who totally get it. I feel like I have to put on the brave face for everyone else, but not you all.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA