Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Hi there. I'm the father of a 3 year-old who has just been diagnosed with JDMS. She's on prednisone and hydrochloroquine, and will be put on methotrexate most probably as soon as we have an MRI done. Our pede also has put her on Zantac because of worries about the effects of these drugs on her stomach. Is this something people are familiar with -- the addition of Zantac to head off an ulcer caused by JDMS drugs? Cheers, and thank you for organizing this group. - Burke -- J. P. Burke .... drmomentum@... Epinions profile: <http://drmomentum.epinions.com/user-drmomentum> " Rest in reason. Move in passion. " - Kahlil Gibran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Hi JRK, In responce to your question, yes I would be happy to do any thing, to further the support groups. I would hope that I,m qualified. I will let you know more after my appt. the 14th. I,m hoping I will get some good advice on how to get stronger. I know I will never be the same again, but I would like to enjoy life being stronger than I am. Vicky, my bro. will be 72, in Sept. I think this is so unusual, for my sister, who had Derm.,she is now deceased, and myself with IBM. We are from a family of 7. Thanks for all your help--you are so helpfull! As ever, Ev. Dear Ev: A neurologist at the Nerve & Muscle Center of Texas, Houston, wants me to get two Myositis Support Groups going in Greater Houston area as soon as we can locate the right people to lead them. I hope this might be of interest to you in the future and become a member. Regards, Jim-IBM JRKilpatrickMyo@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Vicki,Please forgive me for spelling your name wrong!! Just chalk it up to age!!!!!! Ev Hi Ev.... I found this on IBM...maybe it will help you understand all of this. http://www.myositis.org/criteria2.html I had heard that there are two different kinds. How old is your brother? I guess it's you, me and Teddi that are the singles of the group. We could call ourselves the " Dust bunnies trio " ....LOL Hope your doing better today. Take care, Vicki-PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Hi Ev, don't worry about it... most everyone spells my name wrong at first. I really don't pay any attention to it... OLD AGE....whats that????? LOL Hope you had a great day... Vicki-PM Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.