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>

>

>I am a new member of the group. I was diagnosed with PLS last year.

>I tried posting a message last week but have received no answer. If

>any of you receive this, I'd appreciate hearing from you. I have many

>questions about PLS. Thanks.

>Jane Anne King

You made it to Mississippi. (Actually I'm in Florida right now, but my mail

server is in Mississippi, the net doesn't really care where I am physically.)

Welcome to our club. I have been diagnosed for some 8 years now, and while I

can't say the pay is the greatest, there is REAL job security in being

disabled.

Galen Hekhuis, NpD, JFR, GWA ghekhuis@...

We'll cross that bridge when it rears its ugly head

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From: Sue

Hi Jane Anne,

Welcome to PLS Friends! You came through loud and clear in Winooski,

Vermont! We'll be happy to answer any questions you have. Take care.

Sue Niquette

New member

>

>

>I am a new member of the group. I was diagnosed with PLS last year.

>I tried posting a message last week but have received no answer. If

>any of you receive this, I'd appreciate hearing from you. I have many

>questions about PLS. Thanks.

>Jane Anne King

>gking@...

>

>

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  • 4 years later...
Guest guest

Hello, I just joined this group and thought I'd jump right in and

introduce myself. My name is Chrissy, I am 31 years old, live in

Missouri with my husband and have had 8 years of thyroid

hell. 8 years ago, in 1996 I discovered a lump in the front of my

neck, long story short it ended up being a cancerous tumor on my

right thyroid so had the whole thyroid removed and following that

had a dose of radioactive iodine. After that was put on synthroid

but for some reason the Dr. had a hard time getting my levels right.

Finally in 2000 an Endocrinologist came to my town so got into her

and luckily am still her patient, she got my levels under control.

But November of last year noticed my lymph nodes swelling, had been

through numerous tests, ultra sounds coming back showing lymph nodes

very swollen, have recently been taken completely off my synthroid

for 6 weeks and had the body scan with taking a radiation pill and

it came back positive, it is showing something in my neck, they told

me they can't tell me it is cancer or not, and they think it could

be left over tissue from 8 years ago. So am scheduled for

radioactive iodine in June. Luckily I can do that as an outpatient

now, but it will be hard, first 3 days no contact with anyone, days

4-14 only 2 hours a day with people. And to back track, they think

my lymph nodes are fine, just swollen. Then after my radioactive

iodine in June, have to have the body scan in 1 year to see if it

got it all. Scary and a long process and am nervous about gaining

more weight. I really need a support group, this all is so emotional

and scary. Luckily I do not have to work outside of the home, so

thats easy on me, and we never had children, always had to many

health problems. Anyway, am looking forward to meeting you all.

HUGS

Chrissy

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  • 4 weeks later...
Guest guest

Did you ask your doctor what they mean?

new member

> Hi everyone. I had a radioiodine uptake scan. I am hoping some of

> you will help me to understand the results.

>

> My ultrasound said:

> Pt is a 32yo woman with hypoechoic tiny nodule of right thyroid and 2

> tiny cysts on the left, which may be contained with a larger overall

> nodule. Radiologist recommended nuclear medicine scan.

>

> Then i had the scan and it said:

> Thyroid scan was performed in the usual fashion. 0.267 mCi I-123

> administered. Scintiphotos over the neck were performed. Right lobe

> was slightly larger than the left lobe. There is no definable

> photopenic region. The 4 hour percent uptake equals 18.9. 24 hour

> uptake equals 40.8. These are both outside the normal range.

>

> Could anyone help me to understand:

> what does hypoechoic mean?

> what does photopenic region mean?

> what are the normal ranges? how far outside of the normal range were

> my numbers?

>

> I REALLY appreciate any help, thank you.

>

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Guest guest

what does hypoechoic mean?

In my one ultrasound I had a slightly hypoechoic nodule. But in my latest ultrasound it was labeled as a solid nodule. I also have a larger right lobe. I have several nodules on the right and one larger one on the left. I go in for surgery next month. Here is a bit about hypoechoic nodules. Just go to a search engine and type in the words and you will get tons of info! Good luck.

Hyperechoic solid nodules are usually benign (96%), but sclerosing papillary neoplasms can also have this appearance. Mixed lesions represent solid lesions which have undergone variable degrees of cystic degeneration and are benign in 85% of cases). Cystic lesions that are completely smooth walled and anechoic are almost always benign. Iso- or hypoechoic lesions may be benign or malignant. Since thyroid ultrasound cannot determine if a nodule is benign or malignant, it is not routinely recommended in the initial evaluation of a thyroid nodule. However, it may be useful to guide fine needle aspiration biopsy (FNAB) of a thyroid nodule. Thyroid ultrasound can also document the size of a thyroid nodule and provide an objective parameter for assessing response to hormone suppression.

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