new to the group

[Guest guest]

Hi ,

My daughter's stomach is actually her esophagus she has no stomach

pouch it goes directly into her intestines her sphincter has been cut so that

it cannot be stored and act like her esophagus. Thanks for the input.

Sandy & Kirsten Franz 2 1/2

[Guest guest]

,

Thanks for the input. We live in Forked River,NJ its about an 1 1/2

hr drive for us. We do know chop well what doctors do you have?

Sandy & Kirsten Franz

[Guest guest]

We use Dr s in Childrens he's a bit harsh but he's GOOD

[Guest guest]

I meant to ask who is your ent? we use dr. tom, and have seen dr. shah

New to the group

> I have a 2 1/2 year old girl with CHArgE but really does not have a lot of

> the anomalies that are attached all the caps are what she has the E she

> really does not have a Hearing problem but a slight flap in her ear. She

has

> Colobomas in both eyes but to our suprise sees well. she had TOF of the

> heart that has been fully repaired and the biggest battle is the

esophageal

> atresia. She was in children's hospital in Philadelphia for the first

four

> months. She was born with a LONG gap atresia and

> was unsuccessful in repairing it at an infant her gap was just too long.

So

> here is what I am throwing out to the group she has been since repaired

but

> had a full gastric pull-up which left her literally with her stomach in

her

> chest is there anyone out there with the same situation if there is please

> let me know.

>

> /Kirsten Franz 2 1/2

>

>

>

[Guest guest]

Hello,

So how does she digest food? that might sound like a stupid question

but you will see soon there are NO stupid questions here LOL.... mom

to 13 months

http://community.webtv.net/maryechick12/

http://community.webtv.net/maryechick12/pets

http://community.webtv.net/maryechick12/birthdayboy

[Guest guest]

Welcome, Michele. I'm new here too, found your moving message two minutes after

signing up. I really feel for you, dear. It can only be from a strong spirit

that you're

persevering through what I've read elsewhere is the greatest challenge for a

child, the

constantly shifting sand, often quicksand, of growing up with a BP parent.

I hope you'll keep in close touch here and that you find much to help. I was

over at the Out

of the Fog forum a few days ago and think you might find it helpful as well.

They're

wonderful folks with lots of wisdom in this area. http://board.nook2.com/

My mother died last month after a year of no contact preceded by infrequent

contact.

While I've felt some guilt for not helping her practically I realize I'd already

grieved the loss

of any form of motherly relationship when I cut things off last year. I wonder

if you might

still hold out that hope? Perhaps others feel differently and I'll be looking

for it but, as far

as I've seen this is rare without serious professional treatment for a wiling

parent.

Bounce over to the Out of the Fog folks where there are many good resources and

some

warm sympathy. Then consider taking a look at this page for many other good

links,

including the one that led me here.

Blessings, dear.

http://www.bpdresources.com/supportnons.html#ChildrenBoards

>

> Hello Everyone.

> My name is Michele and I have never done anything like this

> before.

> Thank you for bearing with me. I never knew until a few weeks ago

> that this disorder even existed, my jaw hit the floor when I read

> some

> literature on the subject and thought someone must have been living

> in my closet all these years watching my mother. There is no doubt in

> my mind what she has, and I am relieved beyond belief to finally know

> that I am not alone in my pain.

> I am divorced and lived alone until a month ago when my mom

> called

> (after 2 yrs)to tell me her husband was abusing her and tried to kill

> her. She cried and cried telling me how much she loved me, how I was

> all she ever loved, that she forgave me for all the wrong things I

> have done... blah blah...(L) Anyway, I didnt believe her as much as I

> felt sorry for her. I have heard the " stories " before only to find

> they were lies,(the names change to suit who she is speaking to). But

> I have a soft spot for her (or anyone in trouble) but I realise now

> she was counting on that. To make a long story short- it worked.

> Within a week I had asked her to moved in with me, she was begining

> to threaten suicide as her only other choice other than my help. She

> has been here for a month now, and within a day or 2 I knew I had to

> find some answers even though I didnt know what was wrong.

> I am 32 and was diagnosed with severe depression/anzxiety disorder 8

> yrs ago. I pray that I will find the strength to help us both now

> that

> she is here (cant kick her out... LOL) My feelings of guilt have

> returned, I question my sanity more than I would like to, I

> constantly

> wonder what is behind her accusing eyes, I watch what I say, how I

> say

> it for fear it will trigger her in some way. When I was young I would

> just apologize to keep the peace (dispite the abuse), I realise as an

> adult that I cant do that anymore, but I dont know where to start.

>

> Bless all of you for the lost souls you have reached, and thank you,

> thank you, thank you for providing a safe place for all of us living

> with a BPD.

>

> Love and Prayers,

> Michele

>

> jasmyn68@...

>

[Guest guest]

Hey there! I'm new to the posting portion of the group however I have

been reading your posts for several weeks in order to support my

theories of my mother being a nada and having BPD(undiagnosed).Here's

my story:

I'm 33 yrs old, female and married for 20months(2nd marriage) to the

man of dreams. It has been these past years(we began dating in

Jun2005) that I have been shown unconditional love and my nada's true

colors have come to life.

A little background info: only child,married HS sweetheart(BIG

MISTAKE!)at 25, that year found out I have POF(Premature Ovarian

Failure), failed invitro that ended in miscarriage on my 28th b-day

(Dec),six months later confirmed my ex was cheating and filed

divorce. One year later met my now husband.

The same month that we married (May 07) was when nada began to fall

apart. I moved 20mintes away (OMG!)and she was losing control.My

Grandma (who is in her 90's and has been healthy until now) began

having monthly hospitalizations for seizures/strokes. That's when the

drama began...20months later and the rest of the family is tired. My

Grandma is out of her mind d/t demntia that is worsening, sometimes

combative, wanders at night(found in the snow a week ago!) but my

mother refuses to put her in a nursing home.

It all came to a head on 12/29 when I agreed with nada's brother that

she needed to be placed somewhere to keep her safe. She exploded

(rage) made a scene and " disowned me " . NC for 1 week. Then my NONBPD

father called and defended her because he is her servant(he really

agrees with me but is not allowed to voice his opinion).So for the

next week my husband and I endured countless harassing voicemails

from nada.None of these included an apology for " disowning me " .

Finally my husband wrote a very level-headed letter explaining why we

had gone NC and our concern for her to get professional help.

She got the letter and went into RAGE. She called my cell phone, my

home phone, my husband's cell, my friend's cell;evaing messages

about " the nasty letter " my stupid arrogant husband wrote!....Now she

is saying she is sorry(back-handedly)for disowning me and then

insulting my husband! She has even called and sent a letter to his

parents! Then I blocked her phone numbers from the house and cell.

She called my workline! The last straw was when they(my nada &

father) arrived unannounced on a Thurs night at8:30pm to argue on out

doorstep. We told them that was why we had mailed the letter to avoid

confrontation, we ended by telling them to leave. I sent an email

telling nada to get help or NC. She stated in her response that she

was fine, didn't need help. So it's NC for us!

Any suggestions?