Re: Re: Jean & Joanne

[Guest guest]

Hi - Lyme was originally called Lyme arthritis in the 80s. Yes, I'm with you,

Joanne- trying meds could be a simple thing, to see what works. I think the

doctors make it more complicated than they have to. The meds either work for us

or they don't. It is a trial and error kind of search.

The reason I knew about clindamycin is that we had already tried to find an

antibiotic that would work for a finger infection three months prior. So when I

came in with a Lyme diagnosis, I thought I'd try it out, and, it worked for me!

The fact that it worked has caused considerable discussion on Lyme boards ever

since! Even Lyme doctors were not prescribing it as a first-line antibiotic. I

have not shied away from letting them it works for me. Turns out we're having a

discussion now on a major Lyme board and maybe are reporting taking it, also in

IV form. So, in my experience, I say to pay close attention to what you respond

to well or don't.

Re whether to proceed with meds without testing, it's nice to test if you can.

But keep in mind only 60-70% are testing positive who have the illnesses. So,

many people are treating with meds even tho their test came back negative. Later

on, many test positive because their immune system has been strengthened enough

to be able to react to the illness. www.canlyme.com/seronegreasons,html for 27

reasons why we might test negative. - Robin

Re: Jean

Joanne,

I have never seen a case where they don't have to take them for a good length of

time a month to 2 months at least and usually if I remember what I read it's

much longer if they've had it a while.

I also saw a site where somemone listed where to buy these antibiotics and the

low price. but the thing is w/out testing you need certain antibiotics I beleive

to target certain bacteria. I don't know if it's legal. But I don't know it all

well enough but I'm sure it's something like that you take cetain Antibiotics

for certain bacteria.

And I understand what you said about just skipping the testing, but I don't

think that would work, but maybe Joanne, maybe. Ask Robin. I wouldn't want to

put myself through the regime for nothing. But when I have taken Diflucan or

whatever it's called lfor Candida, omg I suddenly feel incredible. So it may be

hit and miss and some very well might have luck and get well as you said.

Robin was so lucky after 25 yrs. one antibiotic knocked hers out. There's the

Divine hand.

Love,

Jean

> > > > >

> > > > > Please read and see if this applies to you, this will shock most who

read

> >it as it is what we are going through, so worth the read or perusal most

> >definitely.

> >

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> > > > > These varied illnesses or symptoms or syndromes are everything we have

> >and more. I can't remember everything in this and other reads, but my friends

> >said it can lead to autoimmunity or at least mimick it. But lyme is very

serious

> >and most never know they have even been bitten yet look at this devastating

> >illness, and many people never know and could be bypassing treatment. It

mimicks

> >or triggers so much on this board and in many cases can be treated. I don't

say

> >we all have this my any means, but with the symptomology it is worth the look

to

> >see if you think you might have contracted it. It can be contracted by a

> >partner.

> > > > > http://autoimmunityresearch.org/lyme-disease/

> > > > >

> > > > > Love,

> > > > >

> > > > > Jean

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