Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Well it would seem this old chestnut has raised it's head again. I volunteered to head up a regular chat slot on Saturday evenings after 9 pm UK time, I ended up only talking to Pierre,.so it died a natural. I am sorry WW that you are disappointed that no-one has appeared in it when you wanted to talk, but I am happy to start this up again if you are interested, and anyone else for that matter. Thoughts people pls. support group When I found this support group, I thought I finally found someone to talk to who understands what I am going through and maybe answer some questions. I was excited to see a chat room to talk to others with this disease, but sadly no one is ever there. To me emails is not much of a support, it helps to talk about it not write it. Thanks To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I do have an opinion about this chat thing. If everyone has time to write down what they want in the post, which probably takes about 10 minutes to finish for some, then why is it so difficult to get into a chat room? I am a little dissapointed myself. Not only did I join this group to learn about my disease, but I also came here to make friends and to chat and take a load off. When you use this post you have to wait at least 10 minutes or MORE to even get someone to respond to what you have said. In chat you can reply within seconds. I am new here and I certainly dont want to make anyone mad, I respect the matter that some of you however dont have the time to chat, but I cant see how 10 minutes out of your busy life could effect you so badly. I truely understand that the people that dont like to talk in writting doesnt want to chat, so that is a valid reason, I agree. Some days I dont have time to look at my e-mail or even get on chat. So I do understand to some point, but I thought this was a group support effort. I would rather unload on someone who cared rather than post what I am feeling and have no response, thats not why I joined this. I would also love to have someone unload on me, I love to help, but the effect of posts and chat are entirely different. Some days people need him/her to be there to listen, not post. > Well it would seem this old chestnut has raised it's head again. I > volunteered to head up a regular chat slot on Saturday evenings after 9 > pm UK time, I ended up only talking to Pierre,.so it died a natural. > I am sorry WW that you are disappointed that no-one has appeared in it > when you wanted to talk, but I am happy to start this up again if you > are interested, and anyone else for that matter. Thoughts people pls. > > > > > > > > support group > > When I found this support group, I thought I finally found someone to > talk to who understands what I am going through and maybe answer some > questions. I was excited to see a chat room to talk to others with > this disease, but sadly no one is ever there. To me emails is not > much of a support, it helps to talk about it not write it. Thanks > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > Visit our companion website at www.igan.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 : It's really a cultural and generational difference here -- instant messaging and chat is a relatively new phenomonon that came up with the Instant Messenger services becoming popular. Those of us that started with e-mail generally prefer it. Add to this cultural issue the fact that the chat in Yahoo! E-Groups is probably it's weakest feature, and there really seems no good reason to use it. You have to keep in mind that many of us like the record of the conversation that the email generates. I've probably read every single message that has come across since I was diagnosed in December 2000. But I did that on my own time, and would probably not have the time to interrupt my daily job or time with my family to attend a scheduled chat. As to having to wait " 10 minutes or more for an answer " -- I consider that a relatively short time, particularly given that I will have this disease for the rest of my (hopefully) long life... Walt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I would be more than happy to meet you guys in the chat room. The only problem is that I personally am not able to do this while I am at work. If we were to coordinate a time that was not during the hours of 8:00AM to 8:00 PM Monday - Friday (U.S. east coast time) I would be more than happy to meet you guys there. Please lets not make this chat room a bigger issue than it needs to be. I sense that some members of this group have had their feelings hurt over this issue and that troubles me. Differences in opinion is great, without it we would never learn anything. support group > > When I found this support group, I thought I finally found someone to > talk to who understands what I am going through and maybe answer some > questions. I was excited to see a chat room to talk to others with > this disease, but sadly no one is ever there. To me emails is not > much of a support, it helps to talk about it not write it. Thanks > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ <http://groups.yahoo.com/group/iga-nephropathy/> > Visit our companion website at www.igan.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Ok then, I am happy to take on the role of heading up the chat room. I am happy to listen if that is all people want of me and reply to any questions to the best of my ability, I will be in the room around 9pm UK time tomorrow night if anyone wants to join me. I appreciate that some people like to talk, but this group has functioned for 2 years now with the email facility being the most popular way of communicating, not only does it allow us to respond in more depth, and in some cases in a more personal manner, but it allows us as moderators to closely monitor the posts and contents, in a chat room it is a bit hit and miss, but I trust those who will be using it, if any, will follow the normal code of conduct. Also remember that some of us just don't have the regime a chat room requires, i.e. a firm time commitment, many here have full time work, families and medical schedules to follow, and in reality 10 minutes is not really that long for a chat room if you need to really talk. I would plan to keep the room open with me in it anyway for about an hour, after that I physically will be too tired to continue. See you tomorrow for those who wish to come and join in Best wishes UK Moderator. Re: Chat Room : It's really a cultural and generational difference here -- instant messaging and chat is a relatively new phenomonon that came up with the Instant Messenger services becoming popular. Those of us that started with e-mail generally prefer it. Add to this cultural issue the fact that the chat in Yahoo! E-Groups is probably it's weakest feature, and there really seems no good reason to use it. You have to keep in mind that many of us like the record of the conversation that the email generates. I've probably read every single message that has come across since I was diagnosed in December 2000. But I did that on my own time, and would probably not have the time to interrupt my daily job or time with my family to attend a scheduled chat. As to having to wait " 10 minutes or more for an answer " -- I consider that a relatively short time, particularly given that I will have this disease for the rest of my (hopefully) long life... Walt To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Are you 5 hours ahead of the east coast time in the US? I will try to be there myself. (Oklahoma) Re: Chat Room : It's really a cultural and generational difference here -- instant messaging and chat is a relatively new phenomonon that came up with the Instant Messenger services becoming popular. Those of us that started with e-mail generally prefer it. Add to this cultural issue the fact that the chat in Yahoo! E-Groups is probably it's weakest feature, and there really seems no good reason to use it. You have to keep in mind that many of us like the record of the conversation that the email generates. I've probably read every single message that has come across since I was diagnosed in December 2000. But I did that on my own time, and would probably not have the time to interrupt my daily job or time with my family to attend a scheduled chat. As to having to wait " 10 minutes or more for an answer " -- I consider that a relatively short time, particularly given that I will have this disease for the rest of my (hopefully) long life... Walt To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ <http://groups.yahoo.com/group/iga-nephropathy/> Visit our companion website at www.igan.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 ty I will be there as well and I think a few others..hope to see u there too scott...I think it is 8 hours difference for west coast so 5 for east...- ww-- In iga-nephropathy , Aylward T TSgt Det 6 TRSS/CCM <scott.aylward@t...> wrote: > Are you 5 hours ahead of the east coast time in the US? I will try to be > there myself. > > (Oklahoma) > > Re: Chat Room > > > > : > > It's really a cultural and generational difference here -- instant > messaging and chat is a relatively new phenomonon that came up with > the Instant Messenger services becoming popular. Those of us that > started with e-mail generally prefer it. Add to this cultural issue > the fact that the chat in Yahoo! E-Groups is probably it's weakest > feature, and there really seems no good reason to use it. > > You have to keep in mind that many of us like the record of the > conversation that the email generates. I've probably read every > single message that has come across since I was diagnosed in > December 2000. But I did that on my own time, and would probably > not have the time to interrupt my daily job or time with my family > to attend a scheduled chat. > > As to having to wait " 10 minutes or more for an answer " -- I > consider that a relatively short time, particularly given that I > will have this disease for the rest of my (hopefully) long life... > > Walt > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > <http://groups.yahoo.com/group/iga-nephropathy/> > Visit our companion website at www.igan.ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Just to set the record straight, I have a full time job, I have a 5 year old son that has Sensory Intergration Dysfunction, and I have a grandmother living with me that has Alzhiemers. I am fully aware that some people dont like to chat. My point in the 10 minutes was that I know everyone can make time, its only that you choose not too. Talking is the best sort of health, as well as making friends to make you smile everyday. I am signing out. I wish you ALL the best of luck with your kidney problems, I wish none of us had it, but we had no choose in that subject. I will find someone to talk to, thank you for the nice e-mail! > > Are you 5 hours ahead of the east coast time in the US? I will try > to be > > there myself. > > > > (Oklahoma) > > > > Re: Chat Room > > > > > > > > : > > > > It's really a cultural and generational difference here -- instant > > messaging and chat is a relatively new phenomonon that came up with > > the Instant Messenger services becoming popular. Those of us that > > started with e-mail generally prefer it. Add to this cultural > issue > > the fact that the chat in Yahoo! E-Groups is probably it's weakest > > feature, and there really seems no good reason to use it. > > > > You have to keep in mind that many of us like the record of the > > conversation that the email generates. I've probably read every > > single message that has come across since I was diagnosed in > > December 2000. But I did that on my own time, and would probably > > not have the time to interrupt my daily job or time with my family > > to attend a scheduled chat. > > > > As to having to wait " 10 minutes or more for an answer " -- I > > consider that a relatively short time, particularly given that I > > will have this disease for the rest of my (hopefully) long life... > > > > Walt > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > <http://groups.yahoo.com/group/iga-nephropathy/> > > Visit our companion website at www.igan.ca > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I woulld think it would be better for the group (for those that want to) to decide on an instant message site such as AOLinstant message. We could sign our Instant Message name along with our name so that allof us could add them to our instant message list. In instant message, while you are no the net, the instant message notifies you that a " buddy " is on line. That way you can just " talk " to them instead of doing email. The problem with that though is that we could really miss out on talking to each other this way if we get too carried away with instant message. It is something to think about though. support group When I found this support group, I thought I finally found someone to talk to who understands what I am going through and maybe answer some questions. I was excited to see a chat room to talk to others with this disease, but sadly no one is ever there. To me emails is not much of a support, it helps to talk about it not write it. Thanks To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Phew! Sally. Re: Chat Room > > > > > > > > : > > > > It's really a cultural and generational difference here -- instant > > messaging and chat is a relatively new phenomonon that came up with > > the Instant Messenger services becoming popular. Those of us that > > started with e-mail generally prefer it. Add to this cultural > issue > > the fact that the chat in Yahoo! E-Groups is probably it's weakest > > feature, and there really seems no good reason to use it. > > > > You have to keep in mind that many of us like the record of the > > conversation that the email generates. I've probably read every > > single message that has come across since I was diagnosed in > > December 2000. But I did that on my own time, and would probably > > not have the time to interrupt my daily job or time with my family > > to attend a scheduled chat. > > > > As to having to wait " 10 minutes or more for an answer " -- I > > consider that a relatively short time, particularly given that I > > will have this disease for the rest of my (hopefully) long life... > > > > Walt > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > <http://groups.yahoo.com/group/iga-nephropathy/> > > Visit our companion website at www.igan.ca > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2003 Report Share Posted January 12, 2003 , Could you please send a reminder email to the group sometime late thursday or early friday about the Chat saturday night? I think that would give everyone a little jog in the memory. Thanks, Chat Room Hi Everyone Well there were four of us in the chat room this evening, and it went ok. If folks want to chat I would plan to make this a regular slot, 9 pm on a Saturday evening UK time to meet up if people want to. I am quite happy as a moderator to go in also and have a chat, but like many of us this will depend wholly on my schedule, but the room is there for anyone at anytime. Personally I am not a lover of chat rooms, but if the members want this resource I am happy to cover it. I would like to add that I will not allow any backbiting, gossiping, bad language or any such like, I see this as an extension to the email system only live. If I suspect things are going to get like so many chat rooms do, corrupt and miserable, I will ask Pierre to delete the facility if it is possible. OK I am off my soapbox now. Quote Link to comment Share on other sites More sharing options...
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