Re: Newbie here, with questions about getting started

[Guest guest]

Dear Amy,

I have had the same thing happen also where I type and type then when

I hit send it gets lost. Now, whenever I have a long post to send I

copy the message (Ctrl C) then hit send. If it gets lost, I just

have to paste (Ctrl V) and try to send again.

We have been SCD since Dec. 1st so I am still a bit new too. My

autistic son was GFCF for 2 1/2 years prior and my celiac son was GF

for 2 years. The whole family went SCD even though we thought only

the younger two needed it. We have been amazed at the affects it has

had on everyone else. My husband, myself and my daughter all were

overweight but we are losing fast. My daughter has exhibited signs

of yeast die-off even though we never thought she had a yeast

problem. She also had some very stubborn warts (been there for

years) that magically disappeared since starting the diet. She is 10

and gets A's and B's in school but she said since starting the diet

she discovered she only has to read her lesson once and she remembers

it all as opposed to having to read and study it 2-3 times. She has

gotten all A's on her work since SCD. My oldest NT son has always

had a problem with bad breath which is gone. I used to have constant

cravings - especially for chocolate which is gone. My husband had

some GI problems which are gone too. Over the holidays, the family

members we thought did not need the diet ate 2 non-SCD meals. We all

realized afterwards how horrible we felt and forgot or never realized

that is the way we always felt before SCD. I am writing this to say,

this is a healthy diet and just because one does not have the classic

symptoms, they still will probably benefit in some way.

As for healing, I believe after a short time I am already seeing

this. New Years Eve, my celiac son got some crumbs (gluten). He

threw up once shortly after but that was it. Usually he throws up

for days, rolls on the floor in pain, has horrendous diarrhea and is

very agitated. Not this time. A few days ago my autistic son ate a

whole cookie. Other than smelling that distinctive smell his diaper

has with an infraction, he had no reaction. Usually he would turn

into a madman (self-abuse, tantrums, regression) and would react

physically (diarrhea, pain in the stomach and agitation). I am so

excited to see their mild reaction to gluten after such a short time

SCD.

As for the diet restriction, I believe now this is caused by yeast.

It wants to be fed. On the GFCF diet, gluten is taken out but only

substituted with other yeast-feeding foods. Once you remove the food

source for yeast, the body can revert to a normal appetite. My whole

family has found that after the intro diet, their taste buds

changed. Foods they found no appetizing all of a sudden taste good.

My 2 little ones are eating a greater variety than ever before. I am

also finding that some foods my son could not tolerate before he can

now eat (ie. bananas used to make him laugh hysterically but now he

does not react).

There are several ways you can tackle introducing this diet. You can

either only offer the introductory foods and let starvation force him

to eat the right foods. You can do the intro diet with a few

alterations (I did banana during the intro). Or you could just feed

SCD legal foods and try to do the intro at a later time when you can

get him to eat a greater variety and you when are more knowledgable

about how to go about doing the diet. There are some recipes I can

think of off the top of my head you may be able to try. Since he

likes bananas, why not try the banana pancake recipe. It sounds

weird but my banana loving boy that won't eat eggs loves them. I

gave this to my kids during the intro. If you wait to do the intro

later, you can also try making the Lois Lang bread or muffins using

almond flour. You could also use the bread to make bread crumbs to

coat chicken nuggets. Look through the recipes and I'm sure you

could find some things he would like until his taste buds adjust.

Check out the following websites for additional recipes:

http://www.scdrecipe.com/recipes.html

http://www.scdiet.org/2recipes/default.html

http://www.pecanbread.com/recipes.html

As for yogurt, my son is eating it but not knowing it. I have been

making smoothies for breakfast and slowly increasing the amount of

yogurt. Right now I am doing 1 cup apple cider, 1 cup yogurt, 2

bananas & a bag of frozen strawberries (makes about 5 cups). I add

powdered and vitamin C to the smoothies too.

I must admit there were a couple days in the beginning that my son

did not eat anything I sent to school for him. I had told his

teachers that this may happen but would only be temporary. When I

met with them last week they were so excited with his improvement on

the diet. They begged me to keep him on the diet and they would do

whatever it takes to encourage him to eat the foods I send.

> Hello all -

>

> Well I just wrote out this nice intro w/my questions and lost it

> all. GRRRR! Here it is again -

>

> My son is 4.4 years old and moderate to severe SDI. We have been

> GF/CF since June and have seen nice growth in all domains including

> the most recent breakthrough - potty training! (yippee!)

>

> I do feel that the gf/cf diet has had a positive effect on my son

> and thus became interested in SCD due to the fact that it heals the

> gut insetead of simply removing the offending protiens (if that is

> even the real issue). I finished Elaine's book this morning.

>

> While I will definitely read the book again (and again and again),

I

> have some questions before committing to the SCD.

>

> First, he has never really had any GI symptoms. He is very regular

> in his stools (1x day - usually mid-morning), and they are well

> formed, very rarely loose and no chronic D at all. He is a big

kid,

> tall that is, but also proportionate in his weight. Though hubby

> and I DID notice that after implementing GF/CF his belly became

> quite flat - only in retrospect did we realize that it had been

> slightly distended. Do you all recommend tryiing SCD anyway - even

> in the abence of any of the typical GI issues?

>

> Next, my child eats less than 10 things. Honestly. When we

started

> GF/CF one of the benefits I was really hoping for (besides

> developmental) was a braodening of his diet. No such luck. He

> merely selected the GF/CF versions of his favorite foods and left

it

> at that. So of course I am worried aobout the beginning stages of

> SCD - I mean, my son only will eat THREE things that are legal -

> bananas, all-natural almond butter, and orange juice. That's it -

> honestly. The rest of the handful of items that he will eat all

> include illegal flours, starches, etc. (gf/cf waffles, bread,

> crackers & pretzels, french fries, gf/cf baked goods and soy

> chocolate milk). He refuses any non-breadded chicken breast and

> won't go near any kind of fish. We have seen him eat beef once or

> twice, but not in the past few months. Since the day he began self-

> feeding as a young toddler, I have NEVER seen him put any kind of

> vegetable in his mouth. (Ate my homemade veggie babyfood, though).

> And lord only knows when or if he will ever even try the yogurt.

>

> So I guess I am looking for encouragement from any moms out there

> whose kids were as restrictive in their food choices as mine is -

> but have been successful implementing the SCD. I am leaning

> strongly towards it - but just worried that the little guy will go

> to preschool with an empty belly (he won't even eat any kind of

> eggs), then refuse lunch and go to therapy on an empty belly. I

> have read the peacnbread site and understand that once the diet

gets

> rolling, there are alternatives that he may eat. My concern is in

> the early stages - implementation is going to be a real battle with

> him.

>

> Lastly - he currently takes supplements - We give him Kirkman

> SuperNuThara hypoallergenic capsules (opened up and put into his

> drink), we also give him Kirkman ProBio Gold. I know about

> researching legal supplements - but specifically I want to know if

I

> should STOP the pro-biotic now that he has been on it for a few

> months and then re-introduce a legal pro-biotic, or should I just

> switch it over now in anticipatation of starting SCD?

>

> Well - that's a start I suppose! I appreciate any info, insight,

> support, etc.

>

> All the best, Amy

[Guest guest]

Dear

I'm going to start the whole family on this diet next week once we clear

out the illegals. Can you tell me how quickly you progressed through

the stages? My kids eat tons of food like their father and not having

fruit and raw vegetables is difficult as that is about 1/2 of their diet

at present.

Thanks

Abby

onemorediet wrote:

> Dear Amy,

>

> I have had the same thing happen also where I type and type then when

> I hit send it gets lost. Now, whenever I have a long post to send I

> copy the message (Ctrl C) then hit send. If it gets lost, I just

> have to paste (Ctrl V) and try to send again.

>

> We have been SCD since Dec. 1st so I am still a bit new too. My

> autistic son was GFCF for 2 1/2 years prior and my celiac son was GF

> for 2 years. The whole family went SCD even though we thought only

> the younger two needed it. We have been amazed at the affects it has

> had on everyone else. My husband, myself and my daughter all were

> overweight but we are losing fast. My daughter has exhibited signs

> of yeast die-off even though we never thought she had a yeast

> problem. She also had some very stubborn warts (been there for

> years) that magically disappeared since starting the diet. She is 10

> and gets A's and B's in school but she said since starting the diet

> she discovered she only has to read her lesson once and she remembers

> it all as opposed to having to read and study it 2-3 times. She has

> gotten all A's on her work since SCD. My oldest NT son has always

> had a problem with bad breath which is gone. I used to have constant

> cravings - especially for chocolate which is gone. My husband had

> some GI problems which are gone too. Over the holidays, the family

> members we thought did not need the diet ate 2 non-SCD meals. We all

> realized afterwards how horrible we felt and forgot or never realized

> that is the way we always felt before SCD. I am writing this to say,

> this is a healthy diet and just because one does not have the classic

> symptoms, they still will probably benefit in some way.

>

> As for healing, I believe after a short time I am already seeing

> this. New Years Eve, my celiac son got some crumbs (gluten). He

> threw up once shortly after but that was it. Usually he throws up

> for days, rolls on the floor in pain, has horrendous diarrhea and is

> very agitated. Not this time. A few days ago my autistic son ate a

> whole cookie. Other than smelling that distinctive smell his diaper

> has with an infraction, he had no reaction. Usually he would turn

> into a madman (self-abuse, tantrums, regression) and would react

> physically (diarrhea, pain in the stomach and agitation). I am so

> excited to see their mild reaction to gluten after such a short time

> SCD.

>

> As for the diet restriction, I believe now this is caused by yeast.

> It wants to be fed. On the GFCF diet, gluten is taken out but only

> substituted with other yeast-feeding foods. Once you remove the food

> source for yeast, the body can revert to a normal appetite. My whole

> family has found that after the intro diet, their taste buds

> changed. Foods they found no appetizing all of a sudden taste good.

> My 2 little ones are eating a greater variety than ever before. I am

> also finding that some foods my son could not tolerate before he can

> now eat (ie. bananas used to make him laugh hysterically but now he

> does not react).

>

> There are several ways you can tackle introducing this diet. You can

> either only offer the introductory foods and let starvation force him

> to eat the right foods. You can do the intro diet with a few

> alterations (I did banana during the intro). Or you could just feed

> SCD legal foods and try to do the intro at a later time when you can

> get him to eat a greater variety and you when are more knowledgable

> about how to go about doing the diet. There are some recipes I can

> think of off the top of my head you may be able to try. Since he

> likes bananas, why not try the banana pancake recipe. It sounds

> weird but my banana loving boy that won't eat eggs loves them. I

> gave this to my kids during the intro. If you wait to do the intro

> later, you can also try making the Lois Lang bread or muffins using

> almond flour. You could also use the bread to make bread crumbs to

> coat chicken nuggets. Look through the recipes and I'm sure you

> could find some things he would like until his taste buds adjust.

> Check out the following websites for additional recipes:

>

> http://www.scdrecipe.com/recipes.html

> http://www.scdiet.org/2recipes/default.html

> http://www.pecanbread.com/recipes.html

>

> As for yogurt, my son is eating it but not knowing it. I have been

> making smoothies for breakfast and slowly increasing the amount of

> yogurt. Right now I am doing 1 cup apple cider, 1 cup yogurt, 2

> bananas & a bag of frozen strawberries (makes about 5 cups). I add

> powdered and vitamin C to the smoothies too.

>

> I must admit there were a couple days in the beginning that my son

> did not eat anything I sent to school for him. I had told his

> teachers that this may happen but would only be temporary. When I

> met with them last week they were so excited with his improvement on

> the diet. They begged me to keep him on the diet and they would do

> whatever it takes to encourage him to eat the foods I send.

>

>

>

>

> > Hello all -

> >

> > Well I just wrote out this nice intro w/my questions and lost it

> > all. GRRRR! Here it is again -

> >

> > My son is 4.4 years old and moderate to severe SDI. We have been

> > GF/CF since June and have seen nice growth in all domains including

> > the most recent breakthrough - potty training! (yippee!)

> >

> > I do feel that the gf/cf diet has had a positive effect on my son

> > and thus became interested in SCD due to the fact that it heals the

> > gut insetead of simply removing the offending protiens (if that is

> > even the real issue). I finished Elaine's book this morning.

> >

> > While I will definitely read the book again (and again and again),

> I

> > have some questions before committing to the SCD.

> >

> > First, he has never really had any GI symptoms. He is very regular

> > in his stools (1x day - usually mid-morning), and they are well

> > formed, very rarely loose and no chronic D at all. He is a big

> kid,

> > tall that is, but also proportionate in his weight. Though hubby

> > and I DID notice that after implementing GF/CF his belly became

> > quite flat - only in retrospect did we realize that it had been

> > slightly distended. Do you all recommend tryiing SCD anyway - even

> > in the abence of any of the typical GI issues?

> >

> > Next, my child eats less than 10 things. Honestly. When we

> started

> > GF/CF one of the benefits I was really hoping for (besides

> > developmental) was a braodening of his diet. No such luck. He

> > merely selected the GF/CF versions of his favorite foods and left

> it

> > at that. So of course I am worried aobout the beginning stages of

> > SCD - I mean, my son only will eat THREE things that are legal -

> > bananas, all-natural almond butter, and orange juice. That's it -

> > honestly. The rest of the handful of items that he will eat all

> > include illegal flours, starches, etc. (gf/cf waffles, bread,

> > crackers & pretzels, french fries, gf/cf baked goods and soy

> > chocolate milk). He refuses any non-breadded chicken breast and

> > won't go near any kind of fish. We have seen him eat beef once or

> > twice, but not in the past few months. Since the day he began self-

> > feeding as a young toddler, I have NEVER seen him put any kind of

> > vegetable in his mouth. (Ate my homemade veggie babyfood, though).

> > And lord only knows when or if he will ever even try the yogurt.

> >

> > So I guess I am looking for encouragement from any moms out there

> > whose kids were as restrictive in their food choices as mine is -

> > but have been successful implementing the SCD. I am leaning

> > strongly towards it - but just worried that the little guy will go

> > to preschool with an empty belly (he won't even eat any kind of

> > eggs), then refuse lunch and go to therapy on an empty belly. I

> > have read the peacnbread site and understand that once the diet

> gets

> > rolling, there are alternatives that he may eat. My concern is in

> > the early stages - implementation is going to be a real battle with

> > him.

> >

> > Lastly - he currently takes supplements - We give him Kirkman

> > SuperNuThara hypoallergenic capsules (opened up and put into his

> > drink), we also give him Kirkman ProBio Gold. I know about

> > researching legal supplements - but specifically I want to know if

> I

> > should STOP the pro-biotic now that he has been on it for a few

> > months and then re-introduce a legal pro-biotic, or should I just

> > switch it over now in anticipatation of starting SCD?

> >

> > Well - that's a start I suppose! I appreciate any info, insight,

> > support, etc.

> >

> > All the best, Amy

>

>

> ------------------------------------------------------------------------

>

[Guest guest]

I have actually not done stages. We did the intro for 2 days yet did

bananas on day 2. After that, we have eaten whatever is allowed on

the diet without concern of stages. The only exception is we are not

doing beans and waited a month before eating whole nuts. I know this

is not the way it is supposed to be done but I am seeing good results

regardless. My youngest celiac son (age 2) was initially eating lots

of bananas (1-2 per meal) but now on his own is starting to prefer a

greater variety of food. Last night his dinner consisted of roasted

chicken, steamed carrots, almond toast with SCD jam and about 1/3

banana. My autistic son (age 4) is showing a definate preference for

fruit and anything with honey which I realize I need to eliminate. I

have been slowly scaling it back and he is starting to eat a greater

variety too. I am working towards stopping the fruit altogether once

I am comfortable with the amount of carbs he is getting from

vegetables. I opted to not do the stages because I felt it was more

important that we stick to what's legal on the diet for the long haul

than do it exactly by the book and give up. Considering I work full-

time, doing stages would have been too overwhelming and I might have

not stuck it out.

> > > Hello all -

> > >

> > > Well I just wrote out this nice intro w/my questions and lost it

> > > all. GRRRR! Here it is again -

> > >

> > > My son is 4.4 years old and moderate to severe SDI. We have

been

> > > GF/CF since June and have seen nice growth in all domains

including

> > > the most recent breakthrough - potty training! (yippee!)

> > >

> > > I do feel that the gf/cf diet has had a positive effect on my

son

> > > and thus became interested in SCD due to the fact that it heals

the

> > > gut insetead of simply removing the offending protiens (if that

is

> > > even the real issue). I finished Elaine's book this morning.

> > >

> > > While I will definitely read the book again (and again and

again),

> > I

> > > have some questions before committing to the SCD.

> > >

> > > First, he has never really had any GI symptoms. He is very

regular

> > > in his stools (1x day - usually mid-morning), and they are well

> > > formed, very rarely loose and no chronic D at all. He is a big

> > kid,

> > > tall that is, but also proportionate in his weight. Though

hubby

> > > and I DID notice that after implementing GF/CF his belly became

> > > quite flat - only in retrospect did we realize that it had been

> > > slightly distended. Do you all recommend tryiing SCD anyway -

even

> > > in the abence of any of the typical GI issues?

> > >

> > > Next, my child eats less than 10 things. Honestly. When we

> > started

> > > GF/CF one of the benefits I was really hoping for (besides

> > > developmental) was a braodening of his diet. No such luck. He

> > > merely selected the GF/CF versions of his favorite foods and

left

> > it

> > > at that. So of course I am worried aobout the beginning stages

of

> > > SCD - I mean, my son only will eat THREE things that are legal -

> > > bananas, all-natural almond butter, and orange juice. That's

it -

> > > honestly. The rest of the handful of items that he will eat all

> > > include illegal flours, starches, etc. (gf/cf waffles, bread,

> > > crackers & pretzels, french fries, gf/cf baked goods and soy

> > > chocolate milk). He refuses any non-breadded chicken breast and

> > > won't go near any kind of fish. We have seen him eat beef once

or

> > > twice, but not in the past few months. Since the day he began

self-

> > > feeding as a young toddler, I have NEVER seen him put any kind

of

> > > vegetable in his mouth. (Ate my homemade veggie babyfood,

though).

> > > And lord only knows when or if he will ever even try the yogurt.

> > >

> > > So I guess I am looking for encouragement from any moms out

there

> > > whose kids were as restrictive in their food choices as mine

is -

> > > but have been successful implementing the SCD. I am leaning

> > > strongly towards it - but just worried that the little guy will

go

> > > to preschool with an empty belly (he won't even eat any kind of

> > > eggs), then refuse lunch and go to therapy on an empty belly. I

> > > have read the peacnbread site and understand that once the diet

> > gets

> > > rolling, there are alternatives that he may eat. My concern is

in

> > > the early stages - implementation is going to be a real battle

with

> > > him.

> > >

> > > Lastly - he currently takes supplements - We give him Kirkman

> > > SuperNuThara hypoallergenic capsules (opened up and put into his

> > > drink), we also give him Kirkman ProBio Gold. I know about

> > > researching legal supplements - but specifically I want to know

if

> > I

> > > should STOP the pro-biotic now that he has been on it for a few

> > > months and then re-introduce a legal pro-biotic, or should I

just

> > > switch it over now in anticipatation of starting SCD?

> > >

> > > Well - that's a start I suppose! I appreciate any info,

insight,

> > > support, etc.

> > >

> > > All the best, Amy

> >

> >

> > ------------------------------------------------------------------

------

> >

[Guest guest]

The stages are not a mandatory part of SCD. They were written by a mother

to supplement information in BTVC as a guideline for those who have difficulty

adding new foods on their own

On Tuesday, January 13, 2004, at 12:24 PM, onemorediet wrote:

> I have actually not done stages.  We did the intro for 2 days yet did

> bananas on day 2.  After that, we have eaten whatever is allowed on

> the diet without concern of stages.  The only exception is we are not

> doing beans and waited a month before eating whole nuts.  I know this

> is not the way it is supposed to be done but I am seeing good results

> regardless. 

Carol F.

---------

c.frilegh@...

Toronto , Celiac SCD 2 years

There is no substitute for the right food!