Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 You are doing much better than me !!! I just returned from buying another pack. I think I need someone to sew my damn mouth shut so I cant put another one in it !!! I feel like I will be one of those who ends up trached and still smokes through it !!! Wish they sold willpower at the store !!! Id but it in bulk !!!! Well my Dear, the best of luck to you !!! You have my support and thumbs up !!!! Keep me informed of the progress !!!! You Can Never Have Peace....... Until You Have All The Pieces Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hi , My neck sounds very similar to yours......since the DM, it grinds and cracks, gets kind of tired, and doesn't like to turn to the sides very far. For a while I was going to physical therapy and they sort of stretched it from side to side......and also gave a wonderful massage.....wish I could have one every day! Anyway, yes, I have definitely noticed neck involvement. We recently had our turn with the fires....I live in Richland, Washington.......right near the Hanford Nuclear Area. You should have seen the glowing red sky and all of the smoke!! It was awful. The fire here was started by a two car collision and the resulting fire spread very quickly. A lady died in the crash :-( Eventually, the US government sent out the heavy fire fighters.....but not until they had wasted valuable time deciding if they would or wouldn't drive the fire trucks over newly declared protected land. take care and hugs, too, Connie habits/fire > Hi group- > Amazing about the fires, Vicki. Any chance you could be evacuated? > Certainly hope not... I agree- hang the arsonists over hot coals. Our > large dairy was burned to the ground in 1966- by a fireman who was > caught the following year- am still sad about it. > I smoked the last cigarette I had in my house late this morning. I > had one nicotine patch left which I put on. Earlier I felt so > determined, but am beginning to waver- the worst time will be later > tonight and in the morning when I wake up- that's when I have no > resolve. It's be SO easy to go to the store right now........... if I > could sleep 24/7 until the toxins leave the body-a few days at least- > maybe I could handle it! Kick my butt and keep me on track.... here's > hoping. Beginning to feel real blah and achy again- didn't take my > vioxx today, yet. Love, PS- anyone have trouble with their > neck? Probably a silly question-- my cervical area grinds a lot when > i move my head and my neck always hurts- worse at some times- I did > injure it somehow back in summer 1993 and it hasnt been right since- > but thinking about certain neck muscles that may well be weaker than > others, holding up the old noggin, you know. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hi everyone... Ev, are you feeling any better? I got down to the grocery store this afternoon and you popped into my mind... I hope your doing much better.... and ... I know you can do it. It won't be easy but I know you both have the strength to do it. ...keep telling yourself that you can make it happen...then one day you'll feel the strength to NOT go to the store. Also, this might be a good time to treat yourself to any food you want... I know you both are watching your girly figures but your lungs are more important at the moment. Both of you hang in there it will get better. We're all here for you.... Fern, got my last lab report back in the mail today.... My doctor put a little note at the bottom that says..... Vicki, Your blood proteins showed inflammation. This is the results of the testing.... Hi-Resolution Protei Total Protein ........8.1 [ 6.1 - 8.0 ] Albumin ...............3.7 [ 3.4 - 5.0 ] Electrophoresis .... Oligoclonal bands present in gamma region Interpretation.........Polyclonal hypergammaglobulinemia consistent with chronic inflammation. Immunofixation to follow. Immunoglobulin, quant IgG ........ 1310 ...[ 751 - 1560 ] IgA ......... 349 .... [ 82 - 453 ] IgM ........ 135 .... [ 46 - 304 ] I still don't understand all of this... I had to drive down into town this afternoon....got to have my bread ya know. Roads are blocked off all over the place....some the fires are too close to the road and some are closed because the smoke is so thick you can't see a thing. There trying so hard to keep the fires on the south side of the highways...all the big winerie farms are on the north side...it is just so terrible to see so much destruction. Out my way we have a man made lake 3 miles from me. This is where the helicopters pick up the water for out here. I've had to evacuate three times since I've lived here (10 yrs) and it was the pits. That meant I had to move 5 dogs and 10 horses at that time... now I have 3 dogs and 5 horses left. Still not a chore I can do very well now. Ok, this is long enough.... sorry everyone. Hope you all had a great Saturday...Oh, someone asked about there neck being sore.... Mine gets like that also.... will last for about a month then it goes away.... Vicki-PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Vicki Did the dr say what he planned to do re the inflammation? Teddi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hi Teddi... I haven't talk to him yet...I go back on the 10th and he'll let me know what he's going to do. Oh the joys of the ups and downs... without them I would lead a boring life...lol Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Hi Vicky, How nice, to be thought of--thank you so much! Ya, I still don,t feel good, but Aug. 14th, I got an appt. at 1:00 p.m. with the Reumy, and I,m hoping he will shed some new ideas. I also have the experienced the neck problem--not bad, but enough to notice it. In the last " Outlook " , there is an article on IVIg, getting rid of swolling problems. Some of the members of e-group, may not be familier with the " Outlook " It is put out by, The American Myositis Assoc. It costs 30.00 a year to belong, but its well worth it, for all the info. You get 4 issues a year. Love you much, Ev. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 , So sad about your dairy farm even though it was so long ago. Set by a fireman? That's eerie, like something out of a movie. Congratulations on having smoked you last cigarette. When the urge comes over you, mentally list all of the positive reasons to quit. With a myositis disease they positives are endless. You can do it. One hour at a time!!!! Hang in there. I am online on and off all day. Post when you feel an urge and perhaps one of us will catch you and give you a pep talk! Cari --- julie steinmuller wrote: > Hi group- > Amazing about the fires, Vicki. Any chance you could > be evacuated? > Certainly hope not... I agree- hang the arsonists > over hot coals. Our > large dairy was burned to the ground in 1966- by a > fireman who was > caught the following year- am still sad about it. > I smoked the last cigarette I had in my house late > this morning. I > had one nicotine patch left which I put on. Earlier > I felt so > determined, but am beginning to waver- the worst > time will be later > tonight and in the morning when I wake up- that's > when I have no > resolve. It's be SO easy to go to the store right > now........... if I > could sleep 24/7 until the toxins leave the body-a > few days at least- > maybe I could handle it! Kick my butt and keep me on > track.... here's > hoping. Beginning to feel real blah and achy again- > didn't take my > vioxx today, yet. Love, PS- anyone have > trouble with their > neck? Probably a silly question-- my cervical area > grinds a lot when > i move my head and my neck always hurts- worse at > some times- I did > injure it somehow back in summer 1993 and it hasnt > been right since- > but thinking about certain neck muscles that may > well be weaker than > others, holding up the old noggin, you know. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Hi Ev...I'm very sorry your still not feeling well...it's just the pits isn't it. But, better days are ahead for you real soon. I agree with you... the " Outlook " put out by the MAA is wonderful. Everyone should become a member. I did read about the IVIg and my doctors and I talked about it. We were waiting to see if the Enbrel would work on me. It will be interesting to see what they come up with when I see him on the 10th. I hope your appointment goes well for you. Let us know if you like this doctor or not. If you don't get your questions answered or you can't understand him....then move on to the next doctor.... It's not worth staying with a doctor that doesn't make you feel comfortable. Take care, Vicki-PM Quote Link to comment Share on other sites More sharing options...
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