Re: nne

[Guest guest]

Hi Joanne,

thank you so much for all the information that you have been sending my

way. I sure appreciate learning from you and others. I am working on

getting back to a low carb diet. As a Catholic, I do not use any form of

contraceptive, so the pill is not an option for me.

nne

On Wed, Sep 22, 2010 at 1:11 PM, Joanne Ford wrote:

>

>

>

> nne

>

> I remembered today how you mentioned that you get bad PMS. I have sorted my

> PMS

> out using Bees diet and I am happy with this. My daughter does not have

> Fibro

> but I regard her as Pre-Fibro since she does have many of the symptoms I

> had

> before my fibro set in. she is managing her symptoms with a natural version

> of

> the Atkins diet and for her PMS, which is quit severe she is using a new,

> fairly

> natural contraceptive pill called Qlaira

>

> this pill is being promoted as the most natural pill there is and the make

> up of

> it it is claimed is very much like a womans own natural hormones. There are

>

> plenty of sites explaining how this pill is different. It is something you

> might

> want to consider at least until you are able to do Bees stuff. I cannot

> guarentee it will help you but my daughters hormone problems have improved

> a

> great deal since she has been taking this

>

> Love Joanne

>

>

[Guest guest]

I agree nne. I'm spending 3 days/2nights with my 4yr old nephew

babysitting. They have all kinds of snack foods for him and I blew it yesterday

and ate some junk. Today, I did better, but still not good. It will be good to

get back home so I don't have the junk in my house. I'm still living with Dad

and Mom, but I don't have to fix their meals. Although, I think they'd be

better off if they ate what I did. Lol But the point is I take care of me and

that's it. I'll be happier in a place of my own, but 'til then...

I'm so happy and grateful for the recent posts on this as it gives me better

self discipline.

Hugs,

>

> People just don't realize that it is way more than just a piece of cake or a

> drink of alcohol---when we give into that little whim, it is so hard to just

> get back on track. That little piece of cake becomes--oh, that 1 cookie

> won't hurt, oh--1 more cookie is ok...Then I get to the point of--well since

> I have blown it today--i'll eat what i want tonight and then get back to

> healthy eating tomorrow. Then tomorrow comes and i do well for a few hours,

> then my mind starts saying well, maybe i will just have that donut and then

> eat healthy, then i blow it for the day and tell myself--well i will get

> back to healthy eating tomorrow and so on and so on...till that 1 piece of

> cake has led me on a unhealthy path for days or months until I get so fed up

> with it all that I try again!!! So, for some of us, one piece of cake or 1

> drink can lead to such destruction. They just don't get it! If they really

> knew what it did to us, they would not tempt us so.

> nne

>

[Guest guest]

i am trying to remember what i just read about lymes--it is caused by a

bacteria (i think) that the tick carries and gives to the victim. that is

why the antibiotics are effective.

nne

On Tue, Nov 30, 2010 at 12:00 PM, Joanne Ford wrote:

>

>

> I will keep this in mind. i am thinking that if i can find an affordable

> test I

> might do a test myself. i really do not think i can cope with much more

> down at

> the hospital

>

> I am going tomorrow because it would help me get some peace of mind if I

> had a

> scan. I want to see how much this sacroiliac joint is affected, and I would

> also

> like to know what the thing with my small bowel is

>

> Both of these things are OK if I stay in ketosis but if I come out of

> ketosis

> thse will be the first to things to flare up.

>

> Although I used to have terrible knee pain where i could not walk, since

> remving

> all starch this has stopped. i do not know how much swelling there was.

> They

> looked swollen to me but the doctors never seemed interested. No tests were

> done

>

> I am wondering is Lymes classed as a form of arthritis or is it an

> autoimmune

> illness, or both I would imagine

>

> Like i do not know a great deal about this but worth looking into the

> research I

> guess because there may be things I dont know about that could help me

>

> I don't know if long term antibiotics are the only treatment for lymes, it

> is

> the only treatment i have heard of. there is no way I could do that anyway,

> my

> candida would return and you know how hard that is to deal with

>

> anyway I will keep an open mind because the theories relating to Lyme

> disease

> perhaps could apply to Fibro, arthrtis or other autoimmune

>

> thanks nne

>

>

> ________________________________

> From: nne Watza <julianne@...<julianne%40watzafamily.com>

> >

> To: fibromyalgiacured <fibromyalgiacured%40yahoogroups.com>

> Sent: Tue, 30 November, 2010 16:26:05

> Subject: Re: For nne & Robin

>

> yes, symptoms include severe joint pain and swelling with Lymes, knees are

> especially bad with lymes. joint pain can be associated with fibro. but

> not

> usually the swelling. i have a friend with lymes and she flares up with

> swollen, achy knees and other joints. i do not have any of this with

> fibro., just occasional stiffness upon getting up but once i move around i

> am fine.

> nne

>

> On Tue, Nov 30, 2010 at 8:54 AM, Joanne Ford

<joannesford@...<joannesford%40yahoo.co.uk>>wrote:

>

>

>

>

[Guest guest]

Hi nne,

Lyme is not just arthritis or autoimune, but it can trigger a host of problems

such as fybro, thyroid, brain fog, weakness, joint swelling and on and on, and

on... And most drs do not know how to test for it, esp if you've had it a while.

Check into the labs that are known for extensive testing after you get whatever

testing you can afford or your insurance will cover.

Lyme is knocking out so many peoples lives, that there is now some fund to help

people who can prove their low income to get tests, but I don't know if this

program gives people adequate testing from what I read. There is a lab in SF and

I will try to find the name and it's website so you can see how extensive the

testing can get as they try to find these hidden bacteria, esp if you think

you've had lyme a long time.

Love,

Jean

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[Guest guest]

Interesting comment about removing starch from your diet and then the joint pain

stopped. A reaction to gluten? A candida problem? Anything that stresses the

immune system makes it easier for the Lyme infection to occur.

As I mentioned in a post I just made, Lyme arthritis was one of its earliest

labels. I believe it can also be classified as an autoimmune disease, as the

body attacks itself where the Lyme is sequestered. It's really still attacking

the infection.

When people take antibiotics, they take probiotics too.

And there are other treatments besides antibiotics - lots of them. A good thing

to google for and maybe to print out, not only for you but also for the doctor,

would be the Burrascano 2008 guidelines - I think it's 37 pages. It's a read. -

Robin

>

>

>

>

>

[Guest guest]

Yes, the Lyme bacteria is spiral-shaped. It's called a spirochetal bacteria or a

borrelia, is the technical name. Lyme disease is technically called Lyme

borreliosis. It's like syphilis, which is a wiggly bacteria too, only with six

times more functional genes. It's a very stealthy bacteria and can evade the

immune system and hide in the tissues.

It has several forms too - the regular spirochetal form, a cell wall-deficient

form and a cyst form it hides in. It can also create a biofilm to hide in. It's

quite something and needs to be studied. My feeling is, the more we understand

what it is and how it operates, the better equipped we are to think about it and

what might stop it from functioning. - Robin

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[Guest guest]

Hi - the lab is www.IGeneX.com in Palo Alto, CA. It's got a very informative

website. I call this going to Lyme school! - Robin

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[Guest guest]

Joanne, this should be a no-brainer - every doctor should test for Lyme and co's

if suspected - that's what Lyme-treating docs do. Also, they know the good labs,

like IGeneX may be the best one. The problem is that the insurance companies

don't want to cover this epidemic and have gotten some medical societies to

stand down on recognizing these illnesses. We are all advocating for our right

to be recognized and treated. Also for the public's right to know so everyone

can learn how to protect themselves and their pets, like put tick repellent on

pets and us if we're going to be in contact with vegetation and wood, where

ticks can be, etc. - Robin

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[Guest guest]

We essentially have to train the doctors at this point to know about Lyme and

co-infections. It also depends on the quality of the test, in terms of results.

That's why we use the IGeneX lab. I did test positive after 25 years!

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[Guest guest]

I knew the Lyme bacteria hides Robin and I couldn't remember what I'd read

except it goes into the tissues and may have to test and test again before it's

decernably present at testing, like a young woman on youtube tested 5 times

because the testing clinician told her to keep testing and on test 5 she got the

positive. The virus just happened to be present and hot hiding at the time and I

know it gets all over.

Take care,

Jean

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[Guest guest]

No Joanne,

Most drs are not aware this virus hides and if you don't catch it in the first

few weeks or so it gets harder to find and there can be co-infections depending

on how many bacteria beside borrelia are present in the tick. The need to test

and test and test again, as the sneaky, destructive bacteria hides itself.

But... we have the larger brain and now know it hides and the specialized labs

are getting better at finding it or proof of lyme.

See I am lucky I tested one pt. below equivocal on my first test which lymers

say at my stage is a positive but I will probably go to the clinic in SF to be

sure, but I am getting some symptoms I don't care to say on the board and I do

need to check this out.

There is:

Positive: you have it

Equivocal: you may have it

Negative: you don't have it

Now this is their speculation. If you have 2 or less lyme bands you can be

considered negative, but you can most definitely and probably do have lyme with

two lyme bands, at least as I have read. But drs say for lyme you need three or

more or whatever " their " lab says. The data on this way of diagnosis is

" insurance dictated " . Get it?

For me to be one pt less than equivocal, in other words I just made negative by

" one " pt. 15 yrs into my first symptoms this was lucky for a regular hospital

result as it's an indicator I may well have it and need further testing.

Most drs are clueless and test once, and because I'm one pt from equivocal UCLA

won't even give me the Western Blot. This is going to be epidimic and is behind

many illnessess. Some may do better with it, but this is pretty bad for anyone

who gets it. But there is hope as differnt ways to treat it are being

discovered. And some do heal. I have met 2. My friend and another

gentleman.

Love,

Jean

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