Re: Milk tolerance/intolerance

[Guest guest]

,

Have you been to Pecanbread.com?

You mentioned that most recipes called for yogurt. On Pecanbread.com,

that is not the case. So, I am guessing that you have been to other

SCD recipe websites.

There are over 100 recipes and only about 12 contain dairy.

There are recipes for making nut yogurt and a mock DCCC, which can be

used in recipes calling for yogurt or DCCC.

There are several egg free recipes on the site as well.

Please check out the Pecanbread.com website for recipe ideas.

http://www.pecanbread.com/recipes.html

What foods will your son eat?

Is he seriously allergic to any other foods besides eggs?

Jody

mom to -5.1 and -7.4

[Guest guest]

A few things about yogurt made from milk (goat's milk):

We advocate the use of GOAT'S Milk for the children's home made yogurt Starter

can be from cow's milk yogurt or prepared starters. See web site.

During incubation the lactose is almost entirely consumed.

So the usual issue is casein and many of the children on SCD tolerate it.

For those who don't and parents with concerns be aware that SCD can be followed

without yogurt or any of the legal cheeses. ( People not in the know have

gotten the mistaken impression that certain dairy is mandatory on SCD and

this IS NOT TRUE! )

Many of the SCD parents attribute cognitive gains to the introduction of yogurt.

The suggested waiting time is a few weeks and then give only a teaspoon or

less to see if it's well tolerated.

Those that choose not to use yogurt can take a legal probiotic which also

has beneficial effects.

By the ay, the homemade yogurt jad billions of active friendly bacteria, nay

more than the commercial store bought kind which is a good starter but contains

lactose.

On Friday, January 9, 2004, at 12:45 PM, chansehamilton wrote:

> I'm asking many questions prior to starting the diet because I want

> to be sure I have a good idea about what I'm doing first.  My son is

> ASD and currently GF/CF and I wanted to know about the importance of

> yogurt and whether anyone had difficulty starting their child back

> on milk products or is it better to remain CF?  My son has never

> liked milk or cheese to begin with.  He was breast-fed until he was

> two and would never take or try milk of any source.  It appeared as

> if he was repulsed by it.  Therefore I'm hesitant to buy a yogurt

> maker because I'm afraid he wouldn't eat it anyways but I notice

> that most SCD recipes include yogurt in some form.  What could be

> used as a replacement?  He did show allergies to milk on his allergy

> panel but not necessarily worse than any other allergies. 

>

> Also, what is a good replacement for eggs?  My son has a true

> allergy to eggs.  I tried to give them to him twice in his life. 

> The first time he became beet red, formed a rash all over and began

> coughing within 2 minutes.  The second time (a year later, I thought

> he might have outgrown his allergy) I gave him one bite of egg, he

> spit it out, wiped his tongue off with his hand then wiped his eye

> and his eye swelled shut for the rest of the day.  I haven't tried

> again since then.  His allergy test for eggs was through the roof,

> about 500X the normal limit. 

>

> Thanks - 

>

>

>

>

[Guest guest]

Your child sounds like my child. When I had my son, I already felt

that milk was not fit for human consumption. I nursed him until he

was 1 1/2 then never worried about giving him something white to

drink. He did like yogurt, cheese and ice cream but that was the

limit of his diary consumption. After his diagnosis at the age of 2,

I decided to put him on the GFCF diet. It took a while for me to be

convinced because of his lack of interest in dairy. When I decided

to do it, I was eager to see results so I did both cold turkey. I

saw immediate results but was never able to pinpoint if he really

needed to be CF. He had gluten infractions on a number of occasions

which led to terrible reactions. He never had a dairy infraction

(that I know of). Regardless, I kept him casein free because I was

afraid.

After about 1 1/2 years on the diet I decided to try enzymes. At

first I intended to use them in case of infractions but eventually I

decided to try to use them to replace the diet. My son had no

reaction to dairy with enzymes. He did have a physical reaction to

gluten even with enzymes though I later learned he also has celiac

disease. The enzymes removed his behavioral reaction to an

infraction. I therefore kept him on the GF diet with enzymes for 9

months.

When I decided to do the SCD diet it was my intention to do

the " legal " diary with enzymes. I was afraid to remove that crutch

even though I have never had evidence that he needed it. I made

bread using dripped yogurt (and yes, I know it is too early to

introduce bread) and butter in cooking. I gave him enzymes when I

actually fed him yogurt and would put enzymes in his juice with each

meal. He did not like the juice I was giving him so he did not

necessarily get the enzymes in him. I also was giving him snacks

with butter or dripped yogurt as a minor ingedient which made me

forget I needed to give him enzymes. At one point about 3 weeks into

the diet, I had realized he was getting dairy on a regular basis and

not getting the enzymes in him but he was not reacting. I finally

decided to ditch the enzymes and just do the diet " as is " .

I am not recommending that anyone transition from the GFCF diet to

the SCD diet with the " legal " dairy but just sharing my personal

experience with my son's reactions. I also must note that even

though I believe we are 100% SCD legal and we did the intro diet for

2 days, I have moved much more quickly in introducing foods than is

recommended. I am in the process of working toward doing it right

but not until February. Regardless, I am hearing wonderful reports

from his therapists and teachers. His ABA supervisor at school (whom

is also a parent of an autistic child) told me she believes I have

found the answer for my child. She never said such things with GFCF,

chelation or supplementation. She begged me to keep him on it since

he is doing phenomenal.

> I'm asking many questions prior to starting the diet because I want

> to be sure I have a good idea about what I'm doing first. My son

is

> ASD and currently GF/CF and I wanted to know about the importance

of

> yogurt and whether anyone had difficulty starting their child back

> on milk products or is it better to remain CF? My son has never

> liked milk or cheese to begin with. He was breast-fed until he was

> two and would never take or try milk of any source. It appeared as

> if he was repulsed by it. Therefore I'm hesitant to buy a yogurt

> maker because I'm afraid he wouldn't eat it anyways but I notice

> that most SCD recipes include yogurt in some form. What could be

> used as a replacement? He did show allergies to milk on his

allergy

> panel but not necessarily worse than any other allergies.

>

> Also, what is a good replacement for eggs? My son has a true

> allergy to eggs. I tried to give them to him twice in his life.

> The first time he became beet red, formed a rash all over and began

> coughing within 2 minutes. The second time (a year later, I

thought

> he might have outgrown his allergy) I gave him one bite of egg, he

> spit it out, wiped his tongue off with his hand then wiped his eye

> and his eye swelled shut for the rest of the day. I haven't tried

> again since then. His allergy test for eggs was through the roof,

> about 500X the normal limit.

>

> Thanks -