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Hi Mike,

Wow, you've been through a lot. I really appreciate your willingness to share

your experiences. They can help in unexpected ways. For instance, a quote you

included really hit me: " She told me I had not been given an answer and deserved

one " . I've not accepted my PLS dx yet. The doctor that dx'd me now feels my

case is " unresolved " , and wants me to do a few more tests.

I guess I've never truely accepted the dx. My doctor started to doubt the dx

when pain became part of the symptoms. I'm not sure if I've shared this here

before, but now, I've found a new " feature " . Normally, when sitting straight in

a chair, I cannot lift my right leg. Won't budge more than 1/2 an inch. I

discovered that by turning my head right, and slightly down, I can lift it

normally, multiple times. Turn my head left again, right leg does not work.

This is repeatable.

So far the doctors are either unimpressed (it's not important) or don't know

what to make of it. My PCP said biologically it makes no sense at all. My

common sense says there must be something in my neck causing this, but my

neurosurgeon says it ain't in the films. Going for a 2nd opinion locally the

end of the month.

It gets harder and harder to continue to push at this " problem " . Physically and

emotionally I'm about " out of gas " . But I feel I deserve an answer I can

understand, that explains my symptoms. I don't know what to do. Arghh! If I

still don't get an answer from the 2nd opinion, the Mayo Clinic might be next.

Or is that a waste of time, energy and money. Is there a better place?

I'd appreciate hearing any suggestions/opinions. Where is the best place to

go? Does anyone else have this or a similar " feature " ? Am I just wasting my

time and energy?

Thanks

Alan

PS, I usually write short messages/responses because my arms ache as I type.

Also, I don't always have the emotional/physical energy to " go online " , so my

responses are sometimes a little late. I do appreciate your comments. Thanks