Permanent LUPRON Effects or what?

November 25, 2006

I'm 68 years old, 4 months post-treatment for PC with modulated beam

treatment. PSA 0.0634. I might add that treatment was uneventful.

LUPRON caused expected effects DURING treatment, however 4 months out

testicular atrophy, and recently,swelling and tenderness of my nipples

lead me to believe other things may be wrong.

Went to my URO, no help, " can't give hormone supplements to cancer

patients " .

HMMMMMMMMM, my wife is ex-cancer patient, for breast cancer, and she's

on hormones.

Nipple tenderness and breast swelling, shrunken testicles, extreme

lethargy, plus ZERO libido, and total ED tells me I need some

intervention.

Is it time to see an Endocrinologist, or is this going to be my

condition till I die?

November 25, 2006

Hi rustyduck.

I would suggest that it is time to visit www.cancerimmunity.org and follow up on anything that Zheng Cui has published on his work with mice.

Larry

I'm 68 years old, 4 months post-treatment for PC with modulated beam treatment. PSA 0.0634. I might add that treatment was uneventful.LUPRON caused expected effects DURING treatment, however 4 months out testicular atrophy, and recently,swelling and tenderness of my nipples lead me to believe other things may be wrong.Went to my URO, no help, "can't give hormone supplements to cancer patients".HMMMMMMMMM, my wife is ex-cancer patient, for breast cancer, and she's on hormones.Nipple tenderness and breast swelling, shrunken testicles, extreme lethargy, plus ZERO libido, and total ED tells me I need some intervention.Is it time to see an Endocrinologist, or is this going to be my condition till I die?

November 25, 2006

Hi there,

Everyone reacts differently to treatment

and side effects are varied. What you describe are some pretty standard side

effects from what is often called “hormone treatment” but is more

correctly known as ADT (Androgen Deprivation Therapy). Apart from the breast

enlargement, most of the symptoms of the side effects should fade if you stop

ADT – that is why some men choose intermittent therapy, although there

are some dangers and problems with that choice and it requires close

monitoring. The changes to your breast are likely to be permanent – they could

possily have been prevented by having a low dose of radiation before commencing

your ADT.

It seems from what you have said that you received

a Lupron shot (which is one type of ADT) either before or after your radiation

treatment. Is that so and di you only get one shot? Are you on any other medication?

What did you expect your urologist to give you by the way of “hormone

treatment” to alleviate your symptoms?

It seems to me that your best bet would be

to consult a medical oncologist rather than a uroplogist.

All the best

Terry Herbert

in Melbourne Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason

3+3=6: No treatment. June '04: TURP. Nov '06 PSA 31.4

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a tragedy of the world that no one

knows what he doesn’t know, and the less a man knows, the more sure he is

that he knows everything. Joyce Carey

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of rustyduck770

Sent: Sunday, 26 November 2006