Re: To or Gossimer

[Guest guest]

Hi Angie,

I know of two tests that are used for determining Hashimoto's

Disease, and they are the antibodies tests done with blood samples.

chuckle, I'm hoping that someone will jump on with the names of

these tests. My mind doesn't have them memorized yet.

Also, ask for the Free T3 & Free T4.

First off, I wish to apologize, I have not been paying a lot of

attention to the age of your daughter. If I am remembering

correctly, she is 15 going on 16?

Uhmmm, okay, please don't get offended by these questions...I'm

hunting for a way for you to track her symptoms in writing for the

next month and a half to show to the new Endo...I'm looking for

patterns here, swings of the hormone levels effect her temp, blood

pressure, mood, appetite, etc.

Put these in a chart format, the less emotion the better. Doctors

need facts and figures in front of them...emotions they can't equate

to the patient.

Have a list of all medicines and every single vitamin and supplement

that she currently is taking, even if it is a protein shake. If they

are name brands, use the names.

Are you able to take a basal temp with her before she gets out of

bed? Every day from now until the appointment?

Take her blood pressure before rising or after she's been sitting

still for 15 minutes, once a week? (I know this one will be hard to

get, for some children it is hard to get them to sit for 5, much

less 15…)

Track her behavior patterns. Happy, angry, sad, argumentative, etc. .

The days that she shows depression and whether she got to the place

of crying for what appears to be no reason?

Chart what type of bowel movement she has on a daily basis, if

possible?

Track her weight once a week?

Any body parts, growth wise, that are out of norm for her?

(Like she suddenly grew two inches in two months or something?…)

Track what she eats, i.e. volume, calories, carbs, etc?

She expressed extreme hunger or no hunger at all?

She is losing so much hair that she leaves lots of hair on her

pillow?

Anything out of the norm for her, any behavior pattern that is not

normal?

Is she menstruating yet?

Is it on a regular basis?

How long has she been cycling?

How many days does it last?

Is it a heavy flow or light flow?

Don't over whelm the new Endo with too much stuff. Be selective in

what you show the Endo. Have the rest available, if asked for.

I think that you get the drift here. Anything that you have seen or

been asked about your daughter, by any of the past `doctors', write

down the answer before the new Endo even gets a chance to ask. Give

the Endo proof. Walk in fully armed with knowledge and charts of her

symptoms. If this new Endo doesn't give you or your daughter the

courtesy of looking over the charts…remember, the Endo is employed

by you for the time of the appointment, not the other way around.

Good Luck!

Gossimer

P.S. Where do you live??? I live in Reno, NV

chuckle, we could all walk in and scare the living **** pants off

the Endo for you...< <BIG GRIN> >

I tend to scare the Doc's with my baby handling of them...I grew up

with a Doctor for a father and a bio chemist for a mother and know

How To Handle Them...chuckle,,,rubs hands together, kewl another

Endo learns to listen...mawahahhhhahhh...giggle....sorry, getting

late here and I'm getting carried away...grin...

> Is there a specific test to ask for when trying to determine

whether

> it's Hypo or Hyper or Hashimoto's? Jordan was diagnosed by a

> Naturopathic Dr but she has an appt w/ a new Endo at the end of

June

> and I would like to be prepared then. Should I ask for a specific

> blood tests?

<<snip>>

[Guest guest]

OH Gossimer!

You have made my early Monday Morning a GREAT ONE! I had kept a diary

of her health since it began to spiral out of control in late

December, it got more detailed in February but certainly isn't to the

standards of what you mentioned. Which really irritates me because I

knew that I should have been doing it w/ more detail. AHH! Bad mom,

bad mom, bad mom. Yes, she is 15 going on 16. I want my child back.

For years I felt like I had lost her to Down Syndrome, now this

stuff. I laughed out loud at the part of us walking in together. The

school board groans when I walk in, because I am always doing crazy

stuff like that. I brought 20+ people with me to a meeting I had with

them once. People that had absolutely no idea what was going on, no

relevance whatsoever, but the school board didn't know that. ha ha

ha. I wish my dad were still alive, (SOBBING now) because he knew a

little bit about everything and people just loved him. I could take

him with me to any dr w/ Jordan and she got the best treatment

because he brought out the best in everyone. But anyhow, that's

another story in itself. Thanks for your awesome advice! By the way,

we live in Louisiana...way down South but we are a far cry from the

way " dey done " depicked " us on dem der tv " ....Bye ya'll! rofl.

Thanks again!

Angie and Jordan

[Guest guest]

Hi Angie,

You are not a BAD MOM!!! Don't you ever say that again...!!!

You are a GREAT MOM, who is concerned about her family and their

health!!!

Unless you were/are trained in Nursing or Chemisty or Lab, or...

tracking results, how would you know what to chart???

I guess I'm lucky, in that I was a nurse a long time ago and still

remember the tedious task of the old fashioned method of paper

charting.

If its on paper, and in chart format, the Doctors are more apt to

look at it. As for the temp and weight, I'd put them onto graph

paper, as well as written out. I'd make the optimum temperature line

of 98.6 in bright red and then make the dots in some color that is

contrasting and jumps off the page. All the dots below the red in

one color and all the dots above the line a different color(quieter

color).

Bed times also help and sleep patterns of her sleep. i.e. quiet,

restless, foot kicking, arm throwing, etc...

One thing that I would also note, (this is going to extremes but to

fully diagnose what is happening, a good doctor needs to know all

sources of input into the body), is if she eats anything not offered

to her, i.e. dirt, house plants or plants outside, chews on pencils

& pens, finger nails, finger chewing....

Its always surprising to me, what minor thing/behavior may trigger a

whole new angle of investigations. Or in some cases take the

BLINDERS off of the Doctors eyes.

Gossimer

[Guest guest]

Hi ,

Well, chewing on lids could just be a sign of concentration or

boredom and wanting to chew on something.

In the message that you were commenting on, I was looking for

sourses of possible nutrients (minerals) that the child was trying

to get from eating things out of the ordinary. i.e. dirt eating may

or may not indicate missing minerals in her system.

In order to help you with your daughter, we would need to ask you

what do you see in your daughter that makes you think that she may

have Thyroid problems?

I know for me, I am a very slow waker and sliding off of the sofa

onto the floor wouldn't wake me up, providing I was in a deep sleep.

Now, a jolt or an alarm would have me on my feet in a second.

It all depends upon your daughters sleep habits.

As for her temps, are you taking them by mouth with a digital or old

fashioned mercury themometer or by basal method?

Gossimer

> Ok... I think I'm on the tail end of a conversation here, but

I just

> can't keep up. This just really caught my attention because

what your

> telling Angie to document is some things my daughter does i.e.

chews on pen

> lids, and the other night my son said she had been sleeping. She

fell

> through her door(we live in an old trailer), the door fell down,

she laid

> there a good five minutes, like she was asleep, and finally got up

and got

> on the couch. She has no recollection. Does this have anything to

do with

> the thyroid? She runs low temps too. I have had her thyroid

tested, and it

> has turned out fine everytime. I don't know the results, I

misplaced them,

> but her frees as well as her TSH were tested.

>

>