Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Hi , You sound positively miserable. I am so sorry. And a doc appt. on Jan. 22. That doesn't sound near soon enough for all the pain you are in. Can they do anything for your lungs at the ER? You have been having this trouble with your lungs for awhile now...like I need to tell you that! I know you have been on a couple of rounds of antibiotics recently, I am just wondering if you need more. I know you can get through this day without a murder on your hands! I hope your in-laws will be very understanding and sympathetic. We don't want to see your name in the headlines! We care about you here! I really hope somehow you can see a doc this week and get things a little more under control. Keep us posted. Take care, Donna Need Will Power If anyone has any extra will-powerl handy, could you send some my way?We are to go to my in-laws today for our "Christmas" with them. I am inthe middle of one of the worst flares I have had in a long while. I hurtso bad it is not even funny, and am taking demerol to dim the pain.Nothing seems to really phase it.My back is nothing but spasm after spasm. I stand for awhile, then sitwhen I get exhausted, but sitting just kills me. For the last week, Ihave spent half my time standing behind the recliner, leaning on thechair. It seems to be the right height to prop up on .. it can take someof my weight, so my legs don't cramp up.My back doctor is in EUROPE .. and his partner wont give me anythingelse for pain until he sees me (first appointment with HIM .. January22) .. like right .. that is going to do me any good. So guess I have tomuddle through till my regular doc gets back in town.My breathing is the pits .. I feel like I am breathing through mud againas I am holding fluid so badly. I had to have my wedding ring cut offthis week.. I woke up and my finger was purple.This is the first time in a long time I have had a flare this bad .. andNOT had the face rash (thank goodness) .. but of course, that means Ihave no "outward sign" that I am ill. So .. I will have to endureanother round of "you don't look sick" crap from my in-laws and theirfriends who will be there as well.Gads .. I just hate this .. but will hold my tongue and go along with myhubby to keep the peace. But I swear, on 60 mg of prednisone, keeping mymouth shut is going to be hard. So don't be surprised if you see my namein the headlines .. "Woman goes Berserk! Kills In-laws .. she states"The prednisone made me do it!!"hugs .. "Rion""The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
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