Re: The SC diet and severly autistic children

[Guest guest]

Judy,

How wonderful for you, and your family!!!! All of our kids start in

different places and we need to realize that. None of us know where we are

going

on this journey. Thank you for sharing your story I'm going to be sooo happy

all day thinking about ~Sheri mom to 8 asd/scd 3months and

ph and a

[Guest guest]

Judy!

I am overjoyed to hear your report. I well remember you telling us

about on the list in November.

I'm so glad to hear that he isn't hurting himself anymore. You

never know how much he'll learn once he feels better!

God bless!

Sue (from Pickering)

Mom to , 4, formerly? ASD, SCD 9 1/2 months

> Hi all,

> 2 months ago I posted a letter entitled, " When is it long enough

to

> know that the diet isn't going to work? " Well - the answer was:

> that wasn't long enough - because the diet is most certainly

helping

> my son. This is the first time in the almost 8 years since he was

> diagnosed that something has really helped....

>

> I've been reading on this list that people are questioning whether

> or not this diet can help severly autistic children. The answer

to

> that one is obviously yes. Perhaps will never recover

> but...even if this is as far as we go, every ounce of effort on my

> part is more than worth it.

>

> is profoundly autistic. He has only a tiny bit of expressive

> language - just a few words to request things he wants. And his

> articulation is so awful that none of you would understand these

> utterances. He is a manic stimmer, extremely hyperactive, doesn't

> play appropriately with anything and has zero academic skills. He

> will be 10 in March. He was diagnosed at 2 at which time his

> communication skills were tested at the level of a new-born. He

> also is so immune suppressed that he requires gamma globulin IVs

> every 3 weeks, has colitis, cryptitis and lymphoid nodular

> hyperplasia and was, - until this diet - was completely Prednisone

> dependent. He also had developed, over the last few years,

multiple

> self-abusive habits, including finger bending, biting his lips and

> finger tips until they were bloody pulps, hitting himself against

> the furniture, etc.

>

> We started the SC diet in mid-September. almost immediately

> developed unbelievable, explosive diarrhea which lasted for weeks,

> prompting that depressed letter in November or so. You all were

so

> supportive that I stuck with it and, at 3 months, started on

a

> tiny amount of yogurt. Within 24 hours of that first dose, the

> diarrhea cleared up to the extent that now, he is only having 2 or

3

> bowel movements a day, and they are mostly formed! (Compare this

to

> pre-SCD when, off Prednisone, he would have 15 or so a day....)

>

> On top of this, all self-abusive habits have vanished, he is

eating

> at least 2 meals a day (as opposed to none or 1 a day pre-SCD),

and

> looks healthier than he has in years. He is maintaining an

adequate

> weight, sleeping through the night....His notes home from school

are

> glowing: he is attending to his work better, much calmer, happier

> and less hyperactive. His eye contact is markedly improved.

>

> No, we have not seen any language or cognitive improvements. I

now

> have hopes though that we may some day. And even if we don't -

> is so much happier that I can't even think about it without

crying.

>

> I have spoken to Bernie Rimland and Sid Baker about the SC diet.

> was a kid that NOTHING has ever helped...Until now. They

have

> now invited Elaine to speak at the DAN! conference in Washington

> this coming April and...she has accepted. I am beyond thrilled.

>

> Thank you all for helping me through that awful time in the

> beginning. Moms of severly autistic children - DO NOT give up.

> This may not be a cure but it certainly is a help.

>

> Love,

> Judy Gorman

[Guest guest]

Judy,

Thanks so very much for letting us know your great news! I'm so happy for you.

What a wonderful gift...... and I just know you will keep seeing more and more

positive changes. Thanks for sharing...... you've given a real boost to some of

the new parents.

Patti, mom to Katera, SCD 8 months

----- Original Message -----

<<You all were so supportive that I stuck with it and, at 3 months, started

on a tiny amount of yogurt. Within 24 hours of that first dose, the

diarrhea cleared up to the extent that now, he is only having 2 or 3

bowel movements a day, and they are mostly formed!>>

[Guest guest]

Judy, this is just fabulous!! Congratulations for all your

perseverance, and thanks for letting us know... I remember that Nov

post!

-- Sue, mom to Adam and

SCD 3 months