Re: It's a brand new adventure! Biopsy comes back hot

[Guest guest]

,

You asked:

what additional prep items (lab, etc) should I insure.

Have you had bone, MRI or PET scans?

What questions am I not asking but should ask tomorrow.

How can you doc be sure it hasn't spread? EmersonFaith-Love-Hope-Winwww.flhw.org"the Big C"

It's a brand new adventure! Biopsy comes back hot

OK:

So I got my Sunday morning Christmas Eve call from the urologist with my pathology from Dianon Labs. Gleason 4+4 for 8. The pre-biopsy PSA was 9.3; 1.09 Free. The tumor is classed as a T2a. Tomorrow, after my Christmas Day fire shift, I’ll stop by and see this doc (surgeon) for consult. I also am seeing a second doc that specializes in seeds or holistic approaches and provided me with the advance HIFU info. Doesn’t that HIFU look promising!

So…. I’m seeing an aggressive cancer that appears contained, but may require further blood testing to check on it’s progress, yes? Should the indicators be that the CA is contained in the capsule, then I’m wondering if I have time to wait around for the US trials on the HIFU (or even if I’d be selected). I’m hitting the multi-vits, the saw palmetto, the pomegranate juice, and throttling back on the red meats. Tofu won’t be a problem to find here in the People’s Republic of Boulder ( Colorado ).

I’m 53, good health, great marriage, great family and job support.

I’m thinking to have the slides at Dianon shipped to Bostwick for a second look-see and staging. Tomorrow I’ll find out which/how many of the sextant (actually 13 samples) were hot. My surgery doc did say that the base/mid/apex all are affected on the left side. I have the main shots of the ultrasound imaging in my new little notebook that I’m starting. It has all my labs, the Michigan “Making the Choice” folder on early cancer decision making, and Terry’s fine booklet.

I also have Dr. Strum and Donna Pogliono’s fine book, “A Primer on Prostate Cancer”—Hey, what a great “MAN” format. Easy to read, lots of pictures, color coded cues, insets like magazines—Did you know ADHD men would be reading this, Donna? Nice! I marvel just at the format—even though the content is fascinating.

So, I’m on the roller coaster ride Brothers and Warrior pal Sisters. It’s a whole new adventure!

My questions to the group are:

what additional prep items (lab, etc) should I insure.

What paperwork from every doc do I need to compile?

And what is the current status/experience with HIFU should I be a candidate?

What questions am I not asking but should ask tomorrow.

The gent I went to for the biopsy, while professional was ROUGH! I’ll be sharing that with him. An ER doc I work with said that while he has tremendous respect for his urologist pals, his own impression is that many ARE rougher than he is during catheterization and rectal exams—even though my pal works in the time sensitive trauma theater. Is this others’ experience? My own family doc and the second urologist are a world more gentle with blunt to sharp objects in tender places….

(I work down at Littleton Fire)

Oh, I almost forgot! A very Merry Christmas and Happy Holidays to those on the list.

My new gift is to encourage firefighters who (Univ of Cincinnati study) are 28% more likely to have Prostate CA than the general population and perhaps acquire the cell damage earlier in life.

Sondeen

esondeenearthnet (DOT) net

Being there for those who were there for us…

Supporting families and survivors of injured/killed Wildland Firefighters

“Give a Buck a Week for a Buddy” The 52 Club

Wildland Firefighter Foundation www.WFFoundation. org

[Guest guest]

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Thanks for your nice comments on the Primer. I'm so far behind in mail that I just saw this now. Grrr....

We knew alot of older people would be reading the book so we chose large print and a format that would function somewhat like a "workbook" with important passages of test highlighted and summaries called "What You Should Have Learned From This Chapter" and finally a section called "What You Should Have Learned From This Book".

We can thank Life Extension Foundation for the full four color print job. They allowed us the freedom to make the book as beautiful as we wanted, as well as giving us complete artistic freedom and absolute control over the content of the book.

I hope you get alot out of the book and keep it handy while you deal with your Gleason 8 cancer. I'm not sure I'd wait for HIFU. You have many other options.

Donna Pogliano

Co-author of "A Primer on Prostate Cancer, The Empowered Patient's Guide"

It's a brand new adventure! Biopsy comes back hot

I also have Dr. Strum and Donna Pogliono’s fine book, “A Primer on Prostate Cancer”—Hey, what a great “MAN” format. Easy to read, lots of pictures, color coded cues, insets like magazines—Did you know ADHD men would be reading this, Donna? Nice! I marvel just at the format—even though the content is fascinating.

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