New Member GS 9

Posted December 26, 2006 · December 26, 2006

Welcome to bethkepaul

bethke3@... who has

joined the ProstateCancerSupport group and says:

Recently

Dx with Prostate Cancer PSA of 14 Gleason score of 9. Scheduled for CT scan and

bone scan on 12/28/06. Possible surgery scheduled for 1/25/07.

Sorry to hear of your diagnosis but welcome to the

club you never wanted to join. No doubt you’re in a bit of a state of

shock, and perhaps feeling isolated. You’ll find plenty of friendly folk

on this List who will do what they can to help you through.

You might find it useful to visit YANA

- You Are Not Alone Now www.yananow.net a site set up for newly

diagnosed people. The first section gives some basic information in plain

language with links to more complex and technical sites. The second section of

the site is where men are invited to tell their prostate cancer stories and how

they arrived at their decisions regarding treatment. Many people have mailed to

say how useful they have found this, especially because most of the men are

happy to respond to specific questions. The section of the site can be found by

clicking the link labelled Experiences or going to http://www.yananow.net/Experiences.html

But in any event, please post some details of

your diagnosis – your Age, your PSAs leading up to the diagnosis, and

Staging (these terms are all explained on the YANA site) and any questions you

might have. Just remember – there are no dumb questions. We all started

off where you are now, but we’ve collectively learned a lot over the

years.

All the best,

Terry Herbert in Melbourne,

Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2:

Gleason 3+3=6: No treatment. November '06 PSA 31.4

My site is at www.yananow.net

As a physician, I am painfully aware that

most of the decisions we make with regard to prostate cancer are made with

inadequate data: Dr

“Snuffy” Myers.

Posted December 27, 2006 · December 27, 2006

Hi Bethkepaul,

If you have a Gleason of 9, if it were me, I would not be considering

surgery. You should see a good oncologist who specializes in

prostate cancer therapy. With such a high Gleason the odds are

great that the cancer is systemic or outside the prostate. In that

case, surgery would not be curative.

Remember that cancer cells are microscopic. So even with a

negative bone scan, it is no guarantee that the cancer has not

escaped the prostate.

If it were me, I would opt for hormone ablation therapy. This

therapy will treat the cancer no matter where it may be in your

body.

I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision

Welcome to bethkepaul bethke3comcast (DOT) net who has joined the ProstateCancerSupport group and says:

Recently Dx with Prostate Cancer PSA of 14 Gleason score of 9. Scheduled for CT scan and bone scan on 12/28/06. Possible surgery scheduled for 1/25/07.

Posted January 12, 2007 · January 12, 2007

This is 's wife Jan...His CT Scan and bone scan came out clean.

His Urologist rec. surgery and it is scheduled for 2/9/07. A little

history... is 59 years old and just retired on Oct.1, 2006. He

has had prostate problems for years and has been on Hytrin and

currently Flomax. This past Summer, he had more difficulty than

usual...alot of pain when lifting or riding his motorcycle. He vowed

to get it looked at once he got his heart back in rhythmn, as he has

been fighting bouts of Atrial Fibrillation since 2001. His first

response to the diagnosis was to have the surgery because of the

other problems with the prostate too. Even though the scans were

negative, he does have a very aggressive cancer (G=9) and taking out

the prostate will show if it has spread from the P gland. I have read

the book the doctor gave us and lots of info online, but would

appreciate some feedback from those who have been there. Thanks, Jan

>

> Hi Bethkepaul,

>

> If you have a Gleason of 9, if it were me, I would not be

considering

> surgery. You should see a good oncologist who specializes in

> prostate cancer therapy. With such a high Gleason the odds are

> great that the cancer is systemic or outside the prostate. In that

> case, surgery would not be curative.

>

> Remember that cancer cells are microscopic. So even with a

> negative bone scan, it is no guarantee that the cancer has not

> escaped the prostate.

>

> If it were me, I would opt for hormone ablation therapy. This

> therapy will treat the cancer no matter where it may be in your

> body.

>

> I wish you all the best

>

> Aubrey Pilgrim, DC (Ret.) Author of

> A Revolutionary Approach to Prostate Cancer-Read the original book

> for FREE at:

_http://www.prostatepointers.org/prostate/lay/apilgrim/_

> (http://www.prostatepointers.org/prostate/lay/apilgrim/)

> Read new edition for FREE at

> _http://www.cancer.prostate-help.org/capilgr.htm_

(http://www.cancer.prostate-help.org/capilgr.htm)

> Dr. E. Crawford is co-author of the revision

>

> In a message dated 12/26/2006 10:02:10 P.M. Eastern Standard Time,

> ghenesh_49@... writes:

>

> Welcome to bethkepaul _bethke3@..._ (mailto:bethke3@...)

> who has joined the ProstateCancerSuppowho has joined the

> Recently Dx with Prostate Cancer PSA of 14 Gleason score of 9.

Scheduled for

> CT scan and bone scan on 12/28/06. Possible surgery scheduled for

1/25/07.

>

Posted January 12, 2007 · January 12, 2007

Hi Jan,

Again, PLEASE HAVE YOUR HUSBAND GET A SECOND OPINIION!!!

With a Gleason of 9, surgery may not be curative. It will only add to his

problems. He should see a good oncologist who specializes in prostate

cancer.

However, it is his body and his responsibility to make the decision. But

if it were me, I would post pone the surgery and do some more research

and get a second opinion from someone who is not a surgeon.

I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision

This is 's wife Jan...His CT Scan and bone scan came out clean. His Urologist rec. surgery and it is scheduled for 2/9/07. A little history... is 59 years old and just retired on Oct.1, 2006. He has had prostate problems for years and has been on Hytrin and currently Flomax. This past Summer, he had more difficulty than usual...alot of pain when lifting or riding his motorcycle. He vowed to get it looked at once he got his heart back in rhythmn, as he has been fighting bouts of Atrial Fibrillation since 2001. His first response to the diagnosis was to have the surgery because of the other problems with the prostate too. Even though the scans were negative, he does have a very aggressive cancer (G=9) and taking out the prostate will show if it has spread from the P gland. I have read the book the doctor gave us and lots of info online, but would appreciate some feedback from those who have been there. Thanks, Jan

Posted January 13, 2007 · January 13, 2007

Hi Jan-

I have a-fib

Ride motorcycles

Am 58 yrs

Had prostate surgery 9/1/06

Feeling better than in years

Wonder if gleason level has anything to do

with the irritation from riding etc or afib meds such as amiodorone.

Suggest you get as much expert help as

possible on the gleason score issue. You could very well have some sort

of other interaction going on.

Good Luck and keep us posted.

Bob P

Re: New Member GS 9

This is 's wife

Jan...His CT Scan and bone scan came out clean.