RE: Re: 43 year old 25.7PSA Gleason 8

[Guest guest]

Beau,

Just to clarify one point. When you say <snip>

Incontinence and impotence, which unfortunately come with the other therapies,

are not an issue with Proton Therapy.<snip> you are not correct. Erectile

dysfunction appears to affect all the Proton Beam men over a period of time, al

least according to one man who contacted the ‘old timers’on Proton

Bob. There are also reported cases of incontinence. I believe that both side

effects may well be lower than those from neutron or photon beam treatments and

I personally think that proton beam at Loma Lind has a lot going for it, but

your statement is simply not correct.

All the best,

Terry Herbert in Melbourne, Australia

Diagnosed ‘96: Age

54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. November '06 PSA 31.4

My site is at www.yananow.net

As a

physician, I am painfully aware that most of the decisions we make with regard

to prostate cancer are made with inadequate data: Dr

“Snuffy” Myers.

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of manofspring_2000

Sent: Wednesday, 27 December 2006

5:53 PM

To:

ProstateCancerSupport

Subject:

Re: 43 year old 25.7PSA Gleason 8

,

I think in terms of being single and no children, my situation is the

same as yours. My diagnosis is " localized " PCa. So initially I opted

for robotic surgery. It seemed to me at the time that this was the

best option. However when I was getting ready for the side effects of

surgery I discovered the Proton Beam Therapy at Loma .

The bottom line is: Side effects are minimal. Which means the 2 fears

I had, Incontinance and impotence, which infortunatly come with the

other therapies, are not an issue with Proton Therapy.

As far as having children, I'm planning to go to a sperm bank before

starting the therapy.

So give it a shut and contact the good people of Loma and find

out what they can do for you. That's another option that is usually

not offered or talked about by the establishment. Some by ignorance

others for economic reasons. But it's there and worth looking into.

Good luck and my best for 2007.

Beau

> >

> > Thank you for all the responses but I must say with different

> > responses I have read I feel as thought the whole story has not

been

> > told. I was diagnosed feb 06 with A psa of 20.5 I had a biopsy two

> > weeks later that found 11 out of 12 spores cancerous. I have had 6

> > appointment with doctors....3 urologist's 1 radiation oncologist

and

> > a prostate oncologis. I have been told that hormone treatment

> > followed by imrt radiation would be my only choice because the

> > cancer has escaped the capsule. I have been told that there is a

> > very low chance of cure but a little chance is better than none.

The

> > radiation oncologist and the uroligist do not agree with each

other,

> > the urologist states that I will be impotant for life after

hormoes

> > and radiation and the radiation oncologist says that's not true,

now

> > understanding the chance of reaccurance is very high but the side

> > effect will be 100% especially during hormone treatment...Now

all

> > the responses I get revolve around sex and how important it is or

> > not. If i was 62 60 59 70 68 I would not feel like it'a a big deal

> > but I am 43 with no children or married living in santa monica

> > california.

My last visit with the urologist went like this "

> > charles I think if you had started the treatment in feb when we

> > discovered this it would not had made a difference.....Who said

> > thinking with the other head does is not good. I have been told so

> > many thing by so many doctors I really don t know who to

beleive.The

> > only common theme is that they all say life aint fair ! so for

those

> > who think I do not want to go through treatment because I want to

> > have a few years of sex is wrong. I just dont want to throw away

any

> > time feeling good for side effects with a little chance of

actually

> > getting better. I will diet excersive and hope for the best. I f

you

> > close to my age please tell me what you would do...lets see.. if

> > your not close to my age tell what you would do if you were my

age.

> >

> >

> >

>

>

>

> --

> /}

> @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::>

> \} http://tomrue.net

> http://vitruvian.tomrue.net

>

[Guest guest]

Hi Beau,

I didn’t think you were ‘pushing’

proton beam – merely expressing your views and understanding, which is

fair enough. That’s what most of us do, one way or the other. As I said

in my mail, I agree with you regarding the probability that Proton Beam is a

superior treatment option.

I can’t quote you chapter and verse

regarding incontinence and erectile dysfunction – there are a couple of

references from my files below. What I was referring to was a man I have

been corresponding with him for some months now as he has been

undertaking a serious comparison with all treatment options available

to him. He told me that after contacting members of Proton Bob with ten years

behind them he found that all of them had erectile dysfunction that had

developed over the years since treatment. He said they all expressed the view

that otherwise they were happy with their original decision and that many of

them felt that their loss of erectile function was perhaps due to age as much

as anything else.

Here are three extracts:

<snip> Proton-beam therapy is now

approved to treat a variety of cancers, but it has been studied most thoroughly

as a treatment for prostate cancer. For example, a recent study of more than

1,200 men with localized prostate cancer found that survival rates for those

treated with proton-beam therapy matched or exceeded those of men who had

conventional treatment — but the proton-beam patients had lower rates of

impotence, incontinence and other adverse side effects. <snip> http://www.ucdmc.ucdavis.edu/synthesis/features/in_translation.html

<s A recent five-year study of men with

early-to-late prostate cancer at LLUMC's Proton Treatment Center tracked nearly

600 men with localized prostate cancer and after five years researchers found

that the overall disease-free survival rate was 89 percent with far fewer risks

of life-style changes and activity-diminishing side effects commonly associated

with x-ray radiation or surgery <snip> . http://www.proton-therapy.org/pr09.htm

Table 4 in http://www.oncolink.org/treatment/article.cfm?c=9 & s=70 & id=211

shows an estimated 30% for ED following proton beam treatment and less than 1%

for incontinence.

All the best

Terry Herbert

in Melbourne Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason

3+3=6: No treatment. June '04: TURP. Nov '06 PSA 31.4

My site is at www.prostatecancerwatchfulwaiting.co.za

It is a tragedy of the world that no one

knows what he doesn’t know, and the less a man knows, the more sure he is

that he knows everything. Joyce Carey

From: ProstateCancerSupport

[mailto:ProstateCancerSupport ]

On Behalf Of manofspring_2000

Sent: Tuesday, 2 January 2007 8:04 AM

To: ProstateCancerSupport

Subject: Re: 43 year old 25.7PSA Gleason 8

Terry,

Sorry for not answering earlier.

I realize that my last post sounds as if I was pushing Proton Beam

Therapy. It is not my intention. What I was trying to say is Proton

is an option that is worth investigating. Studies show that side

effects arfe less then other mobalities. As far as incontinance and

ED are concerned, my understanding (I stress MY UNDERSTANDING) is

that they are minimal specially compared to RP. I did worry about

long term onset of ED and did ask proton old timers about it. The

answer seems to be that side effects do not increase with time.

I'd love to see the info you have and compare it with the feedback I

have gotten.

Again I am not pushing a specific approach.

Good luck all and happy new year.

Beau

> > >

> > > Thank you for all the responses but I must say with different

> > > responses I have read I feel as thought the whole story has not

> been

> > > told. I was diagnosed feb 06 with A psa of 20.5 I had a biopsy

two

> > > weeks later that found 11 out of 12 spores cancerous. I have

had 6

> > > appointment with doctors....3 urologist's 1 radiation

oncologist

> and

> > > a prostate oncologis. I have been told that hormone treatment

> > > followed by imrt radiation would be my only choice because the

> > > cancer has escaped the capsule. I have been told that there is a

> > > very low chance of cure but a little chance is better than

none.

> The

> > > radiation oncologist and the uroligist do not agree with each

> other,

> > > the urologist states that I will be impotant for life after

> hormoes

> > > and radiation and the radiation oncologist says that's not

true,

> now

> > > understanding the chance of reaccurance is very high but the

side

> > > effect will be 100% especially during hormone treatment...Now

all

> > > the responses I get revolve around sex and how important it is

or

> > > not. If i was 62 60 59 70 68 I would not feel like it'a a big

deal

> > > but I am 43 with no children or married living in santa monica

> > > california.

My last visit with the urologist went like this "

> > > charles I think if you had started the treatment in feb when we

> > > discovered this it would not had made a difference.....Who

said

> > > thinking with the other head does is not good. I have been told

so

> > > many thing by so many doctors I really don t know who to

> beleive.The

> > > only common theme is that they all say life aint fair ! so for

> those

> > > who think I do not want to go through treatment because I want

to

> > > have a few years of sex is wrong. I just dont want to throw

away

> any

> > > time feeling good for side effects with a little chance of

> actually

> > > getting better. I will diet excersive and hope for the best. I

f

> you

> > > close to my age please tell me what you would do...lets see.. if

> > > your not close to my age tell what you would do if you were my

> age.

> > >

> > >

> > >

> >

> >

> >

> > --

> > /}

> > @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::>

> > \} http://tomrue. <http://tomrue.net> net

> > http://vitruvian. <http://vitruvian.tomrue.net>

tomrue.net

> >

>