New Member - newly diagnsoed

[Guest guest]

Welcome to the following person who has joined the

ProstateCancerSupport group:

Email address: lkthelen2 lkthelen@...

Comment from user:

I have been recently

diagnosed with PC. Gleason score is 7, PSA 11.4.

The biopsy indicated that

my cancer is limited to the right side.

Looking for help deciding

what course to take.

Thanks

Sorry to hear of your diagnosis but welcome to the

club you never wanted to join. No doubt you’re in a bit of a state of

shock, and perhaps feeling isolated. You’ll find plenty of friendly folk

on this List who will do what they can to help you through.

You might find it useful to visit YANA

- You Are Not Alone Now www.yananow.net a site set up for newly diagnosed

people. The first section gives some basic information in plain language with

links to more complex and technical sites. The second section of the site is

where men are invited to tell their prostate cancer stories and how they

arrived at their decisions regarding treatment. Many people have mailed to say

how useful they have found this, especially because most of the men are happy

to respond to specific questions. The section of the site can be found by

clicking the link labelled Experiences or going to http://www.yananow.net/Experiences.html

.. Just remember – there are no dumb questions.

We all started off where you are now, but we’ve collectively learned a

lot over the years.

All the best,

Terry Herbert in Melbourne, Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2:

Gleason 3+3=6: No treatment. November '06 PSA 31.4

My site is at www.yananow.net

As a physician, I am painfully aware that

most of the decisions we make with regard to prostate cancer are made with

inadequate data: Dr

“Snuffy” Myers.

[Guest guest]

>

>

> Email address: lkthelen2 lkthelen@...

>

>

>

> Comment from user:

>

> I have been recently diagnosed with PC. Gleason score is 7, PSA

11.4.

>

> The biopsy indicated that my cancer is limited to the right side.

>

> Looking for help deciding what course to take.

>

> Thanks

>

>Welcome to the club I guess. I was pretty much in your shoes last

November, 05. Some of this depends on your age and overall physical

condition. I put a lot of trust in my urologist and followed his

recommendation for surgery. Having watched my dad die of this cancer

I knew just what the long term results can be and I wanted the best

shot at eliminating the cancer. I'd suggest right now starting on

an extreme health kick, diet and exercise, which I think helped me

to get back to normal pretty quick after surgery. The good thing

about all this is the early warning that medical science has

provided us in this situation, you have plenty of time to decide how

to proceed and a really good chance of a full cure of the disease.

For sure, the internet is full of information on this, but as a

nurse told me, don't believe all you read, everybody is different

and results vary.

[Guest guest]

I was diagnosed with PCa in August of this year (on my wedding anniversary - a present we will always remember) I realized very quickly that my course of treatment had to be my decision. I was frantic to make a decision when one doctor advised me not to rush into anything. The cancer is early and it is not like having a heart attack, do not deny the cancer or delay the decision forever but take some time to research your options because you will have to live with any side or after effects of treatment the rest of your life. I spoke with three different urologists. The first recommended open surgery. I read the the laproscopic robotic was less invasive and asked if he did the robotic. He said he did not. I asked why. He honestly answered that it takes almost 4 hours to calibrate and align the equipment and he can do open surgery in 1.5 to two hours so

he can do 4 a day open surgeries and only two a day robotic. Good economically for him but not what I wanted to hear. If you want to hear my other experiences e-mail me directly and I will be happy to share. The bottom line is do your research, talk to people and make the decision that is right for you as an individual and be confident that it is the correct decision for you. If you go to one of APilgrim's posts there is a link to his online book that talks about treatment options and has a good chapter on Proton Therapy. (Thanks Aubrey, that was my starting point). Also go to the YANA site and not only read the stories but e-mail the men most will be happy to share their experiences. (thanks Terry it is a great resource) I also used several of those men as resources as I was doing research. I chose Proton Therapy and am satisfied that it is the best treatment for me. I just finished my fourth treatment and I feel great.

I am undergoing treatment at Loma University Medical Center however the first link below is from the University of Pennsylvania and is a real good down to earth explaination. I included a few other links on Proton Therapy that will help. The bottom line is you are at the right place to get a lot of information. Use this resource listen to the advice of the people, evaluate what they say and then make your own decision and be confident that is is right for you. Good Luck.

Age 57

PSA 6.6

Gleason 3+3=6

http://www.oncolink.upenn.edu/treatment/treatment.cfm?c=9

http://www.protonbob.com/proton-treatment-homepage.asp

http://www.optivus.com/whatispt.htmhttp://en.wikipedia.org/wiki/Proton_therapy

New Member - newly diagnsoed

Welcome to the following person who has joined the ProstateCancer Support group:

Email address: lkthelen2 lkthelencomcast (DOT) net

Comment from user:

I have been recently diagnosed with PC. Gleason score is 7, PSA 11.4.

The biopsy indicated that my cancer is limited to the right side.

Looking for help deciding what course to take.

Thanks

Sorry to hear of your diagnosis but welcome to the club you never wanted to join. No doubt you’re in a bit of a state of shock, and perhaps feeling isolated. You’ll find plenty of friendly folk on this List who will do what they can to help you through.

You might find it useful to visit YANA - You Are Not Alone Now www.yananow. net a site set up for newly diagnosed people. The first section gives some basic information in plain language with links to more complex and technical sites. The second section of the site is where men are invited to tell their prostate cancer stories and how they arrived at their decisions regarding treatment. Many people have mailed to say how useful they have found this, especially because most of the men are happy to respond to specific questions. The section of the site can be found by clicking the link labelled Experiences or going to http://www.yananow. net/Experiences.

html

.. Just remember – there are no dumb questions. We all started off where you are now, but we’ve collectively learned a lot over the years.

All the best,

Terry Herbert in Melbourne , Australia

Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. November '06 PSA 31.4

My site is at www.yananow. net

As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data: Dr “Snuffy” Myers.

[Guest guest]

Thanks - Any one can read or download my book for free.

There are chapters in my book about all the treatment options except

High Intensity Focused Ultrasound. Over 20 Medical doctors wrote

chapters and articles for the book.

I just want to help. Go to the instructions below my signature.

I wish you all the bestAubrey Pilgrim, DC (Ret.) Author ofA Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htmDr. E. Crawford is co-author of the revision

I was diagnosed with PCa in August of this year (on my wedding anniversary - a present we will always remember) I realized very quickly that my course of treatment had to be my decision. I was frantic to make a decision when one doctor advised me not to rush into anything. The cancer is early and it is not like having a heart attack, do not deny the cancer or delay the decision forever but take some time to research your options because you will have to live with any side or after effects of treatment the rest of your life. I spoke with three different urologists. The first recommended open surgery. I read the the laproscopic robotic was less invasive and asked if he did the robotic. He said he did not. I asked why. He honestly answered that it takes almost 4 hours to calibrate and align the equipment and he can do open surgery in 1.5 to two hours so he can do 4 a day open surgeries and only two a day robotic. Good economically for him but not what I wanted to hear. If you want to hear my other experiences e-mail me directly and I will be happy to share. The bottom line is do your research, talk to people and make the decision that is right for you as an individual and be confident that it is the correct decision for you. If you go to one of APilgrim's posts there is a link to his online book that talks about treatment options and has a good chapter on Proton Therapy. (Thanks Aubrey, that was my starting point). Also go to the YANA site and not only read the stories but e-mail the men most will be happy to share their experiences. (thanks Terry it is a great resource) I also used several of those men as resources as I was doing research. I chose Proton Therapy and am satisfied that it is the best treatment for me. I just finished my fourth treatment and I feel great.

I am undergoing treatment at Loma University Medical Center however the first link below is from the University of Pennsylvania and is a real good down to earth explaination. I included a few other links on Proton Therapy that will help. The bottom line is you are at the right place to get a lot of information. Use this resource listen to the advice of the people, evaluate what they say and then make your own decision and be confident that is is right for you. Good Luck.

Age 57

PSA 6.6

Gleason 3+3=6

[Guest guest]

Hi, Welcome to the group, I'm sure you will find everyone is friendly and has a lot of information. My own experience has come about from my father being recently diagnosed with pca - PSA 19, Gleason 3+4 = 7. Further tests of MRI and Bone Scan show it has not gone elsewhere and at the moment he is having hormone treatment via an implant in his stomach. I know the terrified alone feeling but this group helped me and my family answer the questions we had and gave us all hope. Take care, Clare Terry Herbert wrote: Welcome to the following person who has joined the ProstateCancerSupport group: Email address: lkthelen2 lkthelencomcast (DOT) net Comment from

user: I have been recently diagnosed with PC. Gleason score is 7, PSA 11.4. The biopsy indicated that my cancer is limited to the right side. Looking for help deciding what course to take. Thanks Sorry to hear of your diagnosis but welcome to the club you never wanted to join. No doubt you’re in a bit of a state of shock, and perhaps feeling isolated. You’ll find plenty of friendly folk on this List who will do what they can to help you through. You might find it useful to visit YANA - You Are Not Alone Now www.yananow.net a site set up for newly diagnosed people. The first section gives some basic information in plain language with links to more complex and technical sites. The second section of the site is where men

are invited to tell their prostate cancer stories and how they arrived at their decisions regarding treatment. Many people have mailed to say how useful they have found this, especially because most of the men are happy to respond to specific questions. The section of the site can be found by clicking the link labelled Experiences or going to http://www.yananow.net/Experiences.html . Just remember – there

are no dumb questions. We all started off where you are now, but we’ve collectively learned a lot over the years. All the best, Terry Herbert in Melbourne, Australia Diagnosed ‘96: Age 54: Stage T2b:

PSA 7.2: Gleason 3+3=6: No treatment. November '06 PSA 31.4 My site is at www.yananow.net As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data: Dr “Snuffy” Myers. Send instant messages to your online friends http://uk.messenger.yahoo.com