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Re: worse since SCD

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Hi Judy,

wasn't quite that severe, but she did have very bad, never

seen before tantrums for 8 (EIGHT) weeks after we started SCD. Plus

some eye stims developed that we had never seen before.

The general consensus is that these behaviours are from die-off.

Only you can decide if that is the case with your son.

Sure hope things get better for you soon.

Sue (from Pickering)

Mom to , 4, formerly? ASD, SCD 9 1/2 months

> My asd 2 year old son has been on SCD for 6 weeks. We did the

intro

> diet for 2 weeks, and introduced new foods slowly. We have done

> everything by the book. Currently he is eating pearsauce,

applesauce,

> meatloaf with tomato juice and pasley and onion, banana, peanut

> butter pancakes (banana, peanut butter and 2 eggs and baking

soda)

> He also eats butternut and spagetti squash. The last 6 weeks we

> have seen a totally different child. He lines things up and runs

> around the room in circles. If he is stopped he has a meltdown.

He

> has tantrums all of the time. He is also on Nystatin for 1 week,

> however, he has been on Nystatin before when he was GFCF and did

not

> react this way. Help!!!

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Oh man, it sounds like you are having an awful time! I have to say that

my son would definitely act this way also if we gave him applesauce,

peanut butter, bananas or tomato juice. Either it's die off, or maybe

there are some other food intolerances. Bananas and tomatoes are high

in phenols and salycilates, apples are very high in salycilates and I

believe peanuts are high in phenols as well. Many, but not all, ASD

children have trouble with these foods. Being on SCD can heal the gut

eventually so that these foods can be tolerated, but it doesn't happen

overnight, as I am sure you already know. Maybe you could experiment

with cutting out apples, just using pears, try cashew or macadamia

butter. Will he eat meatloaf without the tomato juice? My son loves it

when I grind up pork or beef and make little bite sized meatballs. We

just add garlic and some herbs, and use some olive oil, and they turn

out great. The tantrums and the stims sound like he's getting something

that doesn't agree with him. Also, did you have the Nystatin done by a

compounding pharmacy? I think I remember ingredients that were not OK

for SCD, or even gf/cf. Whatever you do, good luck! Figuring all this

out is so hard. Our kids are such puzzles. What is fine for one kid

makes the next kid extremely autistic.

Best Wishes,

> My asd 2 year old son has been on SCD for 6 weeks. We did the

intro

> diet for 2 weeks, and introduced new foods slowly. We have done

> everything by the book. Currently he is eating pearsauce,

applesauce,

> meatloaf with tomato juice and pasley and onion, banana, peanut

> butter pancakes (banana, peanut butter and 2 eggs and baking

soda)

> He also eats butternut and spagetti squash. The last 6 weeks we

> have seen a totally different child. He lines things up and runs

> around the room in circles. If he is stopped he has a meltdown.

He

> has tantrums all of the time. He is also on Nystatin for 1 week,

> however, he has been on Nystatin before when he was GFCF and did

not

> react this way. Help!!!

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I agree. Who's to say what exactly is going on (die-off, intolerances etc.),

but an important reminder was stated in the below post that is critical for

newbies: A legal food is not necessarily a tolerated food for *your* child.

Introduce foods s-l-o-w-l-y and carefully to see what may cause what

reaction.

Marisol

> Subject: RE: Re: worse since SCD

>

>

> Oh man, it sounds like you are having an awful time! I have to say that

> my son would definitely act this way also if we gave him applesauce,

> peanut butter, bananas or tomato juice. Either it's die off, or maybe

> there are some other food intolerances. >

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In the beginning fruit will still feed the yeast, so best to limit

and possibly exclude for a little while. Peanut butter and cashew

butter are both very moldy and will also encourage yeast growth, so

avoid them too in the begining. I know it's so hard changing all

this food around. Do the best you can. Good luck,

, mom to , almost 4, ASD

, almost 2 ,leaky gut, still NT

SCD 4+ months

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" In the beginning fruit will still feed the yeast, so best to limit

and possibly exclude for a little while. Peanut butter and cashew

butter are both very moldy and will also encourage yeast growth, so

avoid them too in the begining. "

This post is not meant to start a fight about anything, but I feel

obligated to point out that this is not Elaine Gottschall's opinion

that on this topic.

This particular point of view is held by others who have written books

about yeast problems.

Since this list supports people who follow the SCD, we are following

what Elaine has written. She does not believe that fruit will feed

yeast.

Each parent has the right and obligation to do what he/she thinks is

best for his/her own child, but we do not recommend following the SCD

without fruit.

In the beginning of the diet it is important to remember that all

fruit must be peeled, deseeded and cooked, with the exception of very

ripe bananas (black spots on banana peel).

Jody

mom to -5.0 and -7.4

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the list has lost by angie maccauleys exclusion and elaines posts on

the subject on lyris tended to vary.

she was concerned about a lack of sugars in the diet from the

exclusion of fruit.

you just have to look at the yeast film on a grape to know that the

yeast fruit issue is not simple but the problems may relate more to

modulations of the immune system by some substances in some fruits

like mangos seem to retard the bodies anti fungal defences..........

thats why i'm quite keen on zinc methionine with scd but depeletion

of copper is a problem with to much zinc.

> " In the beginning fruit will still feed the yeast, so best to limit

> and possibly exclude for a little while. Peanut butter and cashew

> butter are both very moldy and will also encourage yeast growth, so

> avoid them too in the begining. "

>

>

> This post is not meant to start a fight about anything, but I feel

> obligated to point out that this is not Elaine Gottschall's opinion

> that on this topic.

> This particular point of view is held by others who have written

books

> about yeast problems.

>

> Since this list supports people who follow the SCD, we are following

> what Elaine has written. She does not believe that fruit will feed

> yeast.

>

> Each parent has the right and obligation to do what he/she thinks is

> best for his/her own child, but we do not recommend following the

SCD

> without fruit.

>

> In the beginning of the diet it is important to remember that all

> fruit must be peeled, deseeded and cooked, with the exception of

very

> ripe bananas (black spots on banana peel).

>

>

> Jody

> mom to -5.0 and -7.4

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Please do not advise others to exclude fruit on SCD....... Only you, as the

parent of your unique child, can decide what foods are not tolerated..... but

the kids need the carbohydrates and fruit and honey ARE allowed on SCD. Our list

is dedicated to following the diet as outlined in Breaking the Vicious Cycle, or

as closely to that as is possible. Some list members may have differing opinions

about yeast control....... but we know that Elaine does not encourage people to

limit or exclude fruit. If your child cannot tolerate a particular food due to

sensitivities, you will have to work around those in the beginning, of course.

Patti, mom to Katera, SCD 8 months

----- Original Message -----

In the beginning fruit will still feed the yeast, so best to limit

and possibly exclude for a little while. Peanut butter and cashew

butter are both very moldy and will also encourage yeast growth, so

avoid them too in the begining. I know it's so hard changing all

this food around. Do the best you can. Good luck,

, mom to , almost 4, ASD

, almost 2 ,leaky gut, still NT

SCD 4+ months

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