Quality of Life Questionnaires

[Guest guest]

Hello Everyone,

I hope this post finds you all well. I posted a few weeks back asking

if anyone would be willing to complete two questionnaires for me.

These questionnaires are aimed at evaluating the quality of life

individuals with prostate cancer, with the possibility of obtaining

funding to create a quality of life intervention of some sort.

I had a good response to my last post, but I still need more in order

to hit the 200 mark. If anyone would be kind enough to spare some

time, I would really appreciate it. If you are interested, please

contact me at:

nicnac234@...

In the meantime, a huge THANK YOU to all of those who have already

completed questionnaires for me; it has been such a help to my endeavours.

Best Wishes,

Nicola

[Guest guest]

Thank you to everyone who has contacted me again regarding the

questionnaires. I am slowly but surely getting closer to the 200

questionnaires that I need. I couldn't have done it without you!

Best Wishes,

Nicola

[Guest guest]

Hi Nicola.

The questionnaire was interesting. Keep me on your mailing list in case there's anything else I can do.

I don't know if this will interest you or not, but this morning I wrote a blog entry based on thoughts generated by one of the items on your questionnaire. (Actually, it was written as two separate pieces; the first, as a note posted in a newsgroup, and the second shortly after awakening this morning with some rather academic dream content still fresh in my mind.) See http://tomrue.net/?q=gender

Hope you don't mind the mention of your project. Let me know if anything is misrepresented.

Best wishes,

Tom

Thank you to everyone who has contacted me again regarding thequestionnaires. I am slowly but surely getting closer to the 200questionnaires that I need. I couldn't have done it without you!Best Wishes,

Nicola -- /} @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::> \} http://tomrue.net

http://vitruvian.tomrue.net

[Guest guest]

Hi Tom,

Thank you for your post and also your email. I will be replying to

your email; I have just been flying all over the place trying to get

as many questionnaires done before christmas as possible. It is going

really well though and it has helped me immensely to have your

insight. I especially enjoyed reading your blog and the thought

processes created by the questionnaire. It will be interesting to see

how that particular question (i.e. I am able to feel like a man) is

answered by people. It may be that it is difficult for participants

to define what to be a man actually is, as you have discussed in your

blog. I am also looking into quality of life in breast cancer, so the

same question is offered to women (i.e. I am able to feel like a

woman). It will be interesting to see if there are any differences

between the groups. For example, is the definition of 'woman' easier

to interpret dut to female portrayal in the media, etc. It may even

be that the question only has true meaning to those who have lost

particular functions that make them feel like a man/woman. This in

turn may be influenced by treatment type. Whatever the case may be, I

wonder if such a difficulty in question interpretation will affect any

of the other questions too? I will most certainly be keeping this in

mind when I analyse the results.

Thank you for the food for though, Tom. If you have anymore thoughts

on this, please do share. In the meantime, have a wonderful Christmas!

Best Wishes,

Nicola

> Hi Nicola.

>

> The questionnaire was interesting. Keep me on your mailing list in case

> there's anything else I can do.

>

> I don't know if this will interest you or not, but this morning I

wrote a

> blog entry based on thoughts generated by one of the items on your

> questionnaire. (Actually, it was written as two separate pieces; the

first,

> as a note posted in a newsgroup, and the second shortly after

awakening this

> morning with some rather academic dream content still fresh in my

mind.) See

> http://tomrue.net/?q=gender

>

> Hope you don't mind the mention of your project. Let me know if

anything is

> misrepresented.

>

> Best wishes,

> Tom

>

>

>

>

>

>

> >

> > Thank you to everyone who has contacted me again regarding the

> > questionnaires. I am slowly but surely getting closer to the 200

> > questionnaires that I need. I couldn't have done it without you!

> >

> > Best Wishes,

> >

> > Nicola

> >

> >

> >

>

>

>

> --

> /}

> @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::>

> \} http://tomrue.net

> http://vitruvian.tomrue.net

>

[Guest guest]

Hi Nicola.

I will be very interested in the results of your study. I hope that you will not forget to send me a copy when it's at a stage that you are comfortable doing so. If you would like to send it pre-publication, or pre-submittal, I will keep the copy to myself.

In the course of my reading on the subject of gender the other day, I came across the attached article. You may have seen it yourself before in your literature review, but it is definitely the most germane piece that I've seen to the topic of prostate cancer's impact on self-perception of " being a man " . I think that you are onto something when you suggest that there may be variability on the scoring of the " feel like a man " question on your survey based on treatment modality. The attached article gives some interesting perspective to the effects of hormone therapy which I had not considered. If you haven't read this article, I'm sure you will find it very interesting. If you have read it, then just recognize that I am new to cancer issues and did not pay much attention to its psychosocial effects until being diagnosed myself.

There is no question that a prostatectomy (or any other tx modality for prostate cancer, I believe) has a devastating impact on sexuality, much as breast cancer does in women. However, gender-image is a something different and, I think, which is only indirectly related to " functions " that you mention (

e.g. penile erection, vaginal lubrication, libido, etc.) and the two are worthy of clear distinction. What I mean is, I think that it's entirely within the realm of possibility for a man or a woman to have totally lost al physical ability for and interest in erotic sexual expression of any kind; and yet his or her identity as and feeling of being a man or a woman remain fully intact. Hormone treatment may have a different result, though even with a man receiving estrogen, for example, there remains some element of acculturation with respect to his IDEAS about taking estrogen and the impact that so-called " female hormones " have on his " manhood " . I place " female hormones " in quotation marks since the fact is that both women and men have a certain level of both " male " and " female " hormones naturally. They are labeled as such more because of their chemical function with respect to human reproduction, rather than (once again) gender identity.

Of course I'm over-thinking, I realize. But with another two weeks remaining before I return to work, what else have I to do besides sit at the computer and contemplate my navel (or whatever)?

Thanks again for your enjoyable replies. As I said, please keep me in mind for a copy of your study when you're ready to do so.

You also have a wonderful Christmas holiday. And thanks so much for your kind thoughts.

Sincerely,

Tom

Hi Tom,Thank you for your post and also your email. I will be replying toyour email; I have just been flying all over the place trying to getas many questionnaires done before christmas as possible. It is going

really well though and it has helped me immensely to have yourinsight. I especially enjoyed reading your blog and the thoughtprocesses created by the questionnaire. It will be interesting to seehow that particular question (

i.e. I am able to feel like a man) isanswered by people. It may be that it is difficult for participantsto define what to be a man actually is, as you have discussed in yourblog. I am also looking into quality of life in breast cancer, so the

same question is offered to women (i.e. I am able to feel like awoman). It will be interesting to see if there are any differencesbetween the groups. For example, is the definition of 'woman' easier

to interpret dut to female portrayal in the media, etc. It may evenbe that the question only has true meaning to those who have lostparticular functions that make them feel like a man/woman. This inturn may be influenced by treatment type. Whatever the case may be, I

wonder if such a difficulty in question interpretation will affect anyof the other questions too? I will most certainly be keeping this inmind when I analyse the results.Thank you for the food for though, Tom. If you have anymore thoughts

on this, please do share. In the meantime, have a wonderful Christmas!Best Wishes,Nicola> Hi Nicola.> > The questionnaire was interesting. Keep me on your mailing list in case

> there's anything else I can do.> > I don't know if this will interest you or not, but this morning Iwrote a> blog entry based on thoughts generated by one of the items on your

> questionnaire. (Actually, it was written as two separate pieces; thefirst,> as a note posted in a newsgroup, and the second shortly afterawakening this> morning with some rather academic dream content still fresh in my

mind.) See> http://tomrue.net/?q=gender> > Hope you don't mind the mention of your project. Let me know if

anything is> misrepresented.> > Best wishes,> Tom> > > > > > > >

> > Thank you to everyone who has contacted me again regarding the> > questionnaires. I am slowly but surely getting closer to the 200> > questionnaires that I need. I couldn't have done it without you!

> >> > Best Wishes,> >> > Nicola> >> > > >> > > > -- > /}> @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::>

> \} http://tomrue.net>

http://vitruvian.tomrue.net> -- /} @#####{ ]::::::::::::::::::::::::::::::::::::::::::::::::> \} http://tomrue.net

http://vitruvian.tomrue.net

[Guest guest]

Hi All,

How was everyones Christmas? Does anyone have any plans for the New

Year? My Christmas was just me, my boyfriend, and my two cats . . . just

how I like it :0)

All the Best,

Nicola

>

> Hello Everyone,

>

> I hope this post finds you all well. I posted a few weeks back asking

> if anyone would be willing to complete two questionnaires for me.

> These questionnaires are aimed at evaluating the quality of life

> individuals with prostate cancer, with the possibility of obtaining

> funding to create a quality of life intervention of some sort.

>

> I had a good response to my last post, but I still need more in order

> to hit the 200 mark. If anyone would be kind enough to spare some

> time, I would really appreciate it. If you are interested, please

> contact me at:

>

> nicnac234@...

>

> In the meantime, a huge THANK YOU to all of those who have already

> completed questionnaires for me; it has been such a help to my

endeavours.

>

> Best Wishes,

>

> Nicola

>

[Guest guest]

Will be in Breckenridge CO, skiing that day.

Lets not break a leg.

Dan

--- Nicola wrote:

> Hi All,

>

> How was everyones Christmas? Does anyone have any

> plans for the New

> Year? My Christmas was just me, my boyfriend, and my

> two cats . . . just

> how I like it :0)

>

> All the Best,

>

> Nicola

>

>

>

>

>

> >

> > Hello Everyone,

> >

> > I hope this post finds you all well. I posted a

> few weeks back asking

> > if anyone would be willing to complete two

> questionnaires for me.

> > These questionnaires are aimed at evaluating the

> quality of life

> > individuals with prostate cancer, with the

> possibility of obtaining

> > funding to create a quality of life intervention

> of some sort.

> >

> > I had a good response to my last post, but I still

> need more in order

> > to hit the 200 mark. If anyone would be kind

> enough to spare some

> > time, I would really appreciate it. If you are

> interested, please

> > contact me at:

> >

> > nicnac234@...

> >

> > In the meantime, a huge THANK YOU to all of those

> who have already

> > completed questionnaires for me; it has been such

> a help to my

> endeavours.

> >

> > Best Wishes,

> >

> > Nicola

> >

>

>

>

__________________________________________________

[Guest guest]

Nicola, I had a great Christmas with many of the family visiting. New years will be quiet as I will be studying for my pilot exams in January.Nicola wrote: Hi All, How was everyones Christmas? Does anyone have any plans for the New Year? My Christmas was just me, my boyfriend, and my two cats . . . just how I like it :0) All the Best, Nicola > > Hello Everyone, > > I hope this post finds you all well. I posted a few weeks back asking > if anyone would be willing to complete two questionnaires for me. > These questionnaires are aimed at evaluating the quality of life > individuals with prostate cancer, with the possibility of obtaining > funding to create a quality of life intervention of some sort. > > I had a good response to my last post, but I still need more in order > to hit the 200 mark. If anyone would be kind enough to spare some > time, I would really appreciate it. If you are interested, please > contact me at: > > nicnac234@... > > In the meantime, a huge THANK YOU to all of those who have

already > completed questionnaires for me; it has been such a help to my endeavours. > > Best Wishes, > > Nicola > __________________________________________________

[Guest guest]

Hope you didn't break a leg, Dan! wishing you the best for 2007,

Nicola

>

> Will be in Breckenridge CO, skiing that day.

>

> Lets not break a leg.

>

> Dan

>

[Guest guest]

Hi ,

I am pleased you enjoyed your Christmas. It sounds like the beginning

of 2007 is going to ve very busy for you. When are your actual exams?

I wish you the very best of luck with them. Let us know how it goes!

Best Wishes,

Nicola

>

> Nicola,

> I had a great Christmas with many of the family visiting. New

years will be quiet as I will be studying for my pilot exams in January.

>

>

[Guest guest]

Hi Everyone,

I hope you are all enjoying 2007! I am still working hard on my

research in the hope of improving quality of life in individuals with

cancer. I am getting much closer to having 200 responses, so if

anyone could help me get to that mark, I would really appreciate it.

Sorry to be such a pain!

Best Wishes,

Nicola

>

> Hello Everyone,

>

> I hope this post finds you all well. I posted a few weeks back asking

> if anyone would be willing to complete two questionnaires for me.

> These questionnaires are aimed at evaluating the quality of life

> individuals with prostate cancer, with the possibility of obtaining

> funding to create a quality of life intervention of some sort.

>

> I had a good response to my last post, but I still need more in order

> to hit the 200 mark. If anyone would be kind enough to spare some

> time, I would really appreciate it. If you are interested, please

> contact me at:

>

> nicnac234@...

>

> In the meantime, a huge THANK YOU to all of those who have already

> completed questionnaires for me; it has been such a help to my

endeavours.

>

> Best Wishes,

>

> Nicola

>