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Re: Don't do RAI....why?

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RAI will not shrink the hot nodule.. RAI will kill part, or all, of the

thyroid gland. They are hoping that the nodule will shrink if the thyroid

tissue around it is dead.

.... although, since I'm not an expert at this.. it's possible that when

the thyroid tissue absorbs the radioactive iodine and concentrates it

there that the radiation surrounding the nodule will affect it...

.... anybody else have any thoughts or knowledge????

Surgery would remove the nodule and the surrounding thyroid tissue, they

may even take the entire lobe... leaving the rest of the gland to see if

it can kick up production to replace what was lost... You most likely

will need thyroid hormone replacement...

RAI would kill part, or all, of the gland. May or may not reduce the

nodule... could leave you with no gland at all.... and it is radiation

that you are exposing yourself to.. I had it done 15 years ago.... so far

I'm okay... but.... no on can say what will happen as time goes by... I

wasn't given a choice.. whole long story... basically.. RAI or die. Sign

this release form or no RAI. RAI is done, but you may still die.

Here, take this pill every morning and you'll be good as new.

... I won't comment on the last line.. I'm sure many of you are already

thinking what I'm not writing!

Topper ()

On Thu, 06 May 2004 13:07:56 -0000 " jules_4827 "

writes:

> Hello! Since my endo has told me that I need RAI treatment to

> shrink

> my hot nodule, I have read a lot of " don't do it " . But, my

> question

> is...WHY? Can anyone explain to me what the reason is. I am

> really

> struggling with this. I have been told that my only other option

> would be surgery. But my endo is totally against surgery at this

> point. What would I benefit from surgery that I wouldn't from RAI?

> Sorry...I am just trying to weigh out my options and try to make

> the right/smart decision.

> This is the endo, by the way, that I had a horrible experience with

> the other day. He is listed on the internet as one of the best in the

> world. Should I consider that before wanting to switch endo's. Or

> does that not mean jack? And if I do switch...do I need to be

> referred since it is a specialist?

>

> Thanks in advance for any help I can get!!!!!!!!!!!!

>

>

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>>>Here, take this pill every morning and you'll be good as new.

... I won't comment on the last line.. I'm sure many of you are

already

thinking what I'm not writing!<<<<

This is what it's all about - isn't it? Quality of life? the doctors

are all about the numbers. My doctor told me hypothyroidism

was 'preferable' because the medications were [more] benign.

How comforting. Except - I get the distinct feeling that there's

more he isn't telling me.

I am NOT a fan of surgery. this one - in particular - scares em

silly. But at least you give your body the chance to heal. RAI makes

that impossible. I hate thinking about it because I do noting but

spin myself in circles.

> RAI will not shrink the hot nodule.. RAI will kill part, or all,

of the

> thyroid gland. They are hoping that the nodule will shrink if the

thyroid

> tissue around it is dead.

>

> ... although, since I'm not an expert at this.. it's possible that

when

> the thyroid tissue absorbs the radioactive iodine and concentrates

it

> there that the radiation surrounding the nodule will affect it...

>

> ... anybody else have any thoughts or knowledge????

>

> Surgery would remove the nodule and the surrounding thyroid

tissue, they

> may even take the entire lobe... leaving the rest of the gland to

see if

> it can kick up production to replace what was lost... You most

likely

> will need thyroid hormone replacement...

>

> RAI would kill part, or all, of the gland. May or may not reduce

the

> nodule... could leave you with no gland at all.... and it is

radiation

> that you are exposing yourself to.. I had it done 15 years ago....

so far

> I'm okay... but.... no on can say what will happen as time goes

by... I

> wasn't given a choice.. whole long story... basically.. RAI or

die. Sign

> this release form or no RAI. RAI is done, but you may still die.

>

> Here, take this pill every morning and you'll be good as new.

>

> .. I won't comment on the last line.. I'm sure many of you are

already

> thinking what I'm not writing!

>

> Topper ()

>

> On Thu, 06 May 2004 13:07:56 -0000 " jules_4827 " <jules_4827@y...>

> writes:

> > Hello! Since my endo has told me that I need RAI treatment to

> > shrink

> > my hot nodule, I have read a lot of " don't do it " . But, my

> > question

> > is...WHY? Can anyone explain to me what the reason is. I am

> > really

> > struggling with this. I have been told that my only other option

> > would be surgery. But my endo is totally against surgery at this

> > point. What would I benefit from surgery that I wouldn't from

RAI?

> > Sorry...I am just trying to weigh out my options and try to make

> > the right/smart decision.

> > This is the endo, by the way, that I had a horrible experience

with

> > the other day. He is listed on the internet as one of the best

in the

> > world. Should I consider that before wanting to switch endo's.

Or

> > does that not mean jack? And if I do switch...do I need to be

> > referred since it is a specialist?

> >

> > Thanks in advance for any help I can get!!!!!!!!!!!!

> >

> >

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Guest guest

Hi, IMHO,

GET A SECOND OPINION!!!!!!!!!!!!!!

Gossimer

> Hello! Since my endo has told me that I need RAI treatment to

shrink

> my hot nodule, I have read a lot of " don't do it " . But, my

question

> is...WHY? Can anyone explain to me what the reason is. I am

really

> struggling with this. I have been told that my only other option

> would be surgery. But my endo is totally against surgery at this

> point. What would I benefit from surgery that I wouldn't from

RAI?

>

> Sorry...I am just trying to weigh out my options and try to make

the

> right/smart decision.

>

> This is the endo, by the way, that I had a horrible experience with

> the other day. He is listed on the internet as one of the best in

the

> world. Should I consider that before wanting to switch endo's. Or

> does that not mean jack? And if I do switch...do I need to be

> referred since it is a specialist?

>

> Thanks in advance for any help I can get!!!!!!!!!!!!

>

>

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