Guest guest Posted November 28, 2002 Report Share Posted November 28, 2002 , I'm glad is doing okay, sounds like he's got that good ol' CHARGE stubborn streak... he'll show those docs!!!! Keep us posted... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 billy did fine with the surgery itself... he has a temp that he has had since he came out ...his heart rate is up and his trach secretions are off colored but he isnt acting to bad ......he is no longer BLUE not even his finger and toe nails but boy is he a BRAT ....He took himself of the vent about 5 times took out his urinary cath. an IV and all his probes and was working on his chest tube when the decided they better paralize him.. he did all this with his hands tyed down.. the sedation they gave his clearly didnt work ....He was so mad and it was all because of his arms being tyed down I kept trying to tell them that but of course they wouldnt listen till yesterday morning when they went to clean him up and as soon as they let him loose he calmed right down ... he isnt out of the wood yet but last night his temp and his heart rated started coming down so HOPEFULLy he will be ok ..He truely is an amazing kid ...he wasnt acting like he was in pain just really really mad it would of been funny if he wasnt going to hurt himself...he got his insicion bleeding pretty good so I got to see that when they changed the bandage it didnt look bad at all ..I can now suuction him with the vent....I guess that it for now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2002 Report Share Posted November 29, 2002 , its good to hear from you and also to know that did fine with the surgery, mother always knows what to do best with her child, youve proved it once again. LOL Pushpa grandma to Aman 13 months Keep your face to the sunshine and you can never see the shadows----- Helen Keller. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2002 Report Share Posted November 29, 2002 the temp is down and they are now weaning him from the vent WWWWWWOOOOOOOOO HHHHHHHOOOOO he is doing great!!!!!!!!!MAry , This is wonderful news... He'll be home before you know it... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2002 Report Share Posted November 29, 2002 - From the keyboard of slush1227: > the temp is down and they are now weaning him from the vent WWWWWWOOOOOOOOO HHHHHHHOOOOO he is doing great!!!!!!!!!MAry That is good news!! Glad the surgery went well also!! Hugs, Debbie -- + Debbie Tropiano -- debbie@... -- http://www.icus.com/personal.html + | Mommy to b: 8/17/1995, ^Sara^ b: 10/25/2000 d: 11/7/2000 & | | Leah b: 10/17/2001 a: 9/26/2002 " God shows His opposition to cancer and | | birth defects, not by eliminating them or making them happen only to bad | | people (He can't do that), but by summoning forth friends and neighbors | + to ease the burden and to fill the emptiness. " -- Harold S. Kushner + Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , That's great news. Hope he continues to improve Elaine Mum to Elise (10yrs) & Jack (5yrs) CHaRGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 , That is hilarious about him playing you guys like that and I think very typical with these guys. THey sure know how to manipulate everything and everyone....they are pretty smart...good luck - we are still dealing with Queen Manipulator... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Hello to all .... WE made it home for Christmas ...hopefully we will stay here for a while this time but at this point I am not holding my breath....I never got any christmas shopping done luckly is to small to know the diffenrnce and being in the hospital the weekend before Christmas they sure make up for it every group possible had a asanta come threw and hand out toys (usually giant stuffed animals) it took two car loads to get all the gifts home so he still made out like a bandit.. Here is a good question for all of you ...How do you keeps your kids from becoming super brats??? this kid is becoming very very monipultive I can not beieve some of the things he has been doing like he was sitting there the other day looking like he was crying his eyes out ( he has the trach so e make no noise when he crys) so I asked him what was wrong and he starts laughing like it was the funniest joke he ever did ...thats is his favorite one right now he has been doing it to get out of every thing (like chst PT physical theropy ect.ect.ect. and it is so hard to not laugh at hi whenhe does it HELP http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets http://community.webtv.net/maryechick12/birthdayboy Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2002 Report Share Posted December 25, 2002 I am new to this group, so I don't know anything about .. but if it helps, the old story of " The Little Boy Who Cried Wolf " is appropriate for situations like this. God Bless everyone and have a safe Holiday Season! Suzi ~ ~ o Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 He is funny when you know he is just being a brat LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets http://community.webtv.net/maryechick12/birthdayboy Quote Link to comment Share on other sites More sharing options...
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