Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 : I sure wish my son was on the SCD diet back then. I sure wish I knew about all the things that I know now. My son had very very similar behavior as your son. He didn't have the gastro problem as much either however as he got older his diarrhea was out of control-5-6yrs old. If you breastfeed I suppose your wife would have to be on the SCD diet too but then I am not sure if it is reccomended to wean for the SCD diet. . If your son has bad rages now imagine him at 8-9yrs old. My son is almost as big as I am and last year before the diet he threw me against the bookshelf and I have a messed up a herniated disc in my neck and shoulder. My daughters had bruises on their necks from him grabbing them. He was nearly hospitalized as he became homicidal/suicidal. We were walking on eggshells trying to appease him just to avoid a rage. Please do the diet! It could save his life and others. Also I have heard from many others including what I have seen with one of my daughters that they are more willing to eat a varied amount of food. My son was really picky at that age but then it got better as he got older. We are on other supplements and medications. If you want more info you can email me at c.char@... Carolyn New to Diet My son is 22 months and has been diagnosed ASD at about 18 months (we suspected it earlier). He has multiple speech and developmental delays and often has viloent, uncontrollable tantrums. He is engaged most of the time and eye contact is quite good, but we never really know what will set him off. His diet is terribble and limited, consisting of GF Pancakes and Waffles, Chicken Nuggets, Pear Sauce, and PBJ. We are starting him on the SCD diet. My wife and I to say least are overwhelmed. A couple questions come to mind. Is is common for a child to not have any noticeable digestive problems (i.e. diarhea ect..) and still need this diet? Secondly, after being on the diet for a period of time, do the children become more open to different varieties of food? Finally he still breast feeds and we are unsure when it is would be beneficial to ween him since it is his main source of comfort during his melt downs. Our son is so limited on what he will eat, I guess I'm just looking for some encouraging responses. Any info would be appreciated. Father of 22 months ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 , please e-mail me privately at ActionforAngels@... New to Diet My son is 22 months and has been diagnosed ASD at about 18 months (we suspected it earlier). He has multiple speech and developmental delays and often has viloent, uncontrollable tantrums. He is engaged most of the time and eye contact is quite good, but we never really know what will set him off. His diet is terribble and limited, consisting of GF Pancakes and Waffles, Chicken Nuggets, Pear Sauce, and PBJ. We are starting him on the SCD diet. My wife and I to say least are overwhelmed. A couple questions come to mind. Is is common for a child to not have any noticeable digestive problems (i.e. diarhea ect..) and still need this diet? Secondly, after being on the diet for a period of time, do the children become more open to different varieties of food? Finally he still breast feeds and we are unsure when it is would be beneficial to ween him since it is his main source of comfort during his melt downs. Our son is so limited on what he will eat, I guess I'm just looking for some encouraging responses. Any info would be appreciated. Father of 22 months ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi , Over and over I've read about a decrease in tantrums, and I've seen it with my daughter. I didn't think had any particular digestive problems until we started this diet. Her stools were consistently soft, but the doctor said, " not a problem. " Now we go back and forth between balls and trophies. There are several other moms whose kids had no noticeable " poop problems " but have benefitted from this wonderful way of eating. Your son's terrible diet sounds like my daughter's terrible diet pre- SCD. Now she still eats a limited number of foods, but they are all healthy. She is just starting to eat vegetables, with some coaching. About the breastfeeding. Mom has to go SCD if he is going to continue to breastfeed. Welcome, and I hope SCD will help your son as much as it has helped so many of our children. Regards, Sue (from Pickering) Mom to , 4, formerly? ASD, SCD 9 1/2 months > My son is 22 months and has been diagnosed ASD at about 18 months > (we suspected it earlier). He has multiple speech and developmental > delays and often has viloent, uncontrollable tantrums. He is > engaged most of the time and eye contact is quite good, but we never > really know what will set him off. His diet is terribble and > limited, consisting of GF Pancakes and Waffles, Chicken Nuggets, > Pear Sauce, and PBJ. We are starting him on the SCD diet. My wife > and I to say least are overwhelmed. A couple questions come to > mind. Is is common for a child to not have any noticeable digestive > problems (i.e. diarhea ect..) and still need this diet? Secondly, > after being on the diet for a period of time, do the children become > more open to different varieties of food? Finally he still breast > feeds and we are unsure when it is would be beneficial to ween him > since it is his main source of comfort during his melt downs. Our > son is so limited on what he will eat, I guess I'm just looking for > some encouraging responses. Any info would be appreciated. > > Father of 22 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 , You asked: <<My wife and I to say least are overwhelmed.>> Don't worry..... it will get easier.... I promise! <<Is is common for a child to not have any noticeable digestive problems (i.e. diarhea ect..) and still need this diet?>> YES....or, I should say....yes, it's common for them to not have had obvious digestive problems before and still improve behavior-wise, attention-wise, etc. on SCD. <<Secondly, after being on the diet for a period of time, do the children become more open to different varieties of food?>> YES.... seems to be quite common for them to surprise their parents and eat all kinds of new things. <<Finally he still breast feeds and we are unsure when it is would be beneficial to ween him>> As someone else has already stated..... keep up the nursing but have mom go completely SCD legal herself. It's always easiest to have all the illegals out of the house anyway..... prevents the temptation to give in and give the old favorites! Patti, mom to Katera, age 7, SCD 8 months (using the diet for seizure control support) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 and family: Hope you and your family feel welcome here. I can only say " ditto " about SCD. Our 15yo (HFA, OCD, Tourette's, anxiety, etc..) is so much calmer, happier, independent, and has had wonderful cognitive gains with this diet. If you feel overwhelmed right now, then you are normal! Though ASD kids have such a wide variety of challenges, parents here understand how you feel, truely. IMO, ask LOTS of questions...join other groups also to learn about heavy metal (no, not the music!) toxicity, developmental and language milestones, educational services, etc.. but do try SCD! Make a strong committment for a certain number of months (12 would be good, evaluating it half way through) and don't be afraid of ups and downs. I'm quite certain that, when you look back, you will be more than pleased with your choice to try SCD. You and your wife are welcome to contact us off-list any time, but we all learn from ea others' posts too... Best to you, -Cheryl > My son is 22 months and has been diagnosed ASD at about 18 months > (we suspected it earlier). He has multiple speech and developmental > delays and often has viloent, uncontrollable tantrums. He is > engaged most of the time and eye contact is quite good, but we never > really know what will set him off. His diet is terribble and > limited, consisting of GF Pancakes and Waffles, Chicken Nuggets, > Pear Sauce, and PBJ. We are starting him on the SCD diet. My wife > and I to say least are overwhelmed. A couple questions come to > mind. Is is common for a child to not have any noticeable digestive > problems (i.e. diarhea ect..) and still need this diet? Secondly, > after being on the diet for a period of time, do the children become > more open to different varieties of food? Finally he still breast > feeds and we are unsure when it is would be beneficial to ween him > since it is his main source of comfort during his melt downs. Our > son is so limited on what he will eat, I guess I'm just looking for > some encouraging responses. Any info would be appreciated. > > Father of 22 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 To answer some of your questions... 1) did you stay cf when starting the diet? 1. Yes, we were CF until about 6 days ago when we started 1/4tsp. of the goat yogurt. We waited 5 months before trying the yogurt and so far so good. 2) how picky are your children? 2. From being on this list for 6 + months and talking to other parents of ASD kids, the vast majority are incredibly choosy. Don't let that scare you away, there are creative ways to transition your child to SCD if you can't or don't want to just go cold turkey. For my son, we slowly began changing the flavor of his accepted GFCF foods and then worked on textures. It took us about a month to transition to 100% legal. 3) how many of you have seen improvement? 3. My son, who will be 3 Feb. 23rd, did not regress either, and we have not seen " miraculous " results w/ SCD alone. BUT....we believe being SCD was what made it possible for the methyl B12 injections to be so effective. My son went from about 20 or so words to probably 150 plus in about 2 months and continuing. I do not believe the b12 would have worked so well without being SCD also. We did GFCF for 6 months and saw NO changes w/ either poop or behavior. For us, SCD is just one part of the answer, but a very critical one. It is healthy food that tastes good and you have total control over every ingredient. We will never go back to GFCF. Good luck to you! Thea, Zach's Mom, almost 3, ASD, SCD 5 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 1) My son was GFCF for about 2 years and GF with enzymes for about 9 months before we changed to SCD last month. When I put my son on the GFCF diet, I did both at the same time so I never knew if dairy was really necessary. I have never been convinced my son had a problem with diary but was keeping him off of it (or protected by enzymes) for fear of reaction. It was my intention to give my son the allowed dairy with enzymes when we switched to SCD. After having him on the diet for a while, I realized on a number of times I had forgotten something I fed him with dairy in it. Also, he was not always drinking his juice when I did give it to him. In retrospect, I noticed he had no reaction to dairy so I have not been giving him enzymes. 2) My son and most autistic kids is very picky. The longer he is on the SCD diet, the less picky he is. I have come to realize that pickiness is not necessarily a matter of taste but a matter of control. If he cries and protests enough, will he get me to feed him what he wants, not what he needs. I no longer let his taste buds dictate what food is put in front of him and he is now learning to like foods he never would have before. 3) My son initially had great progress with the GFCF diet. Many of his behaviours were gone early on and he became more aware. He got to a point however where he was at a standstill. He has had 2 1/2 years of speech, OT, PT and ABA yet he is still not talking. After 5 weeks of SCD I am seeing some incredible gains. His school is so excited and his ABA therapist told me she believes I have found " the answer " for my son. This is coming from a lady that also has an autistic child herself. He is saying new words everyday, he is becoming more and more independant and loves playing with his little brother now. His PT whom has worked with him since he was diagnosed 2 1/2 years ago has commented about how good his receptive language has improved in such a short time as well as how much calmer he is. > Hi, > I'm thinking of trying the diet for my 4 year old ASD son. A few > questions to those parents who are also gf/cf: > > 1) did you stay cf when starting the diet? > 2) how picky are your children? (mine only eats a handful of food-- I > looked at a sample diet and realized he wouldn't eat anything on it) > 3) how many of you have seen improvement? In many of the > testemonials I've read the parents talk about " getting their child > back " but my child did not regress---he's always been the way he is. > > I guess I'm just looking for a few opinions. My son has been on this > diet about a year and a half and I don't know that I've seen any > changes. > > Thanks. Quote Link to comment Share on other sites More sharing options...
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